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I want to be like the others - Waverley Care

I want to be like the others - Waverley Care

I want to be like the others - Waverley Care

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I <strong>want</strong> <strong>to</strong> <strong>be</strong> <strong>like</strong> <strong>the</strong> o<strong>the</strong>rsAcknowledgementsWe would <strong>like</strong> <strong>to</strong> thank <strong>the</strong> mem<strong>be</strong>rs of our Steering Group without whom thisstudy would not have <strong>be</strong>en possible. Special thanks go <strong>to</strong> <strong>the</strong> following peoplewho also contributed <strong>to</strong> <strong>the</strong> study in significant ways: Martha Baillie, Anne Cameron,Anne Chiswick, Glenn Codere, Brenda Colligan, Aileen Davies, Peter Davies, DrConor Doherty, Francis Emmerson, Babs Evans, Nichola Frith, Linda Hut<strong>to</strong>n, RogerIrwin, David Johnson, Helen Kay, Roy Kilpatrick, Alison Lord, Dr Gordon McKenna,Janet Masters, Dr Jacqueline Mok, Sarah Mor<strong>to</strong>n, Neil Munro, Betty Offerman, JeanPetrie, Jacqui Pollock, Eunice Sinyemu, Neil Squires, Ailsa Spindler, MaureenThompson, Rachel Thompson, Margaret Totten, Lynne Williamson, Fiona JaneWright, Mildred Zimunya. Last but by no means least, thanks must go <strong>to</strong> all <strong>the</strong>children, parents and carers who gave us <strong>the</strong>ir time and insights sogenerously. We have not <strong>be</strong>en able <strong>to</strong> name <strong>the</strong>m in <strong>the</strong> report <strong>be</strong>cause of <strong>the</strong>need for confidentiality, but it is <strong>the</strong>ir s<strong>to</strong>ries that this report seeks <strong>to</strong> tell.Steering group mem<strong>be</strong>rsDavid Johnson (Chair)Babs EvansRoy KilpatrickJacqueline MokJacqui PollockAilsa Spindler<strong>Waverley</strong> <strong>Care</strong>El<strong>to</strong>n John AIDS FoundationHIV ScotlandRoyal Hospital for Sick Children, EdinburghHIV-AIDS <strong>Care</strong>rs & Family Service Provider, ScotlandTerrence Higgins Trust, ScotlandGlossary of terms used in this reportAIDSART/ARVsBHIVACD4ECSGUMHAARTHIVHPAHPSICHNHSNSHPCSCIEHAcquired Immunodeficiency SyndromeAnti Retroviral Therapy/ Antiretroviral drugs(combinationof drugs of different classes <strong>to</strong> inhibit viral replication)British Human Immunodeficiency Virus AssociationCluster of Differentiation 4 (a glycoprotein which isimportant in assessing <strong>the</strong> immune system of peoplewith HIV)European Collaborative StudyGeni<strong>to</strong>urinary medicineHighly Active Anti Retroviral TherapyHuman Immunodeficiency VirusHealth Protection AgencyHealth Protection ScotlandInstitute of Child HealthNational Health ServiceNational Study of HIV in Pregnancy and ChildhoodScottish Centre for Infection and Environmental Healthiiii

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