I want to be like the others - Waverley Care

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3333I want to be like the othersThe survey has also drawn attention to wide geographical variation across HealthBoards. There is serious pressure on a small number of Health Board areas. Butthere are also small pockets of affected children across a wide part of Scotland,suggesting that the needs of those children may be even less likely to be met unlessthere is a policy shift towards offering them more support.
3434I want to be like the others4. Qualitative Study4.1 IntroductionIn total, 48 adults and children contributed to the qualitative part of the cross-sectorneeds assessment. Twenty practitioners took part in interviews in Edinburgh,Glasgow, Dundee and Aberdeen, alongside 28 adults and children in Edinburgh andGlasgow. Of these, 16 were parents and carers, five were HIV-infected children andyoung people and seven were children and young people affected by parental HIV.4.2 MethodThe cross-sector needs assessment identified from the outset a range ofstakeholders with knowledge and insight into the needs of children infected andaffected by HIV in Scotland. Those included:• Practitioners (from health and voluntary sector HIV agencies)• Parents and carers (both HIV positive and not HIV positive)• Children and young people infected with, and affected by, parental HIVThe main method of data collection used was individual, semi-structured interviews.Three interviews also met two practitioners together. Interview schedules (seeAppendices 7.2) were devised in cooperation with Steering Group members who arelisted at the beginning of this report. One group interview took place with parents andcarers in Glasgow, and operated along the lines of a focus group. (This had not beenpart of the original plan for the study, but when the Glasgow Women’s Group invitedthe interviewer to come to talk to them, this proved to be an extremely usefulopportunity not just to get feedback but also to access interviewees for the study.) Allinterviews were recorded using an MP3 digital recorder and transcribed for futureanalysis.The choice of a semi-structured format was a pragmatic response to the need to getspecific information in relation to existing services and identified needs; a more nondirectiveor narrative approach might have failed to address the central questions ofthe study (see Bechhofer and Paterson, 2000). However, the interviews were, inpractice, not rigidly structured. On the contrary, the interviewer (Dina) adopted anopen, reflective approach which allowed her to step away from the interviewschedule if, for example, an informant became distressed, or had a lot to say inrelation to a particular topic. She also, on two occasions, agreed to stop the interview
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