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Annex 1: Inventory of indicators from surveys and registries

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TACKLING SOCIAL INEQUALITIES IN HEALTH<br />

THE ROLE OF HEALTH PROMOTION<br />

RESEARCH REPORT<br />

PREPARED BY<br />

THE FLEMISH INSTITUTE FOR HEALTH PROMOTION (VIG) IN COLLABORATION<br />

WITH THE EUROPEAN NETWORK OF HEALTH PROMOTION AGENCIES (ENHPA)


P ROJECT TEAM<br />

TIM JENNINGS , AUTHOR<br />

GERT SCHEERDER , CO-AUTHOR<br />

RIKKIE HEEMAN<br />

LINDA DE BOECK<br />

STEPHAN VAN DEN BROUCKE<br />

CATHERINE ANCION<br />

ELLY KERKHOFS<br />

PETER SIOEN<br />

LEEN VAN STRAETEN SEPTEMBER 2001<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

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Contents<br />

Project aims, objectives <strong>and</strong> methods ............................................................................... 3<br />

� Background <strong>and</strong> Introduction .......................................................................................... 3<br />

� Aims <strong>and</strong> Objectives ....................................................................................................... 4<br />

� Methodological approach ................................................................................................. 5<br />

Analysis................................................................................................................................6<br />

� Part 1: monitoring social inequalities in health.................................................................. 6<br />

� Part 2: health promotion actions <strong>and</strong> policies ................................................................. 20<br />

Findings.............................................................................................................................. 25<br />

� The National Political Environment................................................................................. 27<br />

� National Inequality Targets............................................................................................. 28<br />

� Integration...................................................................................................................... 32<br />

� Legislative support for action at regional <strong>and</strong> local levels ............................................... 33<br />

� Cross-sectoral partnerships <strong>and</strong> integrated planning locally........................................... 34<br />

� Improving access to healthcare services........................................................................ 42<br />

� Community Development ............................................................................................... 48<br />

� Migration ........................................................................................................................ 55<br />

� Evidence <strong>and</strong> the evaluation .......................................................................................... 60<br />

References ......................................................................................................................... 67<br />

Appendix 1: Organisations involved in this project ........................................................ 70<br />

� The Flemish Institute for Health Promotion (VIG) .......................................................... 70<br />

� The European Network <strong>of</strong> Health Promotion Agencies (ENHPA) .................................. 71<br />

Appendix 2: Descriptives – The National Reports........................................................... 73<br />

Appendix 3: Members <strong>of</strong> the European Network <strong>of</strong> Health promotion Agencies.......... 97<br />

Appendix 4: National co-ordinators................................................................................ 104<br />

Appendix 5: National reports: contact persons <strong>and</strong> organisations ............................. 108<br />

<strong>Annex</strong> 1: <strong>Inventory</strong> <strong>of</strong> <strong>indicators</strong> <strong>from</strong> <strong>surveys</strong> <strong>and</strong> <strong>registries</strong> ..................................... 126<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

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Background <strong>and</strong> introduction<br />

PROJECT AIMS, OBJECTIVES AND METHODS<br />

In the past decade, health promotion has become a key issue <strong>of</strong> the health policy in most<br />

western countries. Building upon the principles <strong>and</strong> strategies espoused by the WHO in its<br />

Health for All programme (WHO, 1985) <strong>and</strong> the subsequent Health 21 strategy (WHO 1999),<br />

policy-makers at the regional, national <strong>and</strong> international levels have introduced a range <strong>of</strong><br />

measures to improve the health expectancy <strong>of</strong> the population by addressing unhealthy<br />

lifestyles <strong>and</strong> health-damaging aspects in the environment. In addition to education <strong>and</strong> mass<br />

media communication (i.e., the health education strategy) these measures also include<br />

structural changes such as legislation, fiscal measures including taxation <strong>and</strong> subsidies,<br />

organisational change, <strong>and</strong> community development.<br />

Although one <strong>of</strong> the key principles <strong>of</strong> health promotion is to involve the population as a whole<br />

rather than aiming at people at risk for specific diseases, it also focuses explicitly on<br />

inequalities in health. This focus reflects the concern <strong>of</strong> policy-makers <strong>and</strong> health pr<strong>of</strong>essionals<br />

with the increasing health gap between socio-economically deprived <strong>and</strong> more advantaged<br />

groups. In all western countries, health status as measured by morbidity for major diseases,<br />

varies significantly with socio-economic status (Black et al., 1988; Marmot et al., 1991;<br />

Wilkinson, 1992).<br />

Accordingly, tackling health inequalities has become an increasing priority for health policymakers<br />

both nationally <strong>and</strong> internationally. This is exemplified by the Declaration <strong>of</strong> the 1998<br />

World Health Assembly, which confirmed that a reduction in socio-economic inequalities in<br />

health was a priority for all countries.<br />

‘We assert that all people should be <strong>of</strong>fered equal opportunities to<br />

achieve their full health potential, regardless <strong>of</strong> their position in society.<br />

Any fair <strong>and</strong> just society should consent to be evaluated on how well<br />

they fulfil this aim.<br />

Authorities in all sectors should promote equity in the opportunities for<br />

people to maintain <strong>and</strong> improve their health <strong>and</strong> thereby reduce social<br />

inequalities in health. This requires focusing on the prerequisites for<br />

health in its broadest sense, encompassing training, research <strong>and</strong><br />

practice’.<br />

Declaration, International Conference on Reducing<br />

Social Inequalities in Health, September 2000<br />

In the health strategy for Europe, Health 21, which was launched by the World Health<br />

Organisation in 1999, improving health <strong>and</strong> promoting equity were central principles (WHO<br />

1999). The European Union Action Programme on Public Health gave priority to the health <strong>of</strong><br />

disadvantaged groups.<br />

‘By the year 2020, the health gap between socio-economic groups<br />

within countries should be reduced by at least one fourth in all Member<br />

States, by substantially improving the level <strong>of</strong> health <strong>of</strong> disadvantaged<br />

groups.’<br />

WHO Health 21 Target 2: equity in health<br />

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There has been a growing recognition that inequalities are avoidable <strong>and</strong> their reduction cost<br />

effective. These views have been summarised by authors such as Woodward <strong>and</strong> Kawachi<br />

(2000), who wrote that ‘disparities in health are avoidable to the extent that they stem <strong>from</strong><br />

identifiable policy options exercised by governments, such as tax policy, regulation <strong>of</strong> business<br />

<strong>and</strong> labour, welfare benefits <strong>and</strong> healthcare funding’. They went on to say that ‘health<br />

inequalities were, in principle, amenable to policy interventions <strong>and</strong> that public health<br />

programmes that reduce health inequalities could also be cost effective. The case could be<br />

made to give priority to such programmes (for example, improving access to cervical cancer<br />

screening in low-income women) on efficiency grounds’.<br />

The association between low SES <strong>and</strong> poor health is not only due to the differential access to<br />

healthcare provision but must also be explained in terms <strong>of</strong> behavioural <strong>and</strong> environmental<br />

factors. People in lower SE positions engage in more health-damaging behaviours than the<br />

economically more advantaged (Bennett & Murphy, 1997; Thomas et al., 1992) <strong>and</strong> are more<br />

exposed to environmental hazards such as industrial toxins, air pollution <strong>and</strong> low quality<br />

housing (Martin, Platt & Hunt, 1987; Watt & Ecob, 1992). Although these factors cannot fully<br />

explain the higher morbidity <strong>and</strong> mortality rates among low SES people (Marmot, Shipley &<br />

Rose, 1984), their relationship with a poor life situation is not coincidental. It has been<br />

suggested that apart <strong>from</strong> its direct impact on health through physical causes, a low st<strong>and</strong>ard<br />

<strong>of</strong> living also influences health indirectly, by mediation <strong>of</strong> social <strong>and</strong> psychological processes<br />

such as stress, perceived control, communication skills, social norms, or social support<br />

(Bennett & Murphy, 1997).<br />

In accordance with these views, it is suggested that health promotion can play a major role in<br />

tackling health inequalities. At the same time, however, it is also recognised that traditional<br />

methods <strong>of</strong> health education, such as mass media campaigns or information sessions aimed<br />

at influencing health-related cognition’s or attitudes, are ineffective to reach disadvantaged<br />

groups (Labonte, 1994; Travers, 1997). Instead <strong>of</strong> relying primarily on health education to<br />

change health-related lifestyles, a more effective strategy to improve the health <strong>of</strong> socioeconomically<br />

disadvantaged people is probably to bring about structural or organisational<br />

changes, creating a physical, economic <strong>and</strong> social environment that facilitates health.<br />

Despite the overall agreement that the reduction <strong>of</strong> social inequalities in health is a major<br />

priority, <strong>and</strong> that health promotion may significantly contribute to this goal, there is a lack <strong>of</strong><br />

clear guidelines as to which policies <strong>and</strong> health promotion interventions are effective in<br />

reducing social inequalities in health. As such, there is a need to draw <strong>from</strong> the experience<br />

that is building up in several European countries.<br />

The project presented in this document set out to identify policies <strong>and</strong> health promotion<br />

interventions across Europe, which sought to tackle health inequalities, <strong>and</strong> to identify<br />

monitoring systems that can support these policies <strong>and</strong> interventions.<br />

Aims <strong>and</strong> objectives<br />

The project’s overall aims were to:<br />

• Examine the availability <strong>and</strong> extent <strong>of</strong> information with regard to social inequalities related<br />

to health promotion in the different European countries.<br />

• Develop policies <strong>and</strong> strategies in relation to the reduction <strong>of</strong> inequalities in health through<br />

health promotion.<br />

• Move towards a consensus on actions at a European level.<br />

Its objectives were to:<br />

• Develop a ‘state <strong>of</strong> the art’ <strong>of</strong> health monitoring systems <strong>and</strong> <strong>indicators</strong> related to social<br />

inequalities by carrying out a systematic literature survey.<br />

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• Develop a ’state <strong>of</strong> the art’ concerning the practice <strong>of</strong> tackling health inequalities within<br />

the context <strong>of</strong> health promotion by comparing <strong>and</strong> contrasting evidence drawn <strong>from</strong><br />

reports developed by member countries.<br />

• Provide strategic recommendations on future work on health inequalities in the<br />

European Union.<br />

• Improve the exchange <strong>of</strong> information between Member States.<br />

Methodological Approach<br />

To reach these objectives, a tw<strong>of</strong>old approach was used. To assess the availability <strong>and</strong> extent<br />

<strong>of</strong> information related to social inequalities in health within Europe, a systematic literature<br />

survey <strong>of</strong> health monitoring systems <strong>and</strong> <strong>indicators</strong> in EU member countries was performed,<br />

using Nutbeam’s (1998) health promotion outcome model as a theoretical framework.<br />

For the second str<strong>and</strong> <strong>of</strong> the project, focusing on the practice <strong>of</strong> tackling health inequalities<br />

through health promotion <strong>and</strong> on the policy environment, key informants were selected in each<br />

member country to collect data <strong>and</strong> supply information, in the form <strong>of</strong> a national report, on the<br />

policies, strategies <strong>and</strong> the practice <strong>of</strong> tackling health inequalities within the context <strong>of</strong> health<br />

promotion.<br />

Both approaches will now be presented in more detail, together with their results.<br />

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ANALYSIS<br />

PART 1: MONITORING SOCIAL INQUALITIES IN HEALTH<br />

To study the availability <strong>and</strong> extent <strong>of</strong> information related to social inequalities in health, for the<br />

purpose <strong>of</strong> this study, a literature search was carried out <strong>of</strong> information sources providing<br />

health <strong>indicators</strong> linked to socio-economic variables, using a series <strong>of</strong> pre-defined criteria for<br />

the inclusion <strong>of</strong> information sources. Because there are various kinds <strong>of</strong> <strong>indicators</strong> that can be<br />

collected by way <strong>of</strong> different kinds <strong>of</strong> information systems, a theoretical framework was chosen<br />

to allow for a systematic review <strong>and</strong> analysis <strong>of</strong> the various <strong>indicators</strong> that were identified.<br />

Theoretical framework<br />

hen monitoring socio-economic inequalities in health, numerous <strong>indicators</strong> at different levels<br />

can be informative <strong>and</strong> need to be looked at. To consider these <strong>indicators</strong> for the purpose <strong>of</strong><br />

this study, we opted for the model for health promotion outcomes developed by Nutbeam<br />

(1998). In this model, which is represented in Figure 1, four levels <strong>of</strong> <strong>indicators</strong> are identified<br />

for each <strong>of</strong> three different types <strong>of</strong> health promotion interventions (i.e., health education,<br />

facilitation <strong>and</strong> advocacy). The <strong>indicators</strong> range <strong>from</strong> distal too proximal. The most distal<br />

<strong>indicators</strong> provide information on the final outcomes <strong>of</strong> health interventions, i.e. mortality <strong>and</strong><br />

morbidity. Morbidity <strong>indicators</strong> include chronic disease or disability, as well as perceived<br />

general health <strong>and</strong> mental health. On a second level, intermediate health outcomes are<br />

identified, which refer to determinants <strong>of</strong> health. These include lifestyle <strong>and</strong> environmental<br />

variables, as well as the quality <strong>of</strong> health services. On the third level, more proximal <strong>indicators</strong><br />

are given, i.e. <strong>indicators</strong> that are more closely linked to the immediate output <strong>of</strong> health<br />

promotion interventions, such as health literacy, social mobilisation 1 <strong>and</strong> organisational<br />

change, <strong>and</strong> public health policies. Finally, on the lowest level, <strong>indicators</strong> are provided which<br />

describe the health promotion actions themselves.<br />

These health <strong>indicators</strong> can be linked to measures <strong>of</strong> socio-economic status, such as<br />

occupation, education <strong>and</strong> income level, or with variables referring to ethnicity, gender <strong>and</strong><br />

age. This way, the distal <strong>indicators</strong> on the top level <strong>of</strong> the model enable us to identify<br />

vulnerable groups in society, which have a higher mortality or suffer disproportionally <strong>from</strong> ill<br />

health, whereas the proximal <strong>indicators</strong> on the intermediate levels provide information on the<br />

main determinants <strong>of</strong> the health problems encountered by these groups, such as unhealthy<br />

lifestyles, poor health literacy, or improper use <strong>of</strong> healthcare.<br />

Health <strong>and</strong><br />

Social Mortality <strong>and</strong> morbidity (e.g., chronic disease, perceived health)<br />

outcomes<br />

Intermediate Healthy Lifestyles Effective Health Healthy environ-<br />

Health (e.g., smoking <strong>and</strong> services (e.g., access ments (e.g., housing,<br />

Outcomes dietary habits) to <strong>and</strong> use <strong>of</strong> services) working conditions)<br />

Health Health Literacy Social mobilisation Healthy public policy<br />

Promotion (e.g., knowledge, (e.g., community <strong>and</strong> organisational<br />

Outcomes attitudes, skills) development) practice<br />

Health<br />

Promotion Health Education Facilitation Advocacy<br />

actions<br />

Figure 1: Outcome model for health promotion (Nutbeam, 1998)<br />

1 Social mobilisation includes organised efforts to promote or enhance the actions <strong>and</strong> control <strong>of</strong> social groups over<br />

the determinants <strong>of</strong> health. This may be conceptualised as social capital or social connectedness (Nutbeam, 1998).<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

Proximal distal<br />

6


This theoretical model provides a comprehensive way to consider current health promotion<br />

practice. We therefore consider it as a useful framework for our analysis <strong>of</strong> <strong>indicators</strong><br />

regarding social inequalities <strong>and</strong> health. In order not to be too reductionism or restrictive,<br />

however, we will use it in a flexible manner. The way this model is used in this study <strong>and</strong> how<br />

the <strong>indicators</strong> are operationalised, is described in the next paragraph.<br />

Literature Search<br />

The aim <strong>of</strong> the literature search was to find out to what extent the various health <strong>indicators</strong> that<br />

are described in the Nutbeam model, as linked to socio-economic variables, are currently<br />

being collected by information systems in the member states <strong>of</strong> the EU 2 , in the accession<br />

countries 3 <strong>and</strong> on a pan-European level. To that effect, various information sources were<br />

consulted, including information <strong>from</strong> Ministries <strong>of</strong> Health <strong>and</strong> Social Affairs <strong>and</strong> <strong>from</strong> National<br />

Institutes for Statistics, reports <strong>and</strong> other information <strong>from</strong> National Institutes for Public Health<br />

or Health Promotion, review studies <strong>from</strong> the European Working Group on Socio-economic<br />

Inequalities in Health, <strong>and</strong> references <strong>from</strong> studies in international literature. The latter were<br />

identified by means <strong>of</strong> the Health-Promis database <strong>of</strong> the Health Promotion Information Centre<br />

at the Health Development Agency (HDA), using the following key words: “socio-economic<br />

status OR inequality”, “health OR mortality OR morbidity”, “cohort studies”, “NOT United<br />

States”, “NOT Canada”. Furthermore, use was made <strong>of</strong> the Sources <strong>and</strong> Methods part <strong>of</strong> the<br />

OECD 4 Health Data, <strong>and</strong> <strong>of</strong> the European Health <strong>and</strong> Safety Database (HASTE) <strong>of</strong> the<br />

European Foundation for the Improvement <strong>of</strong> Living <strong>and</strong> Working Conditions.<br />

The following criteria were used for inclusion <strong>of</strong> data in the study.<br />

a) The monitoring systems considered for the study include health <strong>surveys</strong>, <strong>surveys</strong> <strong>of</strong> living<br />

conditions, population censuses, labour force <strong>surveys</strong>, household <strong>surveys</strong>, youth <strong>surveys</strong>,<br />

mortality <strong>and</strong> birth statistics <strong>and</strong> cancer <strong>registries</strong>. These information systems were included<br />

when they were representative for the population under consideration, <strong>and</strong> intended to monitor<br />

trends either on a national level or on a regional level, if this region is responsible for health<br />

promotion <strong>and</strong>/or for the collection <strong>of</strong> data regarding the health status <strong>of</strong> its population <strong>and</strong> if it<br />

is an administrative areas <strong>of</strong> at least 1 million people. The latter criterion is also used in the<br />

Health Behaviour <strong>of</strong> School-aged Children study. Local or small-scaled studies were therefore<br />

excluded <strong>from</strong> this review. For example, the study on ‘Bridging the East-West Health Gap’ was<br />

not taken into account because its data are based on smaller areas, <strong>and</strong> the Barcelona Health<br />

Interview Survey is excluded because it only covers this city. Furthermore, to be considered<br />

for the study the monitoring systems had to be in use <strong>and</strong>/or intended to be continued in the<br />

future, have started in 1994 or later, <strong>and</strong> be available to the scientific community. Commercial<br />

marketing <strong>surveys</strong> are not taken into account.<br />

b) The health <strong>indicators</strong> considered for the study were defined according to the Nutbeam<br />

model described above. However, not all the <strong>indicators</strong> <strong>of</strong> this model were considered:<br />

<strong>indicators</strong> on the most proximal level <strong>of</strong> the model, describing health promotion actions, were<br />

not included. Although such <strong>indicators</strong> would provide valuable information, the population<br />

exposure to health promotion interventions is not systematically monitored in any <strong>of</strong> the<br />

European countries. With regard to morbidity, <strong>indicators</strong> were included which measure<br />

perceived general health, mental health <strong>and</strong> dental health, as well as information deriving <strong>from</strong><br />

cancer <strong>registries</strong>. In contrast, <strong>registries</strong> <strong>of</strong> specific or rare diseases were excluded <strong>from</strong> the<br />

study, as were studies on specific patient groups, since these by definition represent a smallscaled<br />

population that is not representative for the (sub) national population. For example, the<br />

2<br />

Austria, Belgium (Fl<strong>and</strong>ers <strong>and</strong> Wallonia), Denmark (+Greenl<strong>and</strong>), Finl<strong>and</strong>, France, Germany, Greece, Irel<strong>and</strong>,<br />

Italy, Luxembourg, the Netherl<strong>and</strong>s, Portugal, Spain (also Catalonia <strong>and</strong> the Basque country), Sweden <strong>and</strong> the<br />

United Kingdom (Engl<strong>and</strong>, Scotl<strong>and</strong>, Wales <strong>and</strong> Northern Irel<strong>and</strong>)<br />

3<br />

Czech Republic, Estonia, Hungary <strong>and</strong> Slovenia<br />

4<br />

Organisation for Economic Cooperation <strong>and</strong> Development<br />

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Sc<strong>and</strong>inavian Simvastatin Survival Study, which studies people who suffered myocardial<br />

infarction, was not taken into account. Indicators <strong>of</strong> ‘healthy lifestyle’ were separated into<br />

health promoting behaviours (e.g., diet, physical activity, use <strong>of</strong> alcohol <strong>and</strong> tobacco, use <strong>of</strong><br />

contraceptives, etc.), medical prevention (e.g., cancer screening or vaccination), <strong>and</strong> social<br />

<strong>and</strong> family relations. ‘Healthy environment’ was operationalised as housing <strong>and</strong> working<br />

conditions. For ‘health literacy’, a distinction was made between knowledge <strong>of</strong> <strong>and</strong> attitudes<br />

towards healthy behaviour <strong>and</strong> prevention. Finally, ‘healthy policy’ was defined as the extent to<br />

which people are subjected to healthy public or organisational policy, <strong>and</strong> was considered<br />

separately for the school <strong>and</strong> work setting.<br />

c) With regard to <strong>indicators</strong> <strong>of</strong> socio-economic status (SES) we mainly looked into the three<br />

measures that are generally agreed upon in the literature as operationalisations <strong>of</strong> SES, i.e.,<br />

income (household or individual), educational level <strong>and</strong> occupational class. Additionally, any<br />

available information was also considered on material belongings, on specific population<br />

groups such as immigrants (ethnicity), refugees <strong>and</strong> homeless people, <strong>and</strong> on regional origin<br />

as a measure <strong>of</strong> socio-economic status. In order to be considered for the study, the socioeconomic<br />

measures had to be available at the individual level. Aggregate measures for cities,<br />

regions, provinces, etc. were not taken into account.<br />

As a result <strong>of</strong> this literature search, an extended list was obtained <strong>of</strong> monitoring systems that<br />

link health <strong>indicators</strong> to measures <strong>of</strong> socio-economic status. This list was organised by country<br />

<strong>and</strong> submitted to the national co-ordinators in the project for review <strong>and</strong> comments. If<br />

necessary, they could consult with the experts in the area <strong>of</strong> health monitoring in their country.<br />

Results<br />

Conclusions Recommendations to policy-makers<br />

Health interview <strong>surveys</strong>, which are currently used<br />

in most EU countries provide adequate<br />

information on morbidity, perceived health status<br />

<strong>and</strong> lifestyle variables, linked to socio-economic<br />

status.<br />

Very few countries have mortality statistics related<br />

to socio-economic status.<br />

Indicators yielding information on determinants <strong>of</strong><br />

health other than lifestyle, such as health<br />

services, environmental factors, or proximal<br />

<strong>indicators</strong> <strong>of</strong> health are seldom provided.<br />

The collection <strong>of</strong> data on social inequalities<br />

related to health is complicated by a number <strong>of</strong><br />

methodological problems, such as the<br />

representativeness <strong>of</strong> samples <strong>and</strong> the use <strong>of</strong><br />

different <strong>indicators</strong> for SES.<br />

Several examples <strong>of</strong> good practice, such as the<br />

POLS survey in The Netherl<strong>and</strong>s <strong>and</strong> the HEMS<br />

survey in the United Kingdom, indicate that it is<br />

possible to obtain information on these <strong>indicators</strong><br />

in a valid <strong>and</strong> reliable way.<br />

Summary <strong>indicators</strong>, such as the Health Practices<br />

Index (HPI) have been proposed as an elegant<br />

way to describe results concisely.<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Support the development <strong>of</strong> <strong>indicators</strong><br />

<strong>and</strong> monitoring systems to measure<br />

social inequalities regarding the<br />

determinants <strong>of</strong> mortality <strong>and</strong><br />

morbidity, such as health services,<br />

health literacy <strong>and</strong> structural<br />

determinants <strong>of</strong> health<br />

� Develop guidelines for the routine<br />

collection <strong>of</strong> data regarding socioeconomic<br />

inequalities in health on a<br />

national level<br />

8


The comparison <strong>of</strong> data on social inequalities<br />

related to health across countries is <strong>of</strong>ten<br />

problematic.<br />

Examples <strong>of</strong> health monitoring systems involving<br />

more countries, such as the Finbalt Health<br />

Monitor, the Health Behaviour <strong>of</strong> School Children<br />

study (HBSC), <strong>and</strong> the Monitoring <strong>of</strong> Trends <strong>and</strong><br />

Determinants in Cardiovascular Disease (Monica),<br />

are very promising.<br />

Collecting data on social inequalities in health is a<br />

means to set targets <strong>and</strong> to evaluate the progress<br />

towards their achievement. In turn, target setting<br />

increases the need for further health information.<br />

� Establish a better co-ordination <strong>of</strong><br />

health monitoring efforts on a<br />

supranational level<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Consider the creation <strong>of</strong> a European<br />

Health Observatory or Health<br />

Monitoring System, as a new <strong>and</strong><br />

separate EU body for the organisation<br />

<strong>of</strong> health monitoring<br />

� Use the available information on social<br />

inequalities in health to refine the<br />

existing targets, focusing on specific<br />

health aspects in specific target<br />

groups or settings <strong>of</strong> low socioeconomic<br />

status.<br />

The resulting inventory <strong>of</strong> available <strong>indicators</strong> regarding social inequalities <strong>and</strong> health identified<br />

for each <strong>of</strong> the 16 countries in the study (EU countries plus Norway) is presented in <strong>Annex</strong> 1.<br />

For each country, it lists the data source, the years for which the information is available, the<br />

number <strong>of</strong> respondents <strong>and</strong> age limits, <strong>and</strong> the variables <strong>of</strong> health <strong>and</strong> socio-economic status<br />

measured. Due to poor accessibility <strong>of</strong> some information <strong>and</strong> the differences with which the<br />

national co-ordinators provided remarks <strong>and</strong> additions to the preliminary inventory, not every<br />

monitoring system could be described in the same detail. <strong>Annex</strong> 2 presents a summary<br />

overview.<br />

Figure 2 summarises the results in terms <strong>of</strong> the theoretical framework provided by the<br />

Nutbeam model. For each cell within each level, the number <strong>and</strong> percentage <strong>of</strong> EU countries<br />

plus Norway are given for which one or more indicator(s) are available.<br />

Mortality<br />

9 (56,3%)<br />

cancer perceived general health<br />

Morbidity<br />

mental health dental health<br />

6 (37,5%) 14 (87,5%) 7 (43,8%) 6 (37,5%)<br />

Lifestyle Health services Healthy environment<br />

Health promotion screening social relations access <strong>and</strong> use housing working conditions<br />

15 (93,8%) 3 (18,8%) 9 (56,3%) 10 (62,5%) 7 (43,8%) 9 (56,3%)<br />

Health literacy social organisation healthy policy <strong>and</strong> organisation<br />

knowledge attitudes school work<br />

3 (18,8%) 3 (18,8%) 2 (12,5%) 1 ( 6,3%) -<br />

Figure 2: Availability <strong>of</strong> health <strong>indicators</strong> linked to measures <strong>of</strong> socio-economic status in EU countries plus<br />

Norway, using the Nutbeam model for health promotion outcomes.<br />

9


The results indicate that for the EU countries <strong>and</strong> Norway there is a good availability <strong>of</strong><br />

monitoring systems linking <strong>indicators</strong> <strong>of</strong> socio-economic status to perceived general health<br />

(87,5%) <strong>and</strong> health promoting behaviour (93,8%). This is mainly due to the fact that most<br />

countries (14 out <strong>of</strong> 16, or 87,5%) conduct a Health Interview Survey, which generally<br />

measures perceived health status <strong>and</strong> health behaviour. However, there is a difference in the<br />

extent to which these <strong>surveys</strong> provide information on other measures <strong>of</strong> morbidity such as<br />

mental health (43,8%), on behavioural measures such as screening behaviour (18,8%) <strong>and</strong> on<br />

social relations (56,3%). Indicators on determinants <strong>of</strong> health behaviour such as health literacy<br />

(18,8%) are also less available. Information linked to socio-economic measures on the use <strong>of</strong><br />

health services (62,5%) <strong>and</strong> on housing (43,8%) <strong>and</strong> working conditions (56,3%) is available<br />

to a moderate level <strong>of</strong> EU countries, either through Health Interview Surveys, Labour Force<br />

Surveys or Surveys <strong>of</strong> Living Conditions.<br />

Information on mortality that is reliably related to socio-economic measures at the individual<br />

level is only available in 56,3% <strong>of</strong> the surveyed countries. This is due to the fact that only some<br />

countries, mainly Nordic ones, link causes <strong>of</strong> death <strong>registries</strong> to population censuses or other<br />

databases through the use <strong>of</strong> unique identification numbers for all inhabitants. In other<br />

countries this linking <strong>of</strong> data is either illegal (for example in Germany), or simply not carried<br />

out.<br />

Indicators regarding the degree <strong>of</strong> social organisation (12,5%) <strong>and</strong> regarding the extent to<br />

which people are subjected to healthy public or organisational policy (6,3%) in relation to their<br />

socio-economic status are seldom available. A possible explanation for this finding could be<br />

that these aspects do not involve personal issues, <strong>and</strong> therefore are not easily surveyed at the<br />

individual level, which is necessary to generate individual socio-economic measures.<br />

In addition to national data, there are also a few monitoring systems, which link health<br />

<strong>indicators</strong> to measures <strong>of</strong> socio-economic status on a pan-European level. Some <strong>of</strong> these<br />

monitoring systems, like the Finbalt Health Monitor, are based on the co-operation between<br />

selected countries. Others cover (almost) all EU-countries, <strong>and</strong> are either carried out by one<br />

European institution in all countries (e.g., the Eurobarometer studies), or by different agencies<br />

for each country (e.g., the Health Behaviour in School-aged Children study). The former type<br />

is generally more uniform <strong>and</strong> comparable than the latter. With the exception <strong>of</strong> the HBSC<br />

study <strong>and</strong> the Finbalt Health Monitor, these monitoring systems are generally not developed in<br />

order to monitor national trends, but to provide a comparison between European countries.<br />

The samples surveyed are most <strong>of</strong>ten smaller than the ones for national <strong>surveys</strong>, <strong>and</strong> the<br />

degree to which they are their representative is not always guaranteed.<br />

Nevertheless, these European-wide <strong>surveys</strong> provide a useful addition to the national <strong>surveys</strong>,<br />

<strong>and</strong> shed light on several health <strong>indicators</strong> linked to measures <strong>of</strong> socio-economic status that<br />

are not available at the level <strong>of</strong> some individual countries. The European Community<br />

Household Panel Study (ECHP), for example, provides information about the use <strong>of</strong> health<br />

services, housing conditions, mental health <strong>and</strong> social relations related to socio-economic<br />

status for all EU-countries except Sweden. In a similar vein, the Eurobarometer studies <strong>of</strong>fer<br />

information about screening behaviour <strong>and</strong> working conditions. The HBSC study also fills a<br />

gap in the available information, by providing health <strong>indicators</strong> related to socio-economic<br />

status for children aged 11, 13 <strong>and</strong> 15 years old. Most <strong>of</strong> the <strong>surveys</strong> in the individual countries<br />

only take into account people <strong>of</strong> 16 years <strong>and</strong> older.<br />

The available information in the accession countries is not analysed in the same detail as for<br />

the EU member countries due to a lack <strong>of</strong> resources. However, the results <strong>of</strong> the literature<br />

search for these countries are given in the inventory in <strong>Annex</strong> 1. From these results it can be<br />

inferred that there is a reasonable amount <strong>of</strong> health information available in the Czech<br />

Republic <strong>and</strong> Hungary. Both countries carry out a Health Interview Survey. This is also the<br />

case in Estonia, through its co-operation with Finl<strong>and</strong>.<br />

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Examples <strong>of</strong> good practice<br />

Of the many data sources retrieved, some st<strong>and</strong> out as examples <strong>of</strong> good monitoring practice,<br />

either because <strong>of</strong> their innovative approach or their broad scope <strong>of</strong> <strong>indicators</strong>. Because these<br />

examples can be a source <strong>of</strong> inspiration for other countries, we will discuss them in more<br />

detail.<br />

Finl<strong>and</strong> <strong>and</strong> Baltic Countries: Finbalt Health Monitor<br />

The Finbalt Health Monitor is a collaborative system for monitoring health behaviour <strong>and</strong><br />

related factors in Estonia, Finl<strong>and</strong>, Latvia <strong>and</strong> Lithuania. It is a very comprehensive health<br />

survey, providing information on a broad range <strong>of</strong> <strong>indicators</strong> at different levels <strong>of</strong> the Nutbeam<br />

model. It is also a good example <strong>of</strong> co-operation between various countries with a different<br />

public health status <strong>and</strong> a different level <strong>of</strong> experience in health monitoring.<br />

This monitoring system originated <strong>from</strong> a survey in Finl<strong>and</strong>, the ‘Health Behaviour among<br />

Finnish Adult Population’ (AVTK), which was set up in 1978 <strong>and</strong> conducted annually. In 1990,<br />

a similar monitoring system was launched in Estonia, in collaboration with the National Public<br />

Health Institute <strong>of</strong> Finl<strong>and</strong> (KTL). Lithuania joined the system in 1994, <strong>and</strong> Latvia in 1998.<br />

Each participating country is responsible for the national data collection <strong>and</strong> analysis, whereas<br />

the Finnish centre co-ordinates the collaboration between the national research teams <strong>and</strong> is<br />

responsible for comparative analysis.<br />

Despite the cultural <strong>and</strong> socio-economic differences between the countries, the system <strong>of</strong> a biannual<br />

self-assessment mail survey has been relatively easy to transfer <strong>from</strong> one country to<br />

another. The survey contains core questions that are obligatory, recommended or optional for<br />

each country, <strong>and</strong> supplementary questions which individual countries can add depending <strong>of</strong><br />

local interests. The core questions in the survey have remained unchanged in order to ensure<br />

comparability over time. Aside form socio-economic information (years <strong>of</strong> schooling <strong>and</strong> type<br />

<strong>of</strong> work), height <strong>and</strong> weight, these questions deal with health status (including mental <strong>and</strong> oral<br />

health) <strong>and</strong> several behavioural measures, such as the use <strong>of</strong> health services (e.g. visits to the<br />

GP), smoking, food habits, alcohol consumption, physical activity <strong>and</strong> traffic safety. Questions<br />

about the opinion on health <strong>and</strong> health policy are optional, as are questions on behaviour<br />

change intentions <strong>and</strong> attempts <strong>and</strong> exposure to health promotion interventions. The latter are<br />

mainly used in the smoking section.<br />

A feasibility study revealed that the response rates for this survey are relatively high (ranging<br />

<strong>from</strong> 64% in Lithuania to 77% in Latvia, as a mean for the period 1994-1998). Late responders<br />

do not differ significantly <strong>from</strong> early responders, <strong>and</strong> the proportion <strong>of</strong> missing data is low, with<br />

the exception <strong>of</strong> some food-related questions. The final data can be used to compare time<br />

trends <strong>and</strong> patterns <strong>of</strong> health behaviour in the participating countries. In addition to providing<br />

public information <strong>and</strong> serving the program planning <strong>and</strong> evaluation needs <strong>of</strong> the individual<br />

countries, the system also produces data that can be used for comparative research on health<br />

behaviour across countries (Prattle et al., 1999).<br />

The Netherl<strong>and</strong>s: Permanent Survey <strong>of</strong> Living Conditions<br />

The Permanent Survey <strong>of</strong> Living Conditions (Permanent Onderzoek naar de Leefsituatie,<br />

POLS) is a large, continuous survey <strong>of</strong> different aspects <strong>of</strong> living conditions in The<br />

Netherl<strong>and</strong>s. Since 1997, it integrates a number <strong>of</strong> <strong>surveys</strong> which previously existed<br />

separately, thus enabling data provision on almost all types <strong>of</strong> <strong>indicators</strong> on health <strong>and</strong> wellbeing<br />

identified in the model <strong>of</strong> Nutbeam, including health, working conditions, living<br />

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conditions, safety, protection <strong>of</strong> rights <strong>and</strong> leisure time spending. The survey comprises a<br />

basic questionnaire <strong>and</strong> several modules on specific topics. All participants received the basic<br />

questionnaire, which includes background information <strong>and</strong> general characteristics <strong>of</strong> living<br />

conditions. Indicators <strong>of</strong> socio-economic status in this questionnaire are the level <strong>of</strong> education,<br />

occupation, health insurance, household income, material belongings, ethnicity, geographic<br />

area, degree <strong>of</strong> urbanisation <strong>and</strong> neighbourhood characteristics. Questionnaires on the<br />

different modules are only given to a subsection.<br />

The most relevant module with regard to the present review concerns ‘health <strong>and</strong> work’. This<br />

module aims to provide detailed information on health status <strong>and</strong> disabilities; the use <strong>of</strong><br />

healthcare <strong>and</strong> medication; lifestyle, including preventive behaviour; social support; <strong>and</strong><br />

working conditions (including shift work, noise, smell, danger, physical strains, monotony, <strong>and</strong><br />

overall job satisfaction). A second module deals with youth, <strong>and</strong> is targeted at 12 to 30 years<br />

olds. It aims to measure aspects <strong>of</strong> living conditions that are especially relevant to this age<br />

group, such as sexuality, risky behaviour, attitude towards school, educational climate at<br />

home, problems with parents, <strong>and</strong> age <strong>of</strong> leaving home. The module on participation includes<br />

data on feelings <strong>of</strong> (un) safety, police services <strong>and</strong> participation in civilian life. There are also<br />

modules on leisure time spending, law <strong>and</strong> criminality <strong>and</strong> natural environment. A separate<br />

module on living conditions calculates an index <strong>of</strong> living conditions based on housing<br />

conditions, living environment, working environment <strong>and</strong> social relations.<br />

United Kingdom: Health Education Monitoring System (HEMS)<br />

The Health Education Monitoring Survey (HEMS) is an innovative <strong>and</strong> very informative<br />

national survey which measures a range <strong>of</strong> health promotion <strong>indicators</strong> amongst adults aged<br />

16-74, focusing also on proximal <strong>indicators</strong> like health literacy (knowledge, attitudes <strong>and</strong><br />

behaviours), social capital <strong>and</strong> community involvement. The Social Survey Division (SSD)<br />

carried it out in 1995, 1996 <strong>and</strong> 1998 <strong>of</strong> the Office for National Statistics (ONS) on behalf <strong>of</strong><br />

the Health Education Authority (HEA). The HEMS was initially developed within public health<br />

strategy <strong>of</strong> the UK Government, to assess the contribution <strong>of</strong> health promotion to the<br />

achievement <strong>of</strong> the health targets defined in the ‘Health <strong>of</strong> the Nation’ program. The 1995 <strong>and</strong><br />

1996 versions <strong>of</strong> the HEMS were inspired by two complementary psychological models <strong>of</strong><br />

behaviour change: the Theory <strong>of</strong> Planned Behaviour, which describes the factors that<br />

influence individual health behaviour, <strong>and</strong> the Stages <strong>of</strong> Change Model, which provides an<br />

overview <strong>of</strong> the process <strong>of</strong> behaviour change. Accordingly, the focus <strong>of</strong> the 1995 <strong>and</strong> 1996<br />

<strong>surveys</strong> were on the monitoring <strong>of</strong> knowledge, attitudes <strong>and</strong> behaviours towards health. In<br />

addition, a range <strong>of</strong> demographic (age, gender <strong>and</strong> marital status) <strong>and</strong> socio-economic<br />

variables was collected as well, including social class (based on current or last job),<br />

employment status, educational level (highest qualification), gross household income <strong>and</strong><br />

housing tenure.<br />

In 1998 the questionnaire was altered to accommodate for the recommendations <strong>of</strong> the<br />

governmental White Paper on ‘Saving Lives: Our Healthier Nation’, which gives greater<br />

recognition to the structural determinants <strong>of</strong> health, such as the social environment <strong>and</strong> the<br />

wider community. Aside <strong>from</strong> the continued monitoring <strong>of</strong> health-related behaviours <strong>and</strong> health<br />

literacy, the 1998 HEMS survey therefore also investigated the links between these measures<br />

<strong>and</strong> a number <strong>of</strong> <strong>indicators</strong> describing the respondents’ social environment. These include<br />

social support (number <strong>of</strong> people to rely on in crisis), deprivation, social capital (as measured<br />

by the amount <strong>of</strong> community involvement), neighbourhood decision latitude, <strong>and</strong><br />

neighbourhood characteristics.<br />

Social capital is a concept, which originated <strong>from</strong> political science, <strong>and</strong> has only recently been<br />

suggested as a resource for health promotion. It is argued that this resource is produced by<br />

social support <strong>and</strong> public involvement, <strong>and</strong> that it builds trust in neighbourhoods <strong>and</strong> in society<br />

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at large. The introduction <strong>of</strong> social capital can support the development <strong>of</strong> new theoretical<br />

frameworks for underst<strong>and</strong>ing health <strong>and</strong> health-related behaviours within a broader social<br />

environment. By including this concept, the new version <strong>of</strong> the HEMS questionnaire can<br />

therefore contribute to a better underst<strong>and</strong>ing <strong>of</strong> the relationship between health behaviour<br />

<strong>and</strong> social environment (Rainford et al., 2000).<br />

Sweden: Swedish National Survey <strong>of</strong> Living Conditions<br />

The Swedish Survey <strong>of</strong> Living Conditions (Undersökningen av Levnadsförhäll<strong>and</strong>en, ULF) has<br />

been carried out annually since 1975 by the Department <strong>of</strong> Welfare <strong>and</strong> Social Statistics <strong>of</strong><br />

Statistics Sweden. This nation-wide survey, which involves a sample <strong>of</strong> 16-84 year olds,<br />

provides information on a broad range <strong>of</strong> <strong>indicators</strong>, <strong>and</strong> is linked to several other databases,<br />

including the causes <strong>of</strong> death registry. It provides public debate <strong>and</strong> social planning with<br />

information about the current situation <strong>and</strong> trends in living conditions in Sweden.<br />

The components <strong>of</strong> the survey are grouped into four main themes. The data collection period<br />

for each <strong>of</strong> these themes comprises a period <strong>of</strong> two years, thus forming a series <strong>of</strong> integrated<br />

<strong>surveys</strong>. Each component is given a broader <strong>and</strong> deeper illumination every 7 to 8 years.<br />

These components are first <strong>of</strong> all health <strong>and</strong> public care, with measures <strong>of</strong> long-term illness,<br />

functional disorder, outpatient care, health status, use <strong>of</strong> medicines, smoking <strong>and</strong> dietary<br />

behaviour <strong>and</strong> dental care. The second component is working life, <strong>and</strong> inquires into the type <strong>of</strong><br />

occupation, experience <strong>of</strong> unemployment, working hours, working environment (dirty work,<br />

noise, heavy lifting, mentally strenuous) <strong>and</strong> industrial safety. The third component focuses on<br />

physical environment, providing information on housing (type <strong>of</strong> dwelling <strong>and</strong> tenure space,<br />

equipment <strong>and</strong> facilities) <strong>and</strong> experience with physical violence, theft or damage <strong>of</strong> personal<br />

property <strong>and</strong> traffic accidents. The fourth component concerns social relations, <strong>and</strong> contains<br />

items on contacts with family, friends, neighbours <strong>and</strong> colleagues, social support, leisure<br />

activities spent together with others, <strong>and</strong> participation in various associations. In addition,<br />

background information is assessed about the socio-economic situation, including educational<br />

level, participation in courses, individual <strong>and</strong> household income <strong>and</strong> material st<strong>and</strong>ard <strong>of</strong> living.<br />

The combined information about these topics provides a comprehensive picture <strong>of</strong> the health<br />

<strong>of</strong> people in Sweden.<br />

The ULF interviews are supplemented by data <strong>from</strong> various records <strong>and</strong> <strong>registries</strong>, which can<br />

be linked on a one-to-one basis to the respondents <strong>of</strong> the survey due to the unique<br />

identification number attributed to the inhabitants <strong>of</strong> Sweden (<strong>and</strong> the other Sc<strong>and</strong>inavian<br />

countries). This option significantly increases the usefulness <strong>of</strong> the data source. Registries that<br />

can be linked to the ULF include the Swedish Causes <strong>of</strong> Death Register, fertility, marriage <strong>and</strong><br />

criminality records <strong>and</strong> data on income, pension, taxation, housing allowance, social<br />

assistance <strong>and</strong> scholarship. Several <strong>of</strong> these records are based on the entire population. As<br />

such, the ULF <strong>and</strong> <strong>registries</strong> with which it is connected constitute a large database providing<br />

the opportunity to describe the Swedish population in greater depth <strong>and</strong> <strong>from</strong> various<br />

perspectives.<br />

In 1996, the survey interview <strong>and</strong> sampling technique <strong>of</strong> the ULF was used to investigate<br />

perceived health <strong>and</strong> the use <strong>of</strong> health services in a sample <strong>of</strong> ethnic minorities living in<br />

Sweden. This survey was called the Immigrant Survey <strong>of</strong> Living Conditions. The study groups<br />

were Swedish residents born in Chile, Turkey, Pol<strong>and</strong> (n=840 each) <strong>and</strong> Iran (n=420) who had<br />

settled in Sweden at age <strong>of</strong> 20 to 44 years between 1980 <strong>and</strong> 1989 <strong>and</strong> who according to the<br />

Swedish Register <strong>of</strong> the Total Population (RTP) were still residing in Sweden in 1996. These<br />

subjects were compared against a sample <strong>of</strong> Swedish-born adults surveyed by the ULF in<br />

1996. For the purpose <strong>of</strong> the study, use <strong>of</strong> health services was operationalised by<br />

consultations with a physician, unmet needs for consultation, <strong>and</strong> confidence in Swedish<br />

health services (Hjern, Haglund, Persson & Rosén, 2001). This application <strong>of</strong> the ULF<br />

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provided information on an important determinant <strong>of</strong> health in a subgroup that reports more ill<br />

health, while being comparable to the well-known situation <strong>of</strong> the general Swedish population.<br />

Discussion<br />

The discussion that follows contains three parts. The first section discusses the results <strong>of</strong> our<br />

survey <strong>of</strong> available health monitoring instruments linked with socio-economic data. The second<br />

part discusses methodological problems associated with the measurement <strong>of</strong> socio-economic<br />

status as emerging <strong>from</strong> this study. The final part focuses on the use <strong>of</strong> summary measures<br />

for cross-national comparisons.<br />

Availability <strong>of</strong> health <strong>indicators</strong> linked to socio-economic factors<br />

The results <strong>of</strong> this literature search reveals that existing health monitoring systems in the<br />

European countries considered in this study provide a great deal <strong>of</strong> information on health <strong>and</strong><br />

its determinants linked to measures <strong>of</strong> socio-economic status. Most European countries (14<br />

out <strong>of</strong> the 16 countries, or 87,5%) conduct a form <strong>of</strong> the Health Interview Survey, yielding<br />

information on the perceived health status <strong>and</strong> lifestyle variables, <strong>and</strong> at least measure one<br />

indicator <strong>of</strong> socio-economic status related to health data. This finding suggests that a part <strong>of</strong><br />

the information which is required to plan <strong>and</strong> monitor health promotion interventions aimed at<br />

socio-economically disadvantaged groups is already available, <strong>and</strong> that the importance <strong>of</strong><br />

measuring socio-economic status in health-related <strong>surveys</strong> is gaining wide recognition.<br />

However, with regard to health <strong>indicators</strong> other than health status <strong>and</strong> lifestyle much less<br />

information is available that can be linked to socio-economic status.<br />

The most surprising finding is perhaps the lack <strong>of</strong> mortality statistics linked to socio-economic<br />

status. In only 9 out <strong>of</strong> the 16 countries under investigation did the causes <strong>of</strong> death <strong>registries</strong><br />

contain information on socio-economic status, or can they be linked to census data. Progress<br />

can <strong>and</strong> needs to be made in this area, since mortality (by age <strong>and</strong> cause) is the most basic<br />

information regarding socio-economic inequalities in health, <strong>and</strong> a starting point for further<br />

action. The ULF survey in Sweden provides a good example <strong>of</strong> how mortality data can be<br />

linked to information about health <strong>and</strong> socio-economic status. The problem with mortality<br />

<strong>registries</strong> is, however, that they measure mortality as an incidence rate (over a designated<br />

period <strong>of</strong> time, e.g. 1 year) <strong>and</strong> not as a prevalence rate, which is the case for other health<br />

measures. Consequently, <strong>registries</strong> do not reveal how many people belong to the different<br />

socio-economic categories. To overcome this problem, the Sc<strong>and</strong>inavian countries use a<br />

longitudinal approach, in which they assign unique identification numbers to their inhabitants in<br />

order to link mortality data to population census data. France, Engl<strong>and</strong> <strong>and</strong> Wales, on the<br />

other h<strong>and</strong>, use a cross-sectional approach, whereby a representative sample <strong>of</strong> the<br />

population is followed up for mortality after a census. In Germany the social insurance registry<br />

contains information on both socio-economic characteristics <strong>and</strong> mortality for the whole<br />

(working) population, so links with other data are not necessary. Other countries do not<br />

measure socio-economic status in their mortality <strong>registries</strong> in a valid way, or cannot link it at<br />

the individual level to census data, <strong>and</strong> are therefore obliged to analyse data on an aggregate<br />

level (e.g. regional measures <strong>of</strong> unemployment, illiteracy, gross income,…).<br />

A second important finding <strong>from</strong> this study is that there is very little information available on<br />

socio-economic status related to determinants <strong>of</strong> health other than lifestyle, for example<br />

access to, <strong>and</strong> use <strong>of</strong> healthcare, housing <strong>and</strong> working conditions <strong>and</strong> especially proximal<br />

<strong>indicators</strong> like health literacy, the degree <strong>of</strong> social organisation <strong>and</strong> the extent to which people<br />

are subjected to healthy public or organisational policy. Data collection for these types <strong>of</strong><br />

<strong>indicators</strong> should be encouraged, since they are very important to identify the specific<br />

determinants that can be tackled by health promotion efforts. Also, structural determinants <strong>of</strong><br />

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health, like housing <strong>and</strong> working conditions, neighbourhood characteristics, public <strong>and</strong><br />

organisational policy <strong>and</strong> public organisation must be acknowledged, for they have a major<br />

role to play in tackling health problems in lower socio-economic groups. Other researchers<br />

have also highlighted the need for more information on the specific factors that contribute to<br />

socio-economic inequalities in health (Kunst, Bos & Mackenbach, in press). The examples <strong>of</strong><br />

good practice, especially the POLS survey in The Netherl<strong>and</strong>s <strong>and</strong> the HEMS survey in the<br />

United Kingdom, indicate that it is possible to obtain such information on proximal <strong>indicators</strong>.<br />

As mentioned earlier, a fair amount <strong>of</strong> information is already available in European countries<br />

on health <strong>and</strong> its determinants linked to measures <strong>of</strong> socio-economic status. However, in the<br />

present review we have only looked at the availability <strong>of</strong> health monitoring systems <strong>and</strong> the<br />

<strong>indicators</strong> they use, <strong>and</strong> not at the quality <strong>of</strong> the information they provide. Although a detailed<br />

account <strong>of</strong> this aspect is beyond the scope <strong>of</strong> this study, it seems appropriate to question the<br />

quality <strong>of</strong> some <strong>indicators</strong> in terms <strong>of</strong> their reliability, validity <strong>and</strong> comparability across<br />

countries. Above all, representativeness <strong>of</strong> the survey samples <strong>and</strong> sample size are important<br />

elements which determine the quality <strong>of</strong> the <strong>surveys</strong>, <strong>and</strong> more particularly their external<br />

validity <strong>and</strong> reliability. To the extent that these qualities could be found, we have mentioned<br />

them in the inventory <strong>of</strong> <strong>indicators</strong> given in the annex. Information on the non-response <strong>and</strong><br />

the internal validity (e.g., wording <strong>of</strong> the questions) <strong>of</strong> the <strong>surveys</strong> is not readily available, <strong>and</strong><br />

therefore could not be mentioned.<br />

A final comment is that in order to make this inventory <strong>of</strong> available data sources for monitoring<br />

socio-economic health inequalities, we have followed a priori criteria for the inclusion <strong>of</strong><br />

<strong>indicators</strong> <strong>and</strong> used a theoretical framework for their classification. However, the <strong>surveys</strong> <strong>and</strong><br />

<strong>registries</strong> have all been designed for their own purposes, make use <strong>of</strong> different methodologies<br />

<strong>and</strong> are suited to the specific national situation (e.g. the organisation <strong>of</strong> healthcare, health<br />

insurance, the educational system, …). As such, the fact whether or not they meet the criteria<br />

or fit within the framework does not imply a quality judgement, for the latter should only be<br />

regarded as heuristic tools.<br />

Methodological issues in the measurement <strong>of</strong> socio-economic status<br />

Our study also highlights a number <strong>of</strong> methodological concerns. An important problem, for<br />

example, is the representativeness <strong>of</strong> the samples surveyed. Age groups <strong>of</strong> respondents<br />

included in <strong>surveys</strong> are not all the same in the different countries. Also, people younger than<br />

16 years or older than 65 years are <strong>of</strong>ten excluded <strong>from</strong> the sample population, as is the<br />

institutionalised population 5 . Some <strong>surveys</strong> <strong>and</strong> <strong>registries</strong> are restricted to men or women or<br />

are specifically targeted at the working population (e.g. <strong>registries</strong> <strong>of</strong> occupational hazards).<br />

There are also differences in the degree <strong>of</strong> non-response to the <strong>surveys</strong>. This is problematic<br />

since non-response tends to be higher in the lower social classes.<br />

Secondly, the comparison <strong>of</strong> different kinds <strong>of</strong> <strong>indicators</strong> <strong>of</strong> socio-economic status (SES) is<br />

rather problematic. With regard to occupational class, for example, it is very difficult to rank<br />

different occupations along a single dimension using an interval scale. Occupational class is<br />

usually measured using two classes (manual <strong>and</strong> non-manual), three classes (manual, farmer<br />

<strong>and</strong> non-manual) or five classes, in accordance with the Registrar General’s classification 6 that<br />

has been used for almost a century in Engl<strong>and</strong> <strong>and</strong> Wales. The Erikson-Goldthorpe<br />

classification, which is applied in various countries, even distinguishes seven different classes.<br />

These classifications are somewhat artificial, however, because there is no clear hierarchical<br />

relationship between the different occupational classes. It can for instance be questioned<br />

5<br />

E.g. people living in homes for elderly care, the military, prisoners, …<br />

6<br />

The Registrar General’s classification distinguishes between pr<strong>of</strong>essional (I), intermediate (II), skilled non-manual<br />

(III NM) <strong>and</strong> skilled manual (III M), semiskilled manual (IV) <strong>and</strong> unskilled manual (V) (Kunst & Mackenbach, 1995).<br />

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whether skilled manual workers always occupy a lower position in the social hierarchy<br />

compared to lower-level employees. Moreover, the use <strong>of</strong> occupational class is <strong>of</strong>ten<br />

problematic when surveying children <strong>and</strong> people who are economically inactive. It is not<br />

possible to know if these subjects are unemployed or retired persons, women staying at home<br />

to do the household, or people who are inactive due to a long-st<strong>and</strong>ing disease or disability.<br />

Most <strong>surveys</strong> do not ask for information on the former occupation <strong>of</strong> economically inactive<br />

people. This may bias estimates <strong>of</strong> inequalities, because inactive men tend to have higher<br />

mortality <strong>and</strong> come <strong>from</strong> lower occupational classes (Mackenbach et al., 1997).<br />

Data on income, which is another common indicator <strong>of</strong> socio-economic status, are available<br />

only in a moderate degree. This data can be measured both as individual <strong>and</strong> as household<br />

income. The latter is more appropriate because it adds all income components <strong>of</strong> all<br />

household members. However, this also requires information on household composition to<br />

make a correct division. Another obstacle with this measure is that most people, especially if<br />

they belong to lower social classes, are not so eager to mention their salary. If they do, they<br />

may not report their income accurately or validly (Kunst & Mackenbach, 1995).<br />

The best way to measure socio-economic status therefore seems to be educational level. This<br />

indicator is available for most <strong>surveys</strong>. It is usually measured as the highest educational level<br />

successfully completed, or as the total number <strong>of</strong> years <strong>of</strong> schooling. This indicator can be<br />

converted according to the OECD 7 st<strong>and</strong>ard classification, which has four levels ranging <strong>from</strong><br />

no education or primary education only, lower secondary education, upper secondary<br />

education <strong>and</strong> higher or postsecondary education. Educational level can be a problematic<br />

measure for countries for which the classification <strong>of</strong> people by educational level produces a<br />

very skewed distribution, i.e. where a large part <strong>of</strong> the population is assigned to one single<br />

educational category (Kunst, Geurts & van den Berg, 1995). However, since this is not very<br />

common in European countries, educational level remains the best socio-economic measure<br />

available to date.<br />

Nevertheless, educational level must not be regarded as the only reliable measure <strong>of</strong> SES. All<br />

three measures (income, education <strong>and</strong> occupational status) cover different aspects <strong>of</strong> social<br />

stratification. Whereas educational level is related to access to <strong>and</strong> being able to cope with<br />

information, income is an important factor in the ability to procure material goods. Both aspects<br />

are included in occupational status, which additionally enables people to acquire pr<strong>of</strong>essional<br />

<strong>and</strong> social skills, power <strong>and</strong> prestige. Ideally, SES should therefore be including all three <strong>of</strong><br />

these aspects. Whatever measure is chosen, one should strive towards a st<strong>and</strong>ard<br />

classification that remains unchanged in subsequent <strong>surveys</strong> in order to ensure comparability<br />

over time.<br />

In some cases no information on education, occupation or income is available at all. In such<br />

cases a good solution consists <strong>of</strong> using proxy measures <strong>of</strong> socio-economic status, such as<br />

<strong>indicators</strong> <strong>of</strong> living st<strong>and</strong>ards (<strong>indicators</strong> <strong>of</strong> material belongings, like house tenure <strong>and</strong> car<br />

ownership) or <strong>indicators</strong> related to socio-economically disadvantaged subgroups <strong>of</strong> the<br />

population (e.g., immigrants, ethnically different groups, refugees <strong>and</strong> homeless people).<br />

However, when using these proxy measures there is a danger <strong>of</strong> confounding the effects <strong>of</strong><br />

socio-economic status with those <strong>of</strong> the specific characteristics <strong>of</strong> the proxies (Kunst &<br />

Mackenbach, 1995). Geographical area is also sometimes used as an aggregate measure <strong>of</strong><br />

individual socio-economic status. This information is easy to obtain, but may not be the best<br />

option, since it only moderately correlates to individual SES (Soobader, LeClere, Hadden &<br />

Maury, 2001).<br />

7 Organisation for Economic Cooperation <strong>and</strong> Development (OECD)<br />

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Cross-national comparisons<br />

Comparing health <strong>indicators</strong> across countries has restrictions as well. For example, disabilities<br />

<strong>and</strong> chronic conditions may be differently defined. Similarly, questions on health complaints<br />

<strong>of</strong>ten differ in the way they are assessed (e.g., short versus long lists <strong>of</strong> possible complaints)<br />

<strong>and</strong> the period that is considered for the complaints to be experienced. In a similar vein, there<br />

are numerous <strong>indicators</strong> <strong>and</strong> questionnaires available to measure food intake, physical activity<br />

<strong>and</strong> smoking behaviour, which can differ substantively, both in content <strong>and</strong> extent. There exist<br />

numerous health <strong>indicators</strong> <strong>and</strong> they are comparable only in as much as the survey questions<br />

have approximately the same structure <strong>and</strong> content in the different countries involved in the<br />

comparison.<br />

Measuring many health <strong>indicators</strong> has other disadvantages too. For the sake <strong>of</strong> clarity <strong>and</strong><br />

parsimony, researchers have to restrict themselves to a limited number <strong>of</strong> important health<br />

measures in the analysis <strong>and</strong> presentation <strong>of</strong> results. For that purpose, summary <strong>indicators</strong><br />

have been proposed as an elegant way to describe results concisely. An example <strong>of</strong> a single<br />

measure for health behaviour as the Health Practices Index (HPI) (Alvarez-Dardet, Montahud<br />

& Ruiz, 2001), which is a composite index that combines several lifestyle variables which<br />

affect health, notably smoking, alcohol consumption, physical exercise <strong>and</strong> obesity. Such an<br />

index facilitates the calculation <strong>of</strong> (time trends in) the association between health behaviour<br />

<strong>and</strong> socio-economic status, <strong>and</strong> provides a more straightforward description <strong>of</strong> the situation.<br />

However, it is less useful to serve as a basis for the planning <strong>of</strong> interventions, since it does not<br />

indicate which specific health factors account for the association with socio-economic status.<br />

The aforementioned recommendation for measures <strong>of</strong> socio-economic status applies to health<br />

<strong>indicators</strong> as well: to ensure comparability over time <strong>and</strong>, ideally, across countries, one should<br />

strive for a st<strong>and</strong>ard classification <strong>of</strong> <strong>indicators</strong> which remains unchanged in subsequent<br />

<strong>surveys</strong> in order. To facilitate such a process, the WHO Regional Office for Europe has<br />

conducted a series <strong>of</strong> consultations resulting in internationally agreed methods <strong>and</strong><br />

instruments for health interview <strong>surveys</strong> (de Bruin, Picavet & Nossikov, 1996).<br />

A very important element in the comparison <strong>of</strong> socio-economic inequalities across different<br />

European countries, which we have not discussed so far, are measures <strong>of</strong> the association<br />

between socio-economic status <strong>and</strong> health. These measures are important, because they<br />

describe the magnitude <strong>of</strong> the socio-economic inequalities in health. The most straightforward<br />

measure is the variation <strong>of</strong> age-st<strong>and</strong>ardised morbidity <strong>and</strong> mortality rates between groups <strong>of</strong><br />

different socio-economic status. If this shows a regular pattern, summary measures may be<br />

calculated for the magnitude <strong>of</strong> the socio-economic inequality in health, allowing for a<br />

monitoring <strong>of</strong> change over time. Target 2 <strong>of</strong> the WHO health strategy for Europe, Health 21,<br />

formulates socio-economic inequality in health in a general term 8 . A summary measure is<br />

therefore well suited to monitor progress towards the achievement <strong>of</strong> this target.<br />

As deriving <strong>from</strong> the literature, a variety <strong>of</strong> such measures are available. The most simple <strong>and</strong><br />

straightforward ones make use <strong>of</strong> rate ratios <strong>and</strong> rate differences, which enable a relative or<br />

absolute comparison <strong>of</strong> rates <strong>of</strong> morbidity or mortality in different socio-economic groups. The<br />

index <strong>of</strong> dissimilarity is the percentage <strong>of</strong> all cases that have to be redistributed to obtain the<br />

same morbidity or mortality rate for all socio-economic classes. This index also takes into<br />

account the size <strong>of</strong> the different socio-economic groups, <strong>and</strong> is thus a measure <strong>of</strong> the total<br />

impact <strong>of</strong> health inequalities on the health status <strong>of</strong> the general population. The dissimilarity<br />

index will be larger if the higher or lower socio-economic groups are more numerous. Another<br />

frequently used measure <strong>of</strong> the association between socio-economic status <strong>and</strong> health is the<br />

relative index <strong>of</strong> inequality. This is a more sophisticated measure since it uses regression<br />

8 “By the year 2020, the differences in health status between countries <strong>and</strong> between groups within countries should<br />

be reduced by at least 25%, by improving the level <strong>of</strong> health <strong>of</strong> disadvantaged nations <strong>and</strong> groups.”<br />

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analysis. The advantage <strong>of</strong> this complexity is that, unlike the other measures already<br />

mentioned, it takes into account the morbidity or mortality rates <strong>of</strong> the socio-economic groups<br />

between the highest <strong>and</strong> the lowest groups, as well as the relative position <strong>of</strong> these groups.<br />

Since all these measures use different perspectives, it is recommended to assess the<br />

association through a set <strong>of</strong> diverse measures that together cover all the relevant perspectives<br />

(Kunst & Mackenbach, 1995).<br />

It is clear that every country needs its own database to collect information about (socioeconomic<br />

inequalities in) different aspects <strong>of</strong> health (determinants) <strong>and</strong> mortality <strong>and</strong> to<br />

develop <strong>and</strong> monitor health targets. Nevertheless, a strong case can be made also for<br />

supranational co-operation in conducting <strong>surveys</strong> <strong>and</strong> for developing a health information<br />

system on a European level. For one, the comparison with other countries <strong>of</strong>ten triggers<br />

policy-makers to take action. For another, cross-country comparison <strong>of</strong> socio-economic<br />

inequalities in health illustrates whether there is potential for reducing these inequalities, to<br />

what extent, <strong>and</strong> in which manner. Furthermore, it is to be expected that health policy activities<br />

at the European Union level will exp<strong>and</strong> in the future (Van de Water &. Van Herten, 1998).<br />

Therefore, a reliable <strong>and</strong> practical European health database would be a major step forward.<br />

Such a monitoring system does not yet exist, but initiatives to establish it are being undertaken<br />

by the European Union within the framework <strong>of</strong> the Health Monitoring Programme, as well as<br />

by the European regional <strong>of</strong>fice <strong>of</strong> WHO <strong>and</strong> by the OECD. Effective communication <strong>and</strong> coordination<br />

among these groups is needed. Accordingly, Van de Water <strong>and</strong> Van Herten (1998)<br />

suggest that it would be much better if these three organisations sponsored a joint initiative to<br />

set up a European health information <strong>and</strong> monitoring system. In a similar vein, Aromaa (1999)<br />

reports that an expert group has evaluated four main alternatives for the organisation <strong>of</strong><br />

European Community Health Monitoring <strong>and</strong> recommended the creation <strong>of</strong> a new European<br />

body for health monitoring (a ‘Health Observatory’) as a long-term goal.<br />

It should be noted that supranational co-operation in monitoring health already exists. The<br />

Finbalt Health Monitor, the Health Behaviour <strong>of</strong> School Children (HBSC-study) survey, <strong>and</strong> the<br />

European Community Household Panel Study (ECHP) described earlier are good examples.<br />

They are all <strong>surveys</strong> which are conducted in the same way in different countries across<br />

Europe <strong>and</strong> which at least have a series <strong>of</strong> core questions in common. The Eurobarometer<br />

conducts comparable <strong>surveys</strong> on several topics in all European Union countries.<br />

Conclusion <strong>and</strong> recommendations<br />

Monitoring health data is a dem<strong>and</strong>ing task. It is therefore reasonable to carefully consider the<br />

actual use <strong>of</strong> the <strong>indicators</strong> that are measured. Apparently, their main use is in setting health<br />

targets <strong>and</strong> strategies. Health monitoring data provide an assessment <strong>of</strong> the present health<br />

situation <strong>and</strong> its determinants, <strong>and</strong> to some degree indicate future trends. Current health<br />

behaviour, for instance, can partially predict future mortality, <strong>and</strong> is therefore appropriate to<br />

determine health policy priorities <strong>and</strong> to set health targets. Smith, Morris & Shaw (1998) in an<br />

editorial <strong>of</strong> the British Medical Journal argue for recommendations <strong>and</strong> targets that address the<br />

fundamental causes <strong>of</strong> inequalities in health, <strong>and</strong> point out that they should be formulated in<br />

considerable detail to avoid them <strong>from</strong> being too vague. So in effect, target setting <strong>and</strong><br />

monitoring health data is a dual process, whereby one is necessary to do the other. Monitoring<br />

data are necessary to set up <strong>and</strong> evaluate the (progress to the) achievement <strong>of</strong> targets, <strong>and</strong><br />

target setting increases the need for (further) health information.<br />

Several elements in the discussion have highlighted existing challenges in monitoring socioeconomic<br />

inequalities in health, <strong>and</strong> suggested possible ways <strong>of</strong> tackling these challenges. We<br />

have tried to summarise these suggestions <strong>and</strong> to make them more concrete. It is hoped that<br />

the following set <strong>of</strong> recommendations will inform policy-makers in the development <strong>of</strong> health<br />

monitoring <strong>surveys</strong> linked to socio-economic status.<br />

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1. Guidelines must be developed for the routine collection <strong>of</strong> data regarding socioeconomic<br />

inequalities in health on a national level.<br />

2. A better co-ordination <strong>of</strong> health monitoring efforts must be established on a<br />

supranational level. Promising tools so far in this regard are e.g. the Finbalt Health<br />

Monitor, the Survey <strong>of</strong> Health Behaviour <strong>of</strong> School Children (HBSC-study) <strong>and</strong> the<br />

Monitoring <strong>of</strong> Trends <strong>and</strong> Determinants in Cardiovascular Disease (Monica-Project).<br />

3. Data on socio-economic inequalities with regard to the determinants <strong>of</strong> mortality <strong>and</strong><br />

morbidity, such as health literacy <strong>and</strong> structural determinants <strong>of</strong> health, must be made<br />

available, to serve as a basis for effective health promotion policies <strong>and</strong> interventions<br />

tackling social inequalities in health.<br />

4. The creation <strong>of</strong> a European Health Observatory or Health Monitoring System, as a new<br />

<strong>and</strong> separate EU body for the organisation <strong>of</strong> health monitoring, must be considered.<br />

5. The general targets regarding socio-economic inequalities in health which currently<br />

exist in most countries need to be refined into targets which focus on specific health<br />

aspects in specific target groups or settings <strong>of</strong> low socio-economic status,<br />

accompanied by measures to achieve them.<br />

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PART 2: HEALTH PROMOTION ACTIONS AND POLICIES<br />

To collect information about strategies, interventions <strong>and</strong> policies to tackle health inequalities<br />

through health promotion, preference was given to the identification <strong>and</strong> subsequent analysis<br />

<strong>of</strong> good practices <strong>and</strong> policies through involving key informants in each member country. The<br />

concept <strong>of</strong> this approach was discussed <strong>and</strong> developed via a series <strong>of</strong> meetings <strong>of</strong> the ENHPA<br />

in Brussels (1998), Berlin (1999), <strong>and</strong> Utrecht (1999) <strong>and</strong> formally initiated on the 1 st July<br />

1999.<br />

Key informant approach<br />

For this part <strong>of</strong> the project, a two-phased approach was followed, as shown in the Figure 3.<br />

Figure 3: Summary diagram <strong>of</strong> the methodological approach to collect data on health promotion actions<br />

<strong>and</strong> policies<br />

Phase 1 (July 1999-December 1999)<br />

Selection <strong>and</strong><br />

appointment <strong>of</strong> key<br />

informants (national<br />

coordinators)<br />

Phase 2<br />

Agreement <strong>of</strong><br />

theoretical basis <strong>and</strong><br />

definitions<br />

Report assessment<br />

<strong>and</strong> follow up further<br />

information<br />

These phases were carried out as follows.<br />

Design <strong>and</strong> agreement <strong>of</strong><br />

pr<strong>of</strong>orma/questionnaire<br />

<strong>and</strong> analytical framework<br />

Analysis<br />

Phase 1: Selection <strong>of</strong> key informants, definitions <strong>and</strong> data collection<br />

A literature review was conducted, informing the development <strong>of</strong> the theoretical background to<br />

the project. Key informants (national co-ordinators) were then identified <strong>and</strong> nominated by the<br />

17 members <strong>of</strong> the ENHPA.<br />

A questionnaire was constructed by the advisory group, which aimed to collect information on<br />

the following issues mentioned in Table 1.<br />

The national co-ordinators spent time consulting appropriate experts <strong>and</strong> collating information<br />

on a number <strong>of</strong> interventions <strong>and</strong> policies. This number <strong>of</strong> experts, <strong>and</strong> the number <strong>of</strong><br />

interventions <strong>and</strong> policies, varied. Some co-ordinators did not report that they had consulted<br />

any experts. The largest number <strong>of</strong> experts consulted (16) was reported by the co-ordinator<br />

<strong>from</strong> the United Kingdom. As far as content is concerned, the range was <strong>from</strong> a single<br />

intervention <strong>and</strong> a single policy (Irel<strong>and</strong>) through to fifteen interventions (United Kingdom) <strong>and</strong><br />

ten policies (Austria) (see below). The completed questionnaires or pr<strong>of</strong>ormas were<br />

collectively referred to as the national reports.<br />

Responses were received <strong>from</strong> Austria, Belgium, Denmark, Finl<strong>and</strong>, Germany, Greece,<br />

Irel<strong>and</strong>, Italy, the Netherl<strong>and</strong>s, Norway, Portugal, Spain, Sweden <strong>and</strong> the United Kingdom.<br />

France, Icel<strong>and</strong> <strong>and</strong> Luxembourg did not submit reports. These countries were not able to<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

Data collection –<br />

construction <strong>of</strong> national<br />

reports (inc.<br />

consultation <strong>of</strong> experts)<br />

Report – Findings,<br />

conclusions <strong>and</strong><br />

recommendations<br />

20


allocate sufficient resources to enable them to construct a report within the timeframe <strong>of</strong> the<br />

project.<br />

Table 1: Summary <strong>of</strong> questionnaire<br />

General Interventions Policies<br />

� Country<br />

� National Co-ordinator<br />

� National Experts<br />

consulted<br />

� General Description <strong>of</strong><br />

Intervention<br />

(Date/length/frequency)<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Provide general<br />

information on social<br />

policy<br />

� Who took the initiative � Provide contextual<br />

information on policy<br />

� Who were the<br />

providers? (health<br />

pr<strong>of</strong>essionals/others)<br />

� Who was the target<br />

group?<br />

� What were the<br />

characteristics <strong>of</strong> the<br />

target group<br />

� How many participants<br />

were there?<br />

� What was the setting for<br />

the intervention?<br />

� What were the<br />

objectives <strong>of</strong> the<br />

intervention?<br />

� What were the methods<br />

used?<br />

� What were the<br />

strategies employed?<br />

� How were the objectives<br />

evaluated?<br />

� What was the design <strong>of</strong><br />

the evaluation?<br />

� Comment on the<br />

transferability<br />

� Comment on how the<br />

intervention contributes<br />

to policy<br />

� Provide details <strong>of</strong> the<br />

evaluation <strong>of</strong> the<br />

intervention<br />

formulation<br />

� Provide a description <strong>of</strong><br />

trends in social policy<br />

(last 10 years)<br />

� Provide information on<br />

the population the policy<br />

is directed at<br />

� Provide policy details<br />

� Provide details <strong>of</strong> any<br />

health benefits<br />

� Provide details about the<br />

implementation <strong>of</strong> the<br />

policy<br />

� Were there any positive<br />

or negative side effects<br />

<strong>of</strong> the policy?<br />

21


Table 2 shows the number <strong>of</strong> interventions <strong>and</strong> policies identified by each <strong>of</strong> the countries<br />

participating in the project.<br />

Table 2: Summary statistics for the national reports (interventions <strong>and</strong> policies)<br />

Country Interventions Policies<br />

Austria 5 10<br />

Belgium 5 6<br />

Denmark 3 6<br />

Finl<strong>and</strong> 4 5<br />

Germany 5 3<br />

Greece 3 6<br />

Irel<strong>and</strong> 1 1<br />

Italy 4 1<br />

Netherl<strong>and</strong>s 4 6<br />

Norway 4 7<br />

Portugal 4 6<br />

Spain 2 2<br />

Sweden 5 5<br />

United Kingdom 15 5<br />

Phase 2:Assessment <strong>of</strong> the national reports <strong>and</strong> data analysis<br />

The data collected <strong>from</strong> the national reports were analysed using ‘Framework analysis’, a<br />

qualitative analytical approach described by Ritchie <strong>and</strong> Spencer (in Bryman <strong>and</strong> Burgess eds.<br />

1994). ‘Framework’ was initiated, developed <strong>and</strong> refined in a specialist qualitative research<br />

unit based within the National Centre for Social Research in the United Kingdom [formerly<br />

Social <strong>and</strong> Community Planning Research (SCPR)]. The method was specifically developed<br />

for applied policy research. The approach has been found to have particular strengths where:<br />

new data have been collected; where it has been important that an explicit research<br />

methodology can be viewed; <strong>and</strong> where timescales have been short.<br />

The aims <strong>of</strong> the data analysis were to tackle the national reports <strong>and</strong> provide some coherence<br />

<strong>and</strong> structure while retaining a hold <strong>of</strong> the original accounts <strong>from</strong> which they were derived.<br />

‘Framework’ was used to facilitate detection, defining, categorising, theorising, explaining <strong>and</strong><br />

exploring.<br />

Key features <strong>of</strong> framework, which justified its use in this context, are:<br />

• Grounded or generative: It is heavily based in, <strong>and</strong> driven by, the original accounts<br />

<strong>and</strong> observations <strong>of</strong> the people it is about.<br />

• Dynamic: It is open to change, addition <strong>and</strong> amendment throughout the analytic<br />

process.<br />

• Systematic: It allows methodological treatment <strong>of</strong> all similar units <strong>of</strong> analysis.<br />

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• Comprehensive: It allows a full, <strong>and</strong> not partial or selective, review <strong>of</strong> the material<br />

collected.<br />

• Enables easy retrieval: It allows access to, <strong>and</strong> retrieval <strong>of</strong>, the original textual<br />

material.<br />

• Allows between-case <strong>and</strong> within-case analysis: It enables comparisons between, <strong>and</strong><br />

associations within, cases to be made.<br />

• Accessible to others: The analytic process, <strong>and</strong> the interpretations derived <strong>from</strong> it, can<br />

be viewed <strong>and</strong> judged by people other than the primary analyst.<br />

The analytical process involved a number <strong>of</strong> distinct <strong>and</strong> interconnected stages, including<br />

sifting, charting <strong>and</strong> sorting materials according to the key issues <strong>and</strong> themes. The five key<br />

stages were familiarisation; identifying a thematic framework; indexing; charting; mapping <strong>and</strong><br />

interpretation. Although the presentation <strong>of</strong> the different stages might imply rigidity, in<br />

practice, areas were <strong>of</strong>ten re-visited, re-examined or simply rejected <strong>and</strong> re-done. In more<br />

detail:<br />

Familiarisation<br />

An attempt was made to become familiar with the range <strong>and</strong> diversity <strong>of</strong> the data within the<br />

national reports <strong>and</strong> to gain an overview. Familiarisation involved immersion in the data: a<br />

great deal <strong>of</strong> time was spent reading the reports. Key ideas <strong>and</strong> recurrent themes were listed<br />

whilst reading material.<br />

Identifying a thematic framework<br />

Data were examined <strong>and</strong> referenced in order to identify key issues, concepts <strong>and</strong> themes. A<br />

thematic framework within which the material could be sifted <strong>and</strong> sorted was established.<br />

Special attention was paid to comments made by co-ordinators themselves, <strong>and</strong> analytical<br />

themes arising <strong>from</strong> the recurrence <strong>of</strong> particular views or experiences. This was then applied<br />

to transcripts <strong>and</strong> refined to become more responsive to emergent themes. Time was spent<br />

making judgements about meaning, relevance <strong>and</strong> connections between ideas. The index<br />

developed provided a means <strong>of</strong> labelling data in manageable ‘bites’ for subsequent retrieval<br />

<strong>and</strong> exploration.<br />

Indexing<br />

The thematic framework (index) was systematically applied to the national reports. All data<br />

were annotated according to the thematic framework.<br />

Charting<br />

Data were ‘lifted’ <strong>from</strong> their original context <strong>and</strong> rearranged according to the appropriate<br />

thematic reference. Charts were devised with headings drawn <strong>from</strong> the thematic framework.<br />

Mapping <strong>and</strong> Interpretation<br />

Once all the data had been sifted <strong>and</strong> charted according to the themes, charts were reviewed;<br />

patterns <strong>and</strong> connections were sought; emphasis was placed upon structure rather than a<br />

multiplicity <strong>of</strong> evidence, the salience <strong>and</strong> dynamics <strong>of</strong> issues was considered rather than<br />

simply aggregating patterns.<br />

Remarks on the methodology<br />

McKee <strong>and</strong> Jacobson (2000) warned that ‘an exploration <strong>of</strong> public health issues in Europe is<br />

difficult’. They noted that compared with, for example, North America, the diversity <strong>of</strong> issues is<br />

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far greater in Europe. Countries <strong>and</strong> regions within countries have many languages, prevailing<br />

values, <strong>and</strong> political systems. They found that the term ‘public health’ has many different<br />

interpretations, with some languages using several words, each with subtly different meanings.<br />

On the other h<strong>and</strong>, it also appears difficult to define terms because ‘many <strong>of</strong> the other words<br />

required, such as environment or inequalities, are also understood in other ways in different<br />

countries’.<br />

Aiach <strong>and</strong> Carr-Hill (1989) observed that ‘..such analyses do not take place in a vacuum. To<br />

assess them in comparative context, it is therefore essential to locate the analyses in their<br />

cultural, economic, political <strong>and</strong> social contexts’. In their review they drew learning points <strong>from</strong><br />

a comparison <strong>of</strong> British <strong>and</strong> French cases. These authors emphasised that there were<br />

‘structural (economic, ideological <strong>and</strong> political) <strong>and</strong> conjectural factors which interacted to<br />

influence the nature <strong>of</strong> the debate’. They illustrated this by highlighting the fact that the British<br />

NHS had no equivalent in France: instead the French instituted a Social Security system<br />

founded on the insurance principle.<br />

A number <strong>of</strong> the difficulties considered by the authors above were also encountered during this<br />

project. This was probably best illustrated by the discussion over various working definitions<br />

for the project. For example, a definition <strong>of</strong> social inequalities was never finally agreed upon<br />

by the advisory group. The discussion documented within the phase 1 maps the course as<br />

follows: (1) Consideration <strong>and</strong> rejection <strong>of</strong> the WHO definition (on the basis that it could not be<br />

put into operation); (2) Construction <strong>of</strong> a project working definition <strong>and</strong> its subsequent<br />

rejection, on the basis that it did not successfully cover the consensus view <strong>of</strong> health inequality<br />

held by the advisory group); <strong>and</strong> (3) Commitment to further develop <strong>and</strong> agree upon a working<br />

definition.<br />

In a similar vein, a central focus upon disadvantaged groups arose. The project restricted its<br />

st<strong>and</strong>point to that <strong>of</strong> health promotion interventions <strong>and</strong> policies, but again a working definition<br />

was not formally identified.<br />

Many <strong>of</strong> the problems faced by the key informants (co-ordinators) <strong>and</strong> subsequent effort<br />

expended trying to solve them were inevitably related by the failure <strong>of</strong> the project to define <strong>and</strong><br />

delimit its scope. For practical purposes, the following working definitions were adopted for<br />

the latter part (phase 2) <strong>of</strong> the project.<br />

WHO definition <strong>of</strong> health:<br />

Health is a dynamic state <strong>of</strong> complete physical, mental, spiritual <strong>and</strong> social well-being<br />

<strong>and</strong> not merely the absence <strong>of</strong> disease <strong>and</strong> infirmity<br />

Ottawa charter definition <strong>of</strong> health promotion:<br />

Health promotion is the process <strong>of</strong> enabling people to increase control over, <strong>and</strong><br />

improve, their health. To reach a state <strong>of</strong> complete physical mental <strong>and</strong> social wellbeing,<br />

an individual or group must be able to identify <strong>and</strong> to realise aspirations, to<br />

satisfy needs <strong>and</strong> to change or cope with the environment. Health is seen therefore as<br />

a resource for everyday life, not the objective <strong>of</strong> living. Health is a positive concept<br />

emphasising social <strong>and</strong> personal resources, as well as physical capacities. Therefore<br />

health promotion is not just a responsibility <strong>of</strong> the health sector, but goes beyond<br />

healthy lifestyles to well-being.<br />

Pragmatism was the approach, which characterised the progress <strong>of</strong> this project with the<br />

adoption <strong>of</strong> an inclusive stance rather than an exclusive one with respect to the inputs <strong>of</strong> key<br />

informants (national co-ordinators).<br />

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FINDINGS<br />

It was found that there were clear areas <strong>of</strong> consensus across Europe, where common<br />

approaches were being used in an effort to combat health inequality. It was also found that<br />

there were innovative methods applied in certain settings <strong>and</strong> environments that were unique.<br />

A total <strong>of</strong> 67 policies <strong>and</strong> 60 interventions were reported within national reports. Table 3 below<br />

presents the common themes that emerged <strong>from</strong> the analysis <strong>and</strong> also indicates <strong>from</strong> which<br />

countries examples have been drawn to support <strong>and</strong> illustrate such themes.<br />

Table 3: common themes emerging <strong>from</strong> the analysis<br />

Policies <strong>and</strong> Interventions Specific examples <strong>from</strong><br />

The national political environment<br />

� National public health targets<br />

� The broad determinants <strong>of</strong> health<br />

� The role <strong>of</strong> legislation in supporting work<br />

locally<br />

Cross-sectoral partnerships <strong>and</strong> integrated<br />

planning locally<br />

� Cross sectoral approaches (nationally <strong>and</strong><br />

locally)<br />

� Partnership working<br />

Improving access to healthcare services<br />

� Outreach work <strong>and</strong> hard-to-reach groups<br />

� Health insurance – reforms <strong>and</strong> improving<br />

access<br />

Community development<br />

� Community-based approaches<br />

� Advocacy work <strong>and</strong> peer educators (culturally<br />

grounded <strong>and</strong> sensitive to tradition)<br />

Migration<br />

� Impacts nationally (rural <strong>and</strong> urban) <strong>and</strong><br />

internationally (European expansion <strong>and</strong><br />

integration)<br />

Evidence <strong>and</strong> the evaluation <strong>of</strong> interventions<br />

� Health impact assessment<br />

� Intervention effectiveness<br />

� Austria<br />

� Belgium<br />

� Denmark<br />

� Germany<br />

� Netherl<strong>and</strong>s<br />

� Norway<br />

� Sweden<br />

� United Kingdom<br />

� Belgium<br />

� Denmark<br />

� Germany<br />

� Greece<br />

� Netherl<strong>and</strong>s<br />

� Norway<br />

� Portugal<br />

� United Kingdom<br />

� Austria<br />

� Belgium<br />

� Germany<br />

� Greece<br />

� Netherl<strong>and</strong>s<br />

� Norway<br />

� Portugal<br />

� Spain<br />

� Sweden<br />

� United Kingdom<br />

� Germany<br />

� Greece<br />

� Portugal<br />

� Netherl<strong>and</strong>s<br />

� Norway<br />

� Belgium<br />

� United Kingdom<br />

� Austria<br />

� Belgium<br />

� Germany<br />

� Norway<br />

� Sweden<br />

� Spain<br />

� Germany<br />

� Greece<br />

� Netherl<strong>and</strong>s<br />

� Norway<br />

� United Kingdom<br />

Figure 4 on the next page provides a graphical depiction <strong>of</strong> the scope <strong>of</strong> the project findings.<br />

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Categories or themes were not mutually exclusive, but overlapping <strong>and</strong> complimentary. As will<br />

be seen in the chapters that follow, certain examples <strong>of</strong> interventions or policies were used to<br />

illustrate <strong>and</strong> support different themes.<br />

Many <strong>of</strong> the areas were closely related. For example, partnership working was a component <strong>of</strong><br />

successful community based approaches but they were dealt with separately. Using<br />

community consultation as a tool was considered within the chapter on improving access to<br />

healthcare, but community development as an overall approach was such a strong theme that<br />

emerged that it was given its own dedicated section. The different areas therefore were an<br />

attempt to untangle the various elements considered within national reports.<br />

Figure 4: Project map summarising the scope <strong>of</strong> the European inequalities project<br />

Community development<br />

� Broader determinants <strong>of</strong><br />

health<br />

� Social capital generation<br />

� Tackling exclusion<br />

The chapters that follow provide detailed explanations <strong>and</strong> illustrate, using examples, the<br />

different elements that emerged <strong>from</strong> the analysis. The chapters follow the same format with a<br />

summary table with conclusions <strong>and</strong> recommendations coming first, discussions <strong>and</strong><br />

illustrations follow.<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

Political environment<br />

� Global Targets (Inequality)<br />

� Broader determinants/socioeconomic<br />

links with health<br />

� Approaches to social policy<br />

formulation (legislation)<br />

� Special agencies/initiatives<br />

� Budget priorities<br />

Action <strong>and</strong> planning regionally <strong>and</strong> locally<br />

� Integration<br />

� Intersectoral cooperation<br />

� Partnerships <strong>and</strong> alliances<br />

Provision <strong>of</strong> healthcare services – Improving access<br />

� Innovative<br />

educators)<br />

approaches (advocacy, peer<br />

� Community involvement<br />

� Outreach (inclusion)<br />

Impact <strong>of</strong> migration<br />

� Financial access<br />

� Across national boundaries<br />

� Rural/urban<br />

� Economic recession Research, evaluation <strong>and</strong> the evidence base<br />

� Relationship with funding<br />

� Outcome <strong>and</strong> process<br />

� Action research<br />

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The national political environment <strong>and</strong> tackling health inequalities<br />

Conclusions Recommendations to policy-makers<br />

National health inequality targets are considered<br />

as an effective way for governments to send out a<br />

clear signal about their commitment to tackling<br />

health inequalities <strong>and</strong> to focus attention on the<br />

issues<br />

Inequality targets are seen as a useful starting<br />

point for integrating policy across different sectors<br />

Potential health improvements resulting <strong>from</strong><br />

policy reforms in areas such as housing,<br />

education <strong>and</strong> employment remain unclear<br />

Integration across policy areas are being driven<br />

nationally but implemented locally<br />

Legislation is an effective tool for supporting the<br />

implementation <strong>of</strong> initiatives at regional <strong>and</strong> local<br />

level, providing a focus for cross-sectoral cooperation<br />

Overt political support <strong>from</strong> government ministers<br />

is significant <strong>and</strong> useful to those with a direct<br />

interest in health promotion initiatives<br />

Adequate financial resources are essential for<br />

effective work in this area, whereas spending<br />

cutbacks represent a threat<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Encourage the adoption <strong>of</strong> national<br />

health inequality targets where<br />

possible<br />

� Support <strong>and</strong> encourage the further<br />

development <strong>of</strong> health impact<br />

assessment approaches (in which<br />

inequality impact assessments are an<br />

integral part)<br />

� Support (<strong>and</strong> monitor progress <strong>of</strong>) area<br />

based policies which are aimed at<br />

engaging broad determinants <strong>of</strong> health<br />

<strong>and</strong> advocating cross sectoral cooperation<br />

� Where appropriate create supportive<br />

legislation<br />

� Where possible engage high level<br />

politicians as champions for tackling<br />

inequality<br />

� Require that adequate financial<br />

resources are made available<br />

The national political environment was the starting point for many accounts given by the coordinators,<br />

more specifically, the way in which this influenced health promotion in their<br />

respective countries. Some <strong>of</strong> the comments were quite general <strong>and</strong> revealed frustrations with<br />

opposition (or lack <strong>of</strong> support) for tackling health inequality. Others were more specific <strong>and</strong><br />

focused on the details <strong>of</strong> policy reform <strong>and</strong> moves towards integrating different policy areas. A<br />

number <strong>of</strong> co-ordinators emphasised examples <strong>of</strong> legislation being designed to support action<br />

in a range <strong>of</strong> settings at local level.<br />

Some co-ordinators found it difficult to provide a meaningful commentary on the political<br />

environment <strong>and</strong> policy reforms. This was a reflection <strong>of</strong> their lack <strong>of</strong> expertise in this area (by<br />

their own declaration) <strong>and</strong> their failure to engage relevant experts. Many provided long lists <strong>of</strong><br />

social policy but were not able to explore them further <strong>and</strong> consider them <strong>from</strong> a public health<br />

perspective. This was also underst<strong>and</strong>able considering the lack <strong>of</strong> health impact assessment<br />

on social policy development <strong>and</strong> reforms in all <strong>of</strong> the countries in this study (this in itself was<br />

the subject <strong>of</strong> some accounts). [A conceptual model for the study <strong>of</strong> the policy impact on the<br />

pathways to social inequalities in health (Diderichsen et al 2000) was included within the<br />

Swedish report. This model was used in the Swedish government’s <strong>of</strong>ficial report, “Health on<br />

Equal Terms” 1999, 137.]<br />

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Positive accounts came <strong>from</strong> Sweden, Denmark, the Netherl<strong>and</strong>s, <strong>and</strong> the United Kingdom. In<br />

these countries there were reports <strong>of</strong>: declared political support for tackling health inequality;<br />

moves towards integration across policy areas; funding streams to support the reduction <strong>of</strong><br />

health inequalities; <strong>and</strong> legislative support for action at regional <strong>and</strong> local levels. Additionally,<br />

in some instances reports included significant verbatim comments <strong>from</strong> government ministers<br />

registering publicly their support for tackling inequality.<br />

In the Netherl<strong>and</strong>s for example the Minister <strong>of</strong> Health was attributed with dem<strong>and</strong>ing a more<br />

systematic policy development to reduce avoidable <strong>and</strong> unfair health inequalities. She (Mrs.<br />

Borst) acknowledged that too little attention was given to the issue in the past <strong>and</strong> that the gap<br />

was widening, she had formerly called for the situation to be addressed <strong>and</strong> greater attention<br />

given in the future. The Ministry for Health, Welfare <strong>and</strong> Sport was funding a programme<br />

whose central aim was to provide insight into policies <strong>and</strong> interventions, which reduced<br />

inequality.<br />

National Health Inequality Targets<br />

Health inequality targets were increasingly seen as important in a number <strong>of</strong> countries:<br />

examples were given within reports <strong>from</strong> the United Kingdom, the Netherl<strong>and</strong>s, Finl<strong>and</strong> <strong>and</strong><br />

Denmark. They were viewed as important because they provided a clear framework for<br />

relating health inequalities to the overall aims <strong>of</strong> health services. They also reflected<br />

aspirations <strong>and</strong> represented a high level <strong>of</strong> commitment, <strong>and</strong> they sent out a clear signal <strong>of</strong><br />

what governments were trying to achieve.<br />

The National Health Inequalities Targets <strong>from</strong> the United Kingdom were announced in<br />

February 2001. They encompassed two key areas - infant mortality <strong>and</strong> life expectancy. The<br />

infant mortality (deaths in the first year <strong>of</strong> life) target aimed to, ‘by 2010, reduce by at least 10<br />

per cent the gap in mortality between manual groups <strong>and</strong> the population as a whole’. In more<br />

detail, associated with this overall target was a range <strong>of</strong> measures including: the effect <strong>of</strong><br />

prevention; parent support; health promotion <strong>and</strong> access to services including antenatal care<br />

<strong>and</strong> neonatal intensive care. Interventions identified in relation to this target were: smoking<br />

control; breast feeding; parent support <strong>from</strong> health visitors <strong>and</strong> the community; reduced<br />

poverty <strong>and</strong> improved maternal mental health; <strong>and</strong> better access to healthcare – NHS Direct,<br />

primary care, accident <strong>and</strong> emergency, <strong>and</strong> paediatric <strong>and</strong> neonatal intensive care. The target<br />

was formulated in terms <strong>of</strong> socio-economic groups <strong>and</strong> therefore was intended to compliment<br />

the area-based life expectancy target. The significance <strong>of</strong> this target was that infant mortality<br />

was judged to reflect a range <strong>of</strong> influences within <strong>and</strong> outside the health services. Success in<br />

achieving the target was to be a measure <strong>of</strong> progress across a much broader front than the<br />

immediate measure <strong>of</strong> mortality within a small age group.<br />

The second target <strong>from</strong> the United Kingdom was aimed at expectation <strong>of</strong> life – ‘starting with<br />

Health Authorities, by 2010 to reduce by at least 10% the gap between the quintile <strong>of</strong> areas<br />

with the lowest life expectancy at birth <strong>and</strong> the population as a whole’. The rationale for<br />

selection as an inequality target was that life expectancy provided a measure <strong>of</strong> wider<br />

determinants, health prevention programmes, improved access to care, resource allocation<br />

<strong>and</strong> treatment. There was to be a focus on interventions including the cancer plan, coronary<br />

heart disease <strong>and</strong> smoking prevention, wider determinants including the Sure Start<br />

programme, opportunities for all, <strong>and</strong> neighbourhood renewal.<br />

In Sweden, the government in April 1997 set up a National Public Health Commission. The<br />

aim was to define national objectives for health development <strong>and</strong> strategies to achieve them.<br />

According to the government these objectives were to guide society in promoting health <strong>and</strong><br />

preventing diseases <strong>and</strong> injuries <strong>and</strong> their consequences in terms <strong>of</strong> disability <strong>and</strong> mortality.<br />

These targets <strong>and</strong> strategies were to contribute to the reduction <strong>of</strong> inequalities in health<br />

among:<br />

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� socio-economic groups;<br />

� women <strong>and</strong> men;<br />

� ethnic groups <strong>and</strong>;<br />

� geographical regions <strong>of</strong> the country<br />

In Sweden, equality in health formed a national vision for health policy <strong>and</strong> ‘efficiency in<br />

measures <strong>and</strong> equity in outcome’ was expressed in general Swedish welfare policies.<br />

Furthermore, Sweden decided to draw up a comprehensive equity-oriented national public<br />

health strategy for the country. This was done by appointing a political/parliamentary<br />

commission consisting <strong>of</strong> both politicians <strong>and</strong> experts <strong>and</strong> ensuring that the national public<br />

health strategy was coupled to clear priority setting <strong>and</strong> resource allocation. (Ostin <strong>and</strong><br />

Diderichsen (2000) quoted in Swedish national report). Of interest within this context were<br />

particular aspects <strong>of</strong> the national public health strategy. These included visions, strategic<br />

intents <strong>and</strong> the first two objectives for a health-friendly society:<br />

Vision<br />

� A health-friendly society gives everyone equal opportunity to influence individual <strong>and</strong><br />

shared causes <strong>and</strong> consequences <strong>of</strong> sickness <strong>and</strong> disease.<br />

� In such a society, everyone has the opportunity to manage the challenges <strong>of</strong> life <strong>and</strong> to<br />

take personal responsibility for those aspects <strong>of</strong> health that can be influenced by the<br />

individual.<br />

� Factors in the surrounding environment that cause physical <strong>and</strong> mental illness, such as<br />

inequitable living conditions <strong>and</strong> unsanitary environments, have been eliminated to a<br />

significant extent.<br />

Strategic intents<br />

� Strengthen social cohesion <strong>and</strong> solidarity in society<br />

� Increase opportunities for integration into the labour market <strong>and</strong> reduce social<br />

exclusion<br />

� Increase the influence <strong>and</strong> security <strong>of</strong> people in the workplace<br />

� Give priority to families with children, in economic terms, <strong>and</strong> in respect <strong>of</strong> the time<br />

available for being together<br />

� Give children <strong>and</strong> young people equal chances in life by reducing segregation <strong>and</strong><br />

implementing compensatory measures<br />

� Give senior citizens <strong>and</strong> people with long-term illnesses or disabilities opportunities to<br />

shape their lives according to their needs<br />

� Create opportunities for sustainable enhancement <strong>of</strong> health<br />

� Increase solidarity with those who are vulnerable to lifestyle risks<br />

(First two) objectives<br />

� Counteraction <strong>of</strong> the wider disparities in income (Indicator: Gini coefficient under 0.25<br />

(in 1988, 0.25)<br />

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� Reduction <strong>of</strong> relative poverty (Indicators: Proportion <strong>of</strong> people living in poverty<br />

according to EU norms under 4% (was 4.8%); Proportion <strong>of</strong> people with income below<br />

the social welfare poverty line under 7% (was 8.9%); Proportion <strong>of</strong> households with<br />

children with long-term dependency on social assistance reduced to a half.) [The<br />

complete set <strong>of</strong> 19 objectives is given within appendix **].<br />

Finl<strong>and</strong> has a tradition <strong>of</strong> egalitarian social <strong>and</strong> health policies dating back to the 1950s.<br />

Health-related equity policy has also been an objective <strong>of</strong> all Finnish Health for All (HFA)<br />

programmes. In the first HFA programme (1986) two general bases were formulated: the level<br />

target, i.e. the best possible level <strong>of</strong> health, <strong>and</strong> the distribution target, i.e. the most even<br />

distribution <strong>of</strong> health. The equity goals <strong>of</strong> the 1986 HFA strategy concentrated on health<br />

services <strong>and</strong> health education. The principle <strong>of</strong> equal access to care <strong>and</strong> meeting <strong>of</strong> the needs<br />

<strong>of</strong> the most disadvantaged were emphasised. Regarding the goal <strong>of</strong> promotion <strong>of</strong> healthy<br />

lifestyles it was stated that special measures were required to reduce health problems arising<br />

<strong>from</strong> lifestyles in the population groups most at risk.<br />

In the revised HFA programme for 1993 action-oriented measures concentrated on primary<br />

health care <strong>and</strong> social services to secure that both preventive <strong>and</strong> care activities were directed<br />

to the part <strong>of</strong> the population which had the greatest health problems. Also health education<br />

measures were cited as a means to improve the health <strong>of</strong> these groups. The lifestyle approach<br />

was complemented by other, more community-oriented <strong>and</strong> cross-sectoral measures. They<br />

concerned the quality <strong>of</strong> residential areas (noise, air pollution, <strong>and</strong> opportunities for physical<br />

exercise) with respect to health <strong>and</strong> certain population groups (children <strong>and</strong> elderly <strong>and</strong><br />

disabled people), <strong>and</strong> created programmes to develop the worst-<strong>of</strong>f regions. Measures were<br />

also related to occupational health <strong>and</strong> to the living conditions <strong>of</strong> the elderly <strong>and</strong> their<br />

opportunities for independence. Although the lifestyle approach is continuously utilised in<br />

these programmes, it is also emphasised that the availability <strong>of</strong> healthy <strong>and</strong> safe choices<br />

should make possible <strong>and</strong> modify the determinants <strong>of</strong> health which are beyond the choice <strong>of</strong><br />

an individual. One example <strong>of</strong> this is to increase the availability <strong>of</strong> healthy (low-salt, low-fat)<br />

food <strong>and</strong> <strong>of</strong> healthy catering in work places <strong>and</strong> schools, which can diminish socio-economic<br />

inequalities in nutrition.<br />

In both <strong>of</strong> these programmes the targets have been expressed in the form <strong>of</strong> policy statements<br />

but generally do not include measurable target values <strong>of</strong> health outcomes. This is explained<br />

with the argument that the main emphasis is on the processes <strong>and</strong> means through which<br />

commonly accepted targets can be reached.<br />

In the most recent Government Resolution on the Health 2015 public health programme<br />

(2001) the target is to reduce inequalities in health. The objective will be to reduce by a fifth<br />

the mortality differences between genders, between groups with different educational<br />

backgrounds <strong>and</strong> between different vocational groupings. The aim is to primarily affect the<br />

entire population, while also paying attention to risk groups.<br />

The Danish report drew attention to the Government Programme on Public Health <strong>and</strong> Health<br />

Promotion 1999-2000 in which high priority was given to initiatives for vulnerable <strong>and</strong><br />

disadvantaged groups. This was the stated case within education <strong>and</strong> employment as well as<br />

the social <strong>and</strong> health sectors. There was a clear acknowledgement that there were<br />

considerable differences in health between social groups depending on education, income,<br />

occupation <strong>and</strong> involvement in the labour force [<strong>and</strong> groups with different ethnic backgrounds].<br />

There were some clear areas <strong>of</strong> emphasis including inequalities in: birth weight; mortality <strong>of</strong><br />

the adult population; working environment; <strong>and</strong> life-style. An overall equity target (one <strong>of</strong> two<br />

overall targets) was identified in which ‘social inequality in health should be reduced to the<br />

extent possible – above all by strengthening efforts to improve health for the most<br />

disadvantaged groups’. It was the stated intention that this overall target should be ‘a<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

30


ecurrent element underlying all the programme’s targets <strong>and</strong> initiatives’. It was to be applied<br />

to all other target areas including those identified for risk factors (tobacco, alcohol, nutrition<br />

<strong>and</strong> exercise, obesity, traffic accidents), age groups (children, young people, senior citizens),<br />

health promoting environments (primary schools, the workplace, local communities, health<br />

services) <strong>and</strong> structural targets (co-operation between the state, counties <strong>and</strong> municipalities,<br />

research, education).<br />

Within Fl<strong>and</strong>ers (the Flemish speaking community) in Belgium, five priority health objectives<br />

were identified to which all health initiatives were orientated <strong>from</strong> 1998 onwards (until 2002).<br />

These priority objectives were also aligned with federal government <strong>and</strong> European Union<br />

policy objectives <strong>and</strong> focused on cancer, smoking, nutrition, accidents <strong>and</strong> infectious diseases.<br />

Tackling health inequality in this approach was through supporting community needs via a<br />

network <strong>of</strong> regional consultative bodies entitled Logos. The priority objectives were translated<br />

through a process <strong>of</strong> consultation by Logos in terms <strong>of</strong> the health needs <strong>of</strong> their particular<br />

community. Special emphasis was placed upon the ‘disadvantaged’ <strong>and</strong> ‘underprivileged’.<br />

In other countries, too, there were examples <strong>of</strong> setting targets <strong>and</strong> co-ordinating action<br />

nationally but delivering at the community level. For example, in the United Kingdom a broad<br />

range <strong>of</strong> area-based initiatives was influential in shaping intervention approaches. The<br />

problem <strong>of</strong> social exclusion was a declared priory <strong>of</strong> the government along with economic <strong>and</strong><br />

social regeneration. The following were mentioned in the report: Local Agenda 21; Health<br />

Action zones (see case studies); Sure Start; <strong>and</strong> Early Years Development <strong>and</strong> Childcare<br />

Partnerships. These initiatives operated in different ways. Some covered large geographical<br />

areas <strong>and</strong> others small neighbourhoods. Some were aimed at facilitating local partnerships<br />

whilst others were piloting new service delivery mechanisms. The Neighbourhood Renewal<br />

Unit was leading a national strategy for neighbourhood renewal within <strong>and</strong> outside central<br />

government. Amongst its aims were the improvement <strong>of</strong> life in deprived areas <strong>and</strong> the support<br />

<strong>of</strong> development strategies at local level through funding a Neighbourhood Renewal Fund <strong>and</strong><br />

a Community Empowerment Fund. Local Strategic Partnerships (LSPs) were also highlighted.<br />

They aimed to bring together the private <strong>and</strong> public sectors along with community<br />

representatives <strong>and</strong> voluntary organisations to ensure mutual support <strong>and</strong> co-operation. One<br />

important goal <strong>of</strong> this approach was to allow strategic decisions to be made at the community<br />

level. A Regional Co-ordination Unit was initiated to support the development <strong>of</strong> LSPs.<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

31


Figure 4: Relationship between government policies<br />

Increasing<br />

opportunity for all<br />

More funding for<br />

education:<br />

• School st<strong>and</strong>ards<br />

• Lifelong learning<br />

Employment:<br />

• Employment<br />

Opportunities Fund<br />

to make New Deal<br />

permanent<br />

• Extend the ONE<br />

service (integrated<br />

benefits <strong>and</strong><br />

employment advise)<br />

• Enhance New Deal<br />

25 plus<br />

• Extend New Deal for<br />

Disabled People<br />

• Exp<strong>and</strong>ing childcare<br />

provision<br />

Children - interventions in<br />

areas <strong>of</strong> greatest need<br />

<strong>and</strong> targeted at those 'at<br />

risk':<br />

• Neighbourhood<br />

Renewal Fund<br />

• Expansion <strong>of</strong> Sure<br />

Start<br />

• Connexions<br />

personal adviser<br />

service<br />

• Children's Fund for<br />

preventive services<br />

for vulnerable<br />

HM Treasury 2000, Spending Review 2000. London: The Stationery Office<br />

Integration<br />

Long term goals<br />

Abolishing child poverty<br />

Providing educational opportunity for all<br />

Increasing employment opportunity for all<br />

Raising prosperity<br />

Building responsible<br />

<strong>and</strong> secure communities<br />

Crime - increase<br />

spending on the police<br />

Tackle drug abuse<br />

through more treatment<br />

<strong>and</strong> prevention<br />

Sustained funding growth<br />

for the NHS<br />

Better social services:<br />

• Promote<br />

independence,<br />

rehabilitation <strong>and</strong><br />

care close the home<br />

for the elderly<br />

• Improve life chances<br />

for children in care<br />

• Implement the NSF<br />

on mental health<br />

Promote volunteering in<br />

the community<br />

Extend cultural, sporting<br />

<strong>and</strong> creative opportunities<br />

for children<br />

Improve the environment:<br />

• Cleaner air ( Ten<br />

Year Plan for<br />

Transport)<br />

• Fewer greenhouse<br />

gas emissions<br />

• Increased recycling<br />

<strong>of</strong> household waste<br />

Public investment in<br />

infrastructure:<br />

• Integrated transport<br />

(Ten Year Plan <strong>of</strong><br />

Transport)<br />

• Modern schools<br />

• Modern hospitals<br />

A number <strong>of</strong> national reports provided examples <strong>of</strong> attempts to integrate policy across different<br />

sectors, or at least to link health objectives with other areas, such as housing. On the whole<br />

however there was a paucity <strong>of</strong> information this subject.<br />

The significance <strong>of</strong> the UK government Spending Review 2000 was highlighted <strong>and</strong> its<br />

importance in promoting an integrated approach across a diversity <strong>of</strong> policy areas. The<br />

diagram presented in Figure 4 attempts to summarise the relationship between government<br />

policies.<br />

Within Sweden, legislation, funding <strong>and</strong> policy reform was helping to integrate across policy<br />

areas, <strong>and</strong> support local action. The role <strong>of</strong> County Councils (21 regional units) <strong>and</strong><br />

municipalities (289 in number) were increasingly important at the national level.<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

Raising productivity <strong>and</strong><br />

sustainable growth<br />

Increase spending on<br />

science - Science Research<br />

Investment Fund<br />

Regeneration:<br />

• Increased funding <strong>and</strong><br />

enhanced role for<br />

Regional Development<br />

Agencies<br />

• New Deal for<br />

Communities<br />

• Neighbourhood<br />

Renewal Fund<br />

More skilled, healthy <strong>and</strong><br />

motivated workforce<br />

Measures to improve<br />

competition, enhance<br />

enterprise <strong>and</strong> make it<br />

accessible to all - role <strong>of</strong><br />

RDA's<br />

Advance Modernising<br />

Government principles on<br />

policy making, responsive<br />

<strong>and</strong> quality public services,<br />

information age government<br />

<strong>and</strong> valuing public services<br />

Improved<br />

health<br />

Narrower<br />

health gap<br />

32


The European Health For All strategy was reported to be having an impact on the programmes<br />

<strong>of</strong> the County Councils. The national government was supporting County Councils' disease<br />

prevention <strong>and</strong> health promotion work through an annual transfer <strong>of</strong> 48 SEK (about 6 USD)<br />

per capita. Intersectoral local public health committees were to be found within more than twothirds<br />

<strong>of</strong> all Swedish municipalities <strong>and</strong> a national network (which followed a modified version<br />

<strong>of</strong> the WHO Healthy Cities model) had more than 60 local government members.<br />

Separate networks were set up within Sweden’s three largest cities (Stockholm, Gothenburg<br />

<strong>and</strong> Malmö). Other networks worth mentioning were created for middle-sized cities (22<br />

cities/municipalities with 50,000 to 100,000 inhabitants) <strong>and</strong> larger cities (7 cities with 100,000<br />

to 250,000 inhabitants). In addition, there is a national Swedish network for local public health<br />

work with more than 100 out <strong>of</strong> 289 municipalities, which have actively applied for<br />

membership. The focus <strong>of</strong> public health on the municipal level was reportedly shifting to<br />

structural determinants <strong>of</strong> health like economics, (un) employment, education, demographics<br />

(home care, including out-patient care, concerns for the elderly), the environment, <strong>and</strong><br />

sustainable development. The process <strong>of</strong> developing local Agenda 21 plans was increasingly<br />

integrated into public health <strong>and</strong> environmental issues.<br />

The report <strong>from</strong> the Netherl<strong>and</strong>s included a long list <strong>of</strong> social policies. The co-ordinator felt<br />

that these were not integrated. Integration was not being achieved at the national level at all;<br />

instead there was a shift in focus, which was viewed as part <strong>of</strong> a wider move towards the<br />

democratisation <strong>of</strong> society. Involving citizens in policy to a greater degree via initiatives such<br />

as ‘Social Participation’ <strong>and</strong> ‘Social Renewal’ were examples <strong>of</strong> this. Where integration was<br />

being achieved was through the urban or ‘Big City Policy’. This brought together Welfare<br />

Policy, Local Health Policy, Employment Policy, Social Participation, Social Renewal <strong>and</strong><br />

Minority Policy.<br />

Within Germany, progress was made in the same way with the introduction <strong>of</strong> two new<br />

policies. There were strong elements within both which attempted to ensure effective<br />

implementation at the local <strong>and</strong> community level. The first (Germany policy 1) was part <strong>of</strong> the<br />

national provincial programme <strong>and</strong> concentrated on the ‘special development needs’ <strong>of</strong> towns<br />

<strong>and</strong> other small geographical areas. The policy’s aim was to draw together <strong>and</strong> integrate the<br />

planning <strong>of</strong> health, housing, transport, job market <strong>and</strong> other economic factors. At the time <strong>of</strong><br />

writing few details were available about the implementation (which was still in the early stages)<br />

<strong>and</strong> concerning any evaluation <strong>of</strong> effectiveness.<br />

Public health planners were given the power to operate within areas beyond traditional health<br />

services in the second German policy initiative, The Co-ordination <strong>of</strong> Health <strong>and</strong> Social<br />

Services (Germany policy 2). This was initiated by the Ministerium für Frauen, Jugend,<br />

Familie und Gesundheit (Ministry for Women, Young People, the Family <strong>and</strong> Health) in 1995.<br />

A ‘round table’ committee for ‘harmonising <strong>and</strong> steering’ was set up to formulates ‘joint<br />

recommendations for action’. On the surface this initiative, based upon Health for All 2000<br />

principles, appeared to be important <strong>and</strong> exciting, but again at the time <strong>of</strong> writing few details<br />

were available.<br />

Legislative support for action at regional <strong>and</strong> local levels<br />

In Austria, one approach was to legislate. In 1998 the Health promotion Act was passed,<br />

which considered life stages <strong>and</strong> was built on WHO definitions <strong>of</strong> health. It was designed to<br />

st<strong>and</strong>ardise national, provincial <strong>and</strong> municipal policy, <strong>and</strong> to ensure funding for health<br />

promotion across a range <strong>of</strong> settings including schools, workplaces <strong>and</strong> within communities.<br />

There were a number <strong>of</strong> goals relating to an increased emphasis on health promotion <strong>and</strong><br />

improving the scientific basis <strong>of</strong> health promotion. It was influential in other sectors, a link was<br />

made with the determinants <strong>of</strong> health <strong>and</strong> policy-makers at all levels were charged with<br />

improving ‘the environment <strong>of</strong> people’.<br />

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Framed within the context <strong>of</strong> occupational health inequality, the Swedish Work Environment<br />

Act (1999) was used to improve working environments <strong>and</strong> work related health. A series <strong>of</strong><br />

problems were identified via <strong>surveys</strong> in the 1990s including increasing mental ill health<br />

amongst staff (low-paid, female, pre-school teachers) <strong>and</strong> increasing allergy levels amongst<br />

children <strong>and</strong> young people. The ill health was associated with the general decline in physical<br />

conditions within nurseries <strong>and</strong> schools. The Labour Inspectorate, who was empowered to<br />

impose financial sanctions on non-compliant employers, worked closely with unions <strong>and</strong> health<br />

pr<strong>of</strong>essionals. The evaluation <strong>of</strong> this initiative noted significant improvements in a number <strong>of</strong><br />

measures <strong>of</strong> the physical environment (including ventilation <strong>and</strong> air-quality). At the time <strong>of</strong><br />

writing no information was available on whether any health improvement had been detected.<br />

Conclusions<br />

The reduction <strong>of</strong> health inequalities through national target setting was seen as increasingly<br />

important by a number <strong>of</strong> the national co-ordinators in this study. They were symbolic <strong>of</strong><br />

support by policy-makers for tackling health inequalities.<br />

For many others they were unattainable or inappropriate. In the case <strong>of</strong> the latter this was<br />

because there were no suitable data on which to construct them or simply because health<br />

inequality didn’t feature on the political agenda.<br />

There were distinctly different approaches to target setting. The Danish approach was to<br />

devise a single overriding target which was applied as a principle to all their health target<br />

areas (risk factors, age groups, health promotion environments <strong>and</strong> structural targets).<br />

Detailed targets were favoured within Sweden <strong>and</strong> the United Kingdom. In the case <strong>of</strong> the<br />

United Kingdom, it was decided to use the summary measures <strong>of</strong> infant mortality <strong>and</strong> life<br />

expectancy. It was argued that they were both health outcomes reflecting a broad range <strong>of</strong><br />

activities within <strong>and</strong> outside the NHS. There was an acknowledgement that there was a lack<br />

<strong>of</strong> strong evidence across a broad range <strong>of</strong> interventions, <strong>and</strong> that this would limit the<br />

opportunity to quantify in a meaningful way the overall impact on the life expectancy target.<br />

However, it was felt that indirect evidence supported the case for such targets being realistic<br />

<strong>and</strong> challenging measures <strong>of</strong> success. Within the guidance provided to accompany these<br />

targets there was clear engagement with the broader determinants <strong>of</strong> health, cross-policy<br />

initiatives were identified <strong>and</strong> their relationship with the two targets described.<br />

There was little evidence in the accounts provided for the integration <strong>of</strong> policy across different<br />

sectors at the national level. An area <strong>of</strong> considerable progress was area-based initiatives,<br />

which used determinants <strong>of</strong> health in a holistic way amongst communities.<br />

Legislative support for actions locally was a useful tool – it <strong>of</strong>fered a potential focus for crosssectoral<br />

working <strong>and</strong> greatly assisted the effective implementation <strong>of</strong> health initiatives.<br />

Co-ordinators indicated that overt political support in the form <strong>of</strong> public statements was very<br />

significant – it focused attention on the issues <strong>and</strong> in turn, by identifying health inequalities as<br />

a priority, made the efforts <strong>of</strong> heath promoters easier. Perhaps not surprisingly co-ordinators<br />

felt that dedicated funding streams were essential <strong>and</strong> that spending cutbacks represented a<br />

real threat to effective work in this area.<br />

Cross-sectoral partnerships <strong>and</strong> integrated planning locally<br />

Conclusions Recommendations to policy-makers<br />

Cross-sectoral partnerships <strong>and</strong> integrated<br />

planning <strong>of</strong> services at all levels<br />

(government, local authorities, agencies <strong>and</strong><br />

communities, families <strong>and</strong> individuals) <strong>of</strong>fer<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Encourage <strong>and</strong> support efforts<br />

which are specifically designed to<br />

34


communities, families <strong>and</strong> individuals) <strong>of</strong>fer<br />

the potential to tackle health inequality by<br />

addressing the broad determinants <strong>of</strong> health.<br />

Action with a local, community focus is<br />

making significant progress in this context.<br />

Round table <strong>and</strong> planning committees <strong>of</strong>fer<br />

an effective means for planning resources<br />

<strong>and</strong> for implementing change at the local<br />

level<br />

Factors that are important in achieving their<br />

goals are:<br />

� The support <strong>of</strong> central government, in<br />

terms <strong>of</strong> funding <strong>and</strong> legislative support<br />

� Shared strategic vision <strong>and</strong> common<br />

goals agreed at the outset<br />

� Strong Community representation<br />

� Flexible funding arrangements to allow<br />

change including pooled budgets<br />

� The support <strong>of</strong> local champions<br />

Round table forums are important to fulfil the<br />

following potential roles:<br />

� Offer cross-training courses<br />

� Offer consultative assistance<br />

� Act as a centre for the evaluation <strong>of</strong><br />

progress<br />

� Offer networking capacity <strong>and</strong> advice<br />

� Engage <strong>and</strong> enlist the support <strong>of</strong> local<br />

champions<br />

Significant threats to successful partnership<br />

include:<br />

• Changing political environment/loss <strong>of</strong><br />

political support<br />

• Failure <strong>of</strong> planning groups to engage the<br />

interest <strong>and</strong> support <strong>of</strong> local<br />

communities<br />

• Funding problems, including deficient<br />

funds (for increasing dem<strong>and</strong>s) or<br />

numerous funding sources<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

tackle health inequality through<br />

integrating local services <strong>and</strong><br />

creating new working patterns at<br />

local <strong>and</strong> community level<br />

� Support <strong>and</strong> develop local<br />

multidisciplinary planning<br />

committees as an effective means<br />

<strong>of</strong> implementing change at local<br />

level<br />

� Encourage the dissemination <strong>of</strong><br />

examples <strong>of</strong> good practice.<br />

� Explore <strong>and</strong> collect evidence on<br />

the effectiveness <strong>of</strong> new<br />

approaches within this context<br />

� Where possible, recognise<br />

potential threats to progress <strong>and</strong><br />

minimise their impact<br />

Cross-sectoral partnerships were being formulated to deal with problems <strong>and</strong> provide<br />

integrated solutions locally. There was recognition that this was imperative if inequalities were<br />

going to be tackled by addressing the broader determinants <strong>of</strong> health. Within this context the<br />

links between social exclusion, lifestyle <strong>and</strong> health were explicitly considered. Although there<br />

was an emphasis placed upon partnership at all levels (government departments, local<br />

35


authorities, agencies <strong>and</strong> communities, families <strong>and</strong> individuals) there was a focus on localities<br />

<strong>and</strong> communities which acknowledged that action at this level was an effective starting point.<br />

Co-ordinators identified the way in which these new ways <strong>of</strong> working were being developed,<br />

some <strong>of</strong> the obstacles that were encountered, <strong>and</strong> various solutions that were adopted to<br />

counter such obstacles. In some cases these new formulations appeared to be evolving in a<br />

haphazard way, responding <strong>and</strong> reacting to problems as they were encountered. In others,<br />

partnership working was planned <strong>and</strong> executed systematically: key components <strong>of</strong> success<br />

were nominated during the planning stages; elements <strong>of</strong> management <strong>and</strong> leadership<br />

responsibility were clarified; aims, objectives <strong>and</strong> targets <strong>of</strong> success were agreed upon;<br />

consultation mechanisms were devised <strong>and</strong> engaged; <strong>and</strong> subsequent progress was<br />

monitored <strong>and</strong> evaluated.<br />

These developments, in some cases, were driven <strong>and</strong> supported by central government, for<br />

example, the Government in the United Kingdom proposed new duties <strong>and</strong> roles for<br />

authorities. These were outlined in a public health White Paper (1999)<br />

‘The roles <strong>of</strong> the NHS <strong>and</strong> <strong>of</strong> local authorities are crucial. They<br />

must become organisations for health improvement, as well as for<br />

healthcare <strong>and</strong> service provision. We are underlining this joint<br />

responsibility by the new duty <strong>of</strong> partnership on NHS bodies <strong>and</strong><br />

local government in the Health Act…’<br />

‘Through the Health Act 1999 we have extended the existing duty<br />

<strong>of</strong> partnership between health authorities <strong>and</strong> local authorities to<br />

NHS trusts <strong>and</strong> primary care trusts, reflecting the need for<br />

partnership in service commissioning <strong>and</strong> delivery as well as<br />

strategic planning. All this is underpinned by new financial<br />

flexibilities, including powers to operate pooled budgets. This will<br />

create the opportunity for the new style <strong>of</strong> partnership we want to<br />

promote.’<br />

‘Tackling poor health <strong>and</strong> health inequality needs the NHS <strong>and</strong><br />

local government to take joint responsibility…Successful<br />

partnership working is built on organisations moving together to<br />

address common goals on developing in their staff with the skills<br />

necessary to work in an entirely new way – across boundaries, in<br />

multidisciplinary teams, <strong>and</strong> in a culture in which learning <strong>and</strong> good<br />

practice are shared’.<br />

Taken <strong>from</strong> ‘Making T.H.E. links –<br />

Integrating sustainable transport, health<br />

<strong>and</strong> environmental policies: A guide for<br />

local authorities <strong>and</strong> health authorities’<br />

HEA 1999<br />

Within the same White Paper broad guidelines were issued on ‘Making partnerships work’:<br />

� Clarify the common purpose <strong>of</strong> the partnership<br />

� Recognise <strong>and</strong> resolve potential areas <strong>of</strong> conflict<br />

� Agree a shared approach to partnership<br />

� Establish a strong leadership based on a clear vision <strong>and</strong> drive, with well-developed<br />

influencing <strong>and</strong> networking skills<br />

� Continuously adapt to reflect the lessons learnt <strong>from</strong> experience<br />

� Promote awareness <strong>and</strong> underst<strong>and</strong>ing <strong>of</strong> partner organisations through joint training<br />

programmes <strong>and</strong> incentives to reward effective working across organisational<br />

boundaries<br />

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36


United Kingdom Department <strong>of</strong> Health 1999<br />

Evans <strong>and</strong> Killoran (2000) observed that whilst policy within the United Kingdom strongly<br />

supported partnership working for tackling health inequalities, there was a lack <strong>of</strong> evidencebased<br />

operational guidance for the development <strong>of</strong> local partnerships in health. These<br />

authors investigated different models in partnership-working in tackling health inequality <strong>and</strong><br />

identified six key themes:<br />

� Shared strategic<br />

vision<br />

� Leadership <strong>and</strong><br />

management<br />

� Relations <strong>and</strong> local<br />

ownership<br />

The early creation <strong>of</strong> a shared strategic vision about the focus <strong>of</strong> the<br />

project <strong>and</strong> how it would impact on inequalities was a critical<br />

enabling factor. The absence or partial agreement <strong>of</strong> the strategic<br />

vision, both within <strong>and</strong> between partner organisations undermined<br />

progress.<br />

Leadership provided by local ‘champions’ for integrated working<br />

was crucial. This was important at the strategic level, with project<br />

‘sponsors’ seeking to position the project on the strategic agenda as<br />

well as ensuring that the project has the space <strong>and</strong> resources to<br />

work. Leadership was also crucial at the project management level.<br />

Management <strong>of</strong> conflict proved problematic in some cases, <strong>and</strong><br />

skills that enabled conflicts arising <strong>from</strong> diversity <strong>of</strong> perspectives to<br />

be addressed <strong>and</strong> resolved were valuable in making progress.<br />

Shared ownership for the project was related to the degree <strong>of</strong><br />

participation in, <strong>and</strong> accountability for, the project among<br />

stakeholders, as well as the quality <strong>of</strong> relations between parties.<br />

Developing <strong>and</strong> maintaining good relations required mutual<br />

underst<strong>and</strong>ing <strong>and</strong> respect <strong>of</strong> other stakeholders’ pr<strong>of</strong>essional<br />

backgrounds <strong>and</strong> contributions, <strong>and</strong> this could be facilitated through<br />

the project. An audit <strong>of</strong> the quality <strong>of</strong> relationships between parties<br />

would seem to be a pre-requisite <strong>of</strong> developing integrated working.<br />

Furthermore partnership structures <strong>and</strong> processes must seek equity<br />

in participation <strong>and</strong> accountability. An early focus on joint<br />

assessment <strong>of</strong> community needs proved important for deepening a<br />

shared vision, identification <strong>of</strong> contributions <strong>and</strong> engendering<br />

ownership <strong>of</strong> practical steps<br />

� Accountability There was a need for partners to acknowledge <strong>and</strong> address the<br />

complexities <strong>of</strong> fluid <strong>and</strong> multiple accountability’s in partnership<br />

working. Establishing formal accountability arrangements (e.g.<br />

steering groups) was not sufficient to ensure genuine accountability.<br />

[Given that democratisation <strong>of</strong> processes <strong>and</strong> structures were an<br />

important aspect <strong>of</strong> building social cohesion in deprived<br />

communities with potential health benefits] greater attention was<br />

needed to find effective ways <strong>of</strong> genuinely engaging communities<br />

� Organisational<br />

readiness <strong>and</strong><br />

responsiveness to a<br />

changing environment<br />

<strong>and</strong> shifting power balances.<br />

The organisational readiness <strong>of</strong> partners to engage in inter-agency<br />

working to tackle inequalities varied markedly between (<strong>and</strong> also<br />

within) projects <strong>and</strong> was influential in determining the extent <strong>and</strong><br />

pace <strong>of</strong> progress. Some projects were based on histories <strong>of</strong> joint<br />

organisational <strong>and</strong> personal relationships <strong>and</strong> were integrated<br />

within existing joint planning mechanisms. Other projects needed<br />

to establish new forums <strong>and</strong> structures <strong>and</strong> forge new relationships.<br />

Many <strong>of</strong> these new patterns <strong>of</strong> working were reflected within the co-ordinators accounts.<br />

An attempt was made to consider the combined needs <strong>of</strong> deprived urban areas in a policy<br />

initiative reported within the German national report (Policy 1). Towns with special<br />

development needs – ‘the social town’ focused on the integration <strong>of</strong> health, housing, transport<br />

<strong>and</strong> economic aspects <strong>of</strong> the area under scrutiny. The programme was instigated in response<br />

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to a growing awareness <strong>of</strong> problems, which compounded <strong>and</strong> exacerbated one another,<br />

especially with respect to younger people. These problems were to be found in<br />

unemployment <strong>and</strong> lack <strong>of</strong> prospects; disharmony between groups <strong>and</strong> individuals; <strong>and</strong> poor<br />

quality physical environments. Careful town planning <strong>and</strong> redevelopment were the starting<br />

points for this ambitious programme, which sought to:<br />

� Strengthen the local economy by safeguarding jobs;<br />

� Provide assistance to those seeking work;<br />

� Support <strong>and</strong> facilitate social structures with <strong>and</strong> between population groups;<br />

� Create greater security in public areas;<br />

� Provide integrated ecological (sustainable) planning;<br />

An underpinning value behind this programme <strong>of</strong> activity was a greater level <strong>of</strong> community<br />

participation in the planning process combined with greater levels <strong>of</strong> ownership <strong>and</strong><br />

responsibility. The provision <strong>of</strong> considerable financial (10million DM 1999-2003) <strong>and</strong><br />

legislative (article 104a para 4 <strong>of</strong> the basic law for the promotion <strong>of</strong> town building measures<br />

1999) support was important in the continued success <strong>of</strong> the programme which had the direct<br />

involvement <strong>of</strong> the following stakeholders:<br />

� The Federal Government via the national-provincial programme<br />

� The National Ministry for the Family, the Aged <strong>and</strong> Young People<br />

� The programme ‘Development <strong>and</strong> Chances for Young People in Social Problem<br />

Areas’<br />

� The National Ministry <strong>of</strong> Labour <strong>and</strong> Social Order<br />

� The National Ministry <strong>of</strong> the Interior<br />

� The National Ministry for Business <strong>and</strong> Technology<br />

� The National Ministry for Traffic, Building <strong>and</strong> Housing<br />

Cross-sectoral partnerships across Europe did not necessarily receive the same level <strong>of</strong><br />

interest, emphasis <strong>and</strong> support <strong>from</strong> central government as they did within the United Kingdom<br />

<strong>and</strong> Germany. There were, however, many examples identified within the national reports,<br />

which provided valuable learning points, which could potentially be transferred to other<br />

national settings.<br />

Within Belgium (Intervention 4) for instance, a concerted effort was made to reorganise health,<br />

mental health, judicial <strong>and</strong> legal support, adult education <strong>and</strong> literacy services. The need for<br />

‘social co-ordination’ was identified <strong>and</strong> driven by pr<strong>of</strong>essionals working within existing<br />

community healthcare services in Forest Quartier Santé (Brussels). A commission was set up<br />

with the goal <strong>of</strong> tackling health inequality through reorganising the resources <strong>and</strong> efforts <strong>of</strong><br />

different sectors. A local planning committee (‘Forum Santé’) with strong community<br />

representation was initiated to identify needs <strong>and</strong> agree priorities. The ‘Forum Santé’ then<br />

delegated responsibility for specific tasks to working groups whose membership comprised<br />

both community members <strong>and</strong> <strong>of</strong>ficials <strong>from</strong> appropriate authorities. The ‘Forum Santé’ played<br />

an important facilitatory role, <strong>of</strong>fering training, networking advice, <strong>and</strong> supervising goaloriented<br />

(nominal) group discussions. Information <strong>from</strong> the discussions was returned to the<br />

forum <strong>and</strong> analysed as part <strong>of</strong> the evaluation <strong>of</strong> the initiative. The evaluation concluded that<br />

the framework that was set up was successful in <strong>of</strong>fering a new approach to resource planning<br />

within the district. It also endorsed the way in which community members were involved in all<br />

aspects <strong>of</strong> the process – <strong>from</strong> the identification <strong>of</strong> problems through to prioritisation <strong>of</strong><br />

resources. Importantly it was able to identify that community leaders, who had become<br />

interested in the Forum, considered it worthwhile in that their opinions were valued <strong>and</strong> their<br />

efforts realised.<br />

A similar model was adopted in a deprived neighbourhood <strong>of</strong> Anderlecht (Brussels, Belgium) –<br />

‘Les Relais-Sante’, Cureghem. Within this account, the support <strong>of</strong> the political leader was<br />

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crucial in the initiation <strong>of</strong> the ‘District’s Social Development Plan’. The overall goal <strong>of</strong> this<br />

project was to improve the quality <strong>of</strong> life within the district by integrating the efforts <strong>of</strong> a range<br />

<strong>of</strong> services to tackle problems related to the: prevailing economic conditions; health status <strong>of</strong><br />

the local population; educational services; the urban environment; <strong>and</strong> social infrastructure.<br />

The success <strong>of</strong> this project was limited by a failure to engage the local population to a<br />

sufficient level <strong>and</strong> through the loss <strong>of</strong> the political champion mentioned, who was instrumental<br />

in achievements early on.<br />

Within Belgium again, progress was made in forging links between different sectors through<br />

the use <strong>of</strong> social interpreters <strong>and</strong> mediation services (Interpretariat et Service de Mediation,<br />

Belgium Intervention 3). The programme, whilst initiated by primary healthcare pr<strong>of</strong>essionals,<br />

did not restrict operation within the boundaries <strong>of</strong> health service infrastructure. Social<br />

services, schools, adult education establishments, judicial services, socio-cultural<br />

development organisations, support centres for prostitutes <strong>and</strong> asylum seeker reception<br />

centres were the target settings for this service. The progress <strong>and</strong> development <strong>of</strong> the<br />

organisation behind this programme was not without problems. The changing political<br />

environment, deficient funds to meet increasing dem<strong>and</strong> for services, numerous <strong>and</strong> diverse<br />

funding sources were all cited as threats to success. The account reported considerable<br />

recent increases in dem<strong>and</strong> notably <strong>from</strong> eastern European immigrants.<br />

Social workers, insurance company representatives, union representatives, workplace health<br />

promotion services <strong>and</strong> company representatives composed the membership <strong>of</strong> intersectoral<br />

planning forums in a project in Denmark. The scheme was designed to lessen the impact <strong>of</strong><br />

sickness absence in the workplace in 5 municipalities (Denmark Intervention 1). Round table<br />

discussions focusing on selected case studies allowed integrated solutions to be created for<br />

individuals suffering sickness <strong>and</strong> consequently absence <strong>from</strong> work. The response was<br />

initiated due to growing pressure on private institutions <strong>and</strong> support services <strong>and</strong> driven by the<br />

Ministry <strong>of</strong> Social Affairs. Improved <strong>and</strong> more systematic case h<strong>and</strong>ling along with a greater<br />

degree <strong>of</strong> co-operation between partners was reported by the evaluation. Figures on whether<br />

the initiative had made an impact in terms <strong>of</strong> decreasing sickness benefit payments were not<br />

available but the indications were that this was expected.<br />

Strong intersectoral co-operation characterised an intervention conducted in Djursl<strong>and</strong><br />

(Denmark intervention 2) which aimed to provide rapid assistance to families where alcohol<br />

use was identified as being problematic. Social workers, teachers <strong>and</strong> day-care assistants<br />

formed teams to ensure that signs <strong>of</strong> problems were detected early <strong>and</strong> the appropriate<br />

support <strong>of</strong>fered quickly. More radical measures were instigated where the abuse <strong>of</strong> children<br />

came to light. Emphasis was placed on treating the whole family <strong>and</strong> for this to be achieved a<br />

range <strong>of</strong> appropriate services were delivered by the teams. Important in the success <strong>of</strong> this<br />

initiative were cross-training courses <strong>and</strong> consultative assistance for the pr<strong>of</strong>essional involved.<br />

Co-operation between <strong>and</strong> co-ordination amongst: primary healthcare pr<strong>of</strong>essionals; health<br />

insurance representatives; adult educators; self-help group <strong>and</strong> other community<br />

representatives, was an objective <strong>of</strong> a nutritional programme in Kaltenmoor Germany<br />

(Intervention 4). A holistic response to poor nutritional intake was instigated among this<br />

socially disadvantaged population in the Lower Saxony region. High levels <strong>of</strong> community<br />

participation were reported with activities being conducted in a number <strong>of</strong> settings including:<br />

schools <strong>and</strong> day care centres; community health centres; adult education centres; <strong>and</strong> day<br />

facilities for the elderly. Amongst the positive aspects <strong>of</strong> the programme, participants stated<br />

that they felt that there was an ‘increased availability <strong>of</strong> alternative ways to act’.<br />

The co-ordination <strong>of</strong> health <strong>and</strong> social care was one <strong>of</strong> the aims <strong>of</strong> the Provincial Health<br />

Conference <strong>of</strong> North-Rhine Westphalia, which based its approach on Health for All 2000, but<br />

which reduced the 38 targets down to ten more manageable ones (German policy 2). The<br />

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initiative was driven by the Ministry for Women, Young people, Family <strong>and</strong> Health <strong>and</strong><br />

commenced in 1995. Specific objectives relating to the co-ordination <strong>of</strong> services were:<br />

� Optimising the overall provision for the sick <strong>and</strong> those needing care, by directing <strong>and</strong><br />

developing the provision <strong>of</strong> services according to need<br />

� Providing those services which are lacking <strong>and</strong> avoiding those which are superfluous,<br />

by taking action against the causes <strong>of</strong> lack <strong>of</strong> agreement <strong>and</strong> gaps in services by cooperating<br />

with those responsible for planning <strong>and</strong> providing services<br />

Whilst the evaluation was not able to demonstrate improvements in health which could be<br />

attributed to the initiative within the time period, it was however, able to report a number <strong>of</strong><br />

positive effects in terms <strong>of</strong> process. Amongst these were the: rationalisation <strong>of</strong> information<br />

<strong>and</strong> advice services; regular positive media reporting <strong>of</strong> the initiative; improved responses <strong>from</strong><br />

doctors <strong>and</strong> pharmacists.<br />

Specific improvements for disadvantaged people, which arose <strong>from</strong> the initiative, included:<br />

� A more responsive addiction care system<br />

� Increased levels <strong>of</strong> access to care for people with mental health problems including,<br />

faster response times for diagnosing <strong>and</strong> treating (especially in more extreme cases<br />

where there was a need for supervised accommodation)<br />

� Better access in the workplace for people with mental health problems<br />

‘Round table committees’ (‘communal health conferences, <strong>and</strong> ‘subject-related working<br />

parties’) were created specifically to manage the harmonisation process. Their remit was to:<br />

� Identify problem areas <strong>and</strong> gaps in the provision <strong>of</strong> services at the community level<br />

� Formulate priorities for specific working groups<br />

� Issue ‘joint recommendations for action’<br />

Overall the effect <strong>of</strong> these reforms was to provide public health services with greater powers to<br />

act at the community level, extending beyond traditional healthcare infrastructure. These were<br />

being used particularly to target the socially disadvantaged.<br />

Strengthening coherence in prevention in Amsterdam (Netherl<strong>and</strong>s Intervention 1) was a joint<br />

initiative instigated by the municipality <strong>and</strong> a health insurance company. It aimed to<br />

strengthen collaboration between prevention, cure <strong>and</strong> care. There were four main pilot<br />

project areas (including strengthening coherence <strong>and</strong> reduction <strong>of</strong> inequalities) <strong>and</strong> these were<br />

operationalised in three distinct phases via the following strategies:<br />

� Setting up a multidisciplinary steering groups (which included community members)<br />

for each pilot area<br />

� Working in ways prescribed by the community<br />

� Developing intersectoral collaboration between institutions, organisations <strong>and</strong><br />

disciplines<br />

� Supporting progress by research<br />

There were three themes that were identified by the steering groups, which were: families<br />

under pressure; health problems <strong>of</strong> the elderly; <strong>and</strong> cultural differences in care facilities for<br />

ethnic minorities <strong>and</strong> migrants.<br />

Despite a number <strong>of</strong> operational problems the project was able to report considerable<br />

progress <strong>and</strong> to make recommendations on the factors that were important in this context.<br />

Amongst these were:<br />

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On progress:<br />

� Access to municipal <strong>and</strong> health insurance’s was easier<br />

� The community approach to tackling problems was high on the political agenda <strong>and</strong><br />

there was a willingness created for organisations to work together<br />

� There were improved connections between policy <strong>and</strong> practice<br />

� Involvement <strong>of</strong> community representatives was positive <strong>and</strong> enhanced the process<br />

On important facilitator factors:<br />

� Community involvement despite being challenging was appropriate<br />

� Steering groups required a degree <strong>of</strong> financial autonomy <strong>and</strong> control<br />

� Research findings needed to be action-oriented<br />

� Shared funding <strong>and</strong> collaborative goal setting was important<br />

� Clarifying management responsibility at the outset was critical<br />

� Utilising existing network structures was a valuable resource<br />

� Time was needed if trust <strong>and</strong> respect was to be built between different players<br />

Conclusions<br />

Across Europe there were many examples where new ways <strong>of</strong> cross-sectoral working were<br />

being embarked upon. This was not simply a reflection <strong>of</strong> moves towards rationalising existing<br />

services to make them more efficient. Underpinning these efforts was a desire to provide<br />

integrated solutions to complex problems. These new partnerships were a means by which<br />

health inequalities could be engaged through addressing the broader determinants <strong>of</strong> health.<br />

Creating new ways <strong>of</strong> working meant quite radical shifts, challenging the existing service<br />

infrastructures, resource allocation <strong>and</strong> policy. This context proved extremely difficult for those<br />

trying to oversee reforms <strong>and</strong> for those implementing new initiatives at the community level.<br />

Despite this adversity considerable progress was being made <strong>and</strong> the process <strong>of</strong> change was<br />

being made easier by a range <strong>of</strong> measures which were ensuring success.<br />

Supporting staff skills development through cross-training courses was one <strong>of</strong> the approaches<br />

within this range <strong>of</strong> measures. These not only enhanced the existing skills base but also<br />

facilitated learning by allowing pr<strong>of</strong>essionals to see some <strong>of</strong> the problems they were facing<br />

<strong>from</strong> other perspectives. This was important in encouraging co-operation amongst newly<br />

formulated multi-disciplinary teams. External consultative assistance was also useful in this<br />

context.<br />

The creation <strong>of</strong> new ‘round table forums’ or ‘local planning groups’ who controlled ‘project<br />

working groups’ was a particularly effective means <strong>of</strong> moving forward. It was important that<br />

these forums were given a real chance to make changes, <strong>and</strong> financial flexibility, allowing<br />

pooling <strong>of</strong> budgets was an important contributory factor. Ensuring that there was a shared<br />

strategic vision <strong>and</strong> that there were common goals was imperative at the outset. Where<br />

adequate support was afforded, the forums were well placed to: engage the support <strong>of</strong> local<br />

champions; ensure the local community was being fully consulted; provide a central point for<br />

evaluation; <strong>of</strong>fer a facilitating <strong>and</strong> networking role along with potential training capacity.<br />

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Improving Access to Healthcare Services<br />

Conclusions Recommendations to policy-makers<br />

The modification <strong>of</strong> existing services to improve<br />

access to excluded groups is a way <strong>of</strong> tackling<br />

health inequalities directly:<br />

� Partnership protocols <strong>and</strong> harmonising<br />

committees are a means to integrate<br />

services to <strong>of</strong>fer greater levels <strong>of</strong><br />

accessibility within communities<br />

� Training <strong>and</strong> development is important to<br />

ensure that pr<strong>of</strong>essionals are aware <strong>of</strong><br />

cultural <strong>and</strong> language barriers, <strong>and</strong> to<br />

assist them in providing appropriate <strong>and</strong><br />

sensitive responses to patient needs<br />

� Community representation <strong>and</strong><br />

involvement can successfully be used as<br />

a tool for service reforms<br />

� Access charters can be initiated to<br />

ensure acceptable access levels for all,<br />

including the socially excluded<br />

� Improving information systems is a basic<br />

practical measure to raise awareness <strong>of</strong><br />

available services (information<br />

technology, databases, telephone help<br />

lines <strong>and</strong> drop-in counselling services)<br />

Outreach work is a successful means to target<br />

socially excluded groups<br />

� Multidisciplinary mobile teams can target<br />

socially excluded groups with special<br />

health needs (e.g., sex workers)<br />

� Investigatory home visits <strong>and</strong> home care<br />

networks can provide basic in situ care<br />

<strong>and</strong> refer patients for additional treatment<br />

where appropriate (Elderly, Mothers <strong>and</strong><br />

young children)<br />

Interpretation <strong>and</strong> advocacy can increase<br />

awareness <strong>of</strong> available healthcare services <strong>and</strong><br />

resources, improve interaction between medical<br />

personnel <strong>and</strong> patients, <strong>and</strong> provide support<br />

where language <strong>and</strong> cultural differences are a<br />

barrier to patients receiving appropriate levels <strong>of</strong><br />

service <strong>and</strong> treatment.<br />

� Language translators can improve<br />

communication between immigrants <strong>and</strong><br />

medical personnel<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Support <strong>and</strong> encourage the reform<br />

<strong>and</strong> modification <strong>of</strong> existing<br />

healthcare services by the methods<br />

identified to ensure that socially<br />

excluded groups are aware <strong>of</strong> <strong>and</strong> can<br />

access services available to them<br />

� Encourage the development <strong>of</strong><br />

outreach services where barriers<br />

mitigate against certain groups <strong>of</strong><br />

people accessing appropriate services<br />

� Create <strong>and</strong> support opportunities for<br />

interpretation <strong>and</strong> advocacy services<br />

in situations where specific cultural<br />

42


medical personnel<br />

� Cultural interpreters <strong>of</strong>fer language<br />

services <strong>and</strong> can tackle other potential<br />

barriers to patient satisfaction<br />

� Advocacy services are a means <strong>of</strong><br />

support <strong>and</strong> advice to those who are<br />

excluded <strong>from</strong> service provision due to<br />

range <strong>of</strong> obstructions (language, cultural,<br />

financial)<br />

� Increased coverage can be achieved<br />

through the initiation <strong>of</strong> telephone help<br />

lines <strong>of</strong>fering interpretation services<br />

Improving financial access to services affords<br />

greater levels <strong>of</strong> protection to disadvantaged<br />

groups <strong>and</strong> reduces the financial burden on<br />

service providers.<br />

By reducing financial pressures on those needing<br />

treatment, they are more likely to present to<br />

appropriate primary services rather than wait<br />

<strong>and</strong>/or needlessly burden secondary services.<br />

� Greater levels <strong>of</strong> access achieved through<br />

legislation provide ‘safety nets’ to those<br />

who would otherwise have been excluded<br />

<strong>from</strong> participating in health insurance<br />

schemes.<br />

� Local agreements between primary care<br />

services <strong>and</strong> insurance companies initiate<br />

fixed payment schemes which <strong>of</strong>fer<br />

greater levels <strong>of</strong> access to low-income<br />

people<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

<strong>and</strong> language barriers have been<br />

identified<br />

� Encourage the development <strong>of</strong><br />

curricula, codes <strong>of</strong> ethical practice <strong>and</strong><br />

qualifications within this field to<br />

ensure appropriate quality st<strong>and</strong>ards<br />

� Support <strong>and</strong> encourage the<br />

development <strong>of</strong> legislation <strong>and</strong><br />

schemes which provide greater access<br />

or afford greater levels <strong>of</strong> protection to<br />

those who are prevented <strong>from</strong><br />

accessing services due to their lack <strong>of</strong><br />

financial means<br />

Improving access to healthcare services was a subject that received a great deal <strong>of</strong> attention<br />

within national reports. Co-ordinators provided examples <strong>of</strong> innovative approaches that were<br />

designed to extend the boundaries <strong>of</strong> existing service provision. Generally this activity was<br />

related to groups <strong>of</strong> people with special needs with respect to services, or to those who were<br />

prevented <strong>from</strong> accessing services because <strong>of</strong> barriers (legal, cultural, financial) that had been<br />

identified. The consideration <strong>of</strong> this subject covered a number <strong>of</strong> approaches including:<br />

outreach work amongst difficult-to-target populations (migrant workers, rural-to-urban<br />

migrants, ethnic minorities, sex workers); providing services within specific geographical<br />

areas characterised by multiple deprivation; modifying the access points <strong>of</strong> traditional services<br />

to make them more responsive to the needs <strong>of</strong> certain groups; <strong>and</strong> providing improved<br />

financial access to care to those lacking sufficient funds or insurance 9 .<br />

The links between health inequality <strong>and</strong> health services has long been an issue considered by<br />

many writers. It was not considered necessary to reproduce here the entire debate. A brief<br />

look at some <strong>of</strong> the issues is included for completeness.<br />

9 Some <strong>of</strong> the examples that illustrated the extension <strong>of</strong> existing healthcare boundaries were part <strong>of</strong><br />

wider moves towards the integration <strong>of</strong> services <strong>and</strong> the creation <strong>of</strong> new working partnerships. This<br />

closely related issue receives fuller attention within the section on cross-sectoral partnerships<br />

43


Macintyre (1989) noted that reviews <strong>of</strong> patterns <strong>of</strong> ill-health <strong>of</strong>ten started by arguing that their<br />

causes lay outside the healthcare sector, but then proceeded to recommend changes in<br />

healthcare provision without explaining why this should be an appropriate type <strong>of</strong> remedy.<br />

She cited the famous thesis <strong>of</strong> McKeown (1965) who argued that the decline in mortality that<br />

occurred in Western Europe <strong>from</strong> the early nineteenth century was due to a rising st<strong>and</strong>ard <strong>of</strong><br />

living <strong>and</strong> the control <strong>of</strong> the physical environment. This position, Macintyre observed, was<br />

frequently extended by others to suggest that health services had little influence on aggregate<br />

levels <strong>of</strong> morbidity <strong>and</strong> mortality. She considered this to be erroneous since McKeown’s point<br />

was that specific therapies were not important in reducing aggregate mortality until the<br />

beginning <strong>of</strong> the twentieth century <strong>and</strong> not that they were never important. She pointed to the<br />

lack <strong>of</strong> evidence supporting both viewpoints, either that health services were relatively<br />

unimportant in determining health or that the use <strong>of</strong> health services was automatically effective<br />

<strong>and</strong> beneficial. It was the latter view she reported as apparently being manifest in the way<br />

consumption <strong>of</strong> health services was equated with health, or the equalisation <strong>of</strong> health service<br />

use was seen as a remedy for inequalities in health. Macintyre took a pragmatic stance <strong>and</strong><br />

considered that arguments about whether health services matter were not useful at a<br />

generalised level <strong>and</strong> that since health services <strong>of</strong> some kind or another were not likely to<br />

disappear, scrutiny <strong>of</strong> how they could do most good was more productive than worrying about<br />

whether they did any good at all. Co-ordinators took a similarly pragmatic stance <strong>and</strong><br />

identified a large number <strong>of</strong> examples attempting to tackle some <strong>of</strong> the problems mentioned at<br />

the outset <strong>of</strong> this chapter.<br />

All <strong>of</strong> the interventions <strong>from</strong> the Portuguese national report were aimed at improving access to<br />

healthcare services through outreach work amongst hard to reach populations. Two<br />

interventions were targeted at sex workers in the most northern region <strong>of</strong> Portugal. These<br />

groups <strong>of</strong> people were identified as having particular health needs, especially with respect to<br />

drug use <strong>and</strong> sexual health, but because <strong>of</strong> their relative social isolation were <strong>of</strong>ten not<br />

receiving or accessing them.<br />

Espaco Pessoa in Oporto city was an outreach support programme for male <strong>and</strong> female<br />

prostitutes. Multi-disciplinary teams were convened to try to provide better access to a range<br />

<strong>of</strong> social <strong>and</strong> health services. In the early stages <strong>of</strong> the project research revealed that the<br />

prostitution phenomenon in this region generated highly closed social systems which<br />

contributed to individuals becoming alienated. Efforts were focused on the provision <strong>of</strong><br />

services <strong>from</strong> doctors, nurses <strong>and</strong> psychologists but in addition were extended to provide<br />

improved legal <strong>and</strong> housing conditions. A number <strong>of</strong> protocols were devised between the<br />

partners involved (Association for the Equality <strong>of</strong> Women’s Rights, Sub-Region on Health in<br />

Oporto, Foreigner <strong>and</strong> Borders Service, the Association for Family Planning <strong>and</strong> all <strong>of</strong> the local<br />

hospitals) to try to facilitate more co-operative methods <strong>of</strong> working.<br />

The AUTOESTIMA programme (Portugal intervention 4), again based in Northern Portugal,<br />

focused on the sexual health <strong>of</strong> prostitutes. It was particularly targeted at street prostitutes<br />

who unlike their counterparts working within clubs or <strong>from</strong> apartments were much less likely to<br />

visit clinics <strong>and</strong> counselling services. This group was reported to have: high levels <strong>of</strong><br />

intravenous drug-use; poor housing conditions; a high proportion <strong>of</strong> cohabitants who were<br />

unemployed; low educational achievement levels; a high proportion <strong>of</strong> <strong>of</strong>fspring no longer<br />

living with them; high numbers not using any form <strong>of</strong> contraception; <strong>and</strong> low attendance levels<br />

at family planning <strong>and</strong> sexually transmitted disease clinics. Making contact with these isolated<br />

individuals was the first step in a process <strong>of</strong> socialisation <strong>and</strong> the project did this by going<br />

mobile <strong>and</strong> operating during the night. A vehicle with teams <strong>of</strong> pr<strong>of</strong>essionals <strong>of</strong>fered<br />

immediate medical services, support <strong>and</strong> information.<br />

A range <strong>of</strong> problems related to the ‘functional access’ to social services <strong>and</strong> healthcare were<br />

detected, which was the starting point for the Quinta do Mocho <strong>and</strong> Marvilla projects for<br />

immigrants <strong>and</strong> illegal immigrants (Portugal intervention 2). The target group were young<br />

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migrants <strong>from</strong> Africa (Angola, S.Tome <strong>and</strong> Guinea) who were living in a district <strong>of</strong> Lisbon<br />

characterised by high levels <strong>of</strong> unemployment, poor housing, <strong>and</strong> security problems.<br />

Additional problems included children with low levels <strong>of</strong> immunisation uptake, poor nutritional<br />

intake who remained at home alone during the day <strong>and</strong> who were subject to physical <strong>and</strong><br />

sexual abuse. Protocols were drafted outlining agreements for partnership working <strong>and</strong><br />

mobile teams <strong>of</strong> pr<strong>of</strong>essionals were initiated to take services out <strong>of</strong> the immediate location <strong>of</strong><br />

the health centres into the communities. Planning committees with representatives <strong>from</strong><br />

communities were established to identify local needs <strong>and</strong> prioritise available resources. A<br />

range <strong>of</strong> media in African languages was produced to raise awareness on health issues. An<br />

array <strong>of</strong> formal targets was devised as part <strong>of</strong> the evaluation (tuberculosis levels, pregnancy<br />

<strong>and</strong> post-natal care, vaccination uptake, STD’s, HIV <strong>and</strong> AIDS transmission rates) <strong>and</strong> levels<br />

<strong>of</strong> community participation were monitored.<br />

‘Soares dos Reis’ (Portugal intervention 3) was a project initiated by a group <strong>of</strong> volunteers who<br />

worked in co-operation with health pr<strong>of</strong>essionals amongst urban dwelling (Oporto) older<br />

people living in isolation. Data <strong>from</strong> a study entitled ‘Eldest Generations’ (1999) conducted by<br />

the Institute for Statistics (INE) was included within this national report:<br />

� The number <strong>of</strong> older people living in Portugal doubled in the last 40 years<br />

� In 1998 the number <strong>of</strong> older people (65+ ) exceeded 1 million<br />

� Older people were not in regular contact with friends <strong>and</strong> family <strong>and</strong> very few belonged<br />

to social or cultural organisations<br />

� There was a low participation <strong>of</strong> older people in active living<br />

� The living conditions <strong>of</strong> single older people was worse than for older people as a whole<br />

� Older people characteristically were on low incomes <strong>and</strong> had greater levels <strong>of</strong> poverty<br />

than the population as a whole<br />

The overall objective was to improve the quality <strong>of</strong> life <strong>and</strong> well-being <strong>of</strong> low-income older<br />

people who were living in poor housing conditions <strong>and</strong> who were not receiving any family<br />

support. Work concentrated on solving daily practical problems through home visits (cleaning<br />

<strong>and</strong> basic maintenance) <strong>and</strong> ensuring that more formal services were accessed if they were<br />

required.<br />

An attempt to improve access to services for pregnant women, young mothers <strong>and</strong> children<br />

through outreach work was undertaken in Ciutat Vella, a deprived inner city district <strong>of</strong><br />

Barcelona (Spanish intervention 2). Infant mortality within this area compared badly with<br />

aggregated figures for the whole <strong>of</strong> Barcelona. For the period <strong>from</strong> 1995-1999 for instance,<br />

the infant mortality rate for Ciutat Vella was 7.1 per 1000 births compared with 4.1 per 1000<br />

births for the city as a whole. The starting point for the intervention was the detection <strong>of</strong><br />

unregistered pregnancies <strong>and</strong> births in the first place amongst a population who were not<br />

presenting to the care services available. This task was undertaken by nurses <strong>and</strong> social<br />

workers that conducted investigatory home visits. Their role was then to provide any<br />

immediate care that was necessary <strong>and</strong> to refer those in need to appropriate services<br />

(obstetric, paediatric <strong>and</strong> family planning services).<br />

In East London (United Kingdom Intervention 8) a charter <strong>of</strong> access was developed to tackle<br />

some <strong>of</strong> the problems experienced by a culturally <strong>and</strong> racially diverse population in a deprived<br />

inner-city area. The minority ethnic population <strong>of</strong> the boroughs <strong>of</strong> East London were: Newham<br />

51%, Hackney 39% <strong>and</strong> Tower Hamlets 27%. The composition <strong>of</strong> these varied considerably,<br />

with some boroughs for example having a concentration <strong>of</strong> Turkish/Kurdish people (Hackney)<br />

or Bangladeshi people (Tower Hamlets). Disease amongst the ethnic minority population was<br />

disproportionately prevalent (heart disease, diabetes, asthma, HIV/AIDS) with one <strong>of</strong> the<br />

highest incidences <strong>of</strong> tuberculosis in the UK. Health advocacy <strong>and</strong> interpretation services<br />

were developed in response to the factors mentioned above. The National Health Action Zone<br />

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programme (see case studies) was providing an opportunity to develop cohesive, responsive<br />

<strong>and</strong> equitable advocacy services. This was done through the introduction <strong>of</strong>:<br />

� a training <strong>and</strong> development programme;<br />

� increased levels <strong>of</strong> community involvement in the planning <strong>of</strong> local services;<br />

� local planning forums;<br />

� a local database <strong>of</strong> services <strong>and</strong> resources;<br />

� telephone interpreting services<br />

� an access charter<br />

The charter <strong>of</strong> access, which all-relevant organisations were encouraged to adopt, was<br />

grounded within the principles <strong>of</strong> equal opportunity <strong>and</strong> consistent with regional <strong>and</strong> national<br />

initiatives. An incremental programme covering areas such as recruitment <strong>and</strong> physical<br />

access was being phased in.<br />

A further example <strong>of</strong> improving access to those who were experiencing language <strong>and</strong> cultural<br />

barriers was provided within the Belgian national report (Belgium intervention 3), in which<br />

intercultural interpreters were made available to non-French <strong>and</strong> Flemish speaking people<br />

within the Brussels region. The project was initiated jointly in 1999 by two non-governmental<br />

organisations - ‘Interpretariat et Service de Mediation’ <strong>and</strong> ‘Co-ordination et Initiatives pour<br />

Refugees et Etrangers’. It operated within a number <strong>of</strong> sectors, including medical (preventative<br />

<strong>and</strong> curative); social, educational; judicial; <strong>and</strong> socio-cultural). In addition to <strong>of</strong>fering basic<br />

interpretation services (52 European, Asian <strong>and</strong> African languages) the objective was to work<br />

at tackling problems that had arisen as a result <strong>of</strong> cultural differences. Support was provided<br />

in a diversity <strong>of</strong> settings, including such examples as: homes for women in difficulty, asylum<br />

seekers <strong>and</strong> organisations campaigning against the trade <strong>of</strong> human beings <strong>and</strong> its links with<br />

prostitution. More than half <strong>of</strong> the services <strong>of</strong>fered by this project were taken up by Eastern<br />

Europeans (55%) (mostly Russians <strong>and</strong> Albanians) <strong>and</strong> the dem<strong>and</strong> was reported as<br />

‘increasing dramatically’. The interpreters took a neutral stance themselves who had<br />

developed their own code <strong>of</strong> ethical st<strong>and</strong>ards.<br />

In mid-1995 the Provincial Health Conference <strong>of</strong> North-Rhine-Westphalia passed a series <strong>of</strong><br />

health reforms designed to improve co-ordination between health <strong>and</strong> social care <strong>and</strong> improve<br />

access. (Germany policy 3). The plan developed was based on the WHO’s ‘Health for all’.<br />

Improving opportunities for disadvantaged groups was a theme given priority within the plan<br />

which explicitly mentioned ‘directing <strong>and</strong> developing the provision <strong>of</strong> care services according to<br />

need’. There was a strong emphasis on efficiency <strong>and</strong> calls for the ‘avoidance <strong>of</strong> superfluous<br />

services’. Among the significant impacts resulting <strong>from</strong> this initiative were: community<br />

programmes to improve addiction care <strong>and</strong> reduced timescales within which the mentally ill<br />

accessed supervised residential services. Examples <strong>of</strong> improved public information about<br />

healthcare services were reported including drop-in counselling <strong>of</strong>fices, telephone help lines<br />

<strong>and</strong> printed material. Work was also conducted amongst general practitioners <strong>and</strong><br />

pharmacists to raise the potential for the sensitive h<strong>and</strong>ling <strong>of</strong> disadvantaged clients. The<br />

Public Health Service Act (introduced subsequently within the same region <strong>of</strong> Germany)<br />

stipulated that new harmonising committees should be set up; these were responsible for the<br />

identification <strong>of</strong> gaps in services. They had powers to make ‘recommendations for action’<br />

which extended beyond traditional healthcare services.<br />

Some national reports revealed that financial access to healthcare services had been<br />

improved by initiating reduced <strong>and</strong>/or fixed price payment schemes or the creation <strong>of</strong> financial<br />

‘safety nets’ for disadvantaged groups through legislation.<br />

These initiatives were set up to provide greater protection to immigrants (illegal immigrants),<br />

the unemployed, older low-income citizens, <strong>and</strong> those living in poverty who otherwise would<br />

not have been able to access essential services. In the case <strong>of</strong> unemployed people, their<br />

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46


position meant they were no longer able to keep up national/health insurance payments <strong>and</strong><br />

would therefore have been ineligible to receive or access care. Similarly, recent immigrants<br />

found themselves ineligible <strong>and</strong> excluded due to the fact that they were not <strong>of</strong>ficially registered<br />

<strong>and</strong> had no history <strong>of</strong> payments.<br />

In Sweden, factors in the rise in health insurance costs were absenteeism <strong>and</strong> early<br />

retirement. This, against a background <strong>of</strong> the collapse in the dem<strong>and</strong> for unskilled labour,<br />

combined with a rise in work dem<strong>and</strong>s generally, were identified as factors contributing to the<br />

rise <strong>of</strong> social inequalities in health (where an increasingly sharp SES gradient was observed).<br />

A particularly disadvantaged group within this context were those who were unemployed due<br />

to long-term illness (They were also a significant financial burden). Financial Co-ordination<br />

between Healthcare <strong>and</strong> Health Insurance for Rehabilitation (FINSAM, Swedish intervention 5)<br />

was an attempt to alleviate the problems faced by this group by integrating the two systems<br />

(healthcare <strong>and</strong> insurance for rehabilitation). This initiative led to a significant lowering <strong>of</strong><br />

costs for health insurance <strong>and</strong> increased resources for the providers <strong>of</strong> rehabilitation services.<br />

The drop in absenteeism was greater in areas where this financial co-ordination was<br />

implemented, than in areas where the initiative was not introduced. There were also positive<br />

cross-sectoral co-operations among pr<strong>of</strong>essionals <strong>from</strong> different sectors learning <strong>from</strong> each<br />

other’s skills.<br />

In Germany, an administrative agreement on the provision <strong>of</strong> financial assistance <strong>from</strong> the<br />

National Government <strong>of</strong> the Provinces provided underpinning support for towns identified as<br />

having ‘special development needs‘ (Germany policy 2). The overall aim was to integrate<br />

social <strong>and</strong> healthcare infrastructure <strong>and</strong> provide better access for young people especially.<br />

There was a strong emphasis on community involvement <strong>and</strong> responsibility within this<br />

approach.<br />

In Belgium, a Royal decree was issued on 16 April 1997 (Belgium policy 3) which extended<br />

the medical coverage by the mutual health insurance funds (mutualité) <strong>of</strong> widowers, disabled<br />

people, children in care <strong>and</strong> those falling below a certain income, including the following<br />

groups:<br />

� older people (65+)<br />

� the long-term unemployed (1 year +)<br />

� informal family carers looking after disabled family members<br />

The reform took a considerable burden away <strong>from</strong> general practitioners who were reported to<br />

be tackling problems identified with individual patients through informal arrangements with the<br />

“mutualités” <strong>and</strong> personal generosity. The measure impacted in a number <strong>of</strong> ways. It was<br />

thought to have reduced unnecessary hospital visits because patients were more likely to<br />

attend general practitioner clinics earlier without fear <strong>of</strong> heavy payouts.<br />

Also in Belgium, in 1994, fixed prices were introduced for services (doctors, nurses <strong>and</strong><br />

physiotherapists) <strong>of</strong>fered within community health centres (Belgium policy 4). The fixed price<br />

scheme consisted <strong>of</strong> an annual subscription fee paid by the patient (maximum EUR 2.5 per<br />

individual, EUR 10 per family) to the “mutualités”, which established a contract between<br />

patient, insurance company <strong>and</strong> health centre. The health centre was then paid a monthly<br />

fixed sum by the “mutualité” to cover costs incurred by visits made by the patients. Positive<br />

effects, in addition to the overall provision <strong>of</strong> greater access, were that health pr<strong>of</strong>essionals felt<br />

that the exchange with patients was more productive <strong>and</strong> there were less complications<br />

related to financial matters.<br />

In Austria the General Insurance Act (ASVG) (Austria policy 10) was passed <strong>and</strong> covered<br />

general health insurance <strong>and</strong> occupational accident insurance. This ‘people’s insurance’ was<br />

specifically designed to reduce inequalities caused by the introduction <strong>of</strong> private health<br />

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insurance schemes. The starting point for the act was the regulation <strong>of</strong> nursing care, medical<br />

rehabilitation, certain therapies <strong>and</strong> health promotion that were consequently guaranteed to<br />

the whole population.<br />

Conclusions<br />

Improving access to healthcare was seen as an important priority by national co-ordinators,<br />

<strong>and</strong> the subject received a great deal <strong>of</strong> attention within national reports. Some <strong>of</strong> these were<br />

simply measures modifying <strong>and</strong> updating existing services to ensure greater access. Others<br />

were part <strong>of</strong> wider reforms aimed at the integration <strong>of</strong> the social <strong>and</strong> healthcare sectors.<br />

Efforts were made to specifically target those who were identified as having certain needs, or<br />

where there were barriers to access, <strong>and</strong> there were a number <strong>of</strong> examples <strong>of</strong> innovative<br />

outreach programmes.<br />

A range <strong>of</strong> practical measures was identified with the objective <strong>of</strong> improving access <strong>and</strong> raising<br />

awareness about the rights <strong>of</strong> individuals <strong>and</strong> the availability <strong>of</strong> basic service provision.<br />

Interpreters were identified in different forms. Some were language translators, while others,<br />

while <strong>of</strong>fering this basic service, also served as mediators between medical pr<strong>of</strong>essionals <strong>and</strong><br />

patients, where there were additional cultural barriers to underst<strong>and</strong>ing. Interpreting services<br />

<strong>of</strong>ten overlapped with advocacy services <strong>and</strong> there were alternative stances adopted in<br />

different settings, such as ‘neutral’ or ‘pro-patient’. Formalised curricula, in some cases<br />

leading towards formal qualifications, were devised to control the development <strong>and</strong> quality <strong>of</strong><br />

the work.<br />

Financial reforms were an important way in which greater access could be afforded to those<br />

who otherwise would have been excluded. These reforms prescribed new patterns <strong>of</strong> working<br />

between primary healthcare providers, insurance companies <strong>and</strong> community members.<br />

Community development<br />

Conclusions Recommendations to policy-makers<br />

Across Europe, community development<br />

approaches are used effectively to <strong>of</strong>fer<br />

integrated assistance in tackling health<br />

inequality problems<br />

These approaches allow the broad<br />

determinants <strong>of</strong> health to be addressed:<br />

� The relationship between unemployment<br />

<strong>and</strong> health <strong>and</strong> associated problems<br />

� Improvements in education <strong>and</strong> training<br />

� Crime <strong>and</strong> security problems<br />

Community development approaches can be<br />

used to tackle specific problems related to :<br />

� Geographical areas in economic crisis<br />

characterised by multiple deprivation<br />

� Special health needs <strong>of</strong> certain socially<br />

excluded target groups, such as children<br />

<strong>and</strong> families minority ethnic groups <strong>and</strong><br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Recognise <strong>and</strong> acknowledge the<br />

considerable achievements that<br />

have already been made by<br />

community development<br />

approaches in tackling health<br />

inequalities<br />

� Learn <strong>from</strong> <strong>and</strong> disseminate<br />

models <strong>of</strong> good practice within this<br />

field<br />

� Support <strong>and</strong> develop these<br />

approaches in the future<br />

48


<strong>and</strong> families, minority ethnic groups <strong>and</strong><br />

immigrants, <strong>and</strong> sex workers<br />

Community development approaches are an<br />

effective means to implement national health<br />

targets locally<br />

By implementing interventions that address<br />

the problems within communities holistically,<br />

the efforts <strong>of</strong> local support organisations are<br />

unified.<br />

Key elements <strong>of</strong> community development<br />

approaches identified as being important to<br />

success are:<br />

� Conducting well-planned needs<br />

assessments<br />

� Working within a range <strong>of</strong> settings<br />

� Placing ownership <strong>of</strong> projects within the<br />

h<strong>and</strong>s <strong>of</strong> the target population<br />

� Ensuring adequate community<br />

representation on local planning<br />

committees <strong>and</strong> collaborative goal setting<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Use community development<br />

approaches as an effective means<br />

to implement national health<br />

(inequality) targets at a local level<br />

� Use community development<br />

approaches as an effective means<br />

<strong>of</strong> unifying the efforts <strong>of</strong> local<br />

support services<br />

� Support <strong>and</strong> develop specific<br />

approaches that have been proven<br />

successful within the context <strong>of</strong><br />

community development<br />

Health promotion works through concrete <strong>and</strong> effective community action in<br />

setting priorities, making decisions, planning strategies <strong>and</strong> implementing them<br />

to achieve better health. At the heart <strong>of</strong> this process is the empowerment <strong>of</strong><br />

communities, their ownership <strong>and</strong> control <strong>of</strong> their own endeavours <strong>and</strong><br />

destinies.<br />

Community development draws on existing human <strong>and</strong> material resources in<br />

the community to enhance self-help <strong>and</strong> social support, <strong>and</strong> to develop flexible<br />

systems for strengthening public participation <strong>and</strong> direction <strong>of</strong> health matters.<br />

This requires full <strong>and</strong> continuous access to information, learning opportunities<br />

for health, as well as funding support.<br />

The Ottawa Charter for Health Promotion 17-21 November 1986<br />

Participatory approaches were a feature <strong>of</strong> both health promotion interventions <strong>and</strong> policies<br />

cited by almost all <strong>of</strong> the national co-ordinators. The history <strong>and</strong> tradition <strong>of</strong> participatory<br />

approaches identified within reports was diverse, <strong>and</strong> the way in which they were defined was<br />

diverse. The approaches identified within this study <strong>and</strong> the context within which they were<br />

implemented posed difficulties both in terms <strong>of</strong> their definition <strong>and</strong> delimitation.<br />

The difficulties <strong>of</strong> defining any <strong>of</strong> the terms related to this area (which were exacerbated by the<br />

translation into English) were not confined to this work. They were reflected within the<br />

published literature, which was consulted.<br />

Rifkin., et al (2000), in a review <strong>of</strong> community participatory approaches in health <strong>and</strong> health<br />

planning, highlighted the tension between whether community participation should be seen as<br />

‘a specific intervention for health improvement or a process <strong>of</strong> change’. They placed emphasis<br />

on the historical development <strong>of</strong> participatory approaches, which was ‘flexible,<br />

accommodating, creative <strong>and</strong> exploratory’. As a result <strong>of</strong> this flexible evolution they remarked<br />

that “to date, it is not possible to give a universal definition to either ‘community’ or<br />

‘participation’.’’ They went on to say that “these terms in theory <strong>and</strong> practice, depend upon the<br />

49


environment in which they exist” <strong>and</strong> that “the model for participatory approaches is still<br />

ephemeral <strong>and</strong> <strong>of</strong>ten rhetorical”. An article by Hillery (1955) was cited in which he provided 55<br />

definitions <strong>of</strong> community.<br />

Since the national reports did not define clearly the communities to which they were referring<br />

in most cases it would have been inappropriate to attempt to impose a single working<br />

definition post hoc. It was deemed useful however to explore some definitions to provide<br />

clarity <strong>and</strong> to map out the scope <strong>of</strong> this section more thoroughly.<br />

Rifkin et al., (2000), when considering definitions <strong>of</strong> ‘community’, cited Jewkes <strong>and</strong> Murcott<br />

(1996), who argued that “the definition <strong>of</strong> community is a geographically located group <strong>of</strong><br />

people with shared economic, social-cultural <strong>and</strong> political interests <strong>and</strong> shared problems <strong>and</strong><br />

needs”. Geographical characteristics were not necessarily attached to definitions <strong>of</strong><br />

community, however, Suliman (1983) saw communities as “groups <strong>of</strong> people with common<br />

perceptions <strong>of</strong> needs <strong>and</strong> priorities <strong>and</strong> the capacity to take responsibility to act upon these<br />

needs”. The Ottawa Charter for Health Promotion (1987) took this notion forward <strong>and</strong> based<br />

its definition on social units as formal administrative units.<br />

On ‘community participation’ the same authors (Rifkin et al 2000) noted that the range <strong>of</strong><br />

definitions was equally as vast. On both sets <strong>of</strong> concepts they concluded by making the<br />

observation that context (historical <strong>and</strong> views <strong>of</strong> social theory) <strong>and</strong> experience had militated<br />

against st<strong>and</strong>ard definitions.<br />

Characteristics <strong>of</strong> successful approaches, which address inequalities based on work by Gillies<br />

(1997) <strong>and</strong> the Centre for Reviews <strong>and</strong> Dissemination (1997), were presented within this<br />

useful review.<br />

� Local assessment <strong>of</strong> needs, especially involving local people in the research process itself.<br />

� Mechanisms that enable organisations to work together – ensuring dialogue, contact <strong>and</strong><br />

commitment.<br />

� Representation <strong>of</strong> local people within planning <strong>and</strong> management arrangements (the greater<br />

level <strong>of</strong> involvement the larger the impact). For example, local committees are vital to support<br />

� the sharing <strong>of</strong> power <strong>and</strong> responsibility for change, <strong>and</strong> allow local people to voice approval<br />

or dissent.<br />

� Design <strong>of</strong> specific initiatives (‘interventions’) with target groups to ensure that they are<br />

acceptable, culturally <strong>and</strong> educationally appropriate; <strong>and</strong> working through settings that are<br />

accessible <strong>and</strong> appropriate to them.<br />

� Training <strong>and</strong> support for volunteers, peer educators <strong>and</strong> local networks (ensures maximum<br />

benefit <strong>from</strong> community-based activities).<br />

� Political visibility <strong>of</strong> support <strong>and</strong> commitment.<br />

� Reorientation <strong>of</strong> resource allocation to enable systematic investment for community-based<br />

programmes.<br />

� Policy development <strong>and</strong> implementation that brings about wider changes in organisational<br />

priorities <strong>and</strong> policies, driven by community-based approaches.<br />

� Increased flexibility <strong>of</strong> organisations that supports increased delegation <strong>and</strong> a more<br />

responsive approach<br />

Rifkin et al (2000)<br />

Whilst this review was based on material drawn solely <strong>from</strong> the United Kingdom it was found<br />

that the elements identified here were also present in the approaches that were identified <strong>from</strong><br />

across Europe.<br />

The factors identified above were used to guide the discussion <strong>of</strong> work identified within this<br />

project.<br />

The second German intervention (the project appears not to have been given a name) was<br />

designed to tackle problems associated with high unemployment levels in the east German<br />

rural province <strong>of</strong> Br<strong>and</strong>enburg (Prignitz district). The objectives were focused both on longterm<br />

unemployment <strong>and</strong> health, <strong>and</strong> the project aimed to provide ‘integrated assistance’. A<br />

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specific need was identified <strong>and</strong> was related to people being unemployed for a long period<br />

(half <strong>of</strong> the people n=90 on the project were unemployed for more than 24 months). This in<br />

turn had detrimental effects on their health which consequently further impaired their chances<br />

<strong>of</strong> re-employment. Support was provided to break this cycle <strong>and</strong> to help people cope with<br />

being unemployed, remain healthy, <strong>and</strong> where possible help them back to work. The project<br />

operated at two levels: through the provision <strong>of</strong> support <strong>and</strong> information to individuals affected;<br />

<strong>and</strong> the provision <strong>of</strong> support, training <strong>and</strong> resources to community counsellors. Counsellors<br />

focused their efforts on working closely with clients to devise individual ‘back to work/back to<br />

health’ strategies <strong>and</strong> then operated as advocates to ensure that goals were met <strong>and</strong><br />

additional services accessed. Particularly strong characteristics <strong>of</strong> this intervention were the:<br />

assessment <strong>of</strong> needs, locally <strong>and</strong> individual specific; representation <strong>of</strong> local people; training<br />

<strong>and</strong> support for networks <strong>and</strong> counsellors; <strong>and</strong> responsive, co-operative approaches between<br />

local support organisations.<br />

A project initiated by the Ministry <strong>of</strong> Food, Agriculture <strong>and</strong> Forests <strong>of</strong> the Province <strong>of</strong> Lower<br />

Saxony in Germany (German intervention 4) employed similar approaches. Work was<br />

conducted amongst ‘disadvantaged inhabitants’ <strong>of</strong> a town district ‘characterised by poor living<br />

st<strong>and</strong>ards <strong>and</strong> defective infrastructure’. Work with this group <strong>of</strong> people (around 3000 people,<br />

approximately one third <strong>of</strong> the total population <strong>of</strong> the town) was centred upon a nutritional<br />

programme specifically designed to address the difficulties faced by people on low incomes.<br />

The key to the work was that ownership was placed in the h<strong>and</strong>s <strong>of</strong> the target population<br />

themselves. Clubs <strong>and</strong> ‘join-in’ events took place at local venues such as schools <strong>and</strong> were<br />

organised by community members. Whilst the primary objectives were preoccupied with<br />

elevating the nutritional intake <strong>of</strong> the population, there were significant elements which were<br />

involving <strong>and</strong> empowering. Because <strong>of</strong> the relatively short lifespan <strong>of</strong> this project the<br />

evaluation was unable to report on improvements in terms <strong>of</strong> nutritional knowledge or<br />

behaviour. It was able to report on positive side effects - for example, the population taking<br />

control <strong>and</strong> organising themselves to deal with general problems facing them.<br />

A nutritional focus was also adopted by an initiative taken by the Greek Gerontological <strong>and</strong><br />

Geriatric Society amongst the ageing population <strong>of</strong> the Attica region (Greek intervention 2).<br />

The total project length was two years <strong>and</strong> took place between 1997 <strong>and</strong> 1999. Cross-sectoral<br />

co-operation was important - health <strong>and</strong> community workers joined forces to support the work<br />

<strong>of</strong> a number <strong>of</strong> peer educators (‘healthy nutrition consultants’) who operated <strong>from</strong> community<br />

locations such as workplaces <strong>and</strong> community centres. Particular importance was attached to<br />

the fact that peer educators were drawn <strong>from</strong> the local population. They were found to be<br />

cognisant <strong>of</strong> the needs <strong>of</strong> the population <strong>and</strong> messages were conveyed in a sensitive way,<br />

consistent with local traditions <strong>and</strong> customs. A well-designed process <strong>and</strong> outcome evaluation<br />

ran concurrently with the project (knowledge <strong>and</strong> self-reported behaviour amongst peer<br />

educators <strong>and</strong> participants).<br />

A workshop for primary medical care was initiated in 1994 in Oslo, Norway (Norwegian<br />

intervention 2). It trained women drawn <strong>from</strong> a minority ethnic community (Pakistani in origin)<br />

as peer educators. The focus was on improving nutritional intake (reducing saturated fats <strong>and</strong><br />

increasing mineral <strong>and</strong> vitamin intake) <strong>of</strong> this group, who were identified as being particularly<br />

socially isolated amongst the Norwegian population. Peer educators also provided a link with<br />

local services - feedback was used to refine <strong>and</strong> modify services (increased cultural sensitivity<br />

<strong>and</strong> ability to cope with non-Norwegian speakers). The evaluation identified a number <strong>of</strong><br />

important outcomes in addition to raised levels <strong>of</strong> awareness on nutritional issues – these<br />

included self-reported improvements in parenting skills, reduced social isolation <strong>and</strong> improved<br />

ability to compete for jobs.<br />

A distinction that was made by many <strong>of</strong> the interventions, which incorporated community<br />

participation, was that between the ‘formal’ <strong>and</strong> ‘informal’ objectives. This was illustrated in an<br />

example reported <strong>from</strong> Hasvik in Norway. This intervention commenced in 1989 <strong>and</strong> was<br />

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initiated in response to a ‘collective depression’, which was identified in a far northern fishing<br />

community. This town was suffering economic deprivation as a result <strong>of</strong> the collapse <strong>of</strong> the<br />

fishing industry, due to over-fishing, throughout the whole <strong>of</strong> north Atlantic coastline <strong>of</strong> Norway.<br />

It was part <strong>of</strong> a national policy initiative, entitled ‘Health <strong>and</strong> inequality in Finnmark’ which was<br />

designed to benefit several similar communities in this region. A project house was funded<br />

<strong>from</strong> which a number <strong>of</strong> initiatives evolved to serve the population <strong>of</strong> 1300 people. Formal<br />

objectives included assisting local people to identify <strong>and</strong> apply for appropriate benefit grants<br />

that were available to them. Additionally, a ‘network credit system for women’ was set up<br />

following a model that was developed in the third world. Amongst the informal objectives were<br />

those related to the physical aspect <strong>of</strong> the project – the ‘house’. The ‘house’ provided a focal<br />

point for local people to meet <strong>and</strong> discuss common problems <strong>and</strong> potential solutions. The<br />

house was used in the summer months as the local tourist information service, staffed by local<br />

people. The model has been transferred to many other communities in the region who were<br />

also suffering similar economic crises.<br />

Incorporating a community approach was one feature <strong>of</strong> strengthening the coherence <strong>of</strong><br />

prevention in Amsterdam (Netherl<strong>and</strong>s intervention1). It was evaluated <strong>and</strong> found to be<br />

appropriate. Key community representatives <strong>and</strong> members were involved in collaborative goal<br />

setting in partnership with health <strong>and</strong> community workers, volunteers <strong>and</strong> health insurance<br />

pr<strong>of</strong>essionals. The account <strong>of</strong> this intervention provided by the co-ordinator <strong>from</strong> the<br />

Netherl<strong>and</strong>s was self-critical <strong>and</strong> highlighted some <strong>of</strong> the implementation problems associated<br />

with community involvement. Amongst the problems identified by the process evaluation were<br />

that ‘the inventory <strong>of</strong> problems identified by community members was too general’ <strong>and</strong><br />

‘involvement <strong>of</strong> local inhabitants in steering groups was difficult’. Despite the problems, the<br />

project had been extended <strong>and</strong> a new objective strengthening the role <strong>of</strong> the community<br />

approach to improve accessibility <strong>of</strong> care formulated. Noted as particularly important in this<br />

project was the overt political support, which came <strong>from</strong> the Alderman for Care <strong>of</strong> the<br />

Municipality <strong>of</strong> Amsterdam. [This intervention <strong>and</strong> the Large City Policy (Grotestedenbeleid)<br />

are discussed further in the case study section].<br />

Intervention mapping was used to help clarify with community members what health<br />

determinants were important <strong>and</strong> to formulate <strong>and</strong> prioritise objectives within ‘Het Arnhemse<br />

Broek, Gezond en Wel’ (Netherl<strong>and</strong>s Intervention 3). It was felt that by implementing this<br />

approach at the outset it would make it easier (more underst<strong>and</strong>able <strong>and</strong> significant to<br />

participants) to evaluate process <strong>and</strong> outcomes meaningfully. This geographical area was<br />

characterised by high numbers <strong>of</strong> minority ethnic groups <strong>and</strong> migrants (27%); low levels <strong>of</strong><br />

average income (


� Empowerment <strong>of</strong> the organisations involved<br />

� Health promotion activity within the community<br />

Whilst the account was again self-critical, highlighting difficulties related to the unclearness <strong>of</strong><br />

some objectives <strong>and</strong> to the fact that they have changed over time, new guidelines <strong>and</strong><br />

recommendations have evolved for community projects as a result. Significant successes<br />

reported were in the areas <strong>of</strong> achieving consensus <strong>and</strong> co-operation between participating<br />

organisations <strong>and</strong> the community, <strong>and</strong> in translating the needs <strong>of</strong> the community into<br />

measurable activities for tackling problems.<br />

An attempt was made in Oporto City in Portugal to address the needs <strong>of</strong> male <strong>and</strong> female sex<br />

workers (Portuguese intervention 1) using principles derived <strong>from</strong> community development.<br />

The account described a methodology entitled the ‘investigation-action method’, which aimed<br />

to promote social development through participation <strong>and</strong> empowerment. Individuals were<br />

given support <strong>and</strong> encouraged to resolve their own problems. The project, which commenced<br />

in 1997, was ongoing; it was initiated by the Welfare Council <strong>of</strong> Oporto in partnership with the<br />

Family Planning Association. A cross-sectoral team was convened, composed <strong>of</strong><br />

representatives <strong>of</strong> the target group, sociologists, psychologists <strong>and</strong> supported by health <strong>and</strong><br />

community workers. Amongst the primary (formal) objectives were the provision <strong>of</strong> medical<br />

(emergency) care <strong>and</strong> education about the prevention <strong>of</strong> HIV <strong>and</strong> AIDS. Amongst the<br />

secondary (informal) objectives were the provision <strong>of</strong> psychosocial support; acquainting sex<br />

workers with their rights <strong>and</strong> duties as citizens; liasing between sex workers <strong>and</strong> supportive<br />

institutions. There was also a monitoring programme integrated with this intervention. This<br />

was designed to map out the scope <strong>of</strong> the problem <strong>and</strong> to study the relationship between<br />

prostitution <strong>and</strong> broader deprivation characteristics <strong>of</strong> this area. The alienation <strong>and</strong> isolation<br />

associated with prostitution was <strong>of</strong> particular interest. The project adopted an action research<br />

approach <strong>and</strong> re-appraised its objectives according to the findings.<br />

Migrants <strong>and</strong> illegal immigrants (Africans <strong>from</strong> Angola, S. Tome, Cabo Verde, Guinea) were<br />

the target population for a community intervention in Qunita do Mocho <strong>and</strong> Marvilla in Portugal<br />

(Portuguese intervention 2). The project commenced in 1996 <strong>and</strong> was ongoing. Very poor<br />

living conditions were described as the setting for this project in Lisbon. Formal objectives<br />

were related to child health <strong>and</strong> family planning. These were extended to encompass a range<br />

<strong>of</strong> other areas including education <strong>and</strong> training; employment; family well-being <strong>and</strong> harmony<br />

(including domestic violence, child neglect <strong>and</strong> sexual abuse). Of particular interest within this<br />

context were two (<strong>of</strong> five) <strong>of</strong> the main aims:<br />

� to promote the capacity <strong>of</strong> the population to solve their own problems<br />

� to empower community resources in order to create new ways <strong>of</strong> community<br />

participation<br />

Community representatives <strong>and</strong> peer educators were important in forging links between the<br />

local community <strong>and</strong> services. Resources were produced including a local journal <strong>and</strong> a roleplaying<br />

video in Creoles. Fundamental principles underpinning the work were tolerance;<br />

respect; unconditional acceptance <strong>and</strong> empathy. The evaluation <strong>of</strong> this work was designed<br />

not only to look at various health outcome measures like childhood vaccination; tuberculosis<br />

therapeutic programme compliance; <strong>and</strong> STD <strong>and</strong> HIV transmission rates. It also considered a<br />

number <strong>of</strong> measures relating to community participation.<br />

Community Action on Health was identified as an approach to developing a community-led<br />

health agenda in partnership with a Primary Care Group in the west end <strong>of</strong> Newcastle in<br />

Engl<strong>and</strong>, United Kingdom (United Kingdom intervention 7). It incorporated many <strong>of</strong> the<br />

characteristics <strong>of</strong> successful approaches, which address inequalities cited by (Rifkin et al<br />

2000). The area under consideration included some <strong>of</strong> the most deprived wards in the<br />

northern region <strong>of</strong> Engl<strong>and</strong>, which experienced some <strong>of</strong> the worst levels <strong>of</strong> health, <strong>and</strong> the<br />

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lowest incomes in the United Kingdom as a whole. General Practitioners met in 1994 to<br />

consider future service provision for the area. Early in this process the support <strong>of</strong> a community<br />

development worker was enlisted to create a structure for participation in commissioning<br />

processes by local people. Within the Primary Care Group, a culture <strong>of</strong> community<br />

participation with a local focus <strong>and</strong> inter-agency partnership was created. Work in this area<br />

was attributed with ‘challenging the traditional resource allocation, <strong>and</strong> making it fairer by<br />

diverting resources to the most deprived populations’. The work was evaluated by the Health<br />

<strong>and</strong> Social Policy Department at the University <strong>of</strong> Northumbria in conjunction with the Health<br />

Services Management Centre at the University <strong>of</strong> Birmingham. They found that:<br />

� the approach resulted in a greater focus on health inequalities, determinants <strong>of</strong> health<br />

<strong>and</strong> the re-design <strong>of</strong> services when compared with other groups within adjacent areas<br />

� issues raised by local people were more likely to be incorporated into priorities for<br />

change through resource allocation or service development when compared with other<br />

groups within adjacent areas<br />

� many service developments responded directly to the expressed needs <strong>of</strong> ethnic<br />

minority groups, families living in stressful conditions <strong>and</strong> young people<br />

This intervention had already been cited as a model <strong>of</strong> good practice within the National<br />

Health Service guidance document ‘In the Public Interest’ <strong>and</strong> within the Department <strong>of</strong><br />

Health’s ‘Patient <strong>and</strong> Public Involvement in the New NHS’.<br />

Another example focused its efforts at a different level <strong>and</strong> established an independent<br />

regional network <strong>of</strong> people working to support community action. The Community<br />

Development <strong>and</strong> Health Network in Northern Irel<strong>and</strong> (United Kingdom Intervention 3)<br />

combined the efforts <strong>of</strong> more than 400 organisations <strong>and</strong> groups. It aimed to provide an<br />

intersectoral, inclusive <strong>and</strong> democratic network. Additionally, it aimed to raise awareness <strong>of</strong><br />

the links between poverty, health, inequality <strong>and</strong> potential solutions provided by community<br />

development.<br />

Health Action Zones (HAZ - www.haznet.org.uk) (United Kingdom Intervention 9) were<br />

introduced as part <strong>of</strong> national Government policy to target funding at areas in the United<br />

Kingdom with the highest levels <strong>of</strong> deprivation <strong>and</strong> the poorest levels <strong>of</strong> health. Their aim is to<br />

develop <strong>and</strong> implement health strategy that reduces inequalities <strong>and</strong> delivers measurable<br />

improvements in public health <strong>and</strong> health outcomes. HAZs were set within inner city areas,<br />

rural areas <strong>and</strong> ex-coalfield communities across 26 locations in the United Kingdom covering<br />

approximately 13 million people or 40% <strong>of</strong> the country’s total deprived population. Amongst<br />

the key areas that they focused on were the broader determinants <strong>of</strong> health <strong>and</strong> community<br />

empowerment. They were multi-agency programmes between the National Health Service,<br />

local government, voluntary <strong>and</strong> private sectors <strong>and</strong> community groups. Their principal aim<br />

was ‘to tackle inequalities in health in the most deprived areas <strong>of</strong> Engl<strong>and</strong> through health <strong>and</strong><br />

social care service modernisation programmes with opportunities to address other wider<br />

determinants <strong>of</strong> health such as housing, education <strong>and</strong> employment’. They were selected<br />

between 1998-9 on the basis <strong>of</strong> a need threshold based on health, healthcare <strong>and</strong> deprivation<br />

<strong>indicators</strong>. HAZs were asked to sign up to seven key principles or values. These were:<br />

� staff involvement<br />

� person-centred services<br />

� engaging communities<br />

� an evidence-based approach to service planning <strong>and</strong> delivery<br />

� equity: in resource allocation, in reducing health inequalities/promoting equality <strong>of</strong><br />

access to services<br />

� partnerships/multi-agency working<br />

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� a whole systems approach to taking forward change, engaging stakeholders across<br />

the local health <strong>and</strong> social care systems<br />

Each HAZ developed its own priorities <strong>and</strong> targets guided by national targets but adapted to<br />

local needs. Approaches were deliberately flexible as parts <strong>of</strong> changing the way services were<br />

delivered, <strong>and</strong> budgets were pooled between health authorities <strong>and</strong> local authorities.<br />

Although there were many more examples <strong>of</strong> interventions within the national reports that<br />

incorporated community involvement <strong>and</strong> development strategies, the examples referred to<br />

above were considered to be illustrative <strong>of</strong> the body <strong>of</strong> information on this area. Practice<br />

under this very general heading was diverse <strong>and</strong> reflected specific responses to complex<br />

problems <strong>of</strong>ten characterised by multiple deprivation. It was apparent that community<br />

development was viewed <strong>and</strong> utilised quite differently reflecting the tension that Rifkin., et al<br />

identified as to whether community participation should be seen as ‘a specific intervention for<br />

health improvement or a process <strong>of</strong> change’.<br />

The process <strong>of</strong> ‘engaging communities in issues which they believed important’ <strong>and</strong> ‘providing<br />

them with support <strong>and</strong> resources to enable them to take action <strong>and</strong> provide their own<br />

solutions’ gave health promoters considerable scope for tackling inequalities. It <strong>of</strong>fered the<br />

means by which broader determinants <strong>of</strong> health could be addressed explicitly <strong>and</strong> the<br />

combined resources <strong>of</strong> different sectors brought together with common aims.<br />

Migration<br />

Conclusions Recommendations to policy-makers<br />

Problems associated with migration across <strong>and</strong><br />

within national boundaries include:<br />

� Migration across national boundaries <strong>from</strong><br />

Asia, South America <strong>and</strong> Africa into the<br />

Member States <strong>and</strong> <strong>from</strong> Eastern Europe<br />

into Member States<br />

� Migration within national boundaries<br />

Interventions <strong>and</strong> policies deal with:<br />

� The impact <strong>of</strong> emigration <strong>from</strong> rural areas<br />

(leaving ageing populations behind)<br />

� The impact <strong>of</strong> emigration <strong>from</strong> areas<br />

suffering economic recession<br />

� The impact <strong>of</strong> immigration on urban areas<br />

Approaches within this context are typically:<br />

� Developing the capacity <strong>of</strong> communities<br />

to cope with problems<br />

� Empowering <strong>and</strong> enabling<br />

� Culturally sensitive <strong>and</strong> conducted in the<br />

language <strong>of</strong> the target group<br />

Practical measures include:<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Recognise <strong>and</strong> consolidate the<br />

significant efforts already being<br />

55


� Changing the status <strong>of</strong> migrants through<br />

legislation, recognising their basic human<br />

rights, giving them labour status <strong>and</strong><br />

access to healthcare services (temporary<br />

migration licences were issued in some<br />

cases)<br />

� Involving peer educators, cultural<br />

mediators, community interpreters<br />

� Developing formalised curricula <strong>and</strong><br />

certification <strong>of</strong> the above to ensure quality<br />

� Developing practice protocols to underpin<br />

operational guidelines <strong>and</strong> to form a basis<br />

for evaluation<br />

� Lifestyle programmes underpinned by<br />

values such as empowerment <strong>and</strong> selfdetermination<br />

� Culturally sensitive counselling,<br />

information <strong>and</strong> advice<br />

The special health needs <strong>of</strong> certain<br />

disadvantaged target groups being addressed<br />

include:<br />

� Children who have experienced war<br />

� Elderly people returning to their place <strong>of</strong><br />

origin<br />

� Migrants working within the sex industry<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

undertaken to address the various<br />

impacts <strong>of</strong> migration on health<br />

� Learn <strong>from</strong> models <strong>of</strong> good practice<br />

<strong>and</strong> develop the knowledge base<br />

concerning interventions <strong>and</strong> policies<br />

which address the impact <strong>of</strong> migration<br />

� Support the development <strong>of</strong> health<br />

promotion measures which counter the<br />

impact <strong>of</strong> migration on health<br />

inequalities<br />

� Recognise <strong>and</strong> support the special<br />

health needs <strong>of</strong> certain disadvantaged<br />

migrant groups through interventions<br />

<strong>and</strong> policies which directly address the<br />

problems they face<br />

Many <strong>of</strong> the interventions <strong>and</strong> policies that were identified within this study were designed to<br />

address the special health needs <strong>of</strong> migrants <strong>and</strong> their second <strong>and</strong> third generation<br />

descendants. Included within the broad category were migrants, illegal (im)migrants, refugees<br />

<strong>and</strong> war refugees (in one case, specifically war children). Problems associated with the<br />

immediate impact <strong>of</strong> migration on health; integration, exclusion <strong>and</strong> isolation; access to<br />

support service provision; <strong>and</strong> broader problems associated with geographical areas<br />

characterised by multiple deprivation (in which migrants were located) were all considered.<br />

The impact <strong>of</strong> migration across national boundaries <strong>and</strong> within countries was the<br />

preoccupation <strong>of</strong> a diverse range <strong>of</strong> health promotion interventions <strong>and</strong> policies. In the case <strong>of</strong><br />

the latter, interventions <strong>and</strong> policies were identified, which addressed the impact <strong>of</strong> movement<br />

<strong>from</strong> rural areas (including those in economic <strong>and</strong> social decline which had suffered industrial<br />

collapse) <strong>and</strong> the related effects <strong>of</strong> movement into adjacent urban locations.<br />

Approaches addressing the broad range <strong>of</strong> problems <strong>and</strong> impacts were characteristically:<br />

innovative <strong>and</strong> flexible, responding to immediate needs; aimed at developing the capacity <strong>of</strong><br />

communities <strong>and</strong> individuals to deal/cope with problems; empowering <strong>and</strong> enabling; culturally<br />

sensitive <strong>and</strong> conducted in the language <strong>of</strong> the migrant group.<br />

Davey Smith et al., (2000) in a review <strong>of</strong> epidemiological evidence <strong>of</strong> ethnic inequalities in<br />

health noted that a history <strong>of</strong> migration was <strong>of</strong>ten the root factor in the formation <strong>of</strong> selfconscious<br />

ethnic minorities <strong>and</strong> majorities, <strong>and</strong> was <strong>of</strong>ten a key issue in explaining patterns <strong>of</strong><br />

health. They identified as important, the biographical experience <strong>of</strong> at least two economic<br />

systems, one current <strong>and</strong> one in the past, <strong>and</strong> <strong>of</strong> at least two cultures. They noted that among<br />

56


their [migrants’] descendants, likewise, there was a continuing consciousness <strong>of</strong> this dual<br />

experience. Many factors that this group <strong>of</strong> researchers explored were complicated by this<br />

duality <strong>and</strong> they considered that material factors in both economic systems may have shaped<br />

migrants’ health, <strong>and</strong> that the culture <strong>of</strong> migrants was not straightforwardly that <strong>of</strong> the country<br />

<strong>of</strong> origin but that it was affected by experiences in the receiving country.<br />

In the same paper these authors noted that factors associated with the period immediately<br />

surrounding the migration also frequently presented specific explanations for the health <strong>of</strong><br />

ethnic minorities. Migrants tended to be selected by health characteristics <strong>from</strong> the population<br />

<strong>of</strong> origin – usually having better health if they were long-distance migrants (they cited the work<br />

<strong>of</strong> Marmot et al., 1984 who looked at immigrant mortality in Engl<strong>and</strong> <strong>and</strong> Wales between 1970-<br />

78). These health characteristics were present at the time <strong>of</strong> the decision to migrate <strong>and</strong> were<br />

reflected in the health <strong>of</strong> migrants in their place <strong>of</strong> destination. They described how, over time,<br />

such differentials ‘wore <strong>of</strong>f’ <strong>and</strong> the health <strong>of</strong> migrants tended to revert to the mean st<strong>and</strong>ard <strong>of</strong><br />

the population <strong>of</strong> origin. This was particularly the case when the next generation was<br />

considered. Also outlined were other health selection aspects <strong>of</strong> migration including a<br />

phenomenon called ‘salmon bias’ in which there was a selective return <strong>of</strong> those with a high<br />

mortality risk to their original home (following a desire to return to one’s birthplace when sick or<br />

dying).<br />

The first three interventions identified within the Austrian national report were all aimed at<br />

addressing problems associated with these phenomena. The target group for the first<br />

intervention was non-German speakers mainly <strong>of</strong> Turkish or Kurdish origin who comprised<br />

18% <strong>of</strong> the local population. The need was originally identified by medical pr<strong>of</strong>essionals<br />

working within hospitals in Vienna who had to enlist the support <strong>of</strong> auxiliary workers <strong>and</strong><br />

patients’ children to aid communication. A pilot project was instigated by a local government<br />

<strong>of</strong>ficer in charge <strong>of</strong> migrant integration. A range <strong>of</strong> complimentary services was developed that<br />

was not restricted to healthcare. These included: a telephone help line (exp<strong>and</strong>ing the<br />

outreach beyond Vienna); <strong>and</strong> training in community interpretation (leading to the certification<br />

<strong>of</strong> successful c<strong>and</strong>idates in a ‘diploma <strong>of</strong> community interpretation’).<br />

‘Ausländer und Ausländerinnen als Gesundheitsmultiplikatorinnen’, the second Austrian<br />

intervention, was focused primarily on language barriers but also sought to address culturally<br />

determined differences in the perception <strong>of</strong> health <strong>and</strong> disease. The target groups, in this<br />

case were Turkish, Kurdish <strong>and</strong> people <strong>from</strong> the former Yugoslavia (comprising an estimated<br />

10% <strong>of</strong> the population <strong>of</strong> Graz). Specific needs that were addressed which were not already<br />

part <strong>of</strong> the remit <strong>of</strong> existing services were; adjustment to new surroundings <strong>and</strong> coping with the<br />

trauma <strong>of</strong> the past; sexual health; <strong>and</strong> nutritional adaptation. The centrepiece <strong>of</strong> the work was<br />

the training <strong>of</strong> key community members to become peer educators. A curriculum was<br />

developed jointly with the target group reflecting specific information needs <strong>and</strong> covering<br />

methodology. Protocols were also developed to guide exchanges between the target groups<br />

<strong>and</strong> peer educators. These protocols formed the basis <strong>of</strong> the evaluation <strong>of</strong> the project, which<br />

was conducted jointly between the organisation ‘Zebra’ running the project <strong>and</strong> members <strong>of</strong><br />

the target group.<br />

Also within Vienna was a project that was initiated in response to the findings <strong>of</strong> a survey<br />

conducted in 1977 by the Ludwig Boltzman Institute for Women’s Health Research. Fem Sud,<br />

a health centre for women, parents <strong>and</strong> girls was set up in 1999. Activities were targeted at<br />

women <strong>from</strong> the south <strong>of</strong> Vienna (densely populated with a high proportion <strong>of</strong> people <strong>from</strong><br />

lower socio-economic groups) with special emphasis on migrant women (15% <strong>of</strong> this<br />

population originated <strong>from</strong> Turkey <strong>and</strong> the former Yugoslavia). A multidisciplinary team<br />

composed <strong>of</strong> medical staff <strong>and</strong> guests <strong>from</strong> other pr<strong>of</strong>essions delivered a tailored programme<br />

focusing on healthy lifestyles <strong>and</strong> underpinned by principles <strong>of</strong> empowerment <strong>and</strong> selfdetermination.<br />

The centre also lobbied on behalf <strong>of</strong> the target group mainly amongst existing<br />

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health services, but also beyond (other NGOs, police, Mosques), for improved access <strong>and</strong><br />

more appropriate services.<br />

Also dealing with migrant Turkish people, but also Moroccan, was an intervention in Belgium,<br />

which provided a network <strong>of</strong> 25 ‘community interpreters’ for 22 hospitals. The intervention was<br />

aimed at overcoming the problems associated with language <strong>and</strong> cultural barriers. Their<br />

primary role was interpretation but in addition they performed an advisory role for both medical<br />

pr<strong>of</strong>essionals <strong>and</strong> patients. A link was provided which made communication between patient<br />

<strong>and</strong> pr<strong>of</strong>essional more meaningful <strong>and</strong> informed consent possible. There was an emphasis on<br />

interpreters ‘defending the best interests <strong>of</strong> patients <strong>and</strong> ensuring legitimate consumer<br />

dem<strong>and</strong>s’. Although many other national reports identified similar schemes, which provided<br />

networks <strong>of</strong> advocates, what was <strong>of</strong> particular interest in this account was the political interplay<br />

that had taken place around this project. Considered key to its success was the support <strong>and</strong><br />

sponsorship <strong>of</strong> the Centre for Equity <strong>and</strong> Anti-racism which in turn was linked directly to the<br />

cabinet <strong>of</strong>fice <strong>and</strong> the Prime Minister. A new organisation was formed – the Healthcare<br />

Interpreting Co-ordination Unit within the Ministry <strong>of</strong> Social Affairs in collaboration with the<br />

Ministry for Public Health. This was set up to support the work <strong>of</strong> similar networks <strong>and</strong> to set<br />

practice st<strong>and</strong>ards. It was also set up to deal with the problem <strong>of</strong> such projects being initiated<br />

<strong>and</strong> then being closed as a result <strong>of</strong> annual budget cycles. Experts considered this to be both<br />

positive <strong>and</strong> effective. Ironically this unit met a similar fate <strong>and</strong> was abolished due to the<br />

discontinuation <strong>of</strong> funding.<br />

Transnational AIDS/STD Prevention Among Migrant Prostitutes in Europe (TAMPEP) was an<br />

intervention that spanned four European countries (Netherl<strong>and</strong>s, Italy, Austria <strong>and</strong> Germany)<br />

<strong>and</strong> was started in 1993 (reported here <strong>from</strong> the German report). It was aimed at prevention<br />

amongst migrant women <strong>and</strong> transgender people working within the sex industry. The project<br />

dealt with people <strong>from</strong> more than 20 different nationalities originating <strong>from</strong> Central <strong>and</strong> Eastern<br />

Europe, South East Asia, Africa <strong>and</strong> Latin America. ‘Cultural mediators’ in collaboration with<br />

‘peer educators’ (trained sex workers) <strong>of</strong>fered culturally sensitive counselling, information <strong>and</strong><br />

advice as well as monitoring the dynamics <strong>of</strong> migration <strong>and</strong> investigating the living <strong>and</strong> working<br />

conditions <strong>of</strong> the target group. A well-designed evaluation was integrated <strong>and</strong> looked at<br />

questions concerning both process <strong>and</strong> outcomes. A number <strong>of</strong> key findings emerged <strong>from</strong><br />

this related to the role <strong>of</strong> cultural mediators. Notably, it was found that the balance between<br />

mediators ‘defending’ patients’ interests <strong>and</strong> <strong>of</strong>fering a more neutral ‘aid to communication’<br />

was one that was difficult to achieve. The language skills, <strong>and</strong> personal qualifications <strong>of</strong> the<br />

mediator were found to be critical in this context.<br />

The provision <strong>of</strong> ‘help to children who have experienced war’ (Norwegian intervention 1) was a<br />

small-scale pilot project aimed at helping children (9-12 year-olds) <strong>from</strong> Bosnia deal with the<br />

traumas <strong>of</strong> war. More recently, (since 1998) children originated <strong>from</strong> Kosovo <strong>and</strong> Albania.<br />

The intervention was located in the municipality <strong>of</strong> Bergen where there were many refugees<br />

<strong>and</strong> asylum seekers <strong>from</strong> the countries mentioned. Multi-disciplinary teams were assembled<br />

to manage care <strong>and</strong> support for the target group, central to which was the provision <strong>of</strong><br />

appropriate opportunities to talk about <strong>and</strong> reflect upon difficult past experiences.<br />

In terms <strong>of</strong> policy reforms to address the inflow <strong>of</strong> migrants over national borders, Spain,<br />

(policy 2) provided an example with its social welfare policy. Spain was receiving a steady<br />

stream <strong>of</strong> migrants <strong>from</strong> the Magreb <strong>and</strong> sub-Saharan Africa in addition to Latin America,<br />

Eastern Europe <strong>and</strong> Asia (mainly the Philippines). Newly passed legislation changed the<br />

status <strong>of</strong> thous<strong>and</strong>s <strong>of</strong> people classed as illegal immigrants, recognising their basic civil rights<br />

<strong>and</strong> allowing them access to health service provision <strong>and</strong> amending their labour status. This<br />

was also found to be the case within Greece where, a steady stream <strong>of</strong> migration <strong>from</strong> Eastern<br />

Europe was occurring – here ‘temporary migration licences’ were granted; housing facilities<br />

were provided; <strong>and</strong> a specialist medical centre was set up to deal with special health needs.<br />

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Migration was again an important factor identified when considering changing l<strong>and</strong> use<br />

patterns <strong>and</strong> movement, within national boundaries, <strong>from</strong> rural areas in economic decline to<br />

urban areas. A number <strong>of</strong> reports described difficult situations arising <strong>from</strong> selective migration<br />

in which younger members <strong>of</strong> rural communities moved away leaving behind older less able<br />

members. Pictures <strong>of</strong> depressed communities with high levels <strong>of</strong> unemployment, poor health<br />

<strong>and</strong> poor future prospects were not uncommon within national reports. Health promotion<br />

responses to this kind <strong>of</strong> situation were characteristically innovative <strong>and</strong> focused on<br />

empowering the residual population.<br />

Within the Greek report, the impact <strong>of</strong> elderly Greeks returning to retire was identified <strong>and</strong> was<br />

being dealt with through protective policy reforms. Additionally, Greek policy explicitly set out<br />

to address the health <strong>and</strong> social needs <strong>of</strong> the ageing population within rural areas. Social<br />

security was also provided for those working in agriculture, normal regulations relating to the<br />

lifetime payment <strong>of</strong> premiums were waived. A social insurance fund, - ’The Organisation <strong>of</strong><br />

Agricultural Insurance’, was established, to cover free access to healthcare. This was paid for<br />

by the national budget.<br />

The collapse <strong>of</strong> the fishing industry, the primary source <strong>of</strong> income for communities in the far<br />

north <strong>of</strong> Norway, was the driving force behind many people leaving this area during the late<br />

1980s. A ‘collective depression’ was described as characterising the residual population in the<br />

town <strong>of</strong> Hasvik (pop.1300) in the Municipality <strong>of</strong> Finnmark. A series <strong>of</strong> community<br />

development projects were set <strong>and</strong> funded through a national programme. ‘Health <strong>and</strong><br />

Inequality in Finnmark’ (1989-1997). These self-help projects centred upon a house – the<br />

‘Hasvik House’, which also served as a meeting place for the community <strong>and</strong> tourist<br />

information (staffed by locals) in the summer (Norwegian intervention 4). The central focus<br />

helped create a sense <strong>of</strong> community identity <strong>and</strong> work such as counselling, applications to<br />

funding organisations <strong>and</strong> a network credit scheme for women were conducted <strong>from</strong> here.<br />

A depressed rural population, was the target for an intervention in Norsjö in Sweden, which<br />

had experienced economic recession during the 1990s. A national screening programme<br />

identified that this population had relatively high levels or cardiovascular mortality <strong>and</strong><br />

morbidity (especially amongst women) when compared to the general population <strong>of</strong> Sweden.<br />

The local population was characteristically non-skilled, poorly educated with a high level <strong>of</strong><br />

unemployment. The project was designed as a community intervention trial <strong>and</strong> monitored as<br />

part <strong>of</strong> the wider MONICA study, which compared a series <strong>of</strong> similar communities in the<br />

region. The evaluation focused its attention on shifts in cardiovascular risk factors such as<br />

diet, smoking <strong>and</strong> physical activity.<br />

It was clear <strong>from</strong> accounts as a whole that health promotion was at the forefront <strong>of</strong> tackling<br />

some <strong>of</strong> the direct impacts <strong>of</strong> migration across national boundaries in Europe <strong>and</strong> within<br />

countries (rural>urban). This issue has received a large amount <strong>of</strong> attention in the published<br />

literature (although attention has tended to focus on ethnicity <strong>and</strong> composition <strong>of</strong> geographical<br />

areas). It was neither desirable nor useful in this instance to try <strong>and</strong> separate out these<br />

complex related issues.<br />

Not a single report was without mention <strong>of</strong> the impact <strong>of</strong> migration. Solutions were diverse <strong>and</strong><br />

focused upon different levels. At a national level, policy reforms were important in increasing<br />

the civil rights <strong>of</strong> these people. Access to healthcare services has been improved <strong>and</strong><br />

financial assistance provided to allow existing infrastructure a greater degree <strong>of</strong> flexibility, with<br />

the provision <strong>of</strong> a safety net for the most vulnerable groups. At the local level the focus for<br />

health promotion has been through working with communities to improve their own ability to<br />

tackle a range <strong>of</strong> problems related to exclusion. This work was mindful <strong>of</strong> the difficulties<br />

presented by language <strong>and</strong> took into account differences in tradition <strong>and</strong> culture (especially<br />

where these have influenced perceptions <strong>of</strong> health <strong>and</strong> well-being). Approaches were<br />

innovative <strong>and</strong> priorities were driven by the target communities themselves. There were many<br />

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good examples <strong>of</strong> health workers working effectively with pr<strong>of</strong>essionals <strong>from</strong> other sectors.<br />

Training community members as peer educators or community interpreters appeared to have<br />

a special relevance in this context.<br />

Evidence <strong>and</strong> the evaluation <strong>of</strong> interventions<br />

Conclusions Recommendations to policy-makers<br />

Potentially useful participatory action research<br />

approaches or other social science methods that<br />

might have been useful are insufficiently being<br />

engaged<br />

Regarding the evaluation <strong>of</strong> interventions,<br />

examples <strong>of</strong> good practice identified in this study<br />

are successful in:<br />

� Demonstrating the impact on morbidity<br />

<strong>and</strong> mortality<br />

� Involving participants <strong>and</strong> translating their<br />

needs into measurable objectives<br />

� Identifying implementation problems <strong>and</strong><br />

recommending ways forward<br />

� Measuring interventions at a range <strong>of</strong><br />

levels, including individual, organisational<br />

<strong>and</strong> community<br />

� Informing the development <strong>of</strong> policy <strong>and</strong><br />

practice in other settings<br />

� Allowing traditional mainstream service<br />

provision to be challenged<br />

� Justifying further funding <strong>and</strong> modifying<br />

the status <strong>of</strong> interventions <strong>from</strong> temporary to<br />

permanent<br />

� Contributing to knowledge development In<br />

a number <strong>of</strong> areas including cross sectoral<br />

working <strong>and</strong> community development<br />

� Generating support amongst policymakers<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Continue to emphasise that<br />

practitioners need to incorporate a<br />

systematic examination <strong>and</strong><br />

assessment <strong>of</strong> the effects <strong>of</strong> their<br />

interventions<br />

� Encourage the dissemination <strong>of</strong><br />

appropriate methodological<br />

approaches to the evaluation <strong>of</strong> health<br />

promotion interventions<br />

� Encourage the dissemination <strong>of</strong><br />

examples where evaluation findings<br />

have had a positive impact on the<br />

progress <strong>of</strong> interventions<br />

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The conclusions <strong>of</strong> the WHO European Working<br />

Group on Health Promotion Evaluation (1998)<br />

were relevant when considering evaluation within<br />

the context <strong>of</strong> this study.<br />

The recommendations <strong>from</strong> this working group<br />

are reproduced opposite <strong>and</strong> adopted as part <strong>of</strong><br />

the overall recommendations <strong>of</strong> this study.<br />

Report on the role <strong>of</strong> Health Promotion in Tackling Inequalities in Health<br />

� Encourage the adoption <strong>of</strong><br />

participatory approaches to evaluation<br />

that provide meaningful opportunities<br />

for involvement by all <strong>of</strong> those with a<br />

direct interest in health promotion<br />

initiatives.<br />

� Require that a minimum <strong>of</strong> 10% <strong>of</strong> the<br />

total financial resources for a health<br />

promotion initiative be allocated to<br />

evaluation.<br />

� Ensure that a mixture <strong>of</strong> process <strong>and</strong><br />

outcome information is used to<br />

evaluate all health promotion<br />

initiatives.<br />

� Support the use <strong>of</strong> multiple methods to<br />

evaluate health promotion initiatives.<br />

� Support further research into the<br />

development <strong>of</strong> appropriate<br />

approaches to evaluating health<br />

promotion initiatives.<br />

� Support the establishment <strong>of</strong> a training<br />

<strong>and</strong> education infrastructure to<br />

develop expertise in the evaluation <strong>of</strong><br />

health promotion initiatives.<br />

� Create <strong>and</strong> support opportunities for<br />

sharing information on evaluation<br />

methods used in health promotion<br />

through conferences, networks <strong>and</strong><br />

other means<br />

One <strong>of</strong> the original specifications (reproduced in full within the phase 1 report, available on<br />

request <strong>from</strong> VIG) given to national co-ordinators was that ‘Interventions should not be<br />

based on presumptions or ideas but should have empirical data as a base’.<br />

Whilst there were discussions held at project meetings <strong>and</strong> apparent agreement on the<br />

criteria, they left considerable room for individual interpretation (misinterpretation <strong>and</strong><br />

confusion). Additionally, guidance notes <strong>and</strong> detailed descriptions <strong>of</strong> measurement scales<br />

were given to support a systematic approach.<br />

The response <strong>of</strong> co-ordinators within this context was varied. The majority attempted to<br />

comply with the criteria <strong>and</strong> remain within the boundaries <strong>of</strong> the pro-forma. Their success in<br />

this exercise was mixed. Some used the template to produce self-critical responses supported<br />

by data where this was available. A number <strong>of</strong> co-ordinators did not use this process <strong>and</strong><br />

produced accounts independently <strong>of</strong> the guidelines. There were numerous examples where<br />

co-ordinators completed the forms incorrectly. For example, in some cases co-ordinators<br />

indicated that certain small-scale interventions had impacted on health outcomes. On further<br />

investigation, additional information to support such statements was not forthcoming. Verbal<br />

communications revealed that some co-ordinators felt justified in recording such statements<br />

because they ‘knew’ that there was a positive impact on health outcome <strong>and</strong>/or they could<br />

‘explain the theoretical causal links’ even if there was no data available to illustrate such links<br />

(or any collected in the first place).<br />

The situation that arose raised a number <strong>of</strong> important issues. Firstly, there were clear failings<br />

on behalf <strong>of</strong> the project staff to produce guidelines, which were <strong>of</strong> practical use to the coordinators.<br />

Many found themselves faced with an overly technical framework, which was<br />

confusing. [Subsequent discussions with the designer <strong>of</strong> the original classification scheme<br />

61


(Joop Ten Dam for the Healthy Cities Project) revealed that he felt that the use <strong>of</strong> the<br />

framework within this project was not appropriate (Brussels meeting December 2000)].<br />

Secondly, <strong>and</strong> more importantly, the broader issue <strong>of</strong> the evaluation <strong>of</strong> health promotion<br />

initiatives, both in the assessment <strong>of</strong> process <strong>and</strong> the evaluation <strong>of</strong> outcomes, was raised.<br />

Within the national reports, there was a general lack <strong>of</strong> interventions that were systematically<br />

examined <strong>and</strong> assessed for their effects.<br />

One factor, which was influential in this context, was that co-ordinators underst<strong>and</strong>ably took<br />

the opportunity provided by their involvement in this work to highlight small scale, pilot<br />

projects. Many <strong>of</strong> these were in the early stages <strong>of</strong> their implementation, operating in difficult<br />

circumstances, struggling under time <strong>and</strong> resource pressure, <strong>and</strong> where as a result, evaluation<br />

may not have been given high priority. Many <strong>of</strong> these projects were complex (with<br />

multidimensional foci on the determinants <strong>of</strong> health) extending beyond the traditional domain<br />

<strong>of</strong> health services. Clearly, in this environment evaluation would have presented a challenge<br />

to any practitioner. Needless to say, the narrow parameters <strong>of</strong> r<strong>and</strong>omised controlled trials<br />

would have been inappropriate. The fact remained, however, that potentially useful<br />

participatory action research approaches or other social science methods that might have<br />

been useful were not apparently being engaged. In a number <strong>of</strong> examples the endorsement<br />

given by the health pr<strong>of</strong>essionals who were working on the particular intervention in question<br />

was presented as ‘evaluation’ or ‘action research’. Clearly, as a key stakeholder group, it<br />

would have been remiss not to have represented this important perspective within any<br />

evaluation. In the absence <strong>of</strong> any other information however, there was the potential that<br />

these verbatim statements might have been dismissed by some as little more than anecdote<br />

or the biased opinions <strong>of</strong> those with a vested interest.<br />

The overall picture regarding evaluation however was not entirely negative <strong>and</strong> there were<br />

some fine examples <strong>of</strong> good practice supplied within national reports…<br />

An example <strong>of</strong> an well-evaluated community project was given within the Greek report – the<br />

intervention in Attica aimed to promote healthy nutritional habits amongst the elderly<br />

population. The initiative was taken by the Greek Gerontological <strong>and</strong> Geriatric Society who<br />

oversaw the training <strong>of</strong> volunteers <strong>from</strong> the community as nutritional counsellors. The<br />

evaluation focused its attention on both process <strong>and</strong> outcomes. A formative needs<br />

assessment study was conducted. In the early stages, a number <strong>of</strong> barriers to the successful<br />

implementation were identified within the process evaluation, these were subsequently<br />

overcome. There was pre- <strong>and</strong> post- measurement <strong>of</strong> both the knowledge <strong>of</strong> the trained<br />

volunteers <strong>and</strong> the members <strong>of</strong> the community who attended the training.<br />

A workshop for primary medical care amongst immigrant communities in Norway (Norwegian<br />

intervention 2) featured an action research approach. The intervention aimed to develop a<br />

dialogue between health pr<strong>of</strong>essionals <strong>and</strong> members <strong>of</strong> the community in order to <strong>of</strong>fer a<br />

greater level <strong>of</strong> effectively targeted services. The overall objective <strong>of</strong> the evaluation, which<br />

featured high levels <strong>of</strong> community involvement, was to map out how the intervention was<br />

accessed <strong>and</strong> experienced by participants. As a result <strong>of</strong> the process evaluation there were<br />

reports <strong>of</strong> valuable insights into information exchange between culturally diverse populations<br />

<strong>and</strong> health pr<strong>of</strong>essionals. There were also higher levels <strong>of</strong> awareness <strong>of</strong> the importance <strong>of</strong><br />

nutrition, <strong>and</strong> changes in self-reported nutritional behaviour (notably a reduction in the intake<br />

<strong>of</strong> fats in the diet). Of great importance in this context was that the findings <strong>from</strong> the<br />

evaluation were reported to have contributed to the project receiving further funding <strong>and</strong> the<br />

conversion <strong>of</strong> the status <strong>of</strong> this one year project into a ‘permanent institution’.<br />

A strong evaluative approach was a feature <strong>of</strong> the Varden Childcare Centre, also <strong>from</strong> Norway<br />

(Norwegian Intervention 3). The Centre was part <strong>of</strong> a nationwide network <strong>of</strong> childcare clinics,<br />

<strong>and</strong> situated in an area with a high proportion <strong>of</strong> single parents, many <strong>of</strong> them living on social<br />

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welfare. The approach <strong>of</strong> the centre was cross sectoral, integrating health (outreach <strong>and</strong><br />

vaccination), social (financial support, protection <strong>of</strong> children at risk), educational (parenting<br />

skills), <strong>and</strong> voluntary non-governmental services (day care <strong>and</strong> kindergartens). The evaluation<br />

focused not only on the desired outcomes for the target group but also on the main elements<br />

<strong>of</strong> the cross-sectoral team working. A number <strong>of</strong> observational methods combined with<br />

interviews with a range <strong>of</strong> stakeholders were employed over a two-year period. The project’s<br />

success <strong>and</strong> continuation was related to conclusions <strong>and</strong> recommendations that were made<br />

by the evaluation. In addition to reports on process aspects <strong>and</strong> outcome effects, transferable<br />

knowledge was also developed on the use <strong>of</strong> multi-disciplinary teams within community<br />

settings.<br />

The interventions identified within the national reports <strong>from</strong> the Netherl<strong>and</strong>s <strong>and</strong> the United<br />

Kingdom generally featured an approach in which evaluation was an integral part <strong>of</strong> the<br />

implementation <strong>of</strong> interventions.<br />

For example, whilst methodological difficulties were acknowledged, the evaluation <strong>of</strong> the first<br />

intervention within the report <strong>from</strong> the Netherl<strong>and</strong>s (Strengthening coherence in prevention in<br />

Amsterdam) was able to report that: ‘the community approach (adopted as part <strong>of</strong> this<br />

initiative) was appropriate’; that there was a good connection between policy <strong>and</strong> practice; that<br />

pilot projects (discrete components <strong>of</strong> this initiative) needed assistance at the city level; <strong>and</strong><br />

that access to municipality <strong>and</strong> health services was made easier (as a result <strong>of</strong> the<br />

intervention). An ambitious quasi-experimental design was proposed at the outset but this<br />

proved to be unfeasible because it was too difficult to accomplish two repeated measurements<br />

<strong>of</strong> the same group <strong>of</strong> respondents. As a result a framework <strong>of</strong> process <strong>and</strong> outcome <strong>indicators</strong><br />

were identified <strong>and</strong> measured throughout the implementation. It was possible to reach<br />

conclusions about the interventions effects <strong>and</strong> recommendations for future working.<br />

Reviewing available data sources such as registration data (visits to establishments;<br />

appointments made etc), combined with interviews amongst target group members, coordinators,<br />

members <strong>of</strong> steering groups, policy-makers <strong>and</strong> other key players helped inform a<br />

strong process evaluation. Factors facilitating or constraining effective intersectoral cooperation<br />

were also assessed by examining network structures, steering group function <strong>and</strong><br />

written agreements <strong>and</strong> decisions. Future continuation following adjustments was a result <strong>of</strong><br />

the findings <strong>of</strong> the evaluation, along with recommendations that the approach be applied<br />

elsewhere. Especially significant was that the effects that were demonstrated were enough to<br />

motivate policy-makers, including the local alderman, to support further development <strong>of</strong> the<br />

approach.<br />

Het Arnhemse Broek, Gezond en Wel (The Arnhemse Broek Area, healthy <strong>and</strong> well –<br />

Netherl<strong>and</strong>s intervention 3) was an example in which the evaluation explored effects at<br />

different levels, including: individual; community; <strong>and</strong> organisational. The evaluation followed<br />

a quasi-experimental pre- <strong>and</strong> post-test design with two control communities. The University<br />

<strong>of</strong> Maastricht conducted it independently <strong>of</strong> the intervention project group. It set out to<br />

measure changes in the following:<br />

At the individual level:<br />

� identified determinants <strong>of</strong> health;<br />

� <strong>and</strong> experience <strong>and</strong> health behaviour.<br />

At the community level:<br />

� involvement <strong>of</strong> community groups <strong>and</strong> organisations in health promotion;<br />

� level <strong>of</strong> participation <strong>of</strong> the local inhabitants;<br />

� <strong>and</strong> health promotion activities;<br />

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At the organisational level:<br />

� degree to which implementation was in accordance with original objectives;<br />

� communication <strong>and</strong> collaboration between organisations.<br />

A positive aspect <strong>of</strong> the evaluative approach was that it incorporated the wishes <strong>and</strong> needs <strong>of</strong><br />

the target population <strong>and</strong> allowed these to be translated into measurable objectives. A series<br />

<strong>of</strong> guidelines <strong>and</strong> recommendations for community projects <strong>and</strong> policy were a by-product <strong>of</strong><br />

the evaluation.<br />

The evaluation <strong>of</strong> Health Action Zones (HAZs) (United Kingdom, Intervention 9) was<br />

acknowledged as challenging. This was the case because the numerous goals, which were<br />

evolving over time, were dependent upon ‘synergistic change’. Capacity-building, generating<br />

social capital, promoting leadership development (all nominated components) were difficult to<br />

measure. Despite the many challenges faced, the evaluation was able to report that the<br />

initiative was:<br />

� already starting to have an impact on health inequalities for people in deprived areas<br />

<strong>and</strong> were on course to meet most milestones in individual programmes<br />

� making considerable progress in developing partnership working <strong>and</strong> relationships<br />

have been transformed − particularly between the NHS <strong>and</strong> local government. There<br />

was local enthusiasm to develop partnership working further<br />

� involving communities in decision-making <strong>and</strong> developing new ways <strong>of</strong> involving local<br />

people in decision-making<br />

� starting to challenge the way mainstream services were being delivered<br />

In Northumberl<strong>and</strong> in Northern Engl<strong>and</strong>, a direct impact on the reducing mortality had been<br />

associated with the HAZ programme. There were reduced admissions to hospital for heart<br />

attacks <strong>and</strong> stroke (which together with heart failure represented 40% <strong>of</strong> emergency<br />

admissions over the winter period). The combined disease register for Northumberl<strong>and</strong><br />

included 15.000 people known to be suffering <strong>from</strong> ischaemic heart disease (either to have<br />

had a heart attack previously or to suffer <strong>from</strong> Angina). The target was to reduce cholesterol<br />

in these patients. The evidence was suggesting that based on progress so far, that between<br />

100 <strong>and</strong> 250 strokes or heart attacks would be prevented over the next five years. Similar<br />

results were reported in East London where the HAZ programme had already been piloted.<br />

Local evaluations such as those mentioned above complemented that <strong>of</strong> the national HAZ<br />

programme which was overseen by Pr<strong>of</strong>essor Ken Judge <strong>of</strong> the Personal Social Services<br />

Research Unit at the University <strong>of</strong> Kent. A ‘theory <strong>of</strong> change’ approach was adopted <strong>and</strong><br />

defined as ‘a systematic <strong>and</strong> cumulative study <strong>of</strong> the links between activities, outcomes <strong>and</strong><br />

contexts <strong>of</strong> the initiative’. The approach aimed to clarify the overall vision or theory <strong>of</strong> the<br />

initiative, meaning the long-term outcomes <strong>and</strong> the strategies that were intended to produce<br />

change. Steps were taken to explicitly link the original problem or context in which the<br />

programme began with the activities planned to address the problem <strong>and</strong> the medium <strong>and</strong><br />

longer-term outcomes intended. [Further attention is given to HAZs within the case study<br />

section].<br />

It was clear <strong>from</strong> a consideration <strong>of</strong> the contextual information supplied within most national<br />

reports that such high levels <strong>of</strong> evaluation activity (as illustrated by the examples drawn <strong>from</strong><br />

the United Kingdom <strong>and</strong> the Netherl<strong>and</strong>s) were simply not possible within the resource<br />

limitations <strong>of</strong> many interventions. An important comment that accompanied the pr<strong>of</strong>ile given to<br />

the Het Arnhemse Broek, Gezond en Wel initiative (see above) was that the evaluation<br />

conducted would be ‘too intense for practitioners’ <strong>and</strong> was only possible through the<br />

involvement <strong>of</strong> the University <strong>of</strong> Maastricht.<br />

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This situation was consistent with that within the wider literature - Mackenbach et al 1997<br />

(cited in Graham 2000) who developed guidelines <strong>and</strong> design recommendations to help in the<br />

evaluation <strong>of</strong> interventions (specifically designed to reduce inequalities in health) concluded<br />

that there were circumstances in which community intervention trials were feasible. In such<br />

circumstances it was possible to employ the basic rules <strong>of</strong> the classic study designs.<br />

Mackenbach’s team warned however that such community intervention trials were likely to be<br />

complicated <strong>and</strong> costly.<br />

A WHO European Working Group (1998) concluded that ‘over the last two decades knowledge<br />

<strong>and</strong> underst<strong>and</strong>ing about how best to evaluate complex programmes <strong>and</strong> policies had<br />

significantly increased’. They went on to say that ‘decision-makers <strong>and</strong> practitioners were not<br />

fully aware <strong>of</strong> these developments or their implications for the evaluation <strong>of</strong> health promotion<br />

interventions’. The working group had three objectives: to examine the current range <strong>of</strong><br />

evaluation methods, both quantitative <strong>and</strong> qualitative; to provide guidance to policy-makers<br />

<strong>and</strong> practitioners to foster the use <strong>of</strong> appropriate methods for health promotion evaluation; <strong>and</strong><br />

to provide guidance to policy-makers <strong>and</strong> practitioners to increase the quality <strong>of</strong> health<br />

promotion evaluations. Based on the principles <strong>of</strong> health promotion, the working group<br />

concluded that participation; multiple methods; capacity building; <strong>and</strong> appropriateness were<br />

the core features <strong>of</strong> approaches appropriate for the evaluation <strong>of</strong> health promotion initiatives.<br />

They made a number <strong>of</strong> recommendations including:<br />

� Encourage the adoption <strong>of</strong> participatory approaches to evaluation that provide<br />

meaningful opportunities for involvement by all <strong>of</strong> those with a direct interest in health<br />

promotion initiatives.<br />

� Require that a minimum <strong>of</strong> 10% <strong>of</strong> the total financial resources for a health promotion<br />

initiative be allocated to evaluation.<br />

� Ensure that a mixture <strong>of</strong> process <strong>and</strong> outcome information is used to evaluate all health<br />

promotion initiatives.<br />

� Support the use <strong>of</strong> multiple methods to evaluate health promotion initiatives.<br />

� Support further research into the development <strong>of</strong> appropriate approaches to evaluating<br />

health promotion initiatives.<br />

� Support the establishment <strong>of</strong> a training <strong>and</strong> education infrastructure to develop<br />

expertise in the evaluation <strong>of</strong> health promotion initiatives.<br />

� Create <strong>and</strong> support opportunities for sharing information on evaluation methods used<br />

in health promotion through conferences, networks <strong>and</strong> other means<br />

WHO European Working Group 1998<br />

‘Health Promotion Evaluation: Recommendations to policy-makers’<br />

These recommendations were written with health promotion interventions ‘in general’ in mind<br />

<strong>and</strong> not those with a particular focus on inequality – they were just as relevant here however.<br />

With the increasing emphasis on effectiveness <strong>and</strong> evidence it was apparent that practitioners<br />

needed to be reminded that such recommendations have great importance for them also.<br />

Hilary Graham (2000 in Leon D <strong>and</strong> Walt G) wrote that national governments were ‘seeking to<br />

reduce inequalities <strong>and</strong> turning to the scientific community on how to do it’. In the words <strong>of</strong> the<br />

WHO’S Strategy for Europe, governments were looking for ‘a scientific framework for decision-<br />

makers’ <strong>and</strong> ‘a science-based guide to better health development’ (WHO 1998).<br />

In her keynote speech, Margaret Whitehead, at the International Conference on Reducing<br />

Social Inequalities in Health in Copenhagen (27 th September 2000) drew attention to ‘what<br />

policy-makers <strong>and</strong> practitioners need’:<br />

� Evidence <strong>of</strong> the extent <strong>of</strong> the problem<br />

� Underst<strong>and</strong>ing <strong>of</strong> the causes <strong>of</strong> the problem<br />

� Evidence <strong>of</strong> effective action<br />

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� Feasible options for action in specific contexts<br />

� Practical tools/guidance on how to do it<br />

� Justification/motivation/political will<br />

Within this study there were examples <strong>of</strong> interventions which were ‘providing evidence <strong>of</strong><br />

effective action’ <strong>and</strong> ‘feasible options for action in specific contexts’. There were, however,<br />

many that were not <strong>and</strong> this was disappointing considering the original discussions <strong>and</strong><br />

specifications <strong>of</strong> the project.<br />

From a practical st<strong>and</strong>point there were evaluative methods that could have been adopted that<br />

were not. This conclusion was drawn in full recognition <strong>of</strong> the difficulties <strong>of</strong> trying to trace the<br />

causal path <strong>from</strong> community interventions to subsequent changes in health. The st<strong>and</strong>point<br />

developed was consistent with that <strong>of</strong> Nutbeam (1998) who considered that it was<br />

inappropriate <strong>and</strong> unrealistic in most cases for interventions to be expected to do this. He<br />

emphasised that it was more relevant for health promotion interventions to be judged on their<br />

ability to achieve their health promotion outcomes using evaluation methods which best fitted<br />

the activity. His pragmatic approach to evaluation emphasised the addressing <strong>of</strong> two basic<br />

questions, namely: Can change be observed in the object <strong>of</strong> interest?; <strong>and</strong> Can this change be<br />

attributed to the intervention?<br />

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APPENDIX 1: ORGANISATIONS INVOLVED IN THIS PROJECT<br />

The Flemish Institute for Health Promotion<br />

The Flemish Institute for Health Promotion (VIG) is an expert centre on the subject <strong>of</strong><br />

health promotion. It is appointed by the Flemish authorities to provide the government, health<br />

promotion organisations <strong>and</strong> health consultation groups with methodological support, to coordinate<br />

policy implementation <strong>and</strong> internal quality assurance in the area <strong>of</strong> health promotion,<br />

<strong>and</strong> to develop new strategies, programmes <strong>and</strong> materials for health promotion. In addition to<br />

<strong>of</strong>fering specialised documentation <strong>and</strong> information to health pr<strong>of</strong>essionals, VIG produces its<br />

own brochures; educational packages <strong>and</strong> manuals aimed at specific target groups. By<br />

conveying health promotion messages through the media, VIG also aspires to positively<br />

influence lifestyles among the general public. For the Flemish authorities, VIG serves as a<br />

reliable executive body in the area <strong>of</strong> health promotion, as a part <strong>of</strong> preventive healthcare. For<br />

health promotion services <strong>and</strong> local health consultation groups, on the other h<strong>and</strong>, VIG is the<br />

embodiment <strong>of</strong> health promotion in Fl<strong>and</strong>ers, <strong>and</strong> a contact point for international exchanges.<br />

It serves as a liaison between science <strong>and</strong> practice, <strong>and</strong> attempts to make it easier for<br />

scientific findings to reach the reality <strong>of</strong> practice, so as to ensure that fieldwork is scientifically<br />

validated. In addition, VIG aims to contribute to the practical relevance <strong>of</strong> research related to<br />

health promotion, keeping in mind the health targets established by the Flemish authorities.<br />

Being healthy is more than being free <strong>of</strong> illness, but also involves the entire social,<br />

psychological <strong>and</strong> physical well-being <strong>of</strong> the individual, including his/her ability to identify<br />

his/her aspirations <strong>and</strong> make his/her own choices in life. VIG regards health as a fundamental<br />

social right, which depends on the responsibility <strong>of</strong> policy-makers as well as on the<br />

participation <strong>of</strong> the individual himself. Because concepts like “prevention” <strong>and</strong> “quality <strong>of</strong> life”<br />

might seem a luxury to underprivileged people, confronted with a harsh daily reality, VIG has<br />

opted to make the promotion <strong>of</strong> equity in health one <strong>of</strong> its main goals. Signals coming <strong>from</strong> the<br />

field have revealed that social workers are becoming increasingly aware <strong>of</strong> the importance <strong>of</strong><br />

health promotion among the disadvantaged. It has been noted that elements, such as<br />

unemployment, dangerous work environments, poor housing <strong>and</strong> security, malnourishment,<br />

substance abuse <strong>and</strong> a lack <strong>of</strong> education tend to have a negative effect on an individual’s<br />

health <strong>and</strong> life expectancy. Unfortunately, due to a lack <strong>of</strong> adequate information <strong>and</strong> materials<br />

on this inequity in the area <strong>of</strong> health, there is <strong>of</strong>ten a hesitancy to tackle this issue. For this<br />

reason, VIG aims to ensure that health promotion is given a prominent place in social work, by<br />

<strong>of</strong>fering training to field workers, by supporting local social programs, by propagating the<br />

“empowerment approach” as a way to promote health among the underprivileged <strong>and</strong> by<br />

managing a consultative platform on the issue <strong>of</strong> deprivation <strong>and</strong> prevention.<br />

Related VIG Activities<br />

In addition to its efforts to co-ordinate the two-year European project “Tackling Inequalities in<br />

Health”, VIG has made a number <strong>of</strong> significant contributions in the area <strong>of</strong> health inequality in<br />

Fl<strong>and</strong>ers. These include a think tank, established in collaboration with the Locos, which are<br />

regional health promotion structures <strong>and</strong> the “Vereniging van Wijkgezondheidscentra”, another<br />

Flemish health promotion network. The purpose <strong>of</strong> this think tank is to encourage an exchange<br />

<strong>of</strong> information on the issue <strong>of</strong> inequality in health between aid organisations, health<br />

pr<strong>of</strong>essionals <strong>and</strong> external researchers. VIG’s expertise centre has also been exploring ways<br />

to encourage a greater participation <strong>of</strong> the underprivileged in health promotion initiatives.<br />

Within this framework, VIG has shown a particular interest in the “empowerment” method,<br />

which <strong>of</strong>fers individuals <strong>and</strong> communities tools to obtain a greater control over the socioeconomic,<br />

political <strong>and</strong> private powers that influence their lives.<br />

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Finally, VIG has also issued several publications on inequality in health, including a book, titled<br />

“Kansarmoede en Gezondheidsbevordering in Vla<strong>and</strong>eren” (1998), which analyses the<br />

complexity <strong>of</strong> marginalisation in Fl<strong>and</strong>ers <strong>and</strong> its repercussions on the health <strong>of</strong> the<br />

underprivileged. Another VIG publication, titled “Toepassingsmogelijkheden van empowerment<br />

in functie van gezondheidsbevordering bij mensen in kansarme situaties” (1999), describes a<br />

study on empowerment as a health promotion method among underprivileged groups in<br />

Fl<strong>and</strong>ers. The study was made in collaboration with four underprivileged communities <strong>and</strong><br />

their animators.<br />

The European Network <strong>of</strong> Health Promotion Agencies<br />

The European Network <strong>of</strong> Health Promotion Agencies (ENHPA) operates through<br />

information exchange <strong>and</strong> sharing best practices with the aim <strong>of</strong> contributing to the policy<br />

process on health-related issues in Europe. The membership <strong>of</strong> the network includes all 15<br />

Member States as well as Norway, Icel<strong>and</strong>, <strong>and</strong> three accession countries: Slovenia, Hungary<br />

<strong>and</strong> Estonia. The current members are mainly the national health agencies <strong>of</strong> each country,<br />

<strong>of</strong>ten related to the Health Ministry. The network was created in 1996 with the mission to<br />

improve <strong>and</strong> to increase the capacity <strong>and</strong> quality <strong>of</strong> health promotion in Europe. The ENHPA<br />

<strong>of</strong>fice is based in Brussels, Belgium. ENHPA is a non-pr<strong>of</strong>it network <strong>and</strong> is co-funded by the<br />

European Commission <strong>and</strong> national agencies.<br />

ENHPA aims to contribute to significant improvements in the health <strong>of</strong> the European public by<br />

helping to develop appropriate policies at all levels that lead to effective outcomes. Within the<br />

current work plan the Network seeks to set up an information hub on good practices in health<br />

promotion <strong>and</strong> public health in EU, Member States, EEA <strong>and</strong> accession countries with the<br />

support <strong>of</strong> ENHPA members. It also aims to formulate recommendations on how to<br />

incorporate health promotion <strong>indicators</strong> in the 1st str<strong>and</strong> <strong>of</strong> the proposed EU public health<br />

framework. Additionally, it seeks to disseminate information, expertise <strong>and</strong> examples <strong>of</strong> good<br />

practice to Commission <strong>of</strong>ficials, MEPs, other policy-makers <strong>and</strong> national health promotion<br />

pr<strong>of</strong>essionals by implementing <strong>and</strong> updating an innovative internet facility<br />

www.EuroHealthNet.org. This facility will be set up as a portal for public health <strong>and</strong> health<br />

promotion in the EU including many relevant references to national <strong>and</strong> local websites.<br />

Valuable links will be explored with the e-health initiative <strong>of</strong> EC DG Information Society.<br />

In the future, the ENHPA hopes to increase relationships <strong>and</strong> share expertise between<br />

Member States, EEA <strong>and</strong> the accession countries. This will be achieved by organising country<br />

visits to accession countries <strong>and</strong> to countries where health promotion is regionally organised,<br />

to better underst<strong>and</strong> how regional health promotion policies <strong>and</strong> practices can benefit <strong>from</strong> EU<br />

work, <strong>and</strong> by organising policy seminars linked with the ENHPA business meetings. A first<br />

seminar was held in Stockholm (May 2000) addressing main features in public health policy<br />

development across Europe <strong>and</strong> presenting the state <strong>of</strong> the art in Engl<strong>and</strong>, Italy <strong>and</strong> Sweden.<br />

The next seminar will focus on ‘integrated approaches to health determinants’ (November<br />

2001).<br />

The ENHPA is currently developing a position statement on the use <strong>of</strong> health impact<br />

assessment within Government policies <strong>and</strong> strategies in Member States, EEA <strong>and</strong> accession<br />

countries; on the role <strong>of</strong> national agencies <strong>and</strong> institutes in contributing to <strong>and</strong> implementing<br />

HIA; <strong>and</strong> on the relation <strong>of</strong> national HIA to EU-policy making.<br />

The networks approach incorporates the identification <strong>of</strong> good practices in Member States,<br />

EEA <strong>and</strong> accession countries in the use <strong>of</strong> integrated approaches to tackle health<br />

determinants compared with a topic-centred approach. Recommendations will be formulated<br />

on EU level in preparation for the 3rd str<strong>and</strong> <strong>of</strong> the proposed EU health strategy. These will be<br />

discussed in the second policy seminar (November 2001). Other tasks <strong>of</strong> the ENHPA include:<br />

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to monitor <strong>and</strong> respond to, in consultation with ENHPA members, health-related policies <strong>from</strong><br />

the European Commission, European Parliament, Health Council, Ministers <strong>and</strong> their <strong>of</strong>ficials;<br />

to provide ENHPA members with information on EU mechanisms, developments <strong>and</strong><br />

initiatives related to public health <strong>and</strong> health promotion; development <strong>of</strong> an EU policymakers<br />

database; development <strong>and</strong> strengthening <strong>of</strong> working relations with relevant European health<br />

networks to make maximal use <strong>of</strong> resources, reach advocacy agreements, organise events in<br />

EU Institutions, <strong>and</strong> communicate <strong>and</strong> disseminate functions <strong>and</strong> linking websites; to facilitate<br />

cross-national partnerships for the implementation <strong>of</strong> the new proposed EU health strategy;<br />

<strong>and</strong> to provide an overview for the Commission on European health networks.<br />

Related work by ENHPA<br />

The European Network <strong>of</strong> Health Promotion Agencies has already made a number <strong>of</strong><br />

significant contributions within the area <strong>of</strong> European health inequalities.<br />

In 1997, a report entitled ‘An overview <strong>of</strong> the causes <strong>of</strong> the socio-economic disparity in health’<br />

was conducted at the Danish institute for Clinical Epidemiology (Helweg-Larsen, 1997). The<br />

review considered methodological issues in the measurement <strong>of</strong> socio-economic status <strong>and</strong><br />

health outcomes, <strong>and</strong> reviewed evidence for various explanations <strong>of</strong> the link between the two.<br />

These included: social selection; lifestyle factors; psychological factors, use <strong>of</strong> health services<br />

<strong>and</strong> structural factors at home <strong>and</strong> work.<br />

A second report entitled ‘Health Promotion amongst low income groups: a review <strong>of</strong> forty<br />

interventions’ (Whelan et al.,. 1998) reviewed 40 evaluated health promotion interventions,<br />

which specifically targeted low-income groups. The largest number <strong>of</strong> interventions came <strong>from</strong><br />

North America <strong>and</strong> in the majority <strong>of</strong> cases the main focus <strong>of</strong> the interventions was women <strong>and</strong><br />

children. The interventions identified within the review used a range <strong>of</strong> intervention approaches<br />

at both the individual <strong>and</strong> community level <strong>and</strong> were assessed by a variety <strong>of</strong> evaluative<br />

techniques. The authors acknowledged the limitations <strong>of</strong> the review, but concluded that there<br />

was sufficient evidence to suggest that health promotion activity could make a contribution to<br />

developing the health potential <strong>of</strong> low-income groups. In conjunction with this conclusion, the<br />

authors also suggested that a broader evidence base on health promotion interventions<br />

among low-income groups be called for, along with the development <strong>of</strong> a consensus for<br />

assessing such interventions.<br />

A third paper entitled ‘A review <strong>of</strong> policies for socio-economically disadvantaged groups’<br />

(Briziarelli & Pedone, 1998) employed a Delphi questionnaire amongst a range <strong>of</strong> experts<br />

across 25 European countries. It considered definitions, actual policies <strong>and</strong> personal opinions<br />

<strong>of</strong> the expert respondents. The authors found that there were considerable differences in<br />

underst<strong>and</strong>ing as well as a great diversity in the tradition <strong>of</strong> tackling problems through health<br />

promotion. They recommended the further identification <strong>and</strong> dissemination <strong>of</strong> good practice<br />

examples in this field.<br />

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APPENDIX 2: Descriptives – The National Reports<br />

Austria<br />

Austria submitted a brief account <strong>of</strong> the growth in recent years <strong>of</strong> interest in health reporting<br />

with a regional <strong>and</strong> local focus. To illustrate the way in which socio-economic factors were<br />

deemed important within this context, two interventions were introduced (oral health<br />

programmes in Vienna) which were initiated as a result <strong>of</strong> this monitoring.<br />

The Austrian Statistics Office was responsible for collecting data on income distribution <strong>and</strong><br />

consumer information, which allowed the mapping <strong>of</strong> the socio-economic situation. The<br />

Austrian Health Institute collected data on the distribution <strong>of</strong> disease.<br />

A total <strong>of</strong> five interventions <strong>and</strong> ten policies were described in this report. The first three were<br />

preoccupied with the multiple problems faced by immigrants in Austria (mainly originating <strong>from</strong><br />

the former Yugoslavia but also amongst large Turkish <strong>and</strong> Kurdish groups).<br />

The first was a scheme for non-German speaking people <strong>and</strong> involved the development <strong>of</strong> a<br />

diploma in public service interpreting. The account described a well-planned systematic<br />

approach with a strong evaluative element (looking at awareness <strong>of</strong>, satisfaction with <strong>and</strong><br />

uptake <strong>of</strong> services). The scope <strong>of</strong> this intervention extended further than the significant<br />

language barrier. It incorporated peer education approaches designed to build on links <strong>and</strong><br />

identity within this excluded community.<br />

The second, a project administered by a non-government organisation called Zebra, followed<br />

a similar formula with the development <strong>of</strong> a formalised curriculum <strong>and</strong> certification for peer<br />

educators amongst immigrants in Graz. The community was involved in the early stages <strong>of</strong><br />

this intervention to define <strong>and</strong> prioritise problems <strong>of</strong> access to healthcare services. A small<br />

pilot project at the time <strong>of</strong> writing, this also incorporated a comprehensive qualitative<br />

evaluation.<br />

Outreach work in a number <strong>of</strong> community settings co-ordinated <strong>from</strong> a health centre in Vienna<br />

was the third example submitted. This was specifically targeted at addressing the health<br />

needs <strong>of</strong> parents, women <strong>and</strong> girls (Fem sud) derived <strong>from</strong> a geographical area characterised<br />

by multiple-deprivation (again a large immigrant population was a component).<br />

‘Liefering is getting healthier’ was the fourth intervention. Notably this took a holistic view <strong>of</strong> a<br />

problematic geographical area described as having: an ageing population; high proportions <strong>of</strong><br />

people receiving social security benefits; high numbers <strong>of</strong> single parent families; substance<br />

abuse; <strong>and</strong> a problematic “sinking’ housing policy. As with all <strong>of</strong> the Austrian examples this<br />

intervention was very systematic in its approach, <strong>from</strong> the initial identification <strong>of</strong> a set <strong>of</strong><br />

problems through to a multi-faceted response with a comprehensive evaluation built into the<br />

design.<br />

Finally a programme <strong>of</strong> dental health promotion in Vienna was pr<strong>of</strong>iled. A clear socioeconomic<br />

gradient was described in which upper groups were decay free <strong>and</strong> lower groups<br />

saw levels reaching 70-75%. A strong evaluative approach was again evident here.<br />

The Austrian co-ordinator submitted a long list <strong>of</strong> social policies (11, full list provided below)<br />

covering: housing conditions; working conditions <strong>and</strong> the right to work; the ageing population;<br />

<strong>and</strong> access the healthcare services. Apparent in the overall approach was a desire to support<br />

improvements at a community level through integrated policy development <strong>and</strong> legislation.<br />

Generally the careful monitoring <strong>of</strong> the impact <strong>of</strong> each policy backed this.<br />

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POLICY DESCRIPTION<br />

Housing<br />

L<strong>and</strong>lords must inform the communal administration before<br />

issuing a notice <strong>of</strong> intent to evict a tenant – follow up<br />

support package for tenant<br />

Mobility <strong>and</strong> transport An integrated plan, which has evolved since the 1960s,<br />

aimed at protecting specially targeted groups e.g. children<br />

<strong>and</strong> elderly people.<br />

Social welfare <strong>and</strong> social Financial assistance for those in long-term care<br />

security<br />

Pension system Legislation to protect the st<strong>and</strong>ard <strong>of</strong> living <strong>of</strong> people<br />

reaching retirement age<br />

Employment <strong>and</strong> A set <strong>of</strong> integrated measures setting targets for including<br />

h<strong>and</strong>icapped persons act people with disability in the workforce. Backed by penalties<br />

for employers not reaching targets<br />

Health promotion act The objective <strong>of</strong> this act is:<br />

- to promote <strong>and</strong> improve the health <strong>of</strong> the Austrian<br />

population during all phases <strong>of</strong> life, taking all dimensions <strong>of</strong><br />

health into account (holistic view <strong>of</strong> health, in accordance<br />

with WHO definition)<br />

- to provide information on avoidable diseases <strong>and</strong> the<br />

determinants <strong>of</strong> health <strong>and</strong> disease<br />

Unemployment Insurance Means-assessed system based on household income<br />

Working time legislation Legislation controlling the frequency <strong>and</strong> duration <strong>and</strong><br />

breaks in time spent working<br />

Social assistance (regional – A contingency fund providing a ‘safety net for those who<br />

lower Austria)<br />

are missed by other social protection’<br />

Act for the representation <strong>of</strong> Representation <strong>and</strong> participation in the formulation <strong>of</strong> public<br />

the elderly<br />

policy<br />

Health insurance <strong>and</strong> Increasing levels <strong>of</strong> access for all citizens<br />

occupational<br />

insurance<br />

accident<br />

Belgium<br />

The Belgian Co-ordinator drew particular attention to the relatively high levels <strong>of</strong> social security<br />

in Belgium. The commercialisation within sectors such as education, the arts, the legal system<br />

<strong>and</strong> health <strong>and</strong> social services was highlighted. The difficulties surrounding the<br />

implementation <strong>of</strong> interventions to tackle complex social problems were discussed. A warning<br />

was given about considering the impact(s) <strong>of</strong> such interventions simply in terms <strong>of</strong> the original<br />

objectives <strong>and</strong> failing to explore the potential unplanned side-effects (positive or negative).<br />

On the subject <strong>of</strong> transferability the co-ordinator took a particularly pragmatic <strong>and</strong> self-critical<br />

stance. She stated that this issue could not be properly examined without looking at<br />

operational problems (like funding <strong>and</strong> project time spans). This point was made strongly in<br />

respect to the identification <strong>of</strong> ‘models <strong>of</strong> good practice’. The view <strong>of</strong> the co-ordinator was that<br />

it was too simplistic to judge such complex entities as ‘good’ or ‘bad’.<br />

The report mentioned significant policy changes in the last 20 years [although the <strong>of</strong>ficial<br />

period under review was the last 10 years, the author justified this extension by stating that, in<br />

her opinion, the two periods (1980s <strong>and</strong> 90s) were consistent in policy terms].<br />

The tightening <strong>of</strong> criteria regulating eligibility for unemployment benefit was important <strong>and</strong> had<br />

impacted on a number <strong>of</strong> related areas such as personal health insurance.<br />

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The issues raised by a policy approach, which focuses solely upon ‘disadvantaged groups’,<br />

were discussed. Short-termism <strong>and</strong> stigmatisation, were considered alongside the dangers <strong>of</strong><br />

failing to tackle problems within a broader holistic view <strong>of</strong> society <strong>and</strong> inequality.<br />

A pr<strong>of</strong>ile <strong>of</strong> the Belgian social security system was submitted in order to provide context for a<br />

discussion <strong>of</strong> the policies selected. Within this, financial provision was described, in respect<br />

to: sickness; maternity; invalidity; unemployment; old age; premature death <strong>of</strong> the head <strong>of</strong> the<br />

family; <strong>and</strong> work accidents.<br />

The Belgian Co-ordinator concluded her background remarks with a reminder <strong>of</strong> the<br />

complexities that exist within Belgium in terms <strong>of</strong> its political organisation <strong>and</strong> government;<br />

communities <strong>and</strong> language; <strong>and</strong> geographical territories.<br />

A total <strong>of</strong> seven interventions were reported within the Belgian submission. The selection<br />

featured a strong focus on socially excluded immigrant populations <strong>and</strong> on improving service<br />

access to those living in deprived conditions. Innovative <strong>and</strong> culturally sensitive approaches,<br />

advocacy <strong>and</strong> peer education was given as examples. Integrated planning at local community<br />

level was highlighted.<br />

The first three interventions were designed to improve access to healthcare services or to<br />

increase uptake through outreach work amongst socially excluded groups. Community group<br />

facilitators operated as advocates in a scheme devised by Culture et Sante amongst socioeconomically-disadvantaged<br />

groups where language was a barrier <strong>and</strong> where there was low<br />

educational attainment. Advocacy amongst Moroccan <strong>and</strong> Turkish people was also a feature<br />

<strong>of</strong> an intervention in 22 Belgian hospitals where interpreters were employed to assist<br />

exchanges between healthcare pr<strong>of</strong>essionals <strong>and</strong> patients. The skills <strong>of</strong> ‘social interpreters’<br />

were developed in a scheme in Brussels, which although centred on healthcare was not<br />

exclusively so <strong>and</strong> extended to other public service provision.<br />

The fourth intervention reported was an attempt to integrate health promotion services within<br />

two districts (Forest, Cureghem). The accounts given however suffered in translation <strong>and</strong> any<br />

sort <strong>of</strong> assessment was problematic.<br />

Translation hampered the description <strong>and</strong> learning points being communicated in the fifth<br />

intervention reported within the Belgian report - ETAPE ‘working together around early<br />

childhood. A verbal communication with the co-ordinator revealed that this was a supportive<br />

scheme for vulnerable young mothers to facilitate mother-baby bonding through therapeutic<br />

massage.<br />

Logos, the sixth reported Belgian intervention, highlighted the implementation <strong>of</strong> a network <strong>of</strong><br />

regional consultative structures aimed at facilitating health improvements through community<br />

development. Their principle role was to ensure that national health targets were translated to<br />

address the specific needs <strong>of</strong> different regions. The account made it clear that this initiative<br />

was in the early stages <strong>of</strong> its implementation <strong>and</strong> comments on its effectiveness were<br />

problematic.<br />

Finally two schemes, Experience Experts initiated in 1992 <strong>and</strong> a healthy food scheme were<br />

reported upon. The former enlisted peer educators to facilitate educational assistance for<br />

underprivileged families. The latter scheme focused on healthy eating but the underlying<br />

goals extended well beyond this basic remit <strong>and</strong> sought to develop community cohesion in the<br />

local population.<br />

An historical perspective on significant milestones in policy formulation was incorporated within<br />

the report on Belgian policies. This was useful in terms <strong>of</strong> underst<strong>and</strong>ing more recent reforms.<br />

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This also provided valuable background <strong>and</strong> context <strong>and</strong> illustrated the complexities <strong>of</strong> the<br />

Belgian system in which this activity was taking place. Within this preamble the following were<br />

cited: The change in the age <strong>of</strong> majority in 1990; The access to healthcare act in 1997; Rules<br />

on debts in 1998; Judicial assistance in 1998; <strong>and</strong> the regularisation <strong>of</strong> those without legal<br />

papers in 1999.<br />

The first <strong>of</strong> the five Belgian policies illustrated in more detail in this report was initiated by the<br />

Federal Government <strong>and</strong> was issued as a royal decree in 1997. This decree controlled<br />

st<strong>and</strong>ards for conditions in rented housing.<br />

Easing the financial access to healthcare was the focus <strong>of</strong> the second Belgian policy reported<br />

upon, again this was established in 1997. Social welfare, social security – healthcare<br />

insurance for disadvantaged groups sought to extend the number <strong>of</strong> beneficiaries <strong>of</strong> assisted<br />

access to include the elderly <strong>and</strong> those with disabilities.<br />

Fixed price community healthcare centres were established in 1994, the third Belgian policy<br />

that received attention.<br />

The last two policies to be reported upon were preoccupied with education <strong>and</strong> employment<br />

respectively. The former provided a safety net for 15 to 25-year-olds with low educational<br />

qualifications through the provision <strong>of</strong> Centres for Alternative Education <strong>and</strong> Training (CEFA<br />

1991).<br />

The latter, voluntary career interruption (1985), attempted to provide some protection for those<br />

needing to suspend their careers. Two examples <strong>of</strong> instances where this might have occurred<br />

were ‘carers <strong>of</strong> a family member with a serious disease’ (2 months suspension) <strong>and</strong> ‘parental<br />

leave’ in similar circumstances (3 months suspension). The uptake <strong>of</strong> this protective<br />

employment legislation was reported to be higher amongst women but this legislation<br />

remained contentious with disagreement between experts (in terms <strong>of</strong> its success in<br />

decreasing inequality between different socio-economic groups).<br />

Denmark<br />

The Danish co-ordinator provided a description <strong>of</strong> population studies conducted every four<br />

years by the National Institute <strong>of</strong> Public Health. The introduction centred upon the<br />

Government’s Public Health Programme 1999-2008.<br />

The Programme was cross departmental, drawing on the support <strong>of</strong> 10 ministries, <strong>and</strong> there<br />

were 17 targets, including two overall targets - one <strong>of</strong> these relating to equity in health, which<br />

should influence all decisions on strategy <strong>and</strong> priorities <strong>and</strong> all interventions. These were<br />

based on the Health 21 framework <strong>and</strong> included two with inequality dimensions:<br />

• ‘Social inequity in health should be reduced to the extent possible – above all by<br />

strengthening efforts to improve health for the most disadvantaged groups’ (target 2)<br />

• ‘Children’s health <strong>and</strong> well-being should be given top priority – <strong>and</strong> assistance to children<br />

in vulnerable families should especially be strengthened’ (target 8)<br />

There were targets for life expectancy <strong>and</strong> quality <strong>of</strong> life, including:<br />

• Risk factor targets for tobacco, alcohol, nutrition <strong>and</strong> exercise, obesity <strong>and</strong> traffic accidents<br />

• Age group targets for children, young people, <strong>and</strong> senior citizens,<br />

• Health-promoting environments for primary schools, the workplace, local communities <strong>and</strong><br />

health services<br />

• Structural targets for co-operation between the state, the counties <strong>and</strong> the municipalities,<br />

research <strong>and</strong> education.<br />

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The Danish report included three examples <strong>of</strong> interventions <strong>and</strong> six examples <strong>of</strong> policies. The<br />

approach <strong>of</strong> all three interventions was very strongly oriented towards cross-sectoral cooperation<br />

<strong>and</strong> attempted to break down traditional barriers between discrete <strong>and</strong> competing<br />

authorities <strong>and</strong> organisations.<br />

The Ministry <strong>of</strong> Social Affairs <strong>and</strong> spread initiated the first intervention across 5 municipalities.<br />

The second, based in Djursl<strong>and</strong>, was designed to support families with young children where<br />

alcohol was used problematically. Finally, the third intervention, was an outreach programme<br />

amongst homeless people aimed at preventing mental health problems, <strong>and</strong> supporting those<br />

with mental health problems.<br />

Co-operation <strong>and</strong> Planning in the Health Arena (1994); The 1997 Reforms in Sick Allowances;<br />

The 1996 Preventive Health Scheme for Children <strong>and</strong> Youth; <strong>and</strong> the Clean Environment 2005<br />

were provided as policy examples in this report. Inequalities were referred to explicitly,<br />

intersectoral working <strong>and</strong> new partnerships between the public sector <strong>and</strong> private business<br />

were featured with an emphasis placed upon a shift in civil responsibility in which companies<br />

played a much more significant role.<br />

Finl<strong>and</strong><br />

The report submitted by the Finnish Co-ordinator identified that reducing health inequalities<br />

was a target <strong>and</strong> had been since the late 1980s with the initiation <strong>of</strong> the Health for All<br />

programme. Since 1996 the Government <strong>of</strong> Finl<strong>and</strong> had submitted an <strong>of</strong>ficial annual report to<br />

the Parliament concerning the state <strong>of</strong> the health <strong>of</strong> the nation. Mortality, morbidity, use <strong>of</strong><br />

healthcare services, risk factors <strong>and</strong> health behaviours were all reported on.<br />

Policy in Finl<strong>and</strong> was aimed at reducing premature deaths, extending people’s active lives,<br />

ensuring quality <strong>of</strong> life for all <strong>and</strong> reducing differences in health between different sets <strong>of</strong><br />

people. A meeting <strong>of</strong> the Nordic Ministers <strong>of</strong> Social Affairs <strong>and</strong> Health in June 2000 specifically<br />

discussed equity in health. At this the Finnish Health Minister stressed that socio-economic<br />

factors should be prioritised.<br />

On monitoring, there was a tradition shared amongst universities <strong>and</strong> government research<br />

institutes such as the National Research <strong>and</strong> Development Centre for Welfare <strong>and</strong> Health<br />

(STAKES), the National Public Health Institute (KTL) <strong>and</strong> the Institute <strong>of</strong> Public Health (TTL).<br />

Interventions identified within this report were: the Suicide Reduction Programme 1986-1996;<br />

Fit for life 1995; the National Screening Programme for Women; <strong>and</strong> the European Network <strong>of</strong><br />

Health Promoting Schools (ENHPS).<br />

The policies reported were: The Preventive <strong>and</strong> Social Health Policy; Protection at Work;<br />

Provision <strong>of</strong> Income; the new strategy to finance social security; <strong>and</strong> the Production <strong>of</strong><br />

Services Tax.<br />

Germany<br />

The German report included a nation-wide study <strong>of</strong> health promotion among the socially<br />

disadvantaged. Roughly 200 institutions involved in health promotion were approached (i.e.<br />

the National Health Association, state associations for health promotion, state associations <strong>of</strong><br />

the industrial welfare organisations, state charity associations, public health research<br />

associations, universities, several government health <strong>of</strong>fices, several health insurance<br />

companies, the German Medical Association, various initiatives, working groups <strong>and</strong> self-help<br />

groups, etc.). They were all asked to report projects relating to this subject to the national<br />

coordinating <strong>of</strong>fice. Eighty-three completed questionnaires were returned by the submission<br />

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deadline. Among the 83 completed questionnaires, 42 projects involving concrete intervention<br />

measures in the field <strong>of</strong> health promotion among the social disadvantaged were reported.<br />

With regard to the target groups, the projects mainly deal with children <strong>and</strong> young people <strong>and</strong><br />

women in difficult social situations. These are followed by projects for the long-term<br />

unemployed, the homeless, migrants <strong>and</strong> people suffering <strong>from</strong> chronic mental illness. It is<br />

evident that none <strong>of</strong> the intervention programmes specifically targeted senior citizens or male<br />

youths living under difficult psychosocial conditions. The majority <strong>of</strong> methods used can be<br />

classified as support or educational <strong>of</strong>fers. Only a few projects explicitly targeted socially<br />

disadvantaged people, with the aim <strong>of</strong> strengthening their ability to mobilise their own<br />

resources in dealing with their health <strong>and</strong> the health care institutions, <strong>and</strong> to practise selfdetermination.<br />

A small percentage <strong>of</strong> the reported 42 projects have been evaluated<br />

scientifically with regard to their theoretical foundations <strong>and</strong> actual effectiveness (i.e. using<br />

scientific methods <strong>and</strong> techniques).<br />

The following selection criteria for the best practice models were defined:<br />

• It should be evident that basic data <strong>and</strong> information supporting situation or dem<strong>and</strong><br />

analysis <strong>and</strong> goal definition, were available prior to the project.<br />

• The subject <strong>and</strong> the target population should have been selected on the basis <strong>of</strong> the<br />

need for preventive action indicated by the data.<br />

• Changes/improvements due to the intervention should be measurable.<br />

• The implementation <strong>and</strong> effect <strong>of</strong> the intervention should be subject to scientific<br />

evaluation.<br />

• Publications/reports on the project should be available.<br />

This selection is not a rating <strong>of</strong> the individual projects. Rather, the goal was to illustrate<br />

different, successful <strong>and</strong> promising methods <strong>and</strong> strategies <strong>of</strong> health promotion for the socially<br />

disadvantaged in Germany. However, innovative methods were to be identified in these<br />

projects, such as the combination <strong>of</strong> health- <strong>and</strong> employment-promotion measures, the active<br />

use <strong>of</strong> interpreters <strong>and</strong> cultural mediators in work with socially disadvantaged foreigners, the<br />

active involvement <strong>of</strong> the affected parties themselves, etc.<br />

Despite the encouraging nature <strong>of</strong> individual projects, the limited range <strong>of</strong> model projects <strong>of</strong><br />

this kind must be emphasised here in view <strong>of</strong> the magnitude <strong>of</strong> the problem <strong>of</strong> social inequality<br />

in health in all age groups <strong>of</strong> the German population. These projects are still primarily geared<br />

towards socially marginalized groups <strong>and</strong> pursue the goal <strong>of</strong> reducing deficits through<br />

compensatory measures. It must be stated that neither politics nor science has been able to<br />

raise public awareness <strong>of</strong> the need for a national initiative or a broad social movement.<br />

TAMPEP was identified as an international HIV <strong>and</strong> AIDS prevention programme amongst<br />

migrant prostitutes. The project developed an empowerment approach through the work <strong>of</strong> a<br />

network <strong>of</strong> cultural mediators <strong>and</strong> peer educators. The participative approach <strong>of</strong> the project<br />

<strong>and</strong> the proven multiplier effect make this project especially attractive, even though the legal<br />

framework conditions <strong>and</strong> the extensive, undocumented areas <strong>of</strong> the prostitution business limit<br />

the success <strong>of</strong> interventions <strong>of</strong> this kind.<br />

Long-term unemployment <strong>and</strong> related health problems within a rural district <strong>of</strong> East Germany<br />

was the subject <strong>of</strong> the second intervention reported on. The intervention was delivered through<br />

the work <strong>of</strong> a team <strong>of</strong> counsellors who focused their efforts on an occupational reintegration<br />

<strong>and</strong> individual counselling program. An evaluation <strong>of</strong> the implementation was integrated with<br />

the work <strong>of</strong> the counsellors.<br />

The “Healthy Cities Model” was cited as the template for the third intervention targeting<br />

children <strong>and</strong> young people in a deprived city district (high proportion <strong>of</strong> low income <strong>and</strong><br />

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immigrants households). This involved physical activity promotion <strong>and</strong> leisure-time behaviour.<br />

An interesting aspect <strong>of</strong> this compensatory project was its implementation by means <strong>of</strong> a<br />

"cooperative planning strategy", which was to ensure that the program targets were not diluted<br />

or redefined by key institutions in the social environment (school, social education institutions).<br />

Even in Germany's generally affluent society, a health promotion programme focused on<br />

"affordable food" could be useful in a strongly socially disadvantaged residential area where<br />

the parents <strong>of</strong> every third child are dependent on social welfare. This is confirmed by the<br />

results <strong>of</strong> a joint project conducted by the Ministry <strong>of</strong> the Federal State <strong>of</strong> Lower Saxony <strong>and</strong><br />

the Industrial Welfare Organisation. However, eating habits are highly resistant to change due<br />

to their early sociocultural establishment during the process <strong>of</strong> primary socialisation, but also<br />

due to their strong contextual dependence (access to, <strong>and</strong> affordability <strong>of</strong>, healthy food). The<br />

question also arises as to whether social workers in health care should <strong>and</strong> can become active<br />

in a field reserved for trained nutritionists.<br />

The final intervention to be pr<strong>of</strong>iled within this report was a health promotion scheme for young<br />

adults participating in vocational training courses. A life skills approach was adopted <strong>and</strong><br />

monitored through measuring self-reported knowledge <strong>and</strong> behaviour.<br />

Health policy activities geared to reducing social inequalities in health<br />

Federal level<br />

In the Federal Republic <strong>of</strong> Germany, interest in the subject <strong>of</strong> "social inequality <strong>and</strong> health" has<br />

increased in the health <strong>and</strong> social policy sector over the past ten years. As a result <strong>of</strong> this<br />

interest, the "National Poverty Conference" was established in Autumn 1991 to serve as the<br />

German section <strong>of</strong> the European Anti-Poverty Network. The Federal Government also no<br />

longer denies the existence <strong>of</strong> poverty <strong>and</strong> social exclusion in Germany. In accordance with<br />

the coalition agreement between the SPD (Social Democrats) <strong>and</strong> Bündnis 90/Die Grünen<br />

(Alliance 90/Greens) <strong>of</strong> 20 October 1998, which declares the fight against poverty to be a<br />

focus <strong>of</strong> the policy <strong>of</strong> the new Federal Government <strong>and</strong> provides for the regular submission <strong>of</strong><br />

a poverty <strong>and</strong> wealth report, the motion <strong>of</strong> the coalition to "submit a poverty <strong>and</strong> wealth report<br />

by the Federal Government in 2001" was adopted by the German Bundestag on 27 January<br />

2000.<br />

The "Poverty <strong>and</strong> Health" Committee was established in the German Federal Ministry <strong>of</strong><br />

Health on 28 January 2000. The members <strong>of</strong> this federal <strong>and</strong> state committee include<br />

representatives <strong>of</strong> the Federal Government <strong>and</strong> the Federal States, as well as representatives<br />

<strong>of</strong> the health insurance companies, the National Association <strong>of</strong> Panel Doctors, the German<br />

Medical Association, the Public Health Service <strong>and</strong> individual experts <strong>from</strong> the fields <strong>of</strong> science<br />

<strong>and</strong> practice. The ministry's goal in establishing this committee is to study the effects <strong>of</strong><br />

poverty on health (in terms <strong>of</strong> financial poverty <strong>and</strong> by applying the life situation method), <strong>and</strong><br />

to identify potential means <strong>of</strong> improvement. Recommendation papers are now available <strong>from</strong><br />

two subcommittees on the subjects <strong>of</strong> "health care for the homeless" <strong>and</strong> "migration <strong>and</strong><br />

health". These papers contain action recommendations directed at all those who bear<br />

responsibility for public health care.<br />

The new version <strong>of</strong> Art. 20 SGB V undoubtedly strengthens health promotion for the socially<br />

disadvantaged in health policy. It enables German health insurance companies to once again<br />

<strong>of</strong>fer their insured programmes in primary prevention <strong>and</strong> company-based health promotion.<br />

The wording <strong>of</strong> this act reads as follows: "(1) ... primary prevention services are intended to<br />

improve the general state <strong>of</strong> health <strong>and</strong>, in particular, contribute to the reduction <strong>of</strong> social<br />

inequality in the opportunities for maintaining good health." Consequently, health insurance<br />

companies can be expected to increasingly finance health promotion programmes geared to<br />

risk groups whose health opportunities are more restricted due to social conditions. The<br />

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support <strong>of</strong> prevention measures is subject to certain prerequisites. For example, the law<br />

requires pro<strong>of</strong> <strong>of</strong> efficacy, cost-efficiency <strong>and</strong> quality assurance for programmes to be included<br />

in a catalogue.<br />

Measures for reducing unemployment<br />

The German Federal Government has given the struggle against unemployment absolute<br />

priority. Roughly DM 44.5 billion were available in 1999, which were used to support<br />

employment programmes for about 1.5 million participants. The Immediate Action Programme<br />

for the Reduction <strong>of</strong> Youth Unemployment successfully reduced unemployment in 1999,<br />

especially long-term unemployment. This immediate action programme consists <strong>of</strong> various<br />

sub-programmes geared to the individual problems <strong>of</strong> unemployed young people. For<br />

example, elements such as social support are included, in order to address young people <strong>from</strong><br />

difficult social backgrounds, who are usually not registered as unemployed.<br />

Measures for improving the housing situation<br />

A change in tenancy law in 2000 lengthened the period for paying rent arrears <strong>and</strong> due<br />

compensation <strong>from</strong> one month to a total <strong>of</strong> two months after the launch <strong>of</strong> eviction<br />

proceedings. The purpose is to prevent homelessness. A government-sponsored model<br />

project known as "Permanent Housing for the Homeless" was carried out between 1993 <strong>and</strong><br />

1997. Within the framework <strong>of</strong> this project, new housing space was provided for particularly<br />

disadvantaged people, usually homeless people or people threatened by homelessness, using<br />

low-income housing funds, along with accompanying social support, primarily funded by the<br />

social welfare, child <strong>and</strong> youth welfare <strong>and</strong> labour promotion system.<br />

The German Federal Government is providing DM 100 million a year <strong>from</strong> 1999 to 2003 for the<br />

national <strong>and</strong> Federal States programme "Districts With Special Developmental Needs - The<br />

Social City". This initiative is geared towards city <strong>and</strong> town districts that are at risk <strong>of</strong> social<br />

marginalization as the result <strong>of</strong> social/physical segregation. One-hundred <strong>and</strong> sixty-one<br />

districts with special developmental needs in 123 cities <strong>and</strong> municipalities were involved in the<br />

programme in the first year. Although improving health in the respective cities <strong>and</strong><br />

municipalities is not an explicit goal <strong>of</strong> the programme, it targets the improvement <strong>of</strong> the living<br />

situation by means <strong>of</strong> active <strong>and</strong> integrative urban development policy. Positive effects on<br />

health can therefore be expected.<br />

State level<br />

The number <strong>of</strong> poverty <strong>and</strong> social reports <strong>from</strong> the Federal States <strong>and</strong> municipalities is rising<br />

steadily. Particularly great emphasis on the issue <strong>of</strong> "social inequality <strong>and</strong> health" can be<br />

observed in the health reporting <strong>of</strong> the state <strong>of</strong> North Rhine-Westphalia (NRW). In 1995, NRW<br />

was the first federal state to present a goal-oriented approach to achieving health policy<br />

targets to experts in the field. The State Health Conference <strong>of</strong> North Rhine-Westphalia<br />

adopted the "Ten Priority Health Targets for NRW" in mid-1995, these forming the foundation<br />

<strong>of</strong> health policy in North Rhine-Westphalia (Ministry <strong>of</strong> Women, Youth, Family Affairs <strong>and</strong><br />

Health <strong>of</strong> the state <strong>of</strong> NRW (MFJFG), 1995). Although the WHO objectives for disadvantaged<br />

groups did not get into the top rankings on the NRW target list, the "establishment <strong>of</strong> equal<br />

opportunities in the health system is considered to be a cross- fashion in the event <strong>of</strong> illness.<br />

In this context, the MFJFG initiated a model intervention programme in health policy on the<br />

municipal level for the co-ordination <strong>of</strong> health <strong>and</strong> social services <strong>and</strong> provided funding <strong>from</strong><br />

Autumn 1995 to the end <strong>of</strong> 1998. Model community initiatives, such as improved drug<br />

assistance planning, a faster transfer <strong>of</strong> the mentally ill to assisted living programmes, <strong>and</strong> job<br />

market transparency for conditionally employable, mentally ill persons, are examples geared to<br />

the qualitative improvement <strong>of</strong> the treatment <strong>and</strong> living situation <strong>of</strong> the socially disadvantaged.<br />

Longer-term improvements in medical <strong>and</strong> social care <strong>and</strong> support can result <strong>from</strong> optimised<br />

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planning data <strong>and</strong> a comprehensive inventory <strong>of</strong> the treatment needs <strong>of</strong> the citizens <strong>of</strong> a<br />

municipality. The Public Health Service Act (ÖGDG) <strong>of</strong> the Federal State <strong>of</strong> NRW <strong>of</strong> 25<br />

November 1997 mentions "new forms <strong>of</strong> responsibility fulfilment <strong>and</strong> organisation" (Arts. 2, 4)<br />

"Coordination" (Art. 23) <strong>and</strong> the "Municipal Health Conference" (Art. 24). The public health<br />

service is given municipal-level competencies in health policy that go way beyond medical<br />

services <strong>and</strong> can be used to reorient the public health service to also provide better care for<br />

socially disadvantaged groups.<br />

Within the framework <strong>of</strong> the Lower Saxony State Poverty Conference, the activities <strong>of</strong> the<br />

"Poverty <strong>and</strong> Health" committee are worthy <strong>of</strong> mention. This committee published a project<br />

brochure for Lower Saxony, which presents 74 practical projects <strong>and</strong> key activities that work<br />

with <strong>and</strong> for the socially disadvantaged.<br />

A nationwide inventory <strong>of</strong> initiatives, projects <strong>and</strong> ongoing programmes for health promotion<br />

among the socially disadvantaged was performed <strong>and</strong> published in spring/summer 1996 by<br />

the Ministry <strong>of</strong> Social Affairs <strong>of</strong> the Federal State <strong>of</strong> Baden-Württemberg in cooperation with<br />

the Baden-Württemberg State Health Office.<br />

Greece<br />

Three interventions were submitted in the Greek report: Health <strong>and</strong> nutrition in primary school<br />

children in Crete; Nutritional consultants amongst the elderly population <strong>of</strong> Attica; <strong>and</strong> the<br />

prevention <strong>of</strong> anti-social behaviour amongst adolescents in Piraeus.<br />

The first <strong>and</strong> third interventions were school-based programmes, aimed at helping children<br />

<strong>from</strong> underprivileged or migrant families. In Crete, activities <strong>and</strong> seminars for parents <strong>and</strong> their<br />

<strong>of</strong>fspring were organised in primary schools to improve children’s diets, fitness levels <strong>and</strong><br />

general health. In Piraeus, health <strong>and</strong> community workers reached out to pre-adolescents <strong>from</strong><br />

disadvantaged backgrounds to prevent drug abuse <strong>and</strong> delinquency. The programme was<br />

aimed at children <strong>of</strong> this particular age group, because they are in a crucial stage <strong>of</strong> their<br />

socialisation, during which they will adopt attitudes <strong>and</strong> habits, which will affect their future<br />

lives. The purpose <strong>of</strong> this project was to raise children <strong>and</strong> parents’ awareness <strong>of</strong> the dangers<br />

<strong>of</strong> drug abuse as well as to encourage a healthier lifestyle <strong>and</strong> participation in creative<br />

activities. Cultural <strong>and</strong> social events, including theatrical performances <strong>and</strong> exhibitions were<br />

organised with the participation <strong>of</strong> children, teachers <strong>and</strong> parents. A great emphasis was also<br />

placed on the development <strong>of</strong> good personal <strong>and</strong> social skills, such as self-esteem,<br />

responsibility, communication, the expression <strong>of</strong> feelings, teamwork, solidarity, conflict<br />

resolution <strong>and</strong> assertivity.<br />

The second intervention, presented in the Greek report, referred to a nutrition programme for<br />

senior citizens in a socio-economically-disadvantaged area <strong>of</strong> Attica. Twenty-seven elderly<br />

volunteers received training as healthy nutrition councillors <strong>and</strong> were sent out to various<br />

recreation centres for the elderly to discuss the importance <strong>of</strong> healthy nutritional habits. The<br />

main goal <strong>of</strong> the programme was to prevent cardiovascular disease. However, it also<br />

encouraged senior citizens to revive traditional recipes <strong>and</strong> discover the joys <strong>of</strong> volunteering.<br />

In addition to the above-mentioned projects, the Greek report highlighted the main points <strong>of</strong><br />

the country’s social policy, which includes:<br />

• vocational training, consultation centres <strong>and</strong> assisted access to public transportation<br />

for the disabled <strong>and</strong> people with special needs<br />

• the provision <strong>of</strong> low-cost housing for people on low incomes<br />

• home help services to low-income elderly or disabled people <strong>and</strong> therapeutic holidays<br />

for the elderly<br />

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• social security payments for agricultural workers, low-income pensioners, the disabled,<br />

Greek migrants who return to their country <strong>of</strong> origin, families with more than 4 children<br />

or single parent families<br />

• programs directed at the socialisation <strong>and</strong> protection <strong>of</strong> street children<br />

• vocational training for women, young people <strong>and</strong> the long-term unemployed, as well as<br />

vulnerable social groups including the disabled, gypsies, migrants, migrants <strong>of</strong> Greek<br />

origin returning to Greece, refugees <strong>and</strong> ex-prisoners<br />

• financial advantages for employers who hire people <strong>from</strong> vulnerable social groups<br />

• special healthcare provision for people working in the agricultural sector<br />

• sport for all<br />

Irel<strong>and</strong><br />

The Irish Co-ordinator highlighted the new National Health Promotion Strategy for the years<br />

2000-2005, <strong>and</strong> the emphasis placed on the socio-economic <strong>and</strong><br />

environmental determinants <strong>of</strong> health.<br />

One <strong>of</strong> the recommendations <strong>from</strong> the strategy, is the need for a more comprehensive form <strong>of</strong><br />

health-pro<strong>of</strong>ing <strong>of</strong> all policies in order to address health<br />

inequalities.<br />

The first National Health <strong>and</strong> Lifestyle Survey (SLÁN 1999), commissioned by the Department<br />

<strong>of</strong> Health <strong>and</strong> Children’s Health Promotion Unit revealed an socio-economic gradient in<br />

relation to lifestyle practices. The results <strong>of</strong> SLÁN have informed recommendations in the<br />

Strategy, <strong>and</strong> a follow-on survey is planned for 2002 to measure progress <strong>and</strong> re-assess aims<br />

<strong>and</strong> objectives.<br />

A new National Health Strategy is at an advanced stage <strong>of</strong> preparation <strong>and</strong> is due to be<br />

published in October 2001. It will focus on population health <strong>and</strong> the elimination <strong>of</strong> inequalities<br />

in health via Health Promotion intervention.<br />

Two interventions <strong>and</strong> one policy were pr<strong>of</strong>iled within the report <strong>from</strong> the Irish Co-ordinator.<br />

The first was a community peer-led nutrition intervention entitled ‘Healthy Food Made Easy’.<br />

The goal <strong>of</strong> this project was to improve the nutrition <strong>of</strong> low-income communities. Local women<br />

were trained by nutritionists to deliver a course to their peers in the community. Dublin<br />

Healthy Cities collaborated with the south western Area Health Board to pilot new structures<br />

<strong>and</strong> resources. The second intervention was aimed at promoting cultural diversity <strong>and</strong> raising<br />

public awareness on racism in Dublin. Information booklets outlining service provision in<br />

housing, health <strong>and</strong> social welfare were developed in different languages.<br />

The National Anti-Poverty Strategy (NAPS), ‘Sharing in Progress’, was published in 1996 <strong>and</strong><br />

identified five key areas: educational disadvantage; unemployment; income adequacy;<br />

disadvantaged urban areas; <strong>and</strong> rural poverty. Following on <strong>from</strong> a 2000 review <strong>of</strong> this<br />

strategy, health was identified as a key area in which inequalities prevailed. As a result the<br />

revised NAPS strategy 2001 also contains NAPS <strong>and</strong> Health targets.<br />

A recent <strong>and</strong> significant development was the establishing <strong>of</strong> an Institute <strong>of</strong> Public Health in<br />

1999. The aim <strong>of</strong> the Institute was to improve health in Irel<strong>and</strong> by working to combat health<br />

inequalities, <strong>and</strong> influence public policies in favour <strong>of</strong> public health. Fundamental to the<br />

philosophy <strong>of</strong> the Institute was the fact that the main determinants in health in society were<br />

people’s social <strong>and</strong> economic circumstances. The Institute worked to reduce inequalities in<br />

health <strong>and</strong> develop <strong>and</strong> strengthen partnerships for health. It was also involved with building<br />

the capacity <strong>of</strong> those who had key roles to play in improving the health <strong>of</strong> the people <strong>of</strong> Irel<strong>and</strong>.<br />

The main areas <strong>of</strong> work identified by the Institute were:<br />

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• Tackling health inequalities<br />

• Strengthening partnerships for health<br />

• Networking internationally <strong>and</strong> nationally<br />

• Contributing to public health information <strong>and</strong> surveillance<br />

• Strengthening public health capacity<br />

The Institute clearly set out the approach it would take towards achieving these goals:<br />

• Developing <strong>and</strong> promoting multidisciplinary <strong>and</strong> intersectoral ways <strong>of</strong> working<br />

• Working to strengthen the information <strong>and</strong> skills that people needed to achieve<br />

improvements in their health<br />

• Promoting co-operation between the Republic <strong>of</strong> Irel<strong>and</strong> <strong>and</strong> Northern Irel<strong>and</strong><br />

• Raising awareness <strong>of</strong> public health matters<br />

Italy<br />

Attention was drawn within the Italian report to the fact that the Ministry <strong>of</strong> Health had recently<br />

(2000) commissioned the Experimental Centre <strong>of</strong> Health Education at the University <strong>of</strong><br />

Perugia to conduct scooping research into ‘Health for all 2000’. Socio-economic <strong>indicators</strong><br />

were examined <strong>and</strong> their suitability for the Italian situation assessed.<br />

Two longitudinal studies on inequalities in mortality were initiated. The first was being<br />

conducted by the social research department at the University <strong>of</strong> East Piemonte in Turin.<br />

Early results had highlighted the depth <strong>of</strong> inequality especially in relation to the social position<br />

<strong>of</strong> citizens. The second study at Florence was examining the relationship between educational<br />

<strong>indicators</strong> <strong>and</strong> cardiovascular disease.<br />

An exposition <strong>of</strong> the policy <strong>and</strong> legislative environment was provided in this report. Within the<br />

constitution there was an emphasis on solidarity with laws enforcing the equal treatment for all<br />

citizens. Health was viewed as a fundamental right <strong>of</strong> every individual with assurances given<br />

concerning the free treatment <strong>of</strong> the sick. The Italian National Health Service was initiated in<br />

1978 <strong>and</strong> based upon four key principles: a global service; guarantee <strong>of</strong> health for all persons;<br />

equal treatment for all; <strong>and</strong> the protection <strong>and</strong> respect for the dignity <strong>of</strong> all.<br />

Within the last National Health Plan (1998-2000) health promotion was the main objective.<br />

There were three main principles: universal access regardless <strong>of</strong> social level or financial<br />

situation; equal accessibility <strong>and</strong> distribution <strong>of</strong> health services; a guarantee that individual<br />

contribution is independent <strong>from</strong> the risk <strong>of</strong> disease.<br />

Four interventions were identified within this report.<br />

The first was entitled ‘Immigration <strong>and</strong> health’ <strong>and</strong> was initiated within the Umbrian region. It<br />

aimed to ensure that migrants, without a satisfactory permit for a stay in Italy, had access to<br />

adequate health services. Within this broad remit there were also moves to: promote cooperation<br />

between private <strong>and</strong> public sector service providers; monitor a range <strong>of</strong> infectious<br />

diseases; improve communication between the local population <strong>and</strong> immigrants; <strong>and</strong> devise<br />

health promotion programmes for the immigrant groups.<br />

Harm reduction <strong>from</strong> sexually transmitted diseases (STD’s) amongst prostitutes, ‘CABIRIA’,<br />

was aimed at contacting prostitutes <strong>and</strong> providing information about STD’s <strong>and</strong> appropriate<br />

services.<br />

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‘Unita Mobile Donna’ was an intervention implemented by the non-government organisation<br />

PARSEC in Rome. It was initiated in 1997 <strong>and</strong> provided information about STD’s to the local<br />

female population. A particular feature <strong>of</strong> the intervention was the provision <strong>of</strong> safer sex<br />

information to ‘older’ widowed or divorced women (a particular group at risk identified by the<br />

local epidemiological observatory) who were not aware <strong>of</strong> risks <strong>and</strong>/or did not perceive<br />

themselves to be at risk <strong>from</strong> STD’s.<br />

‘Health culture <strong>and</strong> immigration’, based in the Lazio region <strong>of</strong> Rome, was again aimed at<br />

providing access to health services for immigrants without suitable permits for a stay within<br />

Italy (‘irregular, cl<strong>and</strong>estine <strong>and</strong> illegal immigrants’). There was a strong surveillance element<br />

integrated into this intervention which was implemented by the Santa Maria <strong>and</strong> San Gallicano<br />

Dermatological Institute.<br />

Netherl<strong>and</strong>s<br />

A comprehensive picture <strong>of</strong> inequalities within the Netherl<strong>and</strong>s was presented within the report<br />

<strong>from</strong> this Co-ordinator. The National Institute <strong>of</strong> Public Health <strong>and</strong> Environment (RIVM)<br />

collected data on health, disease <strong>and</strong> the provision <strong>of</strong> healthcare. These data were presented<br />

within the report entitled ‘Public Health Status <strong>and</strong> Forecasts’ (1977).<br />

Inequalities in socio-economic status were measured using data on educational level, income<br />

<strong>and</strong> occupational status. A number <strong>of</strong> useful examples were provided to illustrate gradients<br />

that existed when comparing the morbidity <strong>and</strong> mortality <strong>of</strong> the top <strong>and</strong> bottom categories <strong>of</strong><br />

these scales.<br />

In addition to socio-economic status, the aged, the unemployed, single people, ethnic<br />

minorities, <strong>and</strong> the homeless were also mentioned. There were no formal national inequality<br />

targets in the Netherl<strong>and</strong>s, but these data were used to measure progress in reducing the<br />

health gap.<br />

A geographical focus was introduced which considered the concentration <strong>of</strong> these groups<br />

within certain suburbs <strong>of</strong> big cities.<br />

A picture <strong>of</strong> a very data rich <strong>and</strong> sophisticated monitoring programme was presented. Further<br />

examples <strong>of</strong> projected growth over the next 15 years for the groups mentioned above were<br />

submitted.<br />

The report highlighted the Globe Study conducted since 1991 by the Erasmus University <strong>of</strong><br />

Rotterdam. This longitudinal study was carried out amongst 19,000 residents in the Southeast<br />

Netherl<strong>and</strong>s <strong>and</strong> demonstrated that both behavioural factors <strong>and</strong> living conditions contributed<br />

to the poorer health <strong>and</strong> survival <strong>of</strong> the lower socio-economic groups during this period.<br />

The Dutch Ministry <strong>of</strong> Health, Welfare <strong>and</strong> Sports funded a research programme (Health<br />

Inequalities SEGV-II) which examined health promotion policies <strong>and</strong> interventions <strong>and</strong> their<br />

scope for reducing health inequalities.<br />

The report concluded its pre-amble by reporting that the Dutch Minister for Health (Ms. Borst)<br />

had requested that a systematic approach to policy–development be adopted with its aim<br />

being the reduction <strong>of</strong> ‘avoidable <strong>and</strong> unfair health inequalities’.<br />

Four interventions were identified within this report (including the Globe study mentioned<br />

above), a large number <strong>of</strong> policy initiatives were identified.<br />

Coherence in prevention in Amsterdam was involved with the development <strong>of</strong> a network<br />

combined with three pilot projects. By creating partnerships between the municipality <strong>and</strong><br />

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insurance company its goal was to <strong>of</strong>fer continuity across a range <strong>of</strong> services for a number <strong>of</strong><br />

groups within the population (the ageing population, migrants <strong>and</strong> minority ethnic groups).<br />

Priorities were identified <strong>and</strong> driven by the groups mentioned above. This project was<br />

presented as being part <strong>of</strong> a larger approach, ‘Grotestedenbeleid’ (large city policy). There<br />

was a very strong evaluative dimension integrated with the implementation <strong>and</strong>, although<br />

barriers prevented success, a longitudinal survey was attempted.<br />

The Arnhemse Broek healthy <strong>and</strong> well, the third intervention to be identified within this report,<br />

was a community-based intervention for the underprivileged in Arnhem. With high levels <strong>of</strong><br />

community involvement this project was again reported as featuring strong evaluative<br />

components with process measurement combined with a quasi-experimental outcome study.<br />

The final intervention targeted children living in poverty in Breda.<br />

The table below shows the policies that were identified in the report <strong>from</strong> the Netherl<strong>and</strong>s, the<br />

first five were mentioned within the opening introduction <strong>and</strong> the remaining group was formally<br />

submitted for consideration by the project.<br />

POLICY DESCRIPTION<br />

Social renewal<br />

policy<br />

Big city policy<br />

Welfare policy<br />

Urban renewal<br />

Local health<br />

Income support Including the provision <strong>of</strong> emergency assistance for the purchase <strong>of</strong><br />

warm clothes <strong>and</strong> food<br />

Push-back on non- To ensure that those who have benefit entitlements are made aware<br />

use<br />

<strong>and</strong> can receive them<br />

Promote<br />

employment<br />

Financial benefits, social involvement <strong>and</strong> mental health are features<br />

Increasing social<br />

participation<br />

Minority policy<br />

City renewal<br />

Social renewal<br />

Medical help for<br />

illegal residents<br />

without medical<br />

insurance<br />

Social involvement <strong>and</strong> well-being. Empowerment.<br />

Increasing levels <strong>of</strong> access to health services<br />

(1997) Assessment <strong>of</strong> the impact <strong>of</strong> renewal programmes prior to this<br />

period.<br />

Identifies special action areas characterised by multiple deprivation<br />

(1988)<br />

Integration <strong>of</strong> Assisting low wage earners with medical bills<br />

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people with labour<br />

disabilities<br />

Nutritional policy<br />

for people with low<br />

socio-economic<br />

status<br />

Physical activity<br />

<strong>and</strong> vulnerable<br />

youth<br />

Norway<br />

(1988/99) Health outcome targets relating to heart disease <strong>and</strong> cancer<br />

(1996) Lifestyle approach aimed at increasing social integration<br />

Whilst the Norwegian co-ordinator did not submit a formal introduction <strong>and</strong> complete the<br />

section on the identification <strong>of</strong> inequalities within her country. She did supply two papers:<br />

Tackling Inequalities in Health by Marit Rognerud <strong>and</strong>; Social Inequalities in Health – a review<br />

<strong>of</strong> the Norwegian evidence by Espen Dahl. It was beyond the scope <strong>of</strong> this project to report on<br />

all the information supplied within these extensive reviews.<br />

The information supplied presented a picture <strong>of</strong> a data-rich environment in which inequalities<br />

were clearly defined <strong>and</strong> integrated into the policy context. The Black Report, published in<br />

Engl<strong>and</strong> in 1980 (Townsend <strong>and</strong> Davidson 1980), was classed as a significant milestone for<br />

both research <strong>and</strong> policy development across Europe. Dahl argued in his paper that the<br />

impact <strong>of</strong> the Black Report was not what it could have been in Norway. (More specifically<br />

related to the potential <strong>of</strong> the research to be used to illuminate avoidable inequality <strong>and</strong><br />

recommend action for policy-makers).<br />

Dahl (who restricted his working definition to socio-economic inequalities but then engaged<br />

gender, ethnicity, marital status <strong>and</strong> age in his consideration <strong>of</strong> subgroups) wrote that Norway<br />

along with the other Nordic countries had a huge comparative advantage in the availability <strong>of</strong><br />

‘high quality data with a unique richness’. He reported that there was a possibility to link data<br />

<strong>from</strong> a number <strong>of</strong> administrative <strong>and</strong> statistical registers. He highlighted some examples <strong>of</strong><br />

administrative <strong>and</strong> statistical data that had the potential to shed light on life-course<br />

perspectives. These included: The Survey <strong>of</strong> Level <strong>of</strong> Living; The Health Study <strong>of</strong> North-<br />

Trondelag (HUNT); The Health Study in the Administrative Units <strong>and</strong> Regions in Oslo<br />

(HUBRO); <strong>and</strong> The Medical Birth Registry.<br />

The potential value <strong>of</strong> examining deprivation <strong>and</strong> social capital at the municipality level through<br />

the exploration <strong>of</strong> income <strong>and</strong> mortality data was put forward.<br />

Margit Rognerud selected a number <strong>of</strong> different groups including children in low-status<br />

families; single parents; unemployed people; immigrants, refugees <strong>and</strong> asylum seekers; <strong>and</strong><br />

the homeless. She extracted data <strong>from</strong> Statistics Norway [The Health Survey 1995 (Pub.1999)<br />

<strong>and</strong> Levels <strong>of</strong> Living Survey 1995 (pub.1997)] <strong>and</strong> cited a number <strong>of</strong> academic studies.<br />

Statistics Norway conducted their ‘Health Survey’ in 1995 based on a representative sample <strong>of</strong><br />

5100 households (12,832 respondents) with a response rate <strong>of</strong> approximately seventy per<br />

cent.<br />

The author illustrated how morbidity <strong>and</strong> mortality patterns vary in all the groups mentioned<br />

above.<br />

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In Norway, both high <strong>and</strong> low income groups alike experienced increased prosperity within the<br />

last few decades. The percentage living in relative poverty, however was higher in 1996 than<br />

in 1986.<br />

Selected examples <strong>from</strong> this paper are given below:<br />

� Small children (0-6 years) <strong>from</strong> low-income families (income less than 160.000 NOK<br />

per year) had a higher prevalence <strong>of</strong> disease, injury or ‘h<strong>and</strong>icap that affects everyday<br />

life’ than those <strong>from</strong> affluent families (all categories)<br />

� The long-term unemployed suffered more disease <strong>and</strong> mental distress more frequently<br />

than the average population across all age groups.<br />

� The Oslo Health Report (Rognerud M, Stensvold I 1997) showed that, when comparing<br />

babies <strong>of</strong> non-western women with Norwegian women (based on country <strong>of</strong> birth), they<br />

had higher rates <strong>of</strong> low birth rate, serious malformations, perinatal mortality <strong>and</strong> infant<br />

mortality.<br />

� A ‘healthy migrant effect’ was observed which was reversed for older migrants.<br />

Table: Self reported diseases (all diseases/long-lasting illnesses)<br />

Age group 16-24 year-olds 25-44 year-olds 45-66 year-olds<br />

Non- Norwegians Non-western Norwegians Non-western Norwegians<br />

Western<br />

immigrants<br />

immigrants<br />

immigrants<br />

Diseases 18.7% 39.5% 36.5% 47.6% 67.1% 59.9%<br />

Source: Statistics Norway<br />

The author described migrants characterised as healthy, young <strong>and</strong> resourceful people (the<br />

‘healthy migrant effect’). Over time this effect was weakened as a result <strong>of</strong> exposure to risk<br />

factors associated with low-socio-economic status <strong>and</strong> additional socio-cultural problems in<br />

their new homel<strong>and</strong>. The table above was used to illustrate this point in which the percentage<br />

reporting long-lasting illness (all diseases) was lower among younger migrants than among<br />

Norwegians in the same age groups (16-24 year-olds, 25-44 year-olds). For older migrants<br />

(45-66 year–olds) the situation was reversed.<br />

The Norwegian report identified a total <strong>of</strong> four interventions <strong>and</strong> seven policies. Bosnian<br />

refugee children were the subjects <strong>of</strong> the first. By working with them <strong>and</strong> providing them with<br />

assistance, the aim was to help them cope with the trauma <strong>of</strong> war.<br />

The second project was involved with the setting up <strong>of</strong> a workshop for primary medical care;<br />

lay health promoters were used to forge links with the immigrant population. Priorities were<br />

driven by the community <strong>and</strong> focused primarily on healthy eating issues, the wider objectives<br />

were related to empowerment <strong>and</strong> developing social cohesion. An action research approach<br />

was adopted to evaluate the implementation <strong>of</strong> the project.<br />

The Varden Childcare Centre, the third Norwegian intervention, <strong>of</strong>fered day centre facilities for<br />

children <strong>and</strong> parents. Although focused primarily on a specific centre, work was not confined<br />

within the building <strong>and</strong> outreach extended into the surrounding community. Cross-sectoral<br />

ways <strong>of</strong> working were employed with long term health benefits through community<br />

empowerment the goal. This was accompanied by an evaluation <strong>of</strong> the implementation. The<br />

Hasvik Self-help House was the final Norwegian nomination in the intervention section. This<br />

was set up to assist a small local community who were suffering economic recession as a<br />

result <strong>of</strong> the collapse <strong>of</strong> the fishing <strong>and</strong> associated industries in the area. The priorities were<br />

community-driven <strong>and</strong> covered a broad range <strong>of</strong> issues including social, economic <strong>and</strong> wellbeing.<br />

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The Norwegian policies that were identified in their report are listed below:<br />

POLICY DESCRIPTION<br />

� Housing<br />

policy<br />

� Environmen<br />

t policy<br />

� Health <strong>and</strong><br />

healthcare<br />

policy<br />

� Social<br />

welfare <strong>and</strong><br />

social<br />

security<br />

� Lifestyle<br />

� Educational<br />

<strong>and</strong><br />

vocational<br />

training<br />

� Area<br />

community<br />

policy<br />

Aimed at increasing public housing stock adopting a multi-sectoral<br />

approach through the setting up <strong>of</strong> collectives. Also covers assistance<br />

for homeless people<br />

An explicit link is made between the environment <strong>and</strong> psycho-social<br />

well-being<br />

Covers the needs <strong>of</strong> people with psychiatric disorders<br />

Dealing with problems arising <strong>from</strong> forced marriages amongst<br />

immigrant populations<br />

Strong focus on the health <strong>of</strong> children<br />

Covering the provision <strong>of</strong> economic support for single parents to<br />

enhance their prospects within the labour market<br />

Areas suffering deprivation – example given, Inner East Oslo.<br />

The account presented a favourable situation in terms <strong>of</strong> tackling inequality, socio-economic<br />

factors <strong>and</strong> their relationships to health outcomes were made explicit. The overall approach<br />

was orientated towards tackling problems faced by marginalized groups <strong>and</strong> communities<br />

rather than through influencing structural conditions.<br />

Portugal<br />

Through various local <strong>and</strong> sectoral studies in Portugal, it was possible to ascertain some <strong>of</strong> the<br />

health characteristics <strong>of</strong> certain groups such as drug addicts, sex workers, immigrants,<br />

homeless people <strong>and</strong> travellers.<br />

The Portuguese co-ordinator identified a total <strong>of</strong> four interventions <strong>and</strong> five policies. All <strong>of</strong> the<br />

interventions that were identified were aimed at improving health provision <strong>and</strong> access to<br />

socially excluded groups.<br />

Espaco Pessoa in Oporto city was an outreach support programme for male <strong>and</strong> female sex<br />

workers. The AUTOESTIMA programme based in Northern Portugal again focused on the<br />

sexual health <strong>of</strong> prostitutes with an outreach programme tailored to the special health needs <strong>of</strong><br />

this ‘hard to target’ group.<br />

Immigrants <strong>and</strong> illegal migrants were the target group for a ‘better access to healthcare’<br />

project in Quinta do Mocho <strong>and</strong> Marvilla. A set <strong>of</strong> protocols was developed to facilitate<br />

collaborative action between different service providers <strong>and</strong> patient satisfaction was<br />

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monitored. There was a strong emphasis on priorities identified by community representatives<br />

<strong>and</strong> empowerment.<br />

Finally in Soares dos Reis, older low-income people, particularly those with mobility difficulties,<br />

were the subject <strong>of</strong> an effort to improve accessibility to healthcare services.<br />

The five policies identified within the Portuguese report were; Guaranteed Minimum Income<br />

(GMI); Promoting Micro-Enterprises; the Elimination <strong>of</strong> Child Labour Exploitation; Integrated<br />

Support for Older People; <strong>and</strong> Combating Poverty.<br />

Spain<br />

The most comprehensive effort to study health inequalities at the national level was conducted<br />

in 1993 when the Ministry <strong>of</strong> Health appointed a scientific commission to study social<br />

inequalities in Spain. The report published in 1996, considered gender, class, geographical<br />

<strong>and</strong> health service provision inequalities. It also reviewed some selected examples <strong>of</strong> social<br />

<strong>and</strong> health policy initiatives. Other potentially useful sources were reported to have been<br />

hampered by data quality problems, these included the Spanish Health Interview Survey <strong>and</strong><br />

routine mortality statistics. Practical problems were also experienced when trying to review<br />

work conducted at both the regional <strong>and</strong> local levels because <strong>of</strong> the diversity <strong>of</strong> the work being<br />

produced by a broad range <strong>of</strong> institutions <strong>and</strong> in difficulties in trying to trace otherwise useful,<br />

but unpublished, work.<br />

The Spanish report identified two interventions <strong>and</strong> two policies. The first intervention, based<br />

in Ciutat Vella, a deprived inner city area in Barcelona, targeted pregnant women <strong>and</strong> women<br />

with young children. For this particular group accessing healthcare services was identified as<br />

being problematic. The project incorporated a quasi-experimental design <strong>and</strong> compared infant<br />

mortality rates between different areas. The project was reported to have demonstrated a<br />

reduction in the infant mortality rate in the area <strong>of</strong> the city where the intervention had been<br />

implemented.<br />

The distribution <strong>of</strong> healthcare services was the subject <strong>of</strong> the second intervention identified<br />

within this report. The example was <strong>from</strong> Barcelona where a review <strong>of</strong> services leads to<br />

reforms.<br />

The Reduction <strong>of</strong> Poverty <strong>and</strong> Social Welfare were identified within the policy section. The<br />

former (re) established a legal minimum wage <strong>and</strong> made provision for employment training for<br />

the unemployed. The latter targeted the significant proportion <strong>of</strong> the Spanish population<br />

composed <strong>of</strong> immigrants <strong>and</strong> their eligibility to access support services. Some interesting<br />

contextual remarks were made regarding the adjustment <strong>of</strong> restrictions associated with<br />

changes in successive governments.<br />

Sweden<br />

Ostlin <strong>and</strong> Diderichsen took much <strong>of</strong> the Swedish Co-ordinators account <strong>from</strong> a report<br />

(summary available: http://www.who.dk/hs/echp/index.htm)<br />

In 1997, the Swedish Government appointed a National Public Health Committee, charged<br />

with the task <strong>of</strong> defining strategies <strong>and</strong> targets that would lead the way in disease prevention<br />

<strong>and</strong> health promotion in Sweden. There was however a number <strong>of</strong> key events that led to the<br />

setting up <strong>of</strong> the Committee. The publishing <strong>of</strong> the Black Report at the beginning <strong>of</strong> the 1980s<br />

was cited by the author <strong>and</strong> attributed with increasing the political <strong>and</strong> scientific interest in<br />

social inequalities in health <strong>and</strong> its causes. In 1988 a Public Health Group was established,<br />

primarily to develop preventive health measures <strong>from</strong> a broad public health perspective. One<br />

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<strong>of</strong> the most important achievements <strong>of</strong> this group was a proposal, which led to the<br />

establishment <strong>of</strong> the National Public Health Institute in 1992.<br />

Throughout the 1990s awareness grew that although in absolute terms health had improved<br />

inequalities had remained the same or were increasing. The author cited Work by<br />

Mackenbach J et al (1997).<br />

Lindholm A.L. et al conducted a study amongst Swedish politicians responsible for health <strong>and</strong><br />

how they interpreted the relationship between equity <strong>and</strong> efficiency targets. In this work he<br />

was able to demonstrate that two thirds <strong>of</strong> his sample were prepared to sacrifice overall health<br />

benefits for equity.<br />

More recently, at the request <strong>of</strong> the Government, the Council <strong>of</strong> Social Research drew up a<br />

national programme <strong>of</strong> health equity research. As a result a national multidisciplinary research<br />

centre for health equity studies was established last year.<br />

The targets <strong>and</strong> strategies that were requested by the Government in 1997 should contribute<br />

to the reduction in health among: socio-economic groups; women <strong>and</strong> men; ethnic groups; <strong>and</strong><br />

geographical regions <strong>of</strong> the country. It was required that these proposals should be<br />

scientifically well founded <strong>and</strong> stimulate a broad democratic process on health policy issues.<br />

The Commission that was set up consisted <strong>of</strong> all seven political parties in Parliament <strong>and</strong> a<br />

number <strong>of</strong> scientific experts <strong>and</strong> advisors <strong>from</strong> national authorities, universities, trade unions<br />

<strong>and</strong> non-governmental organisations.<br />

The preliminary proposal for objectives, targets <strong>and</strong> strategies was submitted to the<br />

Government on the 6 th <strong>of</strong> December 1999 <strong>and</strong> was made available for public consultation.<br />

National health-related policy objectives <strong>from</strong> Sweden included the:<br />

• Counteraction <strong>of</strong> wider disparities in income (Indicator: Gini coefficient under 0.25 (in 1998,<br />

0.25)<br />

• Reduction <strong>of</strong> political marginalization (Indicator: increase in voters in general elections in<br />

districts where fewer than 60% voted in 1998)<br />

• Increase in opportunities for integration into the labour market <strong>and</strong> reduced social<br />

exclusion, opportunities for continuing education, retraining <strong>and</strong> adult education (Indicator:<br />

40% <strong>of</strong> the labour force aged 25 plus with access to 5 plus working days <strong>of</strong> education per<br />

year (now 26%)<br />

There were 18 objectives in the Green Paper on health objectives for Sweden published by<br />

the National Committee for Public Health, based on the WHO Health 21 targets. Each<br />

objective had several general targets attached to it. These were generally not quantified.<br />

Relevant within the context <strong>of</strong> inequalities were:<br />

• strong solidarity <strong>and</strong> community cohesion (targets to reduce poverty, reduce segregation in<br />

housing <strong>and</strong> compensatory support for children <strong>and</strong> adolescents in socially disadvantaged<br />

residential areas)<br />

• supportive social environments for the individual (reduce isolation, loneliness <strong>and</strong><br />

insecurity; increase participation in voluntary organisations <strong>and</strong> cultural activities)<br />

• high unemployment (good opportunities for life-long learning, low unemployment <strong>and</strong> no<br />

discrimination against immigrants <strong>and</strong> people with disabilities)<br />

(Swedish public health strategy is at http://www.fhi.se/english/pubHealth.asp)<br />

Examples <strong>of</strong> proposed <strong>indicators</strong> for the targets:<br />

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Reduced poverty<br />

• Distribution <strong>of</strong> economic st<strong>and</strong>ard (GINI co-efficient)<br />

• Proportion <strong>of</strong> households with a disposable income <strong>of</strong> less than 50% <strong>of</strong> average income<br />

• Proportion <strong>of</strong> individuals depending on social welfare/economic support for at least 10<br />

months per year etc<br />

Reduced segregation in housing<br />

• Quota between high income individuals in relation to low-income individuals per defined<br />

neighbourhood<br />

• Quota individuals born in Sweden in relation to individuals born abroad per parish<br />

• Number <strong>of</strong> homeless people etc<br />

Compensatory support for children <strong>and</strong> adolescents in socially disadvantaged residential<br />

areas<br />

• Number <strong>of</strong> children growing up in vulnerable residential areas<br />

• Resource allocation to pre-school, compulsory school, primary medical care etc in relation<br />

to needs<br />

A total <strong>of</strong> five interventions were reported within the Swedish report. Three were communitybased<br />

interventions, one involved the development <strong>of</strong> protective legislation in nursery schools<br />

<strong>and</strong> one sought to improve the financial access to healthcare services.<br />

Regular inspections <strong>of</strong> the work environment in nurseries <strong>and</strong> schools were instigated to<br />

improve the physical conditions existing within this setting. In addition to child safety a link<br />

was made between the physical environment <strong>and</strong> psychosocial well-being, considering the<br />

quality <strong>of</strong> life <strong>and</strong> morale <strong>of</strong> teachers <strong>and</strong> care staff. Legislation regulating conditions was<br />

used to enforce st<strong>and</strong>ards.<br />

Norsjö CVD, community intervention study examined lifestyle risk factors in a rural population<br />

suffering recession following economic collapse in the 1990s. The evaluation looked<br />

specifically at measures <strong>of</strong> equity.<br />

Comprehensive infant <strong>and</strong> child health screening<br />

Financial co-ordination between healthcare <strong>and</strong> health insurance for rehabilitation (FINSAM)<br />

was a programme where a decrease in absenteeism costs had been demonstrated in areas<br />

where organisational reforms had taken place. Cross-sectoral Cupertino between healthcare<br />

providers <strong>and</strong> private insurance companies.<br />

United Kingdom<br />

The national report <strong>from</strong> the United Kingdom presented a very positive picture in terms <strong>of</strong> the<br />

identification <strong>and</strong> monitoring <strong>of</strong> inequalities.<br />

Data collected <strong>and</strong> published by the Office <strong>of</strong> National Statistics (ONS). A national census<br />

was carried out every ten years.<br />

Social class routinely collated mortality statistics. An occupational mortality study was<br />

published every ten years, the “Decennial Supplement’, was a major source for comparing<br />

deaths in different groups <strong>and</strong> social classes.<br />

A one percent sample <strong>of</strong> the census, the ONS Longitudinal study (LS), was used for both<br />

unemployment <strong>and</strong> health research. The LS was started in the early 1970s by selecting<br />

everyone born on one <strong>of</strong> four particular days who were enumerated at the 1971 Census.<br />

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Subsequent samples were drawn <strong>and</strong> linked <strong>from</strong> the 1981 <strong>and</strong> 1991 Censuses using the LS<br />

dates <strong>of</strong> birth.<br />

Routinely collected data on mortality, fertility, cancer registration, infant mortality, widow(er)<br />

hood <strong>and</strong> the migration <strong>of</strong> sample members were linked into the sample using the National<br />

Health Service Central Register (NHSCR).<br />

Data <strong>from</strong> a number <strong>of</strong> <strong>surveys</strong> were used to provide information about morbidity. The<br />

General Household Survey (GHS) was a continuous survey running since 1971. It was based<br />

each year on a sample <strong>of</strong> the general population resident in private (non-institutional/social)<br />

households in Great Britain. Interviews were obtained <strong>from</strong> about 20,000 individuals aged 16<br />

years <strong>and</strong> over residing in about 10.000 households. The GHS included questions on<br />

population <strong>and</strong> fertility, housing, health, employment <strong>and</strong> education.<br />

In non-census years the Labour Force Survey (LFS) provided background information on the<br />

age, sex <strong>and</strong> occupational structure <strong>of</strong> the workforce. The LFS first took place in 1973.<br />

In addition to an account <strong>of</strong> how inequalities were identified in the United Kingdom, the<br />

national co-ordinator provided a pr<strong>of</strong>ile <strong>of</strong> the health service context.<br />

The National Health Service was created in 1948, <strong>and</strong> provided universal coverage based on<br />

the principles <strong>of</strong> equity <strong>and</strong> comprehensiveness. It remained free at the point <strong>of</strong> delivery with<br />

only a few exceptions, for example, dental, ophthalmic <strong>and</strong> prescription charges.<br />

The Co-ordinator <strong>from</strong> the United Kingdom submitted by far the greatest number <strong>of</strong><br />

interventions for consideration - fifteen.<br />

Community Development for Health Improvement. This was a general description given <strong>of</strong><br />

community development approaches in the United Kingdom <strong>and</strong> served as an introduction to<br />

several <strong>of</strong> the other interventions in the report.<br />

Community Health Exchange – CHEX, Scotl<strong>and</strong>. This was targeted at community health<br />

initiatives <strong>and</strong> pr<strong>of</strong>essionals. The aim was to provide resources to communities across<br />

Scotl<strong>and</strong>. It disseminated good practice <strong>and</strong> supported communities to influence national <strong>and</strong><br />

local policies on health inequalities.<br />

Community Development <strong>and</strong> Health Network Northern Irel<strong>and</strong>. This network was established<br />

to support community action on health issues through: self-help activities; campaigning;<br />

community education; health information; health rights.<br />

Heart <strong>of</strong> Our City Project – HOOC, Sheffield. This was launched in 1996 <strong>and</strong> covered 6 inner<br />

city wards <strong>of</strong> Sheffield. It was targeted at specific risk factors <strong>and</strong> supported the development<br />

<strong>of</strong> social networks.<br />

Smethwick Heart Action Research Project – SHARP. The aim <strong>of</strong> this initiative was, after the<br />

creation <strong>of</strong> a benchmark community survey, to develop health promotion programmes with<br />

black <strong>and</strong> minority ethnic community’s at all key life stages.<br />

Sonas – Community Health Work in the Western Isles, Scotl<strong>and</strong>. This was a community<br />

based health project financed by the Health Education Board for Scotl<strong>and</strong> between 1993 <strong>and</strong><br />

1996. A number <strong>of</strong> different approaches were adopted.<br />

Community Action on Health, Newcastle. A planning forum <strong>of</strong> General Practitioners employed<br />

a community development worker to create a structure for the commissioning <strong>of</strong> primary<br />

healthcare facilities by local people.<br />

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Advocacy/Access to Services in East London <strong>and</strong> the City. Serving an area with a large<br />

diverse minority ethnic population, this project sought to increase levels <strong>of</strong> community<br />

involvement <strong>and</strong> develop advocacy <strong>and</strong> interpretation services. A charter <strong>of</strong> access covering<br />

recruitment <strong>and</strong> physical access to buildings etc was developed.<br />

National Health Action Zones (HAZ) Programme. The principle aim <strong>of</strong> HAZs was to tackle<br />

inequalities in health in the most deprived areas <strong>of</strong> Engl<strong>and</strong> through health <strong>and</strong> social care<br />

modernisation programmes with opportunities to address the wider determinants <strong>of</strong> health<br />

such as housing, education <strong>and</strong> employment.<br />

Scottish Community Diet Programme. This project was established in 1996 to promote <strong>and</strong><br />

focus on dietary initiatives in low-income communities <strong>and</strong> bring these within a strategic<br />

framework.<br />

Montpelier’s Cuddlemum – Community Mothers Programme, Bristol. Support was provided by<br />

local women (‘community mothers’) supported by health visiting staff. After some basic<br />

training in child protection <strong>and</strong> child development families were provided with: advice;<br />

information on local services; assistance in dealing with statutory organisations such as<br />

education <strong>and</strong> housing; health education; <strong>and</strong> support to parents to play <strong>and</strong> read with their<br />

children.<br />

National Timebank Network. Time banks were based on the concept <strong>of</strong> people using their<br />

time as money. Credits were exchanged for time put into health or social care. Everybody’s<br />

time was equally valued. Communities which were ‘cash-poor, time rich’ were able to trade<br />

their time providing each other with valuable services – like care for elders <strong>and</strong> family support<br />

Citizen’s Advice Bureau Welfare Rights Services In Primary Care Settings. Welfare rights<br />

workers, employed by local citizens advice bureaux, worked alongside primary healthcare<br />

pr<strong>of</strong>essionals in general practitioners’ surgeries <strong>and</strong> health centres. Advice on entitlements to<br />

state benefits for disability was given along with unemployment, carer’s allowances. Clients<br />

were also supported with industrial injury claims, immigration <strong>and</strong> other legal problems.<br />

MESMAC – Men who have sex with men – Action in the Community. Four pilot projects were<br />

set up across Engl<strong>and</strong> in 1994. They were hosted by community based <strong>and</strong> statutory<br />

agencies, together with an integrated programme <strong>of</strong> evaluation undertaken with researchers<br />

<strong>from</strong> the University <strong>of</strong> Keele.<br />

Community Health Connections, Wales. The core aim <strong>of</strong> this community health development<br />

approach was to address the wider determinants <strong>of</strong> health <strong>and</strong> enhance community capacity in<br />

order to promote sustainable improvement in community health <strong>and</strong> well-being.<br />

In addition to providing a useful audit <strong>of</strong> the general policy environment (see below) the UK coordinator<br />

focused her attentions on five main areas <strong>of</strong> policy:<br />

Improving Education (Whitepaper ‘Excellence in Schools’ 1997) was the over-riding priority <strong>of</strong><br />

the Labour Government. Amongst the commitments given within this white paper were: the<br />

investment in the fabric <strong>of</strong> school buildings; the reduction <strong>of</strong> class sizes in primary schools;<br />

‘Surestart’ programmes for pre-school children; the setting up <strong>of</strong> Education Action Zones; a<br />

healthy schools programme; <strong>and</strong> open access schemes for life long learning.<br />

Modernising health services (White paper ‘The new NHS - Modern Dependable’ 1997)<br />

included measures such as: national st<strong>and</strong>ards <strong>of</strong> care in national service frameworks; NHS<br />

Direct, a 24 hour nurse led telephone helpline; NHS internet information to link all parts <strong>of</strong> the<br />

service; the setting up <strong>of</strong> Health Action Zones to improve health <strong>and</strong> reduce inequality.<br />

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Reducing Unemployment (‘Welfare to work’ Scheme). This included overall measures to<br />

reduce inequalities in income <strong>and</strong> increase the income <strong>of</strong> people that were worst <strong>of</strong>f. The<br />

principle behind the scheme was to work for benefit payments. Measures included: new deals<br />

for employment helping people into work (particularly young people, the long term unemployed<br />

<strong>and</strong> disabled people); employment action zones; tax <strong>and</strong> benefit reforms including the working<br />

families tax credit; introduction <strong>of</strong> a national minimum wage; <strong>and</strong> a new occupation health<br />

strategy including NHS plus which provided NHS services to small <strong>and</strong> medium-sized<br />

enterprises.<br />

Various Tax reforms were identified as redistributing income in favour <strong>of</strong> the less well <strong>of</strong>f.<br />

Measures included; Children’s Tax Credit replacing the Married Couples Allowance; the<br />

introduction <strong>of</strong> a lower tax b<strong>and</strong>; an increased threshold for Value Added Tax registration; <strong>and</strong><br />

a new minimum income guarantee for old age pensioners.<br />

Neighbourhood Renewal was the culmination <strong>of</strong> work undertaken by the Social Exclusion<br />

Unit’s policy action teams. Priorities within the most deprived areas were employment,<br />

educational attainment, crime reduction <strong>and</strong> health improvements. An important element <strong>of</strong><br />

this scheme was the emphasis on community governance, working with <strong>and</strong> empowering local<br />

communities <strong>and</strong> individuals.<br />

The account <strong>of</strong> recent policy measures was accompanied by an historical perspective, which<br />

provided useful contextual information. Within this a number <strong>of</strong> key publications were<br />

identified including The Black Report (1980) <strong>and</strong> The Health Divide (1987). The first actions <strong>of</strong><br />

the then new Labour Government were pr<strong>of</strong>iled. This included the establishing <strong>of</strong> an<br />

Independent Inquiry into Inequalities in Health, chaired by Sir Donald Acheson, which reported<br />

in 1998. The report made 39 recommendations including:<br />

� Policies which further reduce income inequalities <strong>and</strong> improve the living st<strong>and</strong>ards <strong>of</strong><br />

households receiving social security benefits;<br />

� That a high priority be given to policies aimed at improving health <strong>and</strong> reducing health<br />

inequalities in women <strong>of</strong> childbearing age, expectant mothers <strong>and</strong> young children;<br />

� Health inequalities impact assessment <strong>of</strong> all policies likely to have a direct or indirect<br />

effect on health<br />

The report <strong>of</strong> the Independent Inquiry informed the consultation process <strong>and</strong> the final White<br />

Paper ‘Saving lives – Our Healthier Nation’ <strong>and</strong> was accompanied by a specific response <strong>from</strong><br />

the Department <strong>of</strong> Health, Reducing Health Inequalities – An Action Report (Department <strong>of</strong><br />

Health 1999). A wide range <strong>of</strong> supporting policies which influenced health improvement<br />

directly or indirectly were announced within this. Some examples were:<br />

� ‘new deal for communities’ to regenerate the most deprived neighbourhoods<br />

through economic <strong>and</strong> employment opportunities;<br />

� establishing Health Action Zones in the most deprived areas <strong>of</strong> the country to<br />

develop local strategies to improve health <strong>and</strong> reduce inequalities through partnerships<br />

between local agencies;<br />

� the initiation <strong>of</strong> a Social Exclusion Unit (SEU) prioritising community infrastructure<br />

<strong>and</strong> access to services;<br />

� various housing initiatives including ‘Affordable warmth’ – a fuel poverty programme.<br />

The report also highlighted a number <strong>of</strong> separate policy developments within Scotl<strong>and</strong> <strong>and</strong><br />

Wales <strong>and</strong> Northern Irel<strong>and</strong>.<br />

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In Scotl<strong>and</strong> in 1997/98 a consultation exercise into social exclusion led to establishing <strong>of</strong> a<br />

Social Inclusion Network drawn <strong>from</strong> statutory drawn <strong>from</strong> the statutory, community <strong>and</strong><br />

voluntary sectors.<br />

Towards a healthier Scotl<strong>and</strong> was the White Paper on health in Scotl<strong>and</strong> <strong>and</strong> was published in<br />

February 1999. Commitments were made to develop:<br />

� an attack on health inequalities based upon a comprehensive <strong>and</strong> co-ordinated use <strong>of</strong><br />

health <strong>and</strong> other resources <strong>and</strong> agencies capable <strong>of</strong> influencing health;<br />

� a focused programme initiatives for the health <strong>of</strong> children <strong>and</strong> young people;<br />

� major initiatives aimed at the prevention <strong>of</strong> Scotl<strong>and</strong>’s two major killing diseases,<br />

cancer <strong>and</strong> coronary heart disease.<br />

Better Wales was the strategic plan <strong>of</strong> The National Assembly for Wales, <strong>and</strong> this had better<br />

health <strong>and</strong> well-being as one <strong>of</strong> its priorities, along with better opportunities for learning, a<br />

better <strong>and</strong> stronger economy, better quality <strong>of</strong> life, <strong>and</strong> better simpler government. Reducing<br />

inequalities in health <strong>and</strong> tackling the underlying causes <strong>of</strong> ill health was a stated commitment<br />

<strong>of</strong> Better Wales.<br />

Health <strong>and</strong> well-being was seen as a theme that cut across policy areas as part <strong>of</strong> the<br />

Assembly’s three major themes <strong>of</strong> sustainable development, equal opportunities, <strong>and</strong> tackling<br />

social disadvantage. The Assembly aimed to achieve an integrated approach where different<br />

policies <strong>and</strong> programmes were adding value to each other. Health impact assessment - which<br />

encompasses consideration <strong>of</strong> the potential effects <strong>of</strong> policies <strong>and</strong> programmes on inequalities<br />

in health - was being developed as a policy tool that can assist the process.<br />

Better Wales underpinned a number <strong>of</strong> major strategies <strong>and</strong> policy initiatives. Improving health<br />

in Wales: A plan for the National Health Service (NHS) with its partners set the direction for<br />

health services for a ten year period <strong>and</strong> was designed to meet the specific needs <strong>of</strong> Wales.<br />

Tackling inequalities in health was a key feature <strong>of</strong> the plan. The plan emphasised that the<br />

social <strong>and</strong> economic determinants <strong>of</strong> ill health were <strong>of</strong>ten seen as outside <strong>of</strong> the concerns <strong>of</strong><br />

the NHS but it committed the NHS in Wales to play a major role with its partners in addressing<br />

them.<br />

The Assembly’s national health promotion strategy was developed in 2000 <strong>and</strong> an action<br />

programme to implement the strategy was launched in early 2001. The programme extended<br />

across the Assembly’s policy areas. It reflected the importance <strong>of</strong> action to promote healthy<br />

lifestyles but as part <strong>of</strong> wider action to address the socio-economic determinants <strong>of</strong> health. The<br />

targeting <strong>of</strong> action to address inequalities in health was one <strong>of</strong> the programme’s core themes.<br />

Developments that were taking place with the aim <strong>of</strong> reducing inequalities in health included<br />

the following examples:<br />

Local Health Alliances were established in all parts <strong>of</strong> Wales. Led by local authorities, they<br />

brought together key local partners to address local priorities to address determinants <strong>of</strong><br />

health <strong>and</strong> to reduce inequalities in health.<br />

The Inequalities in Health Fund was launched in February 2001 <strong>and</strong> designed to stimulate <strong>and</strong><br />

support local projects in deprived communities or work with disadvantaged groups within the<br />

population. The Fund was designed to support a large portfolio <strong>of</strong> projects that were tackling<br />

inequalities in health <strong>and</strong> the factors that caused it, including inequities in access to health<br />

services. The priority for the Fund’s first year was coronary heart disease.<br />

Healthy School Schemes – were being developed across Wales with an emphasis on<br />

targeting schools in deprived areas. The schemes were planned to assist schools to identify<br />

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the priorities they wished to address <strong>and</strong> to develop <strong>and</strong> implement plans <strong>of</strong> action involving<br />

pupils, staff, governors <strong>and</strong>, where appropriate, their local community.<br />

The Assembly’s Resource Allocation Review was a significant development <strong>and</strong> examined the<br />

health needs associated with socio-economic disadvantage with the aim <strong>of</strong> ensuring that<br />

health resources were distributed so as to best reflect health needs.<br />

An expert-working group was developing health inequality <strong>indicators</strong>. Phase 1 <strong>of</strong> the work was<br />

complete <strong>and</strong> provided a list <strong>of</strong> health <strong>indicators</strong> to measure improvement in inequalities in<br />

health over the long term. Phase 2 was developing a list <strong>of</strong> <strong>indicators</strong> <strong>of</strong> determinants <strong>of</strong> health<br />

to provide short-term measures <strong>of</strong> health inequality by monitoring wider socio-economic<br />

determinants <strong>of</strong> health. This was being integrated with a review <strong>of</strong> health gain targets in<br />

Wales.<br />

Communities First were a major new initiative. Communities First were a non-prescriptive,<br />

community-centred approach to community regeneration targeted at the most deprived<br />

communities in Wales. It was based on the principle that regeneration <strong>and</strong> community renewal<br />

should meet the needs <strong>and</strong> priorities identified by those communities themselves in order for<br />

renewal to be sustainable. Improving health <strong>and</strong> reducing inequalities in health was an integral<br />

part <strong>of</strong> Communities First along with other factors that affect people’s health including<br />

education <strong>and</strong> training, <strong>and</strong> employment.<br />

The Sustainable Health Action Research Programme comprised a number <strong>of</strong> action research<br />

projects, which aimed to identify effective local action in tackling poor health. Communities<br />

were involved as active partners in all aspects <strong>of</strong> project development <strong>and</strong> implementation,<br />

<strong>and</strong> the identification <strong>of</strong> policy implications <strong>and</strong> recommendations.<br />

Community Food Initiative was launched in October 2000 <strong>and</strong> was designed to improve<br />

nutrition in disadvantaged areas by tackling the barriers to healthy eating as a means <strong>of</strong><br />

encouraging change in eating habits.<br />

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APPENDIX 3: The European Network <strong>of</strong> Health Promotion Agencies<br />

(ENHPA) − Member List<br />

AUSTRIA<br />

Dr. Brigitte Svoboda<br />

Federal Ministry <strong>of</strong> Social Security <strong>and</strong> Generations<br />

Radetzkystr 2 1030 Vienna<br />

Austria<br />

+43 1 71172 4378 / 4370<br />

+43 1 713 8614<br />

brigitte.svoboda@bmsg.gv.at<br />

brigitte.zarfl@bmsg.gv.at<br />

BELGIUM<br />

Rikkie Heeman<br />

Director<br />

Linda De Boeck,<br />

Flemish Institute for Health Promotion (VIG)<br />

Schildknechtstraat 9 B-1020 Brussels<br />

Belgium<br />

Tel: +32 2 422 4949<br />

Fax: +32 2 422 4959<br />

rikkie.heeman@vig.be<br />

linda.deboeck@vig.be<br />

BELGIUM<br />

Pr<strong>of</strong>. Danielle Piette<br />

Université Libre de Bruxelles-ESP Groupe Interdisciplinaire de Promotion Santé (GIPS)<br />

Route de Lennik 808 - CP 596 B-1070 Brussels<br />

Belgium<br />

+32 2 555 4081/4083<br />

+32 2 555 4049<br />

danielle.piette@ulb.ac.be<br />

Mobile: 0476-425351<br />

CZECH REPUBLIC<br />

Lumir Komarek<br />

Director<br />

National Institute <strong>of</strong> Public Health<br />

Srobarova 48<br />

100 42 Prague 10<br />

Czech Republic<br />

Tel: +420 2 67081111<br />

Fax: +420 2 67311188<br />

e-mail: komarek@szu.cz<br />

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DENMARK<br />

Jens Mathiesen<br />

Director<br />

Danish Committee for Health Education<br />

Ostbanegade 55,5<br />

P.O. Box 2639 DK-2100 Copenhagen<br />

Denmark<br />

+45 35 265400<br />

fax: +45 35 430213<br />

jm@sundkom.dk<br />

ENHPA OFFICE<br />

Clive Needle<br />

Maya Matthews<br />

ENHPA<br />

Liaison Office<br />

6, Philippe le Bon B-1000 Brussels<br />

Belgium<br />

+32 2 235 03 20<br />

+32 2 235 03 39<br />

enhpa.liaison@village.uunet.be<br />

ESTONIA<br />

Anu Kasmel<br />

Estonian Centre for Health Education <strong>and</strong> Promotion<br />

Ruutlit tn 24 EE 000 1 Tallinn<br />

Estonia<br />

+372 2 440 801<br />

+372 2 440 880<br />

anu@tervis.ee<br />

EUROPEAN COMMISSION<br />

Horst Kloppenburg<br />

Head <strong>of</strong> Unit Health Promotion/Health monitoring<br />

European Commission<br />

DG Health <strong>and</strong> Consumer Protection F/3 Health Promotion unit<br />

EUFO 3182 EUROFORUM L-2920 Luxembourg<br />

Luxembourg<br />

+352 4301 33282<br />

+352 4301 32059<br />

Horst.Kloppenburg@cec.eu.int<br />

EUROPEAN COMMISSION<br />

Dr. Matti Rajala<br />

Head <strong>of</strong> Unit – Cancer Programme<br />

European Commission<br />

DG Health <strong>and</strong> Consumer Protection F/3 Health Promotion unit<br />

EUFO 3182 EUROFORUM L-2920 Luxembourg<br />

Luxembourg<br />

+352 4301 38502<br />

+352 4301 32059<br />

matti.rajala@cec.eu.int<br />

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FINLAND<br />

Dr. Harri Vertio<br />

director<br />

Finnish Centre for Health Promotion<br />

Karjalankatu 2 C 63 FIN-00520 Helsinki<br />

Finl<strong>and</strong><br />

+358 9 725 30300<br />

+358 9 725 30320<br />

harri.vertio@health.fi<br />

Mobile. 050-5677558<br />

FRANCE<br />

Bernadette Roussille<br />

Director<br />

Comité Français d'Education pour la Santé (CFES)<br />

2 Rue Auguste Comte 92170 Vanves<br />

France<br />

+33 1 41 33 33 23<br />

+33 1 41 33 33 90<br />

cfes@imaginet.fr<br />

christiane.dressen@cfes.sante.fr<br />

GERMANY<br />

Dr. Elisabeth Pott<br />

director<br />

Bundeszentrale für gesundheitliche Aufklärung<br />

Ostmerheimerstrasse 220 51109 Köln<br />

Germany<br />

+49 221 8992 349<br />

+49 221 8992 359<br />

international@bzga.de<br />

GREECE<br />

Yannis Tountas<br />

director<br />

Institute <strong>of</strong> Social <strong>and</strong> Preventive Medicine (ISPM)<br />

25, Alex<strong>and</strong>roupoleos street 115 27 Athens<br />

Greece<br />

+30 1 7482015<br />

+30 1 7485872<br />

ispm@compulink.gr<br />

HUNGARY<br />

Gabor Kovacs<br />

Coordinator for International Affairs<br />

National Institute for Health Information <strong>and</strong> Communication<br />

P.O. Box 278 Budapest<br />

Hungary<br />

Tel. +361 33 84 133/ext. 115 - Mobile. +362 0345 3147<br />

Fax. +361 266 0402<br />

Kovgab@medinfo.hu<br />

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ICELAND<br />

Anna Björg Aradottir<br />

project manager<br />

Health Promotion Ministry <strong>of</strong> Health <strong>and</strong> Social Security<br />

Laugavegur 116 IS-150 Reykjavik<br />

Icel<strong>and</strong><br />

+354 510 1900<br />

+354 510 1919<br />

annabara@l<strong>and</strong>laeknir.is<br />

IRELAND<br />

Katrina Ronis<br />

Health Promotion Advisor<br />

Department <strong>of</strong> Health <strong>and</strong> children Hawkins House<br />

Dublin 2<br />

Irel<strong>and</strong><br />

+353 1 635 4000<br />

+353 1 635 4372<br />

katrina_ronis@health.irlgov.ie<br />

IRELAND<br />

Owen Metcalfe<br />

All Irel<strong>and</strong> Institute <strong>of</strong> Public Health<br />

6, Kildare street Dublin 2<br />

Republic <strong>of</strong> Irel<strong>and</strong><br />

+353 1 66 29 287<br />

+353 1 66 29 286<br />

iph@rcpi.ie<br />

ITALY<br />

Pr<strong>of</strong>. Dr. Lamberto Briziarelli<br />

Italian Committee for Health Education<br />

c/o Centro Sperimentale<br />

per l'Educazione Sanitaria<br />

Via del Giochetto 4 06100 Perugia<br />

Italy<br />

+39 075 5853315<br />

+39 075 5853317<br />

lbrizigi@unipg.it<br />

Claudio Calvaruso<br />

General director<br />

Ministero della Sanità Servizio Studi e Documentazione<br />

Piazale dell Industria 00197 Rome<br />

Italy<br />

+39 06 599 42652<br />

+39 06 599 42128<br />

studi.doc@interbusiness.it<br />

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LUXEMBOURG<br />

Dr. Yol<strong>and</strong>e Wagener<br />

Direction de la Santé Div. de la Medecine Preventive et Sociale<br />

Villa Louvigny L-2021 Luxembourg<br />

Luxembourg<br />

Tel: +352 4785544<br />

Fax: +352 467527<br />

yol<strong>and</strong>e.wagener@ms.etat.lu<br />

NORWAY<br />

Heidi Tomten<br />

Adviser<br />

National Council on Nutrition <strong>and</strong> Physical Activity<br />

Ullevaalsveien 76 - 0033 Oslo<br />

Norway<br />

+47 22 248540<br />

+47 22 24 9091<br />

heidi.tomten@sef.no<br />

PORTUGAL<br />

Dr. Emilia Nunes Natario<br />

Pedro Ribeiro da Silva<br />

Ministerio da Saude Direccao-Geral da Saude<br />

Alameda D. Afonso Henriques, 45 1056 Lisbon Codex<br />

Portugal<br />

+351 21 8430500<br />

+351 21 8430530/1 or<br />

+351 1 8430620<br />

emiliann@dgsaude.min-saude.pt<br />

pedros@dgsaude.min-saude.pt<br />

ROMANIA<br />

Irina Dinca<br />

Youth for Youth<br />

Casuta Postala 66-121<br />

Strada cernica nr.5, sector 2<br />

Bucharest - Romania<br />

Tel: +401 315 5642<br />

e-mail: Idinca@ms.ro<br />

SLOVENIA<br />

Mojca Gruntar Cinc<br />

Head<br />

National Institute <strong>of</strong> Public Health<br />

Trubarjeva 2 1000 Ljubljana<br />

Slovenia<br />

+386 61 132 32 45<br />

+386 61 323 955<br />

mojca.cinc@ivz-rs.si<br />

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SPAIN<br />

Dr. Begoña Merino<br />

Consejar Tecnica<br />

Educacion para la Salud Promocion y Subdireccion General de Epidemiologia<br />

Paseo del Prado, 18-20 280270 Madrid<br />

Spain<br />

+34 91 5964194<br />

+34 91 5964195<br />

bmerino@msc.es<br />

SWEDEN<br />

Bosse Pettersson<br />

Director, Strategic Policy Development, Deputy Director-General<br />

National Institute <strong>of</strong> Public Health International Relations<br />

Ol<strong>of</strong> Palmes Gata 17 S-10352 Stockholm<br />

Sweden<br />

+46 8 5661 3515<br />

+46 8 5661 3601<br />

Fax: +46 8 5661 35 05<br />

bosse.pettersson@fhi.se<br />

THE NETHERLANDS<br />

Gerard Molleman<br />

Head<br />

Netherl<strong>and</strong>s Institute for Health Promotion <strong>and</strong> Disease Prevention<br />

P.O. Box 500 3440 AM Woerden<br />

The Netherl<strong>and</strong>s<br />

+31 348 437630<br />

+31 348 437666<br />

gmolleman@nigz.nl<br />

UNITED KINGDOM<br />

Ceri Breeze<br />

director<br />

The National Assembly for Wales Strategy & Co-ordination Branch<br />

Health Promotion Division<br />

Ffynnon-las, Ty Glas Avenue Llanishen, Cardiff CF14 5EZ<br />

United Kingdom<br />

+44 29 2068 1214<br />

+44 29 2068 1297<br />

Ceri.Breeze@wales.gsi.gov.uk<br />

UNITED KINGDOM<br />

Peter Farley<br />

Health Promotion Division<br />

The National Assembly for Wales<br />

Cathays Park, Cardiff CF10 3NQ<br />

Wales UK<br />

+44 29 2082 5995<br />

+44 29 2082 5779<br />

Peter.Farley@wales.gsi.gov.uk<br />

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UNITED KINGDOM<br />

Maggie Davies<br />

Programme manager<br />

Health Development Agency<br />

Trevelyan House<br />

30 Great Peter Street London SW1P 2HW<br />

United Kingdom<br />

Tel. +44 207 413<br />

Fax. +44 207 413 2045<br />

maggie.davies@hda-online.org.uk<br />

UNITED KINGDOM<br />

Dr. Brian P. Gaffney<br />

Chief Executive<br />

Health Promotion Agency for Northern Irel<strong>and</strong><br />

18 Ormeau Avenue BT2 8HS Belfast<br />

United Kingdom<br />

+44 2890 311611<br />

+44 2890 311711<br />

b.gaffney@hpani.org.uk<br />

UNITED KINGDOM<br />

Graham Robertson<br />

Deputy Chief Executive<br />

Health Education Board for Scotl<strong>and</strong> Woodburn House<br />

Canaan Lane Edinburgh EH10 4SG<br />

United Kingdom<br />

+44 131 536 5500<br />

+44 131 536 5501<br />

graham.robertson@hebs.scot.nhs.uk<br />

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Appendix 4: National Project Coordinators<br />

AUSTRIA<br />

Andrea Lins<br />

Fonds Gesundes Osterreich<br />

Mariahilferstraβe 176<br />

A - 1150 Wien<br />

Austria<br />

E-mail:<strong>and</strong>rea.lins@fgoe.org<br />

Tel: + 43-1-895 04 00-12<br />

Fax: + 43-1-895 04 00 20<br />

BELGIUM<br />

Marianne Flament<br />

Culture et Santé<br />

130, Chaussée de Mons<br />

1070 Bruxelles<br />

Belgium<br />

Tel: + 32 2 558.88.10<br />

Fax: +32 2 520 51 04<br />

Mobile: 0477/65.62.47<br />

E-mail : culturesante.claes@skynet.be<br />

DENMARK<br />

Niels Kristian Rasmussen<br />

National Institute <strong>of</strong> Public Health<br />

SvanemØllevej 25,<br />

DK 2100 KØbenhavn<br />

Denmark<br />

Tel: +45 3920 7777<br />

Fax: +45 3927 3095<br />

E-mail : nkr@dike.dk<br />

FINLAND<br />

Antti Uutela, PH.D. Pr<strong>of</strong>.<br />

Laboratory Director, Head<br />

Health Education Research Unit<br />

Department <strong>of</strong> Epidemiology <strong>and</strong> Health Promotion<br />

Mannerheimintie 166<br />

FIN-00300 Helsinki<br />

Finl<strong>and</strong><br />

E-mail: antti.uutela@ktl.fi<br />

Tel: + 358-9-47 44 8619<br />

Fax: + 358-9-47 44 8338<br />

Mobile: + 358-50-56 58 721<br />

FRANCE<br />

E-mail: Christiane Dressen cfes.etu@imaginet.fr<br />

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GERMANY<br />

Dr. Ljiljana Joksimovic<br />

University Düsseldorf<br />

Department <strong>of</strong> Medical Sociology<br />

Medical Faculty<br />

P.O. Box 10 10 07<br />

D - 40001 Düsseldorf<br />

Germany<br />

E-mail: joksimov@uni-duesseldorf.de<br />

Tel: +49 211 81 14360/61 (Secretariat) or +49211811 - 4806 (direct)<br />

Fax: +49 211 81 12390<br />

GREECE<br />

Dr Dimitria Triantafyllou<br />

Institute <strong>of</strong> Social <strong>and</strong> Preventive Medicine (ISPM)<br />

25 Alex<strong>and</strong>roupoleos St.<br />

115 27 Athens<br />

Greece<br />

E-mail: ispm@compulink.gr<br />

Tel: +301-7482015<br />

Fax:+301-7485872<br />

ICELAND<br />

Matthias Halldorsson<br />

Deputy Director <strong>of</strong> Health<br />

Directorate <strong>of</strong> Health<br />

Laugavegur 116<br />

150 Reykjavik<br />

Icel<strong>and</strong><br />

E-mail: matthias@l<strong>and</strong>laeknir.is<br />

Tel: +354 510 1900<br />

Fax: +354 510 1919<br />

IRELAND<br />

Katrina Ronis<br />

Health Promotion Advisor<br />

Department <strong>of</strong> Health <strong>and</strong> Children<br />

Hawkins House<br />

Dublin 2<br />

Tel: +353 1 635 4000<br />

Fax: +353 1 635 4372<br />

E-mail: Katrina_Ronis@health.irlgov.ie<br />

ITALY<br />

Dr. Giuseppe Masanotti<br />

Centro Sperimentale per<br />

l'Educazione Sanitaria<br />

Via del Giochetto<br />

6100 Perugia<br />

Italy<br />

E-mail: lbrizigi@unipg.it<br />

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Tel: +390 75 5853346 or 5730946<br />

Fax: +390 75 5853317<br />

LUXEMBOURG<br />

Dr. Yol<strong>and</strong>e Wagener<br />

Ministry <strong>of</strong> Health<br />

Dept. Of Prevention<br />

22, Rue Goethe<br />

Luxembourg<br />

E-mail: yol<strong>and</strong>e.wagener@ms.etat.lu<br />

Tel: +352/478 55 44<br />

Fax: +352/291 121<br />

NORWAY<br />

Elisabeth Fosse<br />

Research Centre for Health Promotion<br />

University <strong>of</strong> Bergen<br />

Christiesgt. 13,<br />

N-5015 Bergen<br />

Norway<br />

E-mail: elisabeth.fosse|@psych.uib.no<br />

Tel +47 55 58 27 58<br />

Fax +47 55 58 98 87<br />

PORTUGAL<br />

Pedro Ribeiro da Silva<br />

Manuela Cabral<br />

Direccao General da Saude<br />

Alameda D. Afonso Henriques 45-7°<br />

1056 Lisbon Codex<br />

Portugal<br />

E-mail: pedros@dgsaude.min-saude.pt<br />

Tel: +351 21 843 05 30<br />

Fax: +351 21 843 05 00<br />

SPAIN<br />

Dr. Esteve Fernández<br />

Institut Català d'Oncologia<br />

Servei de Prevenció i Control del Càncer<br />

Av. Gran Via s/n Km 2,7<br />

08907 L'Hospitalet (Barcelona)<br />

Barcelona<br />

Spain<br />

Tel +34 93 260 77 88<br />

Fax +34 93 260 79 56<br />

E-mail: efern<strong>and</strong>ez@ico.scs.es / fern<strong>and</strong>eze@globalink.org<br />

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SWEDEN<br />

Malin Rydberg/ Nina Bergman<br />

National Institute <strong>of</strong> Public Health<br />

103 52 Stockholm<br />

Sweden<br />

E-mail: malin.rydberg@fhi.se<br />

nina.bergman@fhi.se<br />

Tel: +46 8 56613579/3515<br />

Fax: +46 8 5661 35 05<br />

THE NETHERLANDS<br />

Joop Ten Dam<br />

Netherl<strong>and</strong>s Institute for Health Promotion<br />

<strong>and</strong> Disease Prevention (NIGZ)<br />

P.O.BOX 500<br />

3440 AM Woerden<br />

Nederl<strong>and</strong><br />

E-mail: Jtendam@nigz.nl<br />

Tel: +31 348 437 600 or 631<br />

Fax: +31 348 437 666<br />

UNITED KINGDOM<br />

Marion Drinkwater<br />

S<strong>and</strong>well Health Authority<br />

Kingston House, 438 High Street<br />

West Bromwich, West Midl<strong>and</strong>s B70 PLD<br />

United Kingdom<br />

E-mail: Marion.Drinkwater@s<strong>and</strong>well-ha.wmids.nhs.uk<br />

Tel: +44 121 500 1567<br />

Fax: +44 121 500 1501<br />

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APPENDIX 5 – National reports: contact persons <strong>and</strong> organisations<br />

AUSTRIA<br />

Wolfgang Gulis<br />

Verein Zebra ,<br />

Pestalozzistraße 59/II,<br />

A-8010 Graz,<br />

Tel: 0043-316-83 56 30,<br />

Email: zebra@zebra.or.at<br />

Mag. Doris Gartner<br />

Fem Süd health centre for women – parents – girls<br />

Kundratstraße 3<br />

A-1100 Wien<br />

Tel: 0043-1-601 91-5201<br />

Email: femsued.post@kfj.magwien.gv.at<br />

Dr. Tina Svoboda<br />

MA-L/II Dezernat für Gesundheitsplanung<br />

Schottenring 24<br />

A-1010 Wien<br />

Tel: 0043-1-53114-76051<br />

Heinz Eitenberger<br />

PGA Wien – Verein für<br />

Prophylaktische Gesundheitsarbeit<br />

Kaplanh<strong>of</strong>straße 1<br />

A-4020 Linz<br />

Tel: 0043-732-77 12 00-0<br />

Dr. Herwig Zott<br />

„Stadtteilverein Liefering”<br />

Tel: 0043-699-111 64 919<br />

Dr. Tom Schmid<br />

Sozialökonomische Forschungsstelle<br />

Maria-Theresienstraße 24<br />

A-1010 Wien<br />

Tel: 0043-1-319 57 50<br />

Email: s.f.s@chello.at<br />

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BELGIUM<br />

Nans Antheunis<br />

Vzw Wijkgezondheidscentrum De Ridderbuurt<br />

Riddersstraat 163, B-3000 Leuven<br />

Tel: 016/23 09 03 - Fax: 016/23 09 03<br />

E-mail: wgc.ridderbuurt@p<strong>and</strong>ora.be<br />

Dr. Stef Bruggeman<br />

Vereniging voor Wijkgezondheidscentra (VWGC)<br />

Gustave Schildknechstraat 9, B-1020 Brussel<br />

Tel: 02/422 49 49 - Fax: 02/422 49 59<br />

E-mail: stef.bruggeman@vig.be<br />

Rudy De Cock – « Kind en Gezin »<br />

Hallepoortlaan 27, B-1060 Brussel<br />

Tel: 02/533 13 29 – E-mail: rudy.de.cock@kindengezin.be<br />

Bruno Buytaert – VIG – Coördinator Locale Gemeenschappen<br />

Gustave Schildknechstraat 9, B-1020 Brussel<br />

Tel: 02/422 49 49 - Fax: 02/422 49 59<br />

E-mail : Bruno.buytaert@vig.be<br />

Hans Verrept<br />

Coördinatiecel Interculturele Bemiddeling<br />

RAC, Vesaliusgebouw 2.30<br />

1010 Brussel<br />

Tel : 02/210 42 13 - Fax : 02/210 47 71<br />

ASBL les Pissenlits<br />

Avenue Clémenceau, 94<br />

1070 Bruxelles - Tél : 02/521.77.28<br />

Forest Quartiers Santé<br />

Rue du Curé, 7<br />

1190 Bruxelles - Tél : 02/333.07.86<br />

Dr Vanmeerbeek<br />

Centre de Santé<br />

Rue Malgarny, 2<br />

4420 Tilleur - Tél : 04/233.14.79<br />

Dr Roger Lonfils<br />

Sous-directeur<br />

Direction Générale de la Santé<br />

Boulevard Léopold II, 44<br />

1080 Bruxelles - Tél :02/413.26.10<br />

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Anne Hercovici<br />

Présidente – CPAS d’Ixelles<br />

Chaussée de Boondael , 92<br />

1050 Bruxelles - Tél : 02/641.54.01<br />

Dr Myriam De Spiegelaere<br />

Observatoire de la Santé du Brabant<br />

Avenue Louise, 183<br />

1050 Bruxelles<br />

Tél : 02/552.01.45<br />

Dr Michel Rol<strong>and</strong><br />

Maison Médicale « Santé Plurielle »<br />

Rue de la Victoire, 110<br />

Tél :02/537.71.24<br />

Dr Pierre Drielsma<br />

Fédération des Maisons Médicales<br />

Boulevard du Midi, 25 bte 5<br />

1000 Bruxelles<br />

Tél : 02/514.40.14<br />

Francine Boudru<br />

CIRE-ISM<br />

Rue du Vivier, 80-82<br />

1050 Bruxelles<br />

Tél :02/629.77.27<br />

Agnès Claes<br />

Cultures et Santé<br />

Chaussée de Mons, 130<br />

1070 Bruxelles<br />

Tél : 02/558.88.12<br />

DENMARK<br />

Project job maintainment:<br />

Planlægger Lotte Junker,<br />

Ringkøbing kommune,<br />

Rådhuset,<br />

Ved Fjorden 6,<br />

DK 6950 Ringkøbing,<br />

Denmark.<br />

Alcohol problems in families with children:<br />

Socialrådgiver Britta Andergren Nielsen,<br />

Alkoholrådgivningen i Grenå,<br />

Kløvervang 1,<br />

DK 8500 Grenå - Denmark<br />

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Social-psychiatric outreach to the homeless <strong>and</strong> the mentally ill:<br />

Dr. Preben Br<strong>and</strong>t,<br />

Chief physician<br />

Frederiksborggade 42, 1<br />

DK 1360 Copenhagen K.<br />

Denmark<br />

GERMANY<br />

Unemployment And Health –<br />

pilot project <strong>of</strong> the State <strong>of</strong> Br<strong>and</strong>enburg<br />

Ms. Bolz,<br />

Koordinatorin Prignitzer Servicestelle<br />

Arbeit und Gesundheit,<br />

Heinrich-Heine-Platz 4,<br />

D-19322 Wittenberge<br />

Germany<br />

Transnational Aids/Std Prevention<br />

Among Migrant Prostitutes In Europe (Tampep)<br />

Veronica Munk,<br />

Amnesty for Women,<br />

Grosse Bergstr. 231,<br />

D-22767 Hamburg<br />

Germany<br />

Health Promotion In A City District<br />

Dr. Dorothee Fischer/ Dr. Rotraut Reinhardt-Bertsch,<br />

Gesundheitsamt der Stadt Stuttgart,<br />

Bismarckstr. 3,<br />

D-70176 Stuttgart.<br />

Germany<br />

Health Promotion In A City District<br />

Pr<strong>of</strong>. Hans Wiel<strong>and</strong>/Dr. Claudia Fleischle-Braun,<br />

Institut für Sportwissenschaft,<br />

Universität Stuttgart,<br />

Allm<strong>and</strong>ring 28,<br />

D-70569 Stuttgart<br />

Germany<br />

Economic Nutrition<br />

Christiane Deneke,<br />

Zentrum für Angew<strong>and</strong>te<br />

Gesundheitswissenschaften<br />

Fachhochshule Nordostniedersachsen,<br />

Wilschenbrucherweg 84a,<br />

D-21335 Lüneburg - Germany<br />

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Health Promotion For Young Adults<br />

Participating In Vocational Trainees<br />

Dr. Harald Barkh<strong>of</strong>f,<br />

Arbeitsgemeinschaft Prävention<br />

und Gesundheitsförderung,<br />

Wächterstr. 67,<br />

D-72074 Tübingen<br />

Germany<br />

Pr<strong>of</strong>. Dr. Johannes Siegrist<br />

Heinrich Heine University Düsseldorf<br />

Department <strong>of</strong> Medical Sociology<br />

P.O. Box 10 10 07<br />

D-40001 Düsseldorf<br />

Germany<br />

Tel.: +49 211 811 4360/61<br />

Fax: +49 211 811 2390<br />

E-mail: siegrist@uni-duesseldorf.de<br />

Dr. Andreas Mielck<br />

Institut für Medizinische Informatik und Systemforschung (MEDIS)<br />

Postfach 1129<br />

85758 Neuherberg<br />

Germany<br />

Tel.: +49 89 3187 4460<br />

Fax: +49 89 3187 3375<br />

E-mail: mielck@gsf.de<br />

GREECE<br />

Nutrition programme – primary school children - Crete<br />

Pr<strong>of</strong>essor Antonis Kafatos <strong>and</strong> Dr. Yannis Manios,<br />

Preventive Medicine <strong>and</strong> Nutrition Clinic,<br />

Medical School, University <strong>of</strong> Crete,<br />

T.Θ. 1393, Heraklion, Crete,<br />

Greece.<br />

Tel: ++30 81 394595, 394601-3<br />

Fax: ++30 81 394604<br />

E-Mail: kafatos@med.uoc.gr<br />

CVD prevention – elderly volunteers<br />

Dr. Emmanuel Velonakis <strong>and</strong> Dr. Panagiota Sourtzi,<br />

Hellenic Association <strong>of</strong> Gerontology <strong>and</strong> Geriatrics,<br />

23 Kanningos Str., 106 77 Athens,<br />

Greece.<br />

Tel: ++30 1 3811612<br />

Fax: ++30 1 3840317<br />

E-Mail: hagg@compulink.gr<br />

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Delinquency/ drug prevention – Primary school in Piraeus<br />

Ioanna Kyritsi,<br />

Therapy Center for dependent individuals (KETHEA),<br />

24 Sorvolou Str.,<br />

116 36 Athens, Greece.<br />

Tel: ++30 1 9241993-6<br />

Fax: ++30 1 9241986-7<br />

E-Mail: prev@kethea.gr or admin@kethea.gr<br />

FINLAND<br />

Pr<strong>of</strong>. Pekka Puska,<br />

Vice-Director General, MD, Ph.D.,<br />

National Public Health Institute (KTL),<br />

Mannerheimintie 166,<br />

FIN-00300 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-47 44 8336,<br />

E-mail: pekka.puska@ktli.fi<br />

Maila Upanne,<br />

Licentiate in psychology,<br />

Development manager,<br />

National Research <strong>and</strong> Development Centre<br />

for Welfare <strong>and</strong> Health, Finl<strong>and</strong> (STAKES),<br />

P.O. Box 220,<br />

FIN-00531 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9- 3967 2121,<br />

E-mail: maila.upanne@stakes.fi<br />

Rainer Anttila,<br />

Licentiate in Health Sciences,<br />

Manager,<br />

LIKES-Foundation for Sport <strong>and</strong> Health Sciences,<br />

Rautpohjankatu 10,<br />

FIN-40700 Jyväskylä, Finl<strong>and</strong>,<br />

Tel. +358-14-601 572,<br />

E-mail: rantti@maila.jyu.fi.<br />

Dr Juha Teperi,<br />

Director, MD, Ph.D.,<br />

Head <strong>of</strong> services,<br />

National Research <strong>and</strong> Development Centre<br />

for Welfare <strong>and</strong> Health, STAKES,<br />

P.O. Box 220,<br />

FIN-00531 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-3967 2263,<br />

E-mail: juha.teperi@stakes.fi<br />

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Dr Seppo Koskinen,<br />

senior physician, MD, Ph.D.,<br />

National Public Health Institute, KTL,<br />

Mannerheimintie 166,<br />

FIN-00300 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-47 44 8762,<br />

E-mail: seppo.koskinen@ktl.fi<br />

Dr Antti Reunanen,<br />

laboratory director, MD, Ph.D.,<br />

National Public Health Institute, KTL,<br />

Mannerheimintie 166,<br />

FIN-00300 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-47 44 8772,<br />

E-mail: antti.reunanen@ktl.fi<br />

Dr. Ahti Anttila,<br />

senior researcher, Ph.D.,<br />

Finnish Cancer Foundation,<br />

Liisankatu 21 B,<br />

Fin-00170 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-1353 3210,<br />

E-mail: ahti.anttila@cancer .fi<br />

Dr. Arja R. Aro,<br />

senior researcher, Ph.D., Dr. Sc.,<br />

National Public Health Institute, KTL,<br />

Mannerheimintie 166,<br />

FIN-00300 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-47 44 8264,<br />

E-mail: arja.aro@ktl.fi<br />

Ms. Ulla Salomäki,<br />

Project leader,<br />

Finnish Centre for Health Promotion,<br />

Karjalankatu 2 C 63,<br />

FIN-00530 Helsinki,<br />

Finl<strong>and</strong>, Tel. +358-9-7253 0326,<br />

E-mail: ulla.salomaki@health.fi<br />

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Pr<strong>of</strong>. Vappu Taipale,<br />

Director General, MD, Ph.D.,<br />

National Research <strong>and</strong> Development Centre<br />

for Welfare <strong>and</strong> Health, STAKES,<br />

P.O. Box 220,<br />

FIN-00531 Helsinki,<br />

Finl<strong>and</strong>,<br />

Tel. +358-9-39671,<br />

E-mail: vappu.taipale@stakes.fi.<br />

ITALY<br />

Dr. Ismail Zahra<br />

Experimental Center for health education<br />

via del Giochetto 4<br />

06100 Perugia<br />

Italy<br />

tel: +390 75 5853346 or 5730946<br />

Fax: +390 75 5853317<br />

e-mail csesi@unipg.it<br />

"unità mobile donna"<br />

Dr. Maura Muneretto<br />

Parsec<br />

piazza Orazio Marucchi n. 5, Roma<br />

Tel: +390 6 86 20 99 91<br />

Fax:+390 6 86 11 067<br />

e-mail parsec@flashnet.it<br />

"health culture <strong>and</strong> immigration"<br />

Istituto Ospitaliero Dermosifilopatico<br />

di Santa Maria e San Gallicano<br />

Via San Gallicano 25/A<br />

00123 Roma<br />

Tel: 0658543741 - 0658543612<br />

Fax: 0658543740<br />

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IRELAND<br />

Irish National Cancer Registry<br />

Dr Harry Comber<br />

Director<br />

Irish National Cancer Registry<br />

Boreenamara Road<br />

Cork<br />

Irel<strong>and</strong><br />

Tel: 021 4318014<br />

Fax: 021 4314016<br />

Email: h.comber@ncri.ie<br />

Survey <strong>of</strong> Lifestyles, Attitudes <strong>and</strong> Nutrition (SLÁN)<br />

Pr<strong>of</strong>. Cecily Kelleher<br />

Head <strong>of</strong> Department<br />

Department <strong>of</strong> Health Promotion<br />

National University <strong>of</strong> Irel<strong>and</strong><br />

Galway<br />

Irel<strong>and</strong><br />

Tel: 091 524411<br />

Email: cecily.kelleher@nuigalway.ie<br />

Sharon Friel<br />

Assistant Academic Director<br />

Department <strong>of</strong> Health Promotion<br />

National University <strong>of</strong> Irel<strong>and</strong><br />

Galway<br />

Irel<strong>and</strong><br />

Tel: 091 524411<br />

Email: sharon.friel@nuigalway.ie<br />

Saoirse NicGabhainn<br />

Assistant Academic Director<br />

Department <strong>of</strong> Health Promotion<br />

National University <strong>of</strong> Irel<strong>and</strong><br />

Galway<br />

Irel<strong>and</strong><br />

Tel: 091 524411<br />

Email: saoirse.nicgabhainn@nuigalway.ie<br />

NORWAY<br />

“Help to children who have experienced war”<br />

Contact organisation: Centre for Crisis Psychology,<br />

Fabrikkgt. 5,<br />

N-5059 Bergen<br />

NORWAY<br />

E-mail: atle.dyregrov@psych.uib.no<br />

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“Workshop for Primary Medical Care”<br />

Contact organisation:Primærmedisinsk verksted<br />

Sverresgt.4,<br />

N-0652 Oslo<br />

NORWAY<br />

E-mail: posmaster@pmv-senter.org<br />

Varden Child Care Centre<br />

Varden barnestasjon,<br />

Ringkollgrenda 4 c<br />

N-3227 S<strong>and</strong>efjord<br />

NORWAY<br />

Tel: +47 33 47 28 47<br />

“The Project House for Help <strong>and</strong> Self help in Hasvik”<br />

Contact Person: Hanne Nilssen,<br />

N-9590 Hasvik<br />

NORWAY<br />

Tel: +47 78 45 12 98<br />

Espen Dahl<br />

Fafo Institute for Applied Social Science<br />

Address: PO-Box 2947 Tøyen<br />

N-0608 Oslo<br />

Norway<br />

Telephone: +4722088600<br />

Fax: +4722088700<br />

E-mail: Espen.Dahl@fafo.no<br />

Marit Rognerud<br />

The National Institute for Public health<br />

Address: Statens institutt for folkehelse,<br />

Postboks 4404 Nydalen<br />

N-0403 Oslo<br />

Norway<br />

Telephone: +47 22 04 22 00<br />

Fax: 22 35 36 05<br />

E-mail: marit.rognerud@folkehelsa.no<br />

PORTUGAL<br />

Espaço Pessoa<br />

Jorge Martins<br />

Address: Travessa das Liceiras, nº 14/16<br />

4000 Porto<br />

tel: 00351222008377<br />

fax: 00351222085869<br />

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Autoestima<br />

Carlos Daniel<br />

Address: Rua José Espregueira 96<br />

4901-871 Viana do Castelo<br />

tel: 00351 258 829646<br />

fax: 00351258811714<br />

Quinta Do Mocho<br />

Rosário Horta<br />

Address: Centro de Saúde de Sacavém<br />

Rua Filinto Ramalho nº 10, 2º<br />

2686 Lisboa<br />

tel: 00351219419634<br />

fax: 00351219413457<br />

Soares Dos Reis<br />

Miguel Mir<strong>and</strong>a<br />

Address: Centro de Saúde Soares dos Reis<br />

Rua Bartolomeu Dias 316<br />

4430-040 Mafamude<br />

tel: 00351223717571<br />

fax: 00351223704847<br />

SPAIN<br />

Report <strong>of</strong> the Scientific Commission<br />

for Research on Social Inequalities in Health:<br />

President: Pr<strong>of</strong>. Vicenç Navarro<br />

Universitat Pompeu Fabra<br />

Social <strong>and</strong> Policy Sciences Dept.<br />

Ramon Trias Fargas 25-27<br />

08005 Barcelona, Spain<br />

Vice-president:<br />

Pr<strong>of</strong>. Joan Benach<br />

Universitat Pompeu Fabra<br />

Experimental <strong>and</strong> Life Sciences Dept.<br />

Dr Aiguader 80<br />

08003 Barcelona,<br />

SPAIN<br />

Email: joan.benach@cexs.upf.es<br />

National Health Interview Survey<br />

Subdirector General de Epidemiología,<br />

Promoción y Educación para la Salud:<br />

Dr Enrique Gil López<br />

Ministerio de Sanidad y Consumo<br />

Paseo del Prado 18<br />

28014 Madrid<br />

Tel: +34 91 596 40 60<br />

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Mother <strong>and</strong> child health programme in an inner city area &<br />

Primary Healthcare reform in Barcelona.<br />

Municipal Institute <strong>of</strong> Public Health <strong>of</strong> the Barcelona City Council<br />

Persons in charge:<br />

Dr. Joan Ramon Villalbí (past-director)<br />

Email: jrvillal@imsb.bcn.es<br />

Dr. Antoni Plasència (director).<br />

Email: aplasenc@imsb.bcn.es<br />

Dr. Carme Borrell (health information service).<br />

Email: cborrell@imsb.bcn.es<br />

Address:Plaça Lesseps, 1<br />

08023 Barcelona,<br />

Spain<br />

SWEDEN<br />

Norsjö CVD community intervention study –<br />

Lars Weinehall<br />

Department <strong>of</strong> Public Health <strong>and</strong> Clinical Medicine<br />

Umeå University, SE-901 85 Umeå,<br />

Sweden<br />

Phone int+46 90 785 27 69<br />

Fax int+46 90 13 89 77<br />

E-mail: Lars.Weinehall@epiph.umu.se<br />

Integrated community efforts for youth health behaviour –<br />

Torbjörn Erneholm<br />

Tjörn Vårdcentral<br />

Syster Ebbas Väg 4<br />

471 94 Kållekärr<br />

Phone: +46 304 67 98 17<br />

Fax: +46 304-66 82 33<br />

Email: torbjorn.erneholm@vgregion.se<br />

Comprehensive Infant <strong>and</strong> child health screening –<br />

Lena Ekenvall<br />

Yrkesmedicinska enheten<br />

Norrbacka<br />

171 76 Stockholm<br />

Phone:+46 8 517 730 86<br />

Fax:+46 8 33 43 33<br />

E-mail: lena.ekenvall@smd.sll.se<br />

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Financial coordination between health care <strong>and</strong> health insurance for<br />

rehabilitation(FINSAM) –<br />

Hans Folkesson<br />

Riksrevisionsverket<br />

Box 450 70<br />

104 30 Stockholm, Sweden<br />

Phone: +46 8 690 40 00<br />

Fax: +46 8 690 41 00<br />

E-mail: hans.folkesson@rrv.se<br />

UNITED KINGDOM<br />

Dr John Middleton<br />

Director <strong>of</strong> Public Health,<br />

S<strong>and</strong>well Health Authority,<br />

Kingston House,<br />

438 High Street,<br />

West Bromwich, B70 9LD<br />

United Kingdom<br />

Tel: 0121 500 1661<br />

E-Mail: john.middleton@s<strong>and</strong>well-ha.wmids.nhs.uk)<br />

Sir Donald Acheson<br />

University College London,<br />

1-10 Torrington Close,<br />

London, WC1E 6BT<br />

United Kingdom<br />

Tel: 0207 3911706<br />

Ceri Breeze<br />

Head <strong>of</strong> Strategy & Co-ordination<br />

National Assembly for Wales,<br />

Health Promotion Division, 4 th Floor,<br />

Cathays Park, Cardiff, CF10 3NQ<br />

United Kingdom<br />

Tel: 02920 823214<br />

Graham Robertson<br />

Director <strong>of</strong> Programmes & Communication<br />

Health Education Board for Scotl<strong>and</strong>,<br />

Woodburn House,<br />

Canaan Lane,<br />

Edinburgh, EH10 4SG<br />

United Kingdom<br />

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Jenny Douglas<br />

Senior Lecturer in Health Promotion,<br />

The Open University,<br />

Warton Hall,<br />

Milton Keynes, MK7 6AA<br />

United Kingdom<br />

Tel: 01908 274066<br />

Lee Adams<br />

Director,<br />

Wakefield Health Action Zone,<br />

Wakefield & Pontefract NHS Trust,<br />

Fieldhead Hospital,<br />

Wakefield, WF1 3SP<br />

United Kingdom<br />

Tel: 01924 814400<br />

Tim S<strong>and</strong>s<br />

Head <strong>of</strong> Health Action Zone Development,<br />

NHS Executive, Quarry House,<br />

Quarry Hill,<br />

Leeds, LS2 7UE<br />

United Kingdom<br />

Tel: 0113 254 5069<br />

Emma Witney<br />

Programme Manager –<br />

Community, Health Education Board for Scotl<strong>and</strong>,<br />

Woodburn House,<br />

Canaan Lane,<br />

Edinburgh, EH10 4SG<br />

United Kingdom<br />

Tel: 0131 536 5560<br />

Chris Roberts<br />

Head <strong>of</strong> Evaluation,<br />

National Assembly for Wales,<br />

Health Promotion Division, µ<br />

4 th Floor,<br />

Cathays Park,<br />

Cardiff, CF10 3NQ<br />

United Kingdom<br />

Tel: 02920 681214<br />

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Fran Fahy<br />

Portfolio Director,<br />

Strategic Health Improvement,<br />

S<strong>and</strong>well Health Authority,<br />

Kingston House,<br />

438 High Street,<br />

West Bromwich, B70 9LD<br />

United Kingdom<br />

Tel: 0121 500 1662<br />

E-Mail: fran.fahy@s<strong>and</strong>well-ha.wmids.nhs.uk)<br />

Sophia Christie<br />

Portfolio Director - Policy Implementation,<br />

S<strong>and</strong>well Health Authority, Kingston House,<br />

438 High Street,<br />

West Bromwich, B70 9LD<br />

Tel: 0121 500 1634<br />

United Kingdom<br />

E-Mail: sophia.christie@s<strong>and</strong>ell-ha-wmids.nhs.uk)<br />

Aldo Mussi<br />

Acting Community Development Manager,<br />

S<strong>and</strong>well Health Authority,<br />

Kingston House,<br />

438 High Street,<br />

West Bromwich, B70 9LD<br />

United Kingdom<br />

Tel: 0121 500 1621<br />

E-Mail: aldo.mussi@s<strong>and</strong>well-ha-wmids.nhs.uk)<br />

George Davey Smith<br />

Pr<strong>of</strong>essor <strong>of</strong> Clinical Epidemiology,<br />

University <strong>of</strong> Bristol,<br />

Canynge Hall,<br />

Bristol, BS8 2PR<br />

United Kingdom<br />

Tel: 0117 954 6800<br />

Dr D. Player<br />

UK Public Health Association,<br />

7 Ann Street,<br />

Edinburgh, EH4 1PL<br />

United Kingdom<br />

Tel: 0131 332 1088<br />

Zena Peatfield<br />

Social Exclusion Unit,<br />

Cabinet Office,<br />

Horse Guards Road,<br />

London, SW1P 3AL<br />

Tel: 0207 270 1234<br />

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Pr<strong>of</strong>essor Raj Bhopal<br />

Pr<strong>of</strong>essor <strong>of</strong> Public Health Sciences,<br />

University <strong>of</strong> Edinburgh,<br />

Teviot Place,<br />

Edinburgh, EH8 9AG<br />

United Kingdom<br />

Tel: 0131 650 3216<br />

Jeni Bremner<br />

Health Policy Officer,<br />

Local Government Association,<br />

Local Government House,<br />

Smith Square,<br />

London, SW1P 3HZ<br />

United Kingdom<br />

Dr Michaela Benzeval<br />

Health Variations Programme,<br />

Lancaster University,<br />

Bailrigg,<br />

Lancaster, LA1 4YW<br />

United Kingdom<br />

Tel: 020 7882 5439/01524 65201<br />

Pr<strong>of</strong>essor Stephen Platt<br />

Director,<br />

Research Unit in Health & Behavioural Change,<br />

University <strong>of</strong> Edinburgh Medical School,<br />

Teviot Place,<br />

Edinburgh, EH8 9AG<br />

United Kingdom<br />

Tel: 0131 650 6192<br />

Janet Muir<br />

CHEX,<br />

Scottish Community Development Centre,<br />

Suite 329, Baltic Chambers,<br />

50 Wellington Street,<br />

Glasgow, G2 6JH<br />

United Kingdom<br />

Tel: 0141 248 1990<br />

Ruth Sutherl<strong>and</strong><br />

Northern Irel<strong>and</strong> Community Development <strong>and</strong> Health Network,<br />

Ballybot House,<br />

22 Cornmarket,<br />

Newry, County Down, BT35 8BG<br />

Tel: 01693 64606<br />

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Martine St<strong>and</strong>ish<br />

Sheffield Health Authority,<br />

5 Old Fulwood Road,<br />

Sheffield, S10 3TG<br />

Tel: 0114 271 1100<br />

Norma Neil<br />

Sonas, Community Health Project,<br />

42 Winfield Way,<br />

Balivanich, Benbecula, Western Isles,<br />

Scotl<strong>and</strong>, HS7 5LH<br />

United Kingdom<br />

Tel: 01870 602588<br />

Dr Philip Crowley<br />

Community Action on Health,<br />

14 Great North Road,<br />

Newcastle upon Tyne NE2 4PS<br />

United Kingdom<br />

Tel: 0191 261 6358<br />

Barbara James & Anjum Fareed<br />

East London <strong>and</strong> The City Health Authority,<br />

Aneurin Bevan House,<br />

81 Commercial Road,<br />

London, E1 1RD<br />

United Kingdom<br />

Tel: 020 7655 6600<br />

Michael Swaffield<br />

Health Action Zones,<br />

NHS Executive,<br />

Quarry House, Quarry Hill,<br />

Leeds, LS2 7UE<br />

United Kingdom<br />

Tel: 0113 254 5069<br />

Bill Gray<br />

Scottish Community Diet Project,<br />

Scottish Consumer Council,<br />

Royal Exchange House,<br />

100 Queen Street,<br />

Glasgow, G1 3DN<br />

United Kingdom<br />

Tel: 0141 226 5261<br />

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Anita Underwood<br />

Montpelier Health Centre,<br />

Bath Buildings, Montpelier,<br />

Bristol, BS6 5PT<br />

United Kingdom<br />

Tel: 0117 942 6811<br />

Sarah Burns<br />

New Economics Foundation,<br />

Cinnamon House,<br />

6-8 Cole Street,<br />

London, SE1 4YN<br />

United Kingdom<br />

Tel: 0207 4077447<br />

Tom Doyle<br />

MESMAC,<br />

PO Box 417,<br />

Leeds, West Yorkshire, LS1 5PN<br />

United Kingdom<br />

Tel: 0113 244 4209<br />

Maria Finnemore<br />

Community Health Connections,<br />

Meddygfa Pen-y-Groes, Hoel y Bont,<br />

Pen-y-Gres, Llanelli,<br />

Carmarthenshire, Wales.<br />

United Kingdom<br />

Tel: 01269 824858<br />

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<strong>Annex</strong> 1: <strong>Inventory</strong> <strong>of</strong> <strong>indicators</strong> <strong>from</strong> <strong>surveys</strong> <strong>and</strong> <strong>registries</strong><br />

AUSTRIA<br />

• Mortality Registry, is linked to population census data (censuses took place in 1981<br />

<strong>and</strong> 1991)<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: educational level<br />

• Cancer Registry, since 1985, (no further information found).<br />

health measures: type <strong>of</strong> cancer<br />

SES-measures: socio-demographic variables (no further information found)<br />

• Microcensus - Working Conditions (Mikrozensus – Arbeitsbedingungen (MA)),<br />

Austrian Central Statistical Office (Österreichisches Statistisches Zentralamt), special<br />

program within the regular microcensus which is conducted every 5 or 10 years in a<br />

representative sample <strong>of</strong> 1% <strong>of</strong> the households <strong>of</strong> the Austrian population, started in 1980,<br />

also in 1985 <strong>and</strong> 1994, +16y.<br />

BELGIUM<br />

health measures: perceived health status, prevalence <strong>of</strong> selected diseases, health complaints,<br />

disabilities, accidents (at home <strong>and</strong> during leisure time), BMI, working conditions (workload,<br />

…), smoking behaviour<br />

SES-measures: household income<br />

• National Health Survey (Gezondheidsenquête), Scientific Institute for Public Health<br />

(Wetenschappelijk Instituut voor Volksgezondheid (WIV)). First undertaken in 1997,<br />

meant to be conducted every 4 years, covers all three regions in Belgium (Fl<strong>and</strong>ers,<br />

Wallonia, Brussels), n 10 =+/-10.000, +15y.<br />

health measures: perceived health status, chronic diseases, disabilities, dental health, alcohol<br />

<strong>and</strong> tobacco consumption, physical activity, food consumption, accidents, use <strong>of</strong> seat belts,<br />

use <strong>of</strong> contraceptives <strong>and</strong> other medicines, mental health, frequency <strong>of</strong> social contacts,<br />

cholesterol, blood pressure, knowledge <strong>and</strong> attitudes towards AIDS, vaccination, screening for<br />

cancer, use <strong>of</strong> health services (healthcare expenditure, visits to physician, visits to specialist),<br />

access to healthcare<br />

10 Note: n is the actual number <strong>of</strong> respondents <strong>and</strong> not the number <strong>of</strong> the targeted sample population (=people<br />

being mailed a survey).<br />

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SES-measures: educational attainment, household income, nationality<br />

• Child Mortality Registry, Centre for Perinatal Epidemiology (Studiecentrum voor<br />

Perinatale Epidemiologie (SPE)). This registry contains all births in Fl<strong>and</strong>ers <strong>and</strong> also all<br />

deaths <strong>of</strong> children less than 1 year old. Although the registers exist for a longer time, 1998<br />

was the first time socioeconomic data were to be mentioned on birth certificates.<br />

health measures: child mortality, congenital deviances<br />

SES-measures: educational level <strong>and</strong> occupational class <strong>of</strong> parents<br />

• Household Budget Survey (Huishoud Budget Enquête), Scientific Institute for Public Health<br />

(Wetenschappelijk Instituut voor Volksgezondheid (WIV)), part <strong>of</strong> DAFNE I in 1987-88, covers<br />

all regions, n=3.235.<br />

health measures: food consumption<br />

SES-measures: educational level<br />

• Occupational Accidents Statistics (Statistiek van de Arbeidsongevallen), National<br />

Institute for Statistics (NIS), national (Flemish <strong>and</strong> Walloon region) since 1971, cover all<br />

accidents in <strong>and</strong> around the workplace.<br />

health measures: nature <strong>and</strong> location <strong>of</strong> the injury, duration <strong>of</strong> work disability, type <strong>of</strong> accident<br />

SES-measures: occupation, nationality<br />

Other interesting databases in Belgium that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include: the Belgian Interuniversity<br />

Research on Nutrition <strong>and</strong> Health (BIRNH, 1980-85).<br />

DENMARK<br />

• Statistics on Mortality <strong>and</strong> Occupation (Dodelighed og Erhverv (DE)), Danish Central<br />

Bureau <strong>of</strong> Statistics (Danmarks Statistik), based on a computerized linkage <strong>of</strong> census<br />

registers with death registers in order to gather information on how occupation affects<br />

mortality. Covers all workers in all sectors <strong>of</strong> activity. First census in 1970, death registers<br />

are updated each year.<br />

health measures: cause <strong>of</strong> death<br />

SES-measures: occupational class, educational level, housing conditions, geographic area<br />

• Danish Cancer Register (Cancerregisteret (CR)), Danish Cancer Society, covers all<br />

cancer cases in Denmark since 1943.<br />

health measures: details <strong>of</strong> cancer diagnosis <strong>and</strong> treatment<br />

SES-measures: occupation<br />

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• Danish Health <strong>and</strong> Morbidity Survey (1994) (Sundhed og Sygelighed I Danmark),<br />

Danish Institute <strong>of</strong> Clinical Epidemiology (DICE), also 1986-1987 (‘Health <strong>and</strong> Activity<br />

Limitations Survey’) <strong>and</strong> specific topics in 1991, nationally representative, part <strong>of</strong> the WHO-<br />

EUROHIS Project, n=4.668,+16y.<br />

health measures: perceived general health, perceived quality <strong>of</strong> life, chronic diseases, functional<br />

disabilities, physical activity, accidents, dietary, alcohol <strong>and</strong> smoking habits, attitudes towards<br />

health, use <strong>of</strong> health services, housing conditions <strong>and</strong> risks at home, work environment <strong>and</strong><br />

risks at work, social network<br />

SES-measures: occupation, educational level<br />

• General Health Survey in Greenl<strong>and</strong> (1999) (5 subprojects), Centre for Circumpolar<br />

Health Research, also in 1994, n=+/-2.000 adults.<br />

health measures: self-related health, chronic diseases, alcohol <strong>and</strong> tobacco consumption, dietary<br />

habits, village health<br />

SES-measures: socioeconomic background, job situation, degree <strong>of</strong> western acculturation<br />

• Dietary Habits in Denmark, 1985 <strong>and</strong> 1995, n=1.837, 1-80y.<br />

FINLAND<br />

health measures: food consumption (no further information found)<br />

SES-measures: educational level, occupation<br />

• Mortality Registry, is linked to census data (censuses are conducted every 5 years),<br />

since 1971, by means <strong>of</strong> personal identification codes.<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: occupational class, educational level<br />

• FINMONICA Stroke Registry, National Public Health Institute <strong>of</strong> Finl<strong>and</strong> (KTL), Dpt. <strong>of</strong><br />

Epidemiology <strong>and</strong> Health Promotion, registers all stroke events. This registry is linked to<br />

other data files by means <strong>of</strong> personal identification codes.<br />

health measures: stroke mortality, stroke incidence <strong>and</strong> prognosis<br />

SES-measures: educational level, income<br />

• Finnish Cancer Registry, Cancer Society <strong>of</strong> Finl<strong>and</strong>, covers all cancer cases diagnosed<br />

in Finl<strong>and</strong> since 1953 (<strong>from</strong> hospitals, laboratories <strong>and</strong> private physicians).<br />

health measures: detailed information on cancer: primary site, histology, stage, treatment<br />

SES-measures: occupational class<br />

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• Health Behaviour among Finnish Adult Population (AVTK), National Public Health<br />

Institute <strong>of</strong> Finl<strong>and</strong> (KTL), Dpt. <strong>of</strong> Epidemiology <strong>and</strong> Health Promotion, nationally<br />

representative, annual since 1978/1979, n=+/- 3.500, 15-64y.<br />

health measures: see Finbalt Health Monitor<br />

SES-measures: see Finbalt Health Monitor, also occupational class<br />

• Adolescent Health <strong>and</strong> Lifestyle Survey, bi-annual since 1977, national, 12-14-16-18y.<br />

health measures: perceived health status, health behaviours <strong>and</strong> lifestyle (no further information<br />

found)<br />

SES-measures: socioeconomic background (no further information found)<br />

• Finnish Survey on Living Conditions (1994), Statistics Finl<strong>and</strong>, also 1978 <strong>and</strong> 1986-87,<br />

national, n=+/-10.000, +15y.<br />

health measures: perceived general health, disabilities, chronic diseases, living conditions<br />

SES-measures: educational level, occupational class, income<br />

• Quality <strong>of</strong> Working Life Survey (Työelämän Laatu (TL)), Statistics Finl<strong>and</strong>, nationally<br />

representative sample <strong>of</strong> working population aged 15-64y. First time conducted in 1977,<br />

also in 1984, 1990 <strong>and</strong> 1997, n=+/-5.000.<br />

health measures: working conditions (content, shift hours), physical environment problems<br />

(climate, noise, chemicals, smoke, …), psychosocial environment (pressure, support,<br />

decision-latitude, …), health (stress symptoms, pain)<br />

SES-measures: education, occupation, wage, socio-economic class<br />

• Dietary Survey <strong>of</strong> Finnish Adults, National Public Health Institute (KTL), Dpt. <strong>of</strong> Nutrition,<br />

conducted in 1992 <strong>and</strong> 1997, n=1.861, 25-64y.<br />

FRANCE<br />

health measures: food group <strong>and</strong> nutrition consumption<br />

SES-measures: educational level, household income<br />

• Health in France (1994-1998) (La Santé en France), High Committee <strong>of</strong> Public Health<br />

(Haut Comité de la Santé Publique), INSEE <strong>and</strong> INSERM, large national (but excluding<br />

non-natively French people) cohort study since 1954, n=?.<br />

health measures: cause-specific mortality, health status <strong>and</strong> diseases, cancer, AIDS, physical<br />

disabilities, mental health, consumption <strong>of</strong> alcohol, tobacco <strong>and</strong> drugs, accidents (at home, at<br />

work <strong>and</strong> on the road), sexual behaviour, physical environment, work environment<br />

SES-measures: occupational class<br />

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• Permanent Demographic Sample (Échantilon Démographic Permanent (EDP)), Institut<br />

National de la Statistique et des Etudes Economiques (INSEE). This is a registry <strong>of</strong> a<br />

sample <strong>of</strong> the (native-born French) population (all people born on four specific dates <strong>of</strong> the<br />

year) that contains information <strong>from</strong> the population censuses since 1968 (other census<br />

were in 1975, 1982, 1990) <strong>and</strong> data on civil status (including eventual death). There is no<br />

information about the cause <strong>of</strong> death.<br />

health measures: mortality<br />

SES-measures: educational level (highest degree obtained), occupational status <strong>and</strong> class<br />

• Continuous Surveys <strong>of</strong> Living Conditions <strong>of</strong> Households (Enquêtes Permanentes sur<br />

les Conditions de Vie des Ménages), Institut National de la Statistique et des Etudes<br />

Economiques (INSEE). This is an annual series <strong>of</strong> <strong>surveys</strong> in a representative sample <strong>of</strong><br />

French people aged 15 <strong>and</strong> over, n=+/-11.000 individuals in +/-5.800 households. There<br />

are three waves each year that cover different aspects <strong>of</strong> living conditions.<br />

health measures: perceived health status, chronic conditions, functional disabilities, housing<br />

conditions, physical environment, social relations, social support<br />

SES-measures: occupational class (head <strong>of</strong> household), household income <strong>and</strong> composition<br />

• Decennial Survey <strong>of</strong> Health <strong>and</strong> Medical Care (Enquête Decennale sur la Santé et les<br />

Soins Medicaux), Institut National de la Statistique et des Etudes Economiques (INSEE)<br />

<strong>and</strong> CREDES, carried out in 1980-81, 1991-92 <strong>and</strong> is planned to be continued, n=+/-<br />

20.000.<br />

health measures: perceived health, disability, smoking behaviour (no further information found)<br />

SES-measures: educational level, occupation, income<br />

• VIGILANCE database (PERCEVAL) (Système de vigilance de maladies dues au travail),<br />

National Institute for Research <strong>and</strong> Safety (Institut National de Recherche et de Sécurité<br />

(INRS)), covers the cases <strong>of</strong> occupational pathologies reported to INRS since 1985.<br />

health measures: disease specifications, symptoms, occupational hazards<br />

SES-measures: occupation<br />

Other interesting databases in France that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include: the Medical Monitoring <strong>of</strong><br />

Hazards (Surveillance Médicale des Risques, 1987).<br />

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GERMANY<br />

• Social Insurance <strong>and</strong> Pension Registries, owned by insurance companies, are the only<br />

source <strong>of</strong> mortality data nationwide (no further information found).<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: occupational status, educational level<br />

• Micro-Census (MC) (Mikrozensus), National Institute <strong>of</strong> Statistics (Statistisches<br />

Bundesamt), carried out every year since 1957 in years not covered by the general<br />

census, n=+/-800.000 individuals in +/-350.000 households, +15y. Supplementary<br />

questionnaire on health issues every second year.<br />

health measures: diseases, disabilities, BMI, accidents, use <strong>of</strong> health services (medical<br />

consultation), working conditions (shift work), smoking behaviour<br />

SES-measures: occupational status, income, nationality<br />

• German Socioeconomic Panel (Das Sozio-oekonomische Panel (SOEP)), annual<br />

representative longitudinal study <strong>of</strong> private households in the entire federal Republic <strong>of</strong><br />

Germany, including recent immigrants, since 1984, 1989, 1994, n=+/-20.000 individuals in<br />

+/-12.000 households.<br />

health measures: health (no further information found)<br />

SES-measures: education, occupation, income<br />

Other interesting databases in Germany that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include ‘Health 1990’, ‘Youth Health<br />

Survey (1992-1993)’ <strong>and</strong> some <strong>surveys</strong> <strong>from</strong> the former West Germany: the German<br />

National Health Survey (NHS), the German National Food Intake Survey <strong>and</strong> <strong>from</strong><br />

the former East-Germany: Eastern Germany Health Survey (Gesundheitssurvey,<br />

1991).<br />

GREECE<br />

• Greece Household Budget Survey, since 1974, part <strong>of</strong> DAFNE I & II in 1987-88 <strong>and</strong><br />

1993-94, n=+/-6.500 households.<br />

health measures: food consumption<br />

SES-measures: educational level<br />

Other interesting databases in Greece that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include the Greek National Perinatal<br />

Survey (1983).<br />

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IRELAND<br />

• Irish National Cancer Registry, National Cancer Registry Board, registers all cancer<br />

cases diagnosed in Irel<strong>and</strong> since 1994 (<strong>from</strong> hospitals <strong>and</strong> other healthcare facilities).<br />

health measures: detailed information on cancer: primary site, histology, stage, treatment<br />

SES-measures: occupational status<br />

• Survey <strong>of</strong> Lifestyles, Attitudes <strong>and</strong> Nutrition (SLAN), conducted in 1998, n=+/-6.000,<br />

+18y.<br />

health measures: perceived general health, BMI, dietary <strong>and</strong> smoking behaviour, alcohol<br />

consumption, physical activity<br />

SES-measures: occupational status<br />

The Mortality Registry for Irel<strong>and</strong> cannot satisfactorily be linked to socioeconomic<br />

measures. Other interesting databases in Irel<strong>and</strong> that are not mentioned here because<br />

(the last time) they were conducted (was) before 1994, include the Irish National<br />

Nutrition Survey (1990).<br />

ITALY<br />

• Register <strong>of</strong> Death Causes (Certificazione Cause di Morte (CCM)), National Statistics<br />

Institute (Instituto Nazionale di Statistica (Istat)), records the medical causes <strong>of</strong> death for all<br />

persons that have died in Italy since 1900. It covers the whole Italian population <strong>and</strong> is<br />

updated continuously by local administrations that supply information <strong>from</strong> death<br />

certificates to Istat. It is impossible to carry out statistical analysis because this information<br />

is not linked with any code number; moreover information is <strong>of</strong>ten inaccurately gathered.<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: occupation at the moment <strong>of</strong> death<br />

• Survey on Health Conditions <strong>of</strong> Population <strong>and</strong> Use <strong>of</strong> Health Services (Indagine<br />

Statistica sulle condizione di saluta della populazione e sul ricorso ai servizi sanitari<br />

(RCSRSS)), National Statistics Institute (Instituto Nazionale di Statistica (Istat)), since 1980<br />

(‘Health Survey’), 1983, 1986-87, 1990-91 (‘Multipurpose Survey’), annual since 1993<br />

(‘Aspects <strong>of</strong> Daily Life’ (Aspetti della Vita Quotidiana)), part <strong>of</strong> WHO EUROHIS Project<br />

1996-97, nationally representative sample <strong>of</strong> n=+/-50.000?, +14y.<br />

health measures: perceived health status, (chronic) diseases, invalidity, accidents at home, BMI,<br />

use <strong>of</strong> healthcare services (hospitalisations, medical examinations), smoking <strong>and</strong> drinking<br />

behaviour, food consumption, use <strong>of</strong> medicines, physical activity, social contacts<br />

SES-measures: level <strong>of</strong> education, occupational class<br />

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• Observatory on Youth <strong>and</strong> Alcohol (Osservatore permanente di giovani y alcol),<br />

National Statistics Institute (Istat), since 1989, also 1994 <strong>and</strong> 1997.<br />

health measures: smoking <strong>and</strong> drinking behaviour <strong>of</strong> youngsters <strong>and</strong> their parents, conflicts with<br />

parents<br />

SES-measures: level <strong>of</strong> education, occupational level<br />

• Cancer Registry <strong>of</strong>: Liguria, Lombardy, Piedmont, Romagna, Umbria, Tuscany,<br />

Ferrara, Latina, Macerata, Modena, Parma, Ragusa, Sassari, Trieste <strong>and</strong><br />

Venezia. This network <strong>of</strong> <strong>registries</strong> systematically records <strong>and</strong> analyses<br />

incidence, mortality, survival <strong>and</strong> prevalence data. For the moment, it covers more than<br />

20% <strong>of</strong> the Italian population.<br />

Health measures: detailed information on cancer: primary site, histology,<br />

treatment<br />

SES measures: none, but the <strong>registries</strong> are linked with other databases<br />

Other interesting databases in Italy that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include the Youth <strong>and</strong> Health (1993)<br />

survey.<br />

LUXEMBURG<br />

• Child Mortality Registry, (no further information found).<br />

health measures: child mortality<br />

SES-measures: socioeconomic status (no further information found)<br />

THE NETHERLANDS<br />

• Permanent Survey <strong>of</strong> Living Conditions (Permanent Onderzoek naar de Leefsituatie<br />

(POLS)), Central Bureau <strong>of</strong> Statistics (CBS). Large, continuous survey <strong>of</strong> different aspects<br />

<strong>of</strong> living conditions in The Netherl<strong>and</strong>s, r<strong>and</strong>om sample <strong>of</strong> non-institutionalised population.<br />

Measured through a basic questionnaire <strong>and</strong> several modules on specific topics which are<br />

based on previously existing <strong>surveys</strong>. For these modules between 3.000 <strong>and</strong> 10.000<br />

individuals have responded to the questionnaires. These <strong>surveys</strong>, which were integrated in<br />

1997, are the Netherl<strong>and</strong>s Health Interview Survey (Gezondheidsenquête (GE), annual<br />

since 1981, +/- 8.000 individuals living in +/- 3.500 households, +16y, part <strong>of</strong> the WHO-<br />

EUROHIS Project), the Continuous Survey on Living Conditions (Doorlopend<br />

Leefsituatieonderzoek (DLO), annual since 1989, +/- 4.000 individuals, +18y. Previously<br />

(1974-1989): Continuous Quality <strong>of</strong> Life Survey (CQLS), +13y), Survey on Housing<br />

Needs (Woningbehoefte Onderzoek (WBO), every 4 years since 1977, +/- 60.000<br />

individuals, +18y) <strong>and</strong> some others.<br />

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health measures: perceived general health, functional disabilities, chronic conditions, symptoms,<br />

dental health, use <strong>of</strong> health services (visits to general practitioner, dentist, specialist, hospital,<br />

alternative <strong>and</strong> other health services), use <strong>of</strong> medicines, housing conditions, living<br />

environment, working environment (shift work, noise, smell, danger, physical strains,<br />

monotony, job satisfaction), smoking behaviour, food <strong>and</strong> alcohol consumption, TV-watching,<br />

fysical activity, frequency <strong>of</strong> social contact, mental health, well-being, importance <strong>of</strong><br />

prevention, vaccination <strong>and</strong> screening behaviour<br />

SES-measures: level <strong>of</strong> education, occupation, health insurance, household income, material<br />

belongings, ethnicity, geographic area, degree <strong>of</strong> urbanization<br />

• Second General Practice Inquiry (1999) (Tweede Nationale Studie naar Ziekten en<br />

Verrichtingen in de Huisartspraktijk), L<strong>and</strong>elijk Informatienetwerk Huisartsenzorg (LINH),<br />

first inquiry undertaken in 1987-1988, nationally representative sample <strong>of</strong> 160 general<br />

practitioners covering about 400.000 people (5% <strong>of</strong> which are surveyed).<br />

health measures: perceived <strong>and</strong> diagnosed somatic <strong>and</strong> psychological morbidity, use <strong>of</strong> general<br />

practitioner, specialist <strong>and</strong> self-care<br />

SES-measures: occupation, educational attainment, migrant group<br />

• Socio-economic Panel Survey (Sociaal-economisch Panelonderzoek (SEP), Central<br />

Bureau <strong>of</strong> Statistics (CBS), annual since 1984, longitudinal study <strong>of</strong> +/- 5.000 households,<br />

+16y.<br />

health measures: food consumption, housing conditions<br />

SES-measures: educational level, income, occupation, material belongings<br />

• Supplementary Survey on the Use <strong>of</strong> Services (Aanvullend Voorzieningengebruik<br />

Onderzoek (AVO)), Sociaal en Cultureel Planbureau (SCP), every 4 years since 1979,<br />

n=+/-15.000 individuals in +/- 6.000 households, +6y.<br />

health measures: housing conditions, use neonatal care, home care, services for h<strong>and</strong>icapped<br />

people <strong>and</strong> other health services<br />

SES-measures: income<br />

The Mortality Registry for The Netherl<strong>and</strong>s cannot be linked to census data at the<br />

individual level, but only at the aggregate level for cities or provinces.<br />

Other interesting databases in The Netherl<strong>and</strong>s that are not mentioned here because<br />

(the last time) they were conducted (was) before 1994, include the Dutch National<br />

Food Consumption Survey (Dutch Nutrition Surveillance System, 1992).<br />

NORWAY<br />

• Census Based Follow-Up Mortality Study (CEBA), Statistics Norway, system consists <strong>of</strong><br />

linking data <strong>from</strong> censuses <strong>and</strong> cause <strong>of</strong> death data to facilitate the study <strong>of</strong> socio-<br />

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economic differentials in mortality using the national 11-digit personal identification<br />

number. Censuses started in 1960, are conducted every 10 years <strong>and</strong> cover the complete<br />

Norwegian population.<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: educational level, occupational class, income<br />

• Cancer Registry <strong>of</strong> Norway (Kreftsregisteret (CARE)), Institute <strong>of</strong> Epidemiological Cancer<br />

Research, covers all cancer cases diagnosed in Norway since 1953 (it is compulsory in<br />

Norway to report new cancer cases).<br />

health measures: detailed information on cancer: primary site, histology, stage, treatment, cancer<br />

mortality<br />

SES-measures: none, but the registry can be linked with other databases<br />

• Norwegian Women <strong>and</strong> Cancer Study (NOWAC), University <strong>of</strong> Tromso, Institute <strong>of</strong><br />

Community Medicine (Institutt for Samfunnsmedisin (ISM)), a series <strong>of</strong> nation-wide <strong>surveys</strong><br />

mainly focussed on cancer <strong>and</strong> oral contraception, targeting women in different age groups<br />

(sub-cohorts A, B, C <strong>and</strong> D). The first study in 1991-92 was the ‘Women, Lifestyle <strong>and</strong><br />

Health’ (n=57.604, 34-49y), the ‘Women <strong>and</strong> Cancer – Young Women’ formed sub-cohort<br />

B in 1995-96 (n=+/-6.600, 30-44y), sub-cohort C is 1996 ‘Women <strong>and</strong> Cancer- Middleaged<br />

Women’ survey (n=+/-31.000, 45-69y) <strong>and</strong> in 1998 sub-cohort D was formed by<br />

surveying sub-cohort A again (n=+/35.000). The <strong>indicators</strong> used in the different <strong>surveys</strong><br />

are broadly the same. Follow-up with regard to cancer incidence <strong>and</strong> cause-specific<br />

mortality will be based on record linkage by the unique national identification number to the<br />

Norwegian Cancer Registry <strong>and</strong> the Death Certificate Register. This study is part <strong>of</strong> the<br />

EPIC project (see European-wide part).<br />

health measures: perceived health status, use <strong>of</strong> oral contraception or hormonal replacement<br />

therapy (HRT), dietary habits (focus on fish <strong>and</strong> cooking methods), smoking, alcohol use,<br />

physical activity, sun tanning <strong>and</strong> bathing behaviour, attempts to change dietary behaviour,<br />

perceptions <strong>of</strong> diet’s importance to health.<br />

SES-measures: years <strong>of</strong> schooling, education, occupation, income, number <strong>of</strong> persons in the<br />

household<br />

especially linked with: cancer incidence, cause-specific mortality<br />

• National Health Survey (Helseundersokelse (HESY)), Statistics Norway, conducted in<br />

1968, 1975, 1985 <strong>and</strong> 1995, nationally representative sample <strong>of</strong> n=+/-13.000 in +/-5.000<br />

households. Can be linked to other data sources through identification number.<br />

health measures: perceived health, prevalence <strong>of</strong> diseases, disabilities, dental health, mental<br />

health, working conditions (noise, pollution, shift work), use <strong>of</strong> health services<br />

SES-measures: level <strong>of</strong> education, occupational class<br />

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• Survey <strong>of</strong> Living Conditions on Health, Care <strong>and</strong> Social Contact (Multi-Purpose<br />

Survey), Statistics Norway, 1992-94 <strong>and</strong> 1998, n=+/-5.000, +16y.<br />

health measures: obesity, smoking behaviour, social relations (no further information found)<br />

SES-measures: level <strong>of</strong> education<br />

• Level <strong>of</strong> Living Survey (1995) (Levekärsundersokelsen), Statistics Norway, also in 1980,<br />

1983, 1987, 1991, nationally representative sample <strong>of</strong> n=+/-4.000 individuals, +16y.<br />

health measures: physical working environment (exposure to climatic or ergonomic problems,<br />

polluted air or risky working conditions), organizational working conditions (shift work, stressful<br />

working conditions, control over workplace), health (chronic illness, nervous conditions,<br />

disability), life style variables, housing conditions, social relations, violence <strong>and</strong> security<br />

SES-measures: socio-economic status, income <strong>and</strong> financial resources, education, type <strong>of</strong><br />

residence<br />

• NORKOST, National Nutrition Council, 1993-94, n=3.144, 16-79y.<br />

PORTUGAL<br />

health measures: food intake<br />

SES-measures: education, occupation<br />

• National Health Survey, Ministry <strong>of</strong> Health, 1987 <strong>and</strong> 1995-96, part <strong>of</strong> WHO-EUROHIS<br />

Project, n=+/-24.000, +18y.<br />

health measures: perceived health status, BMI, smoking behaviour (no further information found)<br />

SES-measures: level <strong>of</strong> education<br />

• Survey on Health Conditions <strong>of</strong> Population (2000) Observatório Nacional de Saúde<br />

Health measures: mortality, morbidity, woman <strong>and</strong> child health, accidents<br />

SES-measures: scolarity<br />

• Homeless in Lisbon Survey (1999) Laboratório Nacional de Engenharia Civil<br />

Health measures: major health problems <strong>of</strong> homeless population<br />

SES-measures: number, sex, age <strong>of</strong> homeless population<br />

• Survey on scholarity <strong>of</strong> migrant children between the ages <strong>of</strong> 6 <strong>and</strong> 17 (1997)<br />

Secretariado Coordenador dos Programas de Educação Multicultural<br />

SES-measures: reasons for dropping out <strong>of</strong> school, ethnicity, educational level<br />

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• Permanent Demographic Sample (1998) Ministério da Administração Interna<br />

Health measures : mortality<br />

SES-measures : country <strong>of</strong> origin, ethnicity<br />

• Survey about Gypsies (1998) Comissariado para a Integração e Minorias Étnicas<br />

Health measures: health problems, disabilities<br />

SES-measures: housing, nomadic lifestyle, education, family<br />

• Survey on Population Older than 65 (1999) Ministério do Trabalho e da Solidariedade<br />

SPAIN<br />

SES-measures: dependency, ageing<br />

• National Health Interview Survey (Encuesta Nacional de Salud), Ministry <strong>of</strong> Health <strong>and</strong><br />

Consumer Affairs (Ministerio de Sanidad y Consumo). Since 1987, also in 1993, 1995 <strong>and</strong><br />

1997, covering entire Spain, representative sample <strong>of</strong> n=± 6400, +16y<br />

Contact: Centro de publicaciones del Ministerio de Sanidad y Consumo<br />

Tel: +00 34 91 596 40 60<br />

Health measures: perceived health status, chronic diseases, psychological symptoms, BMI,<br />

smoking behaviour, alcohol consumption, physical exercise, sleeping habits, preventive<br />

activities, use <strong>of</strong> health services (visits to GP <strong>and</strong> hospital)<br />

SES-measures: occupation, level <strong>of</strong> education, house tenure, household income (corrected for<br />

the size <strong>of</strong> household)<br />

• Continuous Household Budget Survey (Encuesta Continua de Presupuestos<br />

Familiares), National Institute <strong>of</strong> Statistics (Instituto Nacional de Estadística), since 1984<br />

<strong>and</strong> trimestral since 1985, part <strong>of</strong> DAFNE II in 1990-1, n= ± 20.000 households<br />

Contact: Instituto Nacional de Estadística<br />

Tel: 00 34 91 583 91 00<br />

Health measures: consumption <strong>of</strong> alimentary tobacco products<br />

SES-measures: level <strong>of</strong> education, employment status, socio-economic status<br />

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• Survey <strong>of</strong> Disabilities, Deficiencies <strong>and</strong> Health Status (1999) (Encuesta de<br />

Discapacidades, Deficiencias y Estado de Salud), National Institute <strong>of</strong> Statistics (Instituto<br />

Nacional de Estadística), first undertaken in 1986 n=±79000 household<br />

Contact: Instituto Nacional de Estadística<br />

Tel: 00 34 91 583 91 00<br />

Health measures: prevalence <strong>of</strong> chronic diseases, accessibility <strong>and</strong> use <strong>of</strong> health services,<br />

appreciation <strong>of</strong> health status<br />

SES-measures: level <strong>of</strong> education, occupational class<br />

• Catalan Health Interview Survey (1994) (Enquesta de Salut de Catalunya),<br />

Department <strong>of</strong> Health <strong>and</strong> Social Security <strong>of</strong> Generalitat <strong>of</strong> Catalonian (Departament<br />

de Sanitat i Seguretat Social de la Generalitat de Catalunya). Cross- sectional<br />

survey, n= ± 12500, +15y<br />

Contact: Servei Català de la Salut<br />

Tel: +00 34 93 430 85 85<br />

Health measures: perceived health status, chronic diseases, disabilities, smoking behaviour,<br />

alcohol consumption, physical exercise, sleeping habits, preventive activities, use <strong>of</strong> health<br />

services, quality <strong>of</strong> life<br />

SES-measures: occupation, level <strong>of</strong> education, household income<br />

• Basque Health Survey (Encuesta de Salud del País Vasco), Department <strong>of</strong> health <strong>of</strong><br />

Basque Government (Departamento de Sanidad del Gobierno Vasco), since 1986,<br />

also 1992 <strong>and</strong> 1997 n= ± 4.000 households, +15y.<br />

Contact: Departamento de Sanidad del Gobierno Vasco<br />

Tel: +00 34 94 501 91 92<br />

Health measures: perceived health status, chronic diseases, psychological symptoms, BMI,<br />

smoking behaviour, alcohol consumption, physical exercise, hours <strong>of</strong> sleeping, preventive<br />

activities, use <strong>of</strong> health services (visits to GP <strong>and</strong> hospital)<br />

SES-measures: occupation, level <strong>of</strong> education, house tenure, household income (corrected for<br />

the size <strong>of</strong> household)<br />

• Navarra Health Survey (Encuesta de Salud de Navarra), Department <strong>of</strong> health <strong>of</strong> Navarar<br />

Government (Departamento de Sanidad del Gobierno de Navarra), since 1990, also 2000<br />

n= ± 1500, +15y.<br />

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Contact: Isabel sobejano Tornos<br />

isabel.sobejano.tornos@cfnavarra.es<br />

Health measures: perceived health status, chronic diseases, psychological symptoms, BMI,<br />

smoking behaviour, alcohol consumption, physical exercise, sleeping habits, preventive<br />

activities, use <strong>of</strong> health services (visits to GP <strong>and</strong> hospital), quality <strong>of</strong> life<br />

SES-measures: occupation, level <strong>of</strong> education<br />

• Canarian Health Survey (Encuesta de Salud de la Comunidad Autónoma de Canarias),<br />

Health Canarian Service (Servicio canario de Salud), since 1990, also 1997 n= ± 2800,<br />

+15y.<br />

Contact: Servicio Canario de Salud<br />

Tel: 00 34 22 47 47 15<br />

Health measures: perceived health status, chronic diseases, psychological symptoms, BMI,<br />

smoking behaviour, alcohol consumption, physical exercise, preventive activities, use <strong>of</strong> health<br />

services (visits to GP <strong>and</strong> hospital)<br />

SES-measures: occupation, level <strong>of</strong> education, pr<strong>of</strong>ession, house tenure<br />

Other interesting databases in Spain that are not mentioned here because (the last time) they<br />

were conducted (was) before 1994, include the Assessment <strong>of</strong> Nutritional Status <strong>of</strong><br />

Catalonia’s Population (1992-93), <strong>and</strong> the Food Habits in Basque Country (1990) survey.<br />

The Mortality Registry for Spain cannot be linked to census data at the individual<br />

level, but only at the aggregate level for cities or provinces.<br />

SWEDEN<br />

• Cause <strong>of</strong> Death Registry (Dödsorsaksregistret), Statistics Sweden (SCB), since 1961,<br />

linked to census data <strong>and</strong> the ULF by means <strong>of</strong> personal identification codes. Censuses<br />

are conducted every fifth year since 1960.<br />

health measures: mortality by cause <strong>of</strong> death<br />

SES-measures: occupational class, educational level<br />

• Swedish National Survey <strong>of</strong> Living Conditions (Undersökningen av<br />

Levnadsförhåll<strong>and</strong>en, ULF), Statistics Sweden (SCB), annual since 1975, nationally<br />

representative sample <strong>of</strong> n=+/-12.500 individuals, 16-84y. Based on the ULF, the<br />

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Immigrant Survey <strong>of</strong> Living Conditions was carried out in 1996 (n=1.890, aged 27-60<br />

y).<br />

health measures: perceived health status, chronic diseases, functional disabilities, use <strong>of</strong><br />

healthcare, dental health, dietary <strong>and</strong> smoking habits, use <strong>of</strong> medicine, working environment,<br />

housing conditions, social relations (contacts with family <strong>and</strong> friends, social support).<br />

SES-measures: educational level, occupational class, individual <strong>and</strong> household income, area <strong>of</strong><br />

living<br />

especially linked with: Swedish Causes <strong>of</strong> Death Register, income, housing allowance <strong>and</strong> many<br />

more<br />

• Household Market <strong>and</strong> Non-market Activities (1998), Göteborg University, Department<br />

<strong>of</strong> Economics, since 1984, meant to be bi-annual, n=2.347 individuals in Swedish speaking<br />

households<br />

health measures: perceived health status, housing conditions<br />

SES-measures: education, employment, household income<br />

Other interesting databases in Sweden that are not mentioned here because (the last<br />

time) they were conducted (was) before 1994, include the Swedish National Dietary<br />

Survey (HULK, 1989) <strong>and</strong> Risks 1988.<br />

UNITED KINGDOM<br />

• Longitudinal Study (LS), Office for National Statistics (ONS), No new data are gathered<br />

by the LS, it instead provides a link between data <strong>from</strong> the decennial Census <strong>of</strong> population,<br />

the National Cancer Registration Scheme, death <strong>and</strong> birth registrations <strong>and</strong> the National<br />

Health Services Register. All people born on one <strong>of</strong> four dates each year were selected<br />

<strong>from</strong> the 1971 Census, with new births occurring <strong>and</strong> immigrants having these dates as a<br />

birth day joining the LS after 1971. The study covers about 500.000 people (1%) <strong>of</strong> the<br />

population <strong>of</strong> Engl<strong>and</strong> <strong>and</strong> Wales <strong>and</strong> events are recorded continuously as they occur.<br />

health measures: cause <strong>of</strong> death, occurrence <strong>and</strong> type <strong>of</strong> cancer<br />

SES-measures: educational qualifications, social class (based on occupation), housing tenure,<br />

access to cars<br />

• Occupational Mortality Decennial Supplement (OMDS), Office for National Statistics<br />

(ONS), providing a link between the decennial Census <strong>of</strong> population (which is conducted<br />

every 10 years since 1851 for Engl<strong>and</strong> <strong>and</strong> Wales <strong>and</strong> sometimes for Scotl<strong>and</strong>) <strong>and</strong> death<br />

registration by occupation <strong>and</strong> cause <strong>of</strong> death, referring to deaths occurring in the five<br />

years surrounding the Census. These two sources however are sometimes inconsistent,<br />

which led to the creation <strong>of</strong> the Longitudinal Study.<br />

health measures: cause <strong>of</strong> death<br />

SES-measures: occupation<br />

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• 1970 British Cohort Study (BCS70), International Centre for Child Studies. This is a<br />

national longitudinal study that began with a cohort <strong>of</strong> babies born in April 1970. Follow-up<br />

studies have been conducted in 1975, 1980, 1986 <strong>and</strong> 1996. The scope <strong>of</strong> the inquiry has<br />

broadened <strong>from</strong> a strictly medical focus at birth to an evaluation <strong>of</strong> the health, care,<br />

edcuation, social <strong>and</strong> family environment, n=+/-11.500.<br />

health measures: perceived health status, medical history, chronic illnesses <strong>and</strong> disabilities,<br />

mental health, blood pressure, BMI, vision <strong>and</strong> locomotory functioning, physical activity,<br />

dietary behaviour, smoking, alcohol <strong>and</strong> drug consumption, sexual behaviour, self-esteem,<br />

friends <strong>and</strong> social behaviour, attitudes to health<br />

SES-measures: children’s educational achievement, parents occupation, parents educational<br />

level, family finances, household amenities<br />

• Health <strong>and</strong> Lifestyles Survey (HALS I & II), Social <strong>and</strong> Community Planning Research,<br />

national representative longitudinal survey, covering Engl<strong>and</strong>, Scotl<strong>and</strong> <strong>and</strong> Wales. First<br />

survey in 1984-85, follow-up in 1991-92, n=+/- 9.000 (1 st ) <strong>and</strong> 5.000 (2 nd ), +18y (1 st ) <strong>and</strong><br />

+25y (2 nd ).<br />

health measures: perceived health, disabilities, physiological measures (blood pressure, BMI,<br />

respiratory function), mental health (cognitive functioning, personality <strong>and</strong> psychiatric status),<br />

dietary behaviour, smoking, physical activity, hours <strong>of</strong> sleep, alcohol consumption, visits to GP<br />

<strong>and</strong> hospital, beliefs about <strong>and</strong> attitudes towards health <strong>and</strong> disease, intentions <strong>and</strong> reasons<br />

for behaviour change, social support, housing conditions, working conditions<br />

SES-measures: educational level, occupational class, household <strong>and</strong> personal income, socioeconomic<br />

group<br />

especially linked with: causes <strong>of</strong> death registry<br />

• Health Survey for Engl<strong>and</strong> (HSE), Department <strong>of</strong> Health, annual since 1991 (core topics<br />

<strong>and</strong> varying non-core topics), nationally representative survey, +16y plus up to 2 children<br />

aged 2-15y per household, n=+/- 20.000. There is an interviewer survey part <strong>and</strong> a nurse<br />

visit.<br />

health measures: general health, smoking <strong>and</strong> drinking behaviour, blood pressure, cholesterol,<br />

prescribed medication, housing conditions (non-core: eating habits, physical activity,<br />

contraceptive use, accidents, chronic diseases, physical disabilities, social support)<br />

SES-measures: household income <strong>and</strong> composition, occupational status, material belongings,<br />

ethnicity, area <strong>of</strong> living<br />

• Welsh Health Survey (1998), National Assembly for Wales, cross-sectional representative<br />

study <strong>of</strong> the health <strong>and</strong> well-being <strong>of</strong> adults (+18y) in Wales, n=+/-30.000.<br />

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health measures: perceived physical <strong>and</strong> mental health, specific illnesses, disabilities, accidents,<br />

BMI, physical exercise, dietary behaviour, alcohol consumption, smoking, use <strong>of</strong> <strong>and</strong><br />

satisfaction with health services.<br />

SES-measures: social class (based on occupation), employment status, ethnicity, house tenure<br />

• Scottish Health Survey (1995), Scottish Office, Dpt. <strong>of</strong> Health, cross-sectional<br />

representative survey <strong>of</strong> adults (16-64y) living in private households in Scotl<strong>and</strong>, meant to<br />

be repeated every three years, n=+/-8.000.<br />

health measures: perceived general health, mental well-being, dental health status <strong>and</strong> care,<br />

prescribed medicines, accidents, BMI, blood pressure, cholesterol, lung functioning, use <strong>of</strong><br />

health services, physical activity, dietary behaviour, alcohol consumption, smoking, attitudes<br />

towards changing health behaviour.<br />

SES-measures: social class (based on occupation)<br />

• General Household Survey (GHS), Office for National Statistics (ONS), annual since<br />

1971, covering Great Britain (except Northern Irel<strong>and</strong>), n=+/-9.000 households, +16y. Not<br />

all topics are covered every year. In Northern Irel<strong>and</strong>, the Continuous Household<br />

Survey, that started in 1983, is based on the GHS (n=+/-3.000). In 1997, a follow-up study<br />

<strong>of</strong> 1994 GHS was conducted for a sample <strong>of</strong> people aged 65 <strong>and</strong> over.<br />

health measures: perceived health status, disabilities, dental health, leisure activities, smoking,<br />

alcohol consumption, mental health, use <strong>of</strong> contraception, use <strong>of</strong> health services (GP, hospital,<br />

other health <strong>and</strong> social services), housing conditions<br />

SES-measures: educational level, occupational class, household income <strong>and</strong> composition,<br />

material belongings<br />

• Data on Occupational Accidents (DOA), Health <strong>and</strong> Safety Executive, national (covers<br />

Engl<strong>and</strong>, Wales <strong>and</strong> Scotl<strong>and</strong>) since 1986, contains information on fatal accidents <strong>and</strong><br />

accidents resulting in major injuries or absence <strong>from</strong> work for more than three days,<br />

(obligatorily) reported by employers.<br />

health measures: nature <strong>and</strong> severity <strong>of</strong> the injury<br />

SES-measures: occupation<br />

• National Diet <strong>and</strong> Nutrition Survey Program, Office for National Statistics (ONS). This is<br />

a joint initiative by the Ministry <strong>of</strong> Agriculture, Fisheries <strong>and</strong> Food (MAFF) <strong>and</strong> the<br />

Department <strong>of</strong> Health to provide a comprehensive overview <strong>of</strong> the dietary habits <strong>and</strong> the<br />

nutritional status <strong>of</strong> the population <strong>of</strong> Great Britain. Several age groups are studied in this<br />

program: 1,5 to 4 years (1992-93), 4 to 18y (1997, n=+/- 2.700), 19-64y (Dietary <strong>and</strong><br />

Nutritional Survey <strong>of</strong> British Adults (DNSBA), 1986 <strong>and</strong> 1990), +65y.<br />

health measures: dietary habits (food <strong>and</strong> nutrient intake <strong>and</strong> use <strong>of</strong> food additives), physical<br />

activity, blood pressure, BMI, oral health status <strong>and</strong> care<br />

SES-measures: occupational class, social class (Registrar General’s Scheme)<br />

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• Survey <strong>of</strong> Health <strong>and</strong> Well-Being <strong>of</strong> Adults, Office for National Statistics (ONS), first<br />

undertaken in 1994, repeated in 2000, covers Great Britain, n=15.550 individuals<br />

health measures: general health problems, a range <strong>of</strong> mental health problems, such as anxiety<br />

<strong>and</strong> depression, alcohol <strong>and</strong> drug dependency, psychosis <strong>and</strong> personality disorder; use <strong>of</strong><br />

health services, social support, key life events<br />

SES-measures: educational attainment, income, housing conditions<br />

• Mental Health <strong>of</strong> Children <strong>and</strong> Adolescents in Great Britain (1999), Office for National<br />

Statistics (ONS), also in 1993, 1994, 1997, was called Survey <strong>of</strong> Psychiatric Morbidity<br />

before. Aim to provide information on the prevalence <strong>of</strong> psychiatric problems among<br />

people in Great Britain <strong>and</strong> their use <strong>of</strong> services. The subsequent <strong>surveys</strong> differed in the<br />

subpopulations <strong>and</strong> number <strong>of</strong> people being studied: adults living in private households,<br />

people living in institutions for mental illnesses, homeless people, <strong>and</strong> prisoners. The 1999<br />

edition interviewed n=+/- 10.000 children (5-15y) <strong>and</strong> one <strong>of</strong> their parents living in private<br />

households.<br />

health measures: general health, mental health (emotional disorders (anxiety, depression,<br />

obsession), hyperactivity disorders <strong>and</strong> conduct disorders (antisocial behaviour etc.)), use <strong>of</strong><br />

health services (in general <strong>and</strong> specifically for mental health problems)<br />

SES-measures: parental educational level <strong>and</strong> employment<br />

• Northern Irel<strong>and</strong> Health <strong>and</strong> Activity Survey (1994), Policy Planning <strong>and</strong> Research Unit,<br />

studies Northern Irish adults (+16y), n=1.020<br />

health measures: general health, physical activity, dietary behaviour, blood analysis, measured<br />

physical fitness, attitudes towards health, activity <strong>and</strong> physical fitness<br />

SES-measures: educational attainment, social class<br />

• Adult Dental Health Survey (ADH), Office for National Statistics (ONS), conducted<br />

nationally in Great Britain in 1988 <strong>and</strong> 1998 for adults aged 16 <strong>and</strong> over living in private<br />

households, n=+/-6.000.<br />

health measures: self-reported health status <strong>of</strong> natural teeth <strong>and</strong> supporting tissues, medical<br />

dental examination, use <strong>of</strong> dental care, oral hygienic behaviour, attitudes <strong>and</strong> knowledge<br />

towards dental treatment<br />

SES-measures: educational level, personal <strong>and</strong> household income, material belongings,<br />

employment status<br />

• Health Education Monitoring Survey (HEMS), Office for National Statistics (ONS),<br />

covers Engl<strong>and</strong>, n=5.800, adults aged 16 <strong>and</strong> over, first conducted in 1995, also in 1996<br />

<strong>and</strong> 1998. Also called ‘Health in Engl<strong>and</strong>’.<br />

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health measures: knowledge, attitudes <strong>and</strong> behaviours towards (quitting) smoking, drinking,<br />

nutrition, physical activity, sexual health <strong>and</strong> behaviour in the sun; social support, community<br />

involvement, neighbourhood characteristics (social capital).<br />

SES-measures: social class (based on current or last job), employment status, highest<br />

educational level, ethnicity, gross household income, housing tenure, area deprivation.<br />

Other interesting databases in the UK that are not mentioned here because (the last time) they<br />

were conducted (was) before 1994, include: National Survey <strong>of</strong> Activity <strong>and</strong> Health<br />

(Engl<strong>and</strong>, 1991), Allied Dunbar National Fitness Survey (Engl<strong>and</strong>, 1990 <strong>and</strong> 1992),<br />

National Survey <strong>of</strong> Sexual Attitudes <strong>and</strong> Lifestyle (Great Britain, 1990), Health State<br />

Valuations (Engl<strong>and</strong> / Great Britain, 1985, 1989, 1993).<br />

The very interesting follow-up study Social Variations in Health in Early Old Age (Engl<strong>and</strong><br />

<strong>and</strong> Scotl<strong>and</strong>, 1998) was withdrawn because it had too few respondents <strong>and</strong><br />

representativeness could not be guaranteed.<br />

Accession countries<br />

ESTONIA<br />

• Health Behaviour among Estonian Adult Population (1996), National Public Health<br />

Institute (Finl<strong>and</strong>), bi-annual since 1990, set up based on the ‘Health Behaviour among<br />

Finnish Adult Population’ <strong>and</strong> part <strong>of</strong> the FINBALT Health Monitor, n=+/-1.500, 16-64y.<br />

HUNGARY<br />

health measures: see FINBALT Health Monitor<br />

SES-measures: see FINBALT Health Monitor<br />

• Health Interview Survey, Hungarian Central Statistics Office, based on the ‘Health<br />

Behaviour among Finnish Adult Population’, 15-64y.<br />

health measures: smoking behaviour (no further information found)<br />

SES-measures: socioeconomic background (no further information found)<br />

• Hungarian Household Panel (HHP) Survey, TARKI Social Research Centre <strong>and</strong> others,<br />

annually 1991-1997, nationally representative sample <strong>of</strong> n=+/-2.600 households, part <strong>of</strong><br />

(DAFNE I) in 1990-91.<br />

health measures: food consumption<br />

SES-measures: educational level<br />

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• TARKI Household Monitor Survey, continuation <strong>of</strong> Hungarian Household Panel without<br />

its longitudinal character. Purpose is the quick assessment <strong>of</strong> changes in the stratification<br />

<strong>of</strong> society <strong>and</strong> in social inequalities.<br />

health measures: (no further information found)<br />

SES-measures: (no further information found)<br />

The Mortality Registry for Hungary cannot satisfactorily be linked to socioeconomic<br />

measures.<br />

CZECH REPUBLIC<br />

• Czech Republic’s Health Interview Study (HIS), 1993, 1996 <strong>and</strong> 1999, part <strong>of</strong> WHO<br />

EUROHIS Project 1996-97, n=2.400, +15y.<br />

health measures: perceived general health, BMI (no further information found)<br />

SES-measures: socioeconomic background (no further information found)<br />

• Data on Occupational disease (Nemoci z Povolani (NP)), State Health Institute (Statni<br />

Zdravotni Ustav), covers all occupational diseases reported by doctors, nationally since<br />

1991.<br />

SLOVENIA<br />

health measures: disease specification<br />

SES-measures: occupation<br />

• No information sources were found<br />

EUROPEAN-WIDE<br />

• Health Behaviour among School-Aged Children (HBSC Study), WHO, every 4 years<br />

since 1983-1984, obliged are the age groups 11-13-15y, increasingly more countries are<br />

participating, including Austria, Belgium (Fl<strong>and</strong>ers <strong>and</strong> Wallonia), Czech Republic,<br />

Denmark (+Green-l<strong>and</strong>), Estonia, Finl<strong>and</strong>, France (in 1998 only 2 regions), Germany (in<br />

1998 only 1 region), Greece, Hungary, Irel<strong>and</strong>, The Netherl<strong>and</strong>s, Norway, Portugal, Spain<br />

(not in 1998), Sweden, United Kingdom (Engl<strong>and</strong>, Wales, Scotl<strong>and</strong> <strong>and</strong> Northern Irel<strong>and</strong>),<br />

ntotal=+/-123.000 children <strong>from</strong> 28 countries (including non-EU countries). Core<br />

questionnaire is the same in all participating countries, in-depth focus questions are<br />

optional <strong>and</strong> change every survey, extra national questionnaires can be added. Here we<br />

consider the core questionnaire.<br />

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health measures: perceived health status, medical complaints, smoking, alcohol abuse, physical<br />

activity, food consumption, knowledge <strong>of</strong> AIDS, sexual behaviour <strong>and</strong> use <strong>of</strong> contraceptives,<br />

dental health, use <strong>of</strong> medicines, use <strong>of</strong> seat belt, mental health (self-concept, body image),<br />

peer <strong>and</strong> family relations<br />

SES-measures: type <strong>of</strong> education, occupation <strong>of</strong> parents, nationality<br />

• Monitoring Trends <strong>and</strong> Determinants in Cardiovascular Disease (MONICA Project),<br />

WHO <strong>and</strong> 39 collaborating centres, monitors information in 26 countries including Belgium,<br />

Czech Republic, Denmark*, Finl<strong>and</strong>, France, Germany, Hungary, Italy, Spain, Sweden,<br />

United Kingdom*, first survey period was 1979-1989, the final <strong>surveys</strong> were conducted in<br />

1989-1996, 35-64y (optional also 25-34y), ntotal=+/- 300.000. Some countries gather only<br />

regional information.<br />

health measures: coronary <strong>and</strong> stroke event registration, smoking <strong>and</strong> food habits, physical<br />

activity, blood pressure, cholesterol, BMI, use <strong>of</strong> contraceptives, awareness <strong>of</strong> high<br />

cholesterol, knowledge <strong>of</strong> <strong>and</strong> attitude towards risk factors for stroke (for * selected countries)<br />

SES-measures: educational level, occupational class (for * selected countries)<br />

• Eurobarometer studies, since 1970 the European Commission conducts, at a rate <strong>of</strong> +/-<br />

2 times a year, <strong>surveys</strong> on opinions <strong>and</strong> attitudes <strong>of</strong> Europeans. These are mainly opinions<br />

regarding institutions <strong>and</strong> policies <strong>of</strong> the EU, but there are also special <strong>surveys</strong><br />

investigating opinions on broader topics, including health. The study population consists <strong>of</strong><br />

n=+/-1.000 people aged +15y in each EU country, <strong>and</strong> they are presented the same (but<br />

translated) questionnaires. Relevant topics are “Europeans <strong>and</strong> the Prevention <strong>of</strong> Cancer”,<br />

“European Survey on the Work Environment”, “Passive Smoking”, “Environmental<br />

Problems <strong>and</strong> Cancer”, “Drugs, alcohol <strong>and</strong> cancer”, “Europeans <strong>and</strong> Safety, Hygiene <strong>and</strong><br />

Health Protection at work”, “EU citizens <strong>and</strong> Health Issues”, “Women <strong>and</strong> Breast Cancer”<br />

<strong>and</strong> ”Europeans, Health <strong>and</strong> the Healthcare System”.<br />

health measures: cardiovascular disease, AIDS, cancer, smoking <strong>and</strong> dietary behaviour, use <strong>of</strong><br />

drugs <strong>and</strong> alcohol, physical activity, vaccination <strong>and</strong> cancer screening behaviour, working<br />

conditions, knowledge <strong>and</strong> attitudes regarding cancer<br />

SES-measures: educational level, occupational class, household income <strong>and</strong> composition (not<br />

always measured)<br />

• European Community Household Panel Study (ECHP), Eurostat, is a annual multidimensional,<br />

multi-purpose, longitudinal panel survey that covers all EU member states<br />

(except Sweden) since 1994. The same nationally representative sample (‘panel’) <strong>of</strong> n=+/-<br />

130.000 individuals in n=+/-60.000 households are interviewed over several consecutive<br />

years.<br />

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health measures: perceived general health, mental health, chronic conditions, illnesses,<br />

disabilities, housing conditions, social relations, use <strong>of</strong> health services (visits to GP, specialist,<br />

dentist, hospital stays)<br />

SES-measures: household income <strong>and</strong> composition, personal income, material belongings,<br />

occupational status, educational level, migration status<br />

• European Prospective Investigation into Cancer <strong>and</strong> Nutrition (EPIC), Multi-centre<br />

prospective cohort study (life-time follow-up) designed to investigate the relation between<br />

diet, nutritional <strong>and</strong> metabolic characteristics, various lifestyle factors <strong>and</strong> the risk <strong>of</strong><br />

cancer. Nine countries are participating: Denmark (n=+/-50.000), France (n=+/-80.000),<br />

Germany (n=+/-50.000), Greece (n=+/-30.000), Italy (n=+/-42.000), The Netherl<strong>and</strong>s (n=+/-<br />

40.000), Spain (n=+/-41.400), Sweden (n=+/-31.000), United Kingdom (n=+/-59.000), <strong>and</strong><br />

recently Norway joined the project, ntotal=+/-520.000. Project started in 1990, countries<br />

stepped in between 1991-94. Age: 35-40y to 60-74y.<br />

health measures: mortality, cancer incidence, previous <strong>and</strong> current illnesses <strong>and</strong> health problems,<br />

dietary behaviour, physical activity, consumption <strong>of</strong> alcohol <strong>and</strong> tobacco, use <strong>of</strong> contraception,<br />

current medication<br />

SES-measures: educational level (not for all countries)<br />

• FINBALT Health Monitor, National Public Health Institute (Finl<strong>and</strong>), collaborative<br />

monitoring system in Estonia, Finl<strong>and</strong>, Latvia <strong>and</strong> Lithuania set up based on the ‘Health<br />

Behaviour among Finnish Adult Population’ since 1990 (countries stepped in gradually), biannual,<br />

15-64y, representative samples <strong>of</strong> national population, core <strong>and</strong> extended part.<br />

health measures: perceived health status, health complaints, mental health, blood pressure,<br />

cholesterol, smoking, exposure to passive smoking, dietary habits, physical activity, alcohol<br />

consumption, use <strong>of</strong> medication, traffic safety, dental health, behaviour change intentions <strong>and</strong><br />

attempts (optional), use <strong>of</strong> health services (visits to the GP), exposure to health promotion<br />

interventions (optional), opinion on health <strong>and</strong> health policy (optional).<br />

SES-measures: years <strong>of</strong> schooling, occupation (recommended)<br />

• Socioeconomic inequalities in the health <strong>of</strong> children <strong>and</strong> adolescents in Nordic<br />

Countries (1996), Nordic School <strong>of</strong> Public Health, postal survey carried out in the 5 Nordic<br />

countries (Denmark, Finl<strong>and</strong>, Icel<strong>and</strong>, Norway, Sweden). Sent to parents <strong>of</strong> n=+/-15.000<br />

children (+/- 3.000/country) aged 2-17, in part a replication <strong>of</strong> a survey in 1984.<br />

health measures: reported chronic conditions <strong>and</strong> illness symptoms, stature<br />

SES-measures: educational attainment <strong>and</strong> occupation <strong>of</strong> both mother <strong>and</strong> father, family income<br />

• Data Food Networking (DAFNE), European food data bank based on Household Budget<br />

Surveys, information <strong>from</strong>: Belgium*, Germany, Greece*, Hungary*, Irel<strong>and</strong>, Luxemburg*,<br />

Norway, Spain* <strong>and</strong> the UK, up till now 2 periods <strong>of</strong> the project (DAFNE I & II).<br />

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health measures: food consumption<br />

SES-measures: educational level (only in * countries)<br />

• IEFS Pan-EU Surveys <strong>of</strong> Consumer Attitudes to Food-related issues, Institute <strong>of</strong><br />

European Food Studies (IEFS), is a series <strong>of</strong> cross-sectional studies in the 15 member<br />

states <strong>of</strong> the EU, with nationally representative samples <strong>of</strong> n=+/-1.000 adults (+15y) <strong>from</strong><br />

each country. The Pan-EU Survey <strong>of</strong> Consumer Attitudes to Physical Activity, Body<br />

Weight <strong>and</strong> Health (ntotal=14.331) was conducted in 1997. It was precedent in 1995-96 by<br />

the Pan-EU Survey <strong>of</strong> Consumer Attitudes to Food, Nutrition <strong>and</strong> Health<br />

(ntotal=15.239).<br />

health measures: level <strong>of</strong> physical activity, smoking behaviour, BMI, attitudes towards healthy<br />

eating, physical activity, body weight <strong>and</strong> health, availability <strong>of</strong> information about diet,<br />

perceived influences on food choice <strong>and</strong> physical activity<br />

SES-measures: level <strong>of</strong> education, occupational status<br />

Some very interesting European-wide health monitoring initiatives could not<br />

satisfactorily be linked to socio-economic measures, like the Health Surveillance<br />

System for Communicable Diseases (HSSCD, European Centre for the<br />

Epidemiological Monitoring <strong>of</strong> AIDS (CESES)), the European Home <strong>and</strong> Leisure<br />

Accident Surveillance System (EHLASS) the European School Survey Project on<br />

Alcohol <strong>and</strong> Drugs (ESPAD Survey), <strong>and</strong> the Panel Comparability Project (PACO,<br />

international comparative database integrating data <strong>from</strong> various national households<br />

panels).<br />

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