12.07.2015 Views

I want to be like the others - Waverley Care

I want to be like the others - Waverley Care

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I <strong>want</strong> <strong>to</strong> <strong>be</strong> <strong>like</strong> <strong>the</strong> o<strong>the</strong>rsRecommendations1) Scottish Government should re-examine its HIV Action Plan and/or related guidance andimplementation <strong>to</strong> take account of <strong>the</strong> experiences of infected and affected children.2) Local Authorities should, in turn, <strong>be</strong> asked <strong>to</strong> give special consideration <strong>to</strong> children infectedwith, and affected by, HIV and ensure <strong>the</strong>ir inclusion in <strong>the</strong>ir integrated children’s plans.3) Financial support should <strong>be</strong> made available (from central and local government) <strong>to</strong>voluntary and o<strong>the</strong>r agencies <strong>to</strong> allow <strong>the</strong>m <strong>to</strong> maintain and extend <strong>the</strong>ir specialistprovision <strong>to</strong> children and young people infected and affected by HIV.4) HIV agencies should <strong>be</strong> funded <strong>to</strong> provide HIV training and support <strong>to</strong> practitioners in allagencies which work with parents and infected and affected children.5) NHS Boards should re-examine <strong>the</strong> provision <strong>the</strong>y currently have for teenagers with HIV,and explore whe<strong>the</strong>r an adolescent clinic should <strong>be</strong> provided in <strong>the</strong>ir area.6) There should <strong>be</strong> a new public health education campaign on HIV. This should stress <strong>the</strong>reality that HIV can affect anyone, straight or gay; white or black; adult or child.7) More targeted support should <strong>be</strong> made available <strong>to</strong> all black African families in Scotland(not only <strong>to</strong> those where <strong>the</strong>re is known <strong>to</strong> <strong>be</strong> HIV), through funding of voluntary and o<strong>the</strong>ragencies <strong>to</strong> carry out this work.8) Additional funding should <strong>be</strong> made available <strong>to</strong> areas under greatest pressure from, e.g.dispersal programmes or increased incidence <strong>to</strong> support <strong>the</strong>ir work in this area; at <strong>the</strong>same time, training on <strong>the</strong> specific needs of <strong>the</strong>se families living with HIV should <strong>be</strong>delivered <strong>to</strong> health visi<strong>to</strong>rs and children and young people’s workers.9) All Health Boards and statu<strong>to</strong>ry children’s services should look <strong>to</strong> see whe<strong>the</strong>r more might<strong>be</strong> done <strong>to</strong> support children in communities where <strong>the</strong>re are only small num<strong>be</strong>rs of affectedchildren.10) A small sum should <strong>be</strong> set aside each year <strong>to</strong> enable one service provider (from a keyvoluntary HIV or children’s agency) <strong>to</strong> bring agencies <strong>to</strong>ge<strong>the</strong>r and <strong>to</strong> act as a nationalcoordina<strong>to</strong>r and champion for HIV and children in Scotland. This could <strong>be</strong> spearheadedand managed by Scotland’s Commissioner for Children and Young People (SCCYP).11) All adults should <strong>be</strong> asked in a sensitive and supportive way about <strong>the</strong>ir parental status(num<strong>be</strong>rs and ages of children) when <strong>the</strong>y are diagnosed with HIV and pro<strong>to</strong>cols fortesting <strong>the</strong> children of HIV-positive parents must <strong>be</strong> worked out in collaboration withpatients’ and service users’ groups12) Government and NHS agencies should reconcile <strong>the</strong>ir differences in approaches <strong>to</strong>data collection in relation <strong>to</strong> infected children.xixi

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