A RTIKEL/ARTICLEficate, scholarships <strong>and</strong> pensions etc. Oncemost of the members had received all the benefitsthey could receive, people’s interest inthe group went down.” When asked many ofthe members said, “Now I have a certificate Igot a BPL house [5] <strong>and</strong> I am getting a pension.These three were my dem<strong>and</strong>s <strong>and</strong> I have gotall of them, so why should I go to the groupnow?”Different DPOs react to this situation in differentways. The Annai Teresa Disabled DevelopmentTrust has been exp<strong>and</strong>ing its activities tonewer Gram Panchayats <strong>and</strong> forming freshgroups along with extending their own activitiesto more varied services like vocational trainingetc. Vasantham Federation has moved to lookingat mainstream policies <strong>and</strong> initiating advocacyto ensure disabled people are included inthese programmes, while extending supportservices to any new disabled people in the areawho approach them. Both these Federationsdream of becoming NGOs themselves, withstaff <strong>and</strong> f<strong>und</strong>ing to carry on their activities.One of the reasons for this is that the role modelthey follow is the NGO that mentored them<strong>and</strong> hence their aspiration is to be as structuredas them. Livingstone of Vasantham Federationwas clear about their objectives, “We will registeras an NGO <strong>and</strong> get f<strong>und</strong>s for our activities.Our Executive Committee members should bepaid for the work they do <strong>and</strong> the time they devotefor this work.” On the other h<strong>and</strong>, PragatiFederation in Orissa was carefully steered bytheir NGO mentor towards looking not only atentitlements, but also towards solidarity, groupfeelings <strong>and</strong> cooperation. “We were asked todiscuss on how many issues like health, education,livelihood affect our lives including thoseof disabled people.”ConclusionThus, from the above discussion it is evidentthat the growth of Disabled Peoples’ Organisations(DPOs) in India is the consequence of exclusion<strong>and</strong> discriminatory practices towarddisabled people. Disabled people live isolatedlives in their own communities, with the barriersthey experience being not only attitudinal butalso structural <strong>and</strong> systemic. The physical <strong>and</strong>social exclusionary environments breed discrimination<strong>and</strong> exploitation. People with disabilities<strong>and</strong> their families are often apprehensive ofentering the social world for fear of ridicule,discriminatory <strong>and</strong> abusive behaviour <strong>and</strong> systemicrejection. The disability movement linksthe personal cultural realm to the political byraising issues that are often dismissed or ignored.Thus while the initial impetus was to encouragedisabled people “to solve their problemsthemselves <strong>and</strong> not have them solved forthem” there was also a further aim which was“to identify the needs of the membership as awhole <strong>and</strong> articulate them, both to statutoryagencies <strong>and</strong> political parties at both a local<strong>and</strong> a national level” (Oliver <strong>and</strong> Hasler 1987:116). Thus, disability politics in India has concentratedon changing government responses,changing relations at an interpersonal level <strong>and</strong>changing identities at a personal level.It is quite evident from the DPOs that werepart of this study that DPO development in Indiahas been due to external stimulation of f<strong>und</strong>ingagencies working through NGOs. DPOsare usually seen as social (human rights) movements,though this review of community-basedDPOs indicates that many of them are in factself-help groups (SHGs), trying to promoteusually some income generating activities fortheir members. Sometimes, SHGs may form federations,which can be observed in a numberof States in India. Such federations have astronger voice; they foster active citizenship <strong>and</strong>together or <strong>und</strong>er a national umbrella organisationthey may be very successful in combatinginjustices in society. What could have been, asin the west, a source of personal support <strong>and</strong>encouragement has remained mired in self-interest<strong>and</strong> individual development.The second major reason for successfulDPOs is the location within a larger frameworkof people’s struggles. In the south where thedalit movement has been very strong, thegroups have fo<strong>und</strong> it easier to internalise <strong>and</strong>rally using an identity marker with which theyhad not identified previously as a group. InOrissa also, the association with the l<strong>and</strong> rightsmovement <strong>and</strong> farmers’ struggles that have takenplace in the area has helped the disabledpeople’s organisations to benefit from their experience<strong>and</strong> strategies in successfully lobbyingfor their rights. People in the area have a preexposureto struggles <strong>and</strong> negotiations, whichpeople in many other areas do not have <strong>and</strong>this predisposes them to take initiative on theirown. On the other h<strong>and</strong>, in the north-east,disabled people are so isolated within their owncommunities because of the hilly terrain thatthey have not been able to capitalise on the experiencesof the militants groups operating inthe regions, especially Nagal<strong>and</strong>.In India, the grassroots level DPOs have utiliseda wide variety of strategies for advocacy tolay claim to their political rights, but most ofthese have been peaceful <strong>and</strong> placatory towardsthe people in positions of power. Thus,28<strong>Behinderung</strong> <strong>und</strong> <strong>internationale</strong> <strong>Entwicklung</strong> 3/2012<strong>Disability</strong> <strong>and</strong> International Development
A RTIKEL/ARTICLEthe struggles aro<strong>und</strong> disability issues stimulatedby these DPOs have never taken a radical formbut remained at the periphery, mainly becausethe disabled members themselves doubt theirown revolutionary potential. These groups <strong>and</strong>their disabled members, though united on thebasis of identity, have not been able to developa group pride in identity as in the west <strong>and</strong> inthe case of other marginalised group movements.Moreover most of these DPOs still remainat the periphery of all social activitieswithin the community, despite being lookedupon as resource for persons with disabilities.DPOs themselves have rarely broadened theirvision to move towards mainstreaming or inclusivesocieties.Notes1 Self Help Groups at the grassroots level in India havebeen the hub of small-scale economic activities. Thereare different government <strong>and</strong> non-government schemes<strong>and</strong> programmes that provide training for incomegeneration to SHGs, start-up loans <strong>and</strong> marketingsupport.2 The scheme promises food for work for rural peopleduring lean or non-agricultural season. The work,provided for 100 days every year to every household,is mainly infrastructural development like laying ofroads, digging of ponds, clearing of jungles etc.Usually disabled people are excluded from this work.However advocacy by the DPOs has ensured thatdisabled people are included in the allotment of work<strong>and</strong> also led to policy changes in some states.3 A block is a district sub-division in India.4 Panchayats are local self-governments at the villageor small town level in India.5 Houses for Below Poverty Line families provided bythe government.ReferencesOLIVER, M./HASLER, F. (1987): <strong>Disability</strong> <strong>and</strong> Self-help: ACase Study of the Spinal Injuries Association. In <strong>Disability</strong>& Society, Vol. 2, Number 2, pp. 113-125.Zusammenfassung: Während der letzten Jahre habensich in Indien Bündnisse von Menschen mit <strong>Behinderung</strong>en,bezeichnet als Disabled People’s Organisations (DPOs), auflokalen Ebenen geformt, um ortsgeb<strong>und</strong>ene Bemühungenfür die Interessensvertretung behinderter Menschen zu initiieren,um eine spürbare Veränderung im Status behinderterMenschen zu bewirken. Dieser Artikel untersucht die <strong>Entwicklung</strong><strong>und</strong> Entstehung solcher DPOs in verschiedenenTeilen Indiens <strong>und</strong> die Prozesse, wodurch diese Gruppensich für die Ziele einsetzen für die sie eingerichtet wurden.Der Artikel versucht, das Ausmaß einzuschätzen in dem esdiesen Gruppen möglich war, eine Bewegung für eine Veränderungsozialer Einstellungen an der Basis zu erreichen<strong>und</strong> die daraus resultierenden Effekte, die dies auf ihreIdentität hat, zu beleuchten.Résumé: Ces dernières années en Inde, des alliances depersonnes h<strong>and</strong>icapés, appelées Organisations de PersonnesH<strong>and</strong>icapées (OPH) ont été créées au niveau local afind’initier des actions de plaidoyer localisées, dans le but defavoriser un changement perceptible du statut des personnesh<strong>and</strong>icapées. Cet article scrute la formation et lagenèse de ces OPH en différents endroits de l’Inde et lesprocessus que ces groupes ont mis en marche pouratteindre les buts de leur création. Cet article tente d’évaluerà quel point ces organisations ont réussi à créer un mouvementpour le changement des attitudes sociales depuis labase et quel en est le résultat pour leur identité.Resumen: En los últimos años han sido creadas cada vezmás alianzas en India, formadas por personas con discapacidad,para iniciar actividades de la auto-representación enel ámbito local con el fin de mejorar significativamente suestatus social. Este artículo examina los orígenes y la génesisde tales organizaciones en diferentes partes de la Indiay los procesos con los cuales estos grupos persiguen susmetas. Se trata de valorizar si estos grupos han tenido éxitoen lograr un movimiento por el cambio en las actitudes socialesy si eso tuvo efecto positivo en relación a su identidad.Author: Dr. N<strong>and</strong>ini Ghosh is Assistant Professor atthe Institute of Development Studies Kolkata.Contact: Dr. N<strong>and</strong>ini Gosh, Assistant Professor, Instituteof Development Studies, DD 27/D Salt Lake SectorI, Kolkata 700064,E-Mail: n<strong>and</strong>inighosh@gmail.com.<strong>Behinderung</strong> <strong>und</strong> <strong>internationale</strong> <strong>Entwicklung</strong> 3/2012<strong>Disability</strong> <strong>and</strong> International Development29