Planning CommitteePlanning Chair: Stephen P. James, M.D.DirectorDivision of Digestive <strong>Disease</strong>s and Nutrition<strong>National</strong> Institute of Diabetes and Digestiveand Kidney <strong>Disease</strong>s<strong>National</strong> Institutes of HealthBethesda, MarylandDavid Atkins, M.D., M.P.H.Chief Medical OfficerCenter for Practice and TechnologyAssessmentAgency for Healthcare Researchand QualityRockville, MarylandElsa A. BraySenior Advisor for <strong>Consensus</strong> <strong>Development</strong>Office of Medical Applications of ResearchOffice of the Director<strong>National</strong> Institutes of HealthBethesda, MarylandCharles O. Elson, M.D.Panel and Conference ChairpersonProfessor of Medicine and MicrobiologyVice Chair for ResearchDepartment of MedicineUniversity of Alabama at BirminghamBirmingham, AlabamaJames Everhart, M.D., M.P.H.Chief, Epidemiology and ClinicalTrials BranchDivision of Digestive <strong>Disease</strong>s and Nutrition<strong>National</strong> Institute of Diabetes and Digestiveand Kidney <strong>Disease</strong>s<strong>National</strong> Institutes of HealthBethesda, MarylandAlessio Fasano, M.D.Professor of Pediatrics, Medicine,and PhysiologyDirector, Mucosal Biology Research CenterCenter for <strong>Celiac</strong> ResearchUniversity of Maryland School of MedicineBaltimore, MarylandHugo Gallo-Torres, M.D.Medical Team Leader, GastrointestinalDrugsCenter for Biologics Evaluation andResearchU.S. Food and Drug AdministrationRockville, MarylandGilman D. Grave, M.D.ChiefEndocrinology, Nutrition, andGrowth Branch<strong>National</strong> Institute of Child Healthand Human <strong>Development</strong><strong>National</strong> Institutes of HealthBethesda, MarylandFrank A. Hamilton, M.D., M.P.H.ChiefDigestive <strong>Disease</strong>s <strong>Program</strong>Division of Digestive <strong>Disease</strong>s and Nutrition<strong>National</strong> Institute of Diabetes and Digestiveand Kidney <strong>Disease</strong>s<strong>National</strong> Institutes of HealthBethesda, Maryland13
Van S. Hubbard, M.D., Ph.D.DirectorDivision of Nutrition Research Coordination<strong>National</strong> Institute of Diabetes and Digestiveand Kidney <strong>Disease</strong>s<strong>National</strong> Institutes of HealthBethesda, MarylandMartin F. Kagnoff, M.D.Professor of Medicine and PediatricsCancer Biology <strong>Program</strong>University of California at San DiegoLa Jolla, CaliforniaCiaran P. Kelly, M.D.Director, <strong>Celiac</strong> CenterHerrman L. Blumgart Firm ChiefDirector, Gastroenterology FellowshipTrainingAssociate Professor of MedicineBeth Israel Deaconess Medical CenterHarvard Medical SchoolBoston, MassachusettsBarnett S. Kramer, M.D., M.P.H.DirectorOffice of Medical Applications of ResearchOffice of the Director<strong>National</strong> Institutes of HealthBethesda, MarylandKelli K. Marciel, M.A.Communications DirectorOffice of Medical Applications of ResearchOffice of the Director<strong>National</strong> Institutes of HealthBethesda, MarylandElaine MonarchFounderExecutive Director<strong>Celiac</strong> <strong>Disease</strong> FoundationStudio City, CaliforniaJoseph A. Murray, M.D.Professor of MedicineMayo ClinicRochester, MinnesotaLata S. Nerurkar, Ph.D.Senior Advisor for <strong>Consensus</strong> <strong>Development</strong>Office of Medical Applications of ResearchOffice of the Director<strong>National</strong> Institutes of HealthBethesda, MarylandKaren Patrias, M.L.S.Senior Resource SpecialistPublic Services Division<strong>National</strong> Library of Medicine<strong>National</strong> Institutes of HealthBethesda, MarylandJean Pennington, Ph.D., R.D.Research NutritionistDivision of Nutrition Research Coordination<strong>National</strong> Institute of Diabetes and Digestiveand Kidney <strong>Disease</strong>s<strong>National</strong> Institutes of HealthBethesda, MarylandMarian J. Rewers, M.D., Ph.D.ProfessorClinical DirectorBarbara Davis Center for ChildhoodDiabetesUniversity of Colorado Health SciencesCenterDenver, ColoradoSusan Rossi, Ph.D., M.P.H.Deputy DirectorOffice of Medical Applications of ResearchOffice of the Director<strong>National</strong> Institutes of HealthBethesda, Maryland14
- Page 1 and 2: NIH Consensus Development Conferenc
- Page 3 and 4: III. What Are the Manifestations an
- Page 5 and 6: • What is the management of celia
- Page 7 and 8: Monday, June 28, 2004 (continued)I.
- Page 9 and 10: Monday, June 28, 2004 (continued)II
- Page 11 and 12: Wednesday, June 30, 2004 (continued
- Page 13 and 14: Lisa H. RichardsonConsumer Represen
- Page 15: Ciaran P. Kelly, M.D.Director, Celi
- Page 19 and 20: AbstractsThe following are abstract
- Page 21 and 22: susceptibility (e.g., DR17 homozygo
- Page 23 and 24: The Pathology of Celiac DiseaseDavi
- Page 25 and 26: In this regard, the transport pathw
- Page 27 and 28: for the IgG-based test, while speci
- Page 29 and 30: 15. de Lecea A, Ribes-Koninckx C, P
- Page 31 and 32: Clinical Algorithm in Celiac Diseas
- Page 33 and 34: Considera diagnosisof celiac diseas
- Page 35 and 36: There are populations at particular
- Page 37 and 38: Serological Testing for Celiac Dise
- Page 39 and 40: Estimates of the sensitivity of the
- Page 41 and 42: the risk and severity of CD may als
- Page 43 and 44: What Are the Prevalence and Inciden
- Page 45 and 46: ascribed to excess menstrual loss.
- Page 47 and 48: ReferencesFamily History of Celiac
- Page 49 and 50: Carroccio A, Iannitto E, Cavataio F
- Page 51 and 52: identified by surveys or through so
- Page 53 and 54: Clinical Presentation of Celiac Dis
- Page 55 and 56: een widely reported. The question r
- Page 57 and 58: The Many Faces of Celiac Disease: C
- Page 59 and 60: References1. Green PH, Jabri B. Coe
- Page 61 and 62: Association of Celiac Disease and G
- Page 63 and 64: Does the Gluten-Free Diet Protect F
- Page 65 and 66: Skin Manifestations of Celiac Disea
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allow a better understanding of the
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4. Henriksson KG, Hallert C, Walan
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characterized, clinically-identifie
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10. Hoffenberg EJ, Emery LM, Barrig
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ataxia, epilepsy with posterior cer
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Consequences of Testing for Celiac
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Osteoporosis/FracturesThere were 11
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Dietary Guidelines for Celiac Disea
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21. Thompson T. Thiamin, riboflavin
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In order to effectively counsel ind
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9. Hallert C, Granno C, Hulten S, M
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adhered to the GFD after more than
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Patient education, close supervisio
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26. Mustalahti K, Lohiniemi S, Laip