I want to be like the others - Waverley Care

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2121I want to be like the othersAction for Improving Sexual Health’ was launched with the aim of enhancing theprovision and accessibility of sexual health services in Scotland (Scottish Executive,2005). Funding was extended within the ‘Better Health, Better Care: Action Plan(2007), which, interestingly, makes no mention of HIV or AIDS. A review of ‘Respectand Responsibility’ published by Health Scotland (2008) claims that most of theactions taken to enhance sexual health promotion, education and service provision‘have now been delivered, and will continue to be delivered, thanks to the jointworking of agencies across Scotland’ (2008: 1) Although it is not specificallyinterested in HIV, this review does contain some possibilities for support for familieswith HIV through universal services. For example, the early years’ strategy makes acommitment to give ‘Support for parents to achieve the best outcomes for theirchildren is a key strand of the strategy which will contribute in the long term to betterhealth outcomes for children and young people’ (2008: 2). Furthermore, the sectionof education recognises that relationships, sexual health and parenthoodeducation is ‘an important part of every young person’s personal and socialdevelopment’ (2008: 3).Reviewing the government’s approach as a whole (as demonstrated in the HIVAction Plan and in the ‘Respect and Responsibility’ initiative), it is difficult to see howthis, as it is currently set out, will lead to any real improvements in the lives ofchildren in Scotland who are already infected with, and affected by, HIV. This issuewill be discussed further in the conclusion and recommendations, following on fromthe findings from our own epidemiological survey and qualitative study.
2222I want to be like the others3. Epidemiological Survey3.1 IntroductionKnowledge of the current epidemiology of HIV among children and young peoplewho are infected with HIV is of key importance in developing a deeper understandingof their needs. Equally, there is a need to know the incidence/numbers of childrenand young people who are affected by HIV. Current and accurate data of numbers ofinfected and affected children and young people is essential in the assessment ofneeds and for the planning and provision of appropriate and adequate services. Thesurvey of infected and affected children in this study is designed to report the mostup-to date picture in Scotland today.3.2 Infected Children and Young People3.2.1 MethodData in relation to the number of children and young people infected by HIV wereobtained from two main published sources: Health Protection Scotland (HPS),(previously known as the Scottish Centre for Infection and Environmental Health(SCIEH) and the Institute of Child Health (ICH) (London).Health Protection Scotland (HPS) regularly gathers information on numbers ofinfected children and young people through an extensive surveillance network,comprising of general practitioners, local authority departments, hospitals, NHShealth boards and other surveillance centres. This information is then recorded on itswebsite. 7 The Institute of Child Health (London) also undertakes extensive researchinto HIV infection in children and young people in the UK and Ireland through theNational Study of HIV in Pregnancy and Childhood (NSHPC).The presentation of data is informed by discussions with HPS’s Information ManagerMr Glenn Codere and Dr Conor Doherty, Consultant in Paediatric InfectiousDiseases at Yorkhill Hospital, Glasgow.7 See www.hps.scot.nhs.uk/surveillance/index.aspx/
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