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Ms Alison Hall, Head of Humanities, PHG Foundation<br />

As Head of Humanities at the PHG Foundation, Alison is actively involved in<br />

policy analysis, evaluation and implementation. Professionally qualified as a lawyer<br />

and a nurse, with a master’s qualification in health care ethics, her work focuses<br />

on ethical, legal and social issues (ELSI) in biomedical technologies, and includes<br />

regulatory and legal policy analysis and briefings on the governance of human<br />

tissue, data protection and in vitro-diagnostic devices reform. Recent work<br />

includes leading a two year policy development project working with stakeholders<br />

on the ethical, legal and societal implications of implementing genomic<br />

sequencing into clinical practice (Hall A, Finnegan T, Alberg C, PHG Foundation<br />

(2014) Realising Genomics in Clinical Practice. ISBN 978-1-907198-15-1) and<br />

contributing legal and regulatory analysis to a report on data sharing to support<br />

clinical genetics and genomics practice (Data sharing to support UK clinical<br />

genetics and genomics services, PHG Foundation (2015) ISBN 978-1-907198-20-<br />

5). At EU policy level, with the Wellcome Trust, she has led advocacy on the<br />

genetic testing provisions in the proposed EU in vitro diagnostic devices<br />

regulation. Internationally, she has chaired a group developing a Data Sharing<br />

Lexicon as part of the regulatory and ethics activities of the Global Alliance for<br />

Genomics and Health. She has also co-authored PHG Foundation reports on<br />

ethical, legal and societal impacts of biotechnological advances including genomic<br />

stratification in cancer prevention and non-invasive prenatal diagnosis, and has<br />

over 20 peer-reviewed publications. Nationally, she has contributed to<br />

professional guidance including ‘Consent and Confidentiality in Clinical Genetic<br />

Practice’ published by the UK Joint Committee on Genomics in Medicine. She<br />

is currently on the UK Data Access Committee for METADAC, on the ethics<br />

and policy committee of the British Society for Genetic Medicine, and is a lay<br />

member of an NHS research ethics committee.<br />

Dr Chih-Hsing Ho, Assistant Professor/Assistant Research Fellow,<br />

Academia Sinica, Taiwan<br />

Chih-hsing Ho is Assistant Professor/Assistant Research Fellow at Academia<br />

Sinica, Taiwan. Her research focuses on the nexus of law and medicine in general,<br />

with particular attention to the governance of genomics and newly emerging<br />

biotechnologies, such as big data and biobanks. She is currently a Co-Principal<br />

Investigator for a health cloud project in Taiwan, and is responsible for designing<br />

an adequate regulatory framework for the secondary use of personal data and<br />

health-related data linkage. She holds a Ph.D. in law from the London School of<br />

Economics (LSE) where she was an Olive Stone Scholar. She obtained her first<br />

law degree from Taiwan, and later received her LLM from Columbia Law School<br />

and a JSM from Stanford University. Before moving back to Taipei in 2014, she<br />

had been working at the Centre for Medical Ethics and Law (CMEL) at the<br />

University of Hong Kong.<br />

PRECISION MEDICINE: LEGAL AND ETHICAL CHALLENGES 14

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