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Low vision in the 21st century<br />
BY NAOMI MELTZER*<br />
Last century, low vision services were regarded<br />
as a last resort and an admission of failure.<br />
Generally, when patients enquired as to<br />
whether there was anything available to help<br />
them see, the answer was either a tentative, ‘you<br />
could buy a magnifier’ or a more defensive, ‘you’re<br />
not bad enough for that yet’.<br />
When medical and surgical options ran out,<br />
the patient was dismissed with ‘there is nothing<br />
more that can be done, sorry’. This was effective<br />
at getting the patient out the door, but left them<br />
emotionally and physically stranded, unable to<br />
comprehend how to function visually when they<br />
were neither blind nor seeing. More patients were<br />
rendered functionally “blind” by this statement<br />
than by any other documented pathology and,<br />
sadly, many continue to exist in this state today,<br />
convinced this statement remains true as it was<br />
given by those they trusted.<br />
For some, this attitude has continued into this<br />
century, despite huge changes in medical, optical<br />
and electronic technology, and the current view<br />
of low vision as a spectrum of functional changes<br />
that occur along the pathway between normal<br />
vision and no light perception. A few weeks after I<br />
started my low vision practice in 2011, I ran into an<br />
ophthalmological colleague who told me, ‘I hope<br />
you never get to see any of my patients!’ But for<br />
many, there has been a shift in thinking towards<br />
understanding that visual function cannot be<br />
defined by the size of letter read on a high-contrast<br />
distance chart or a monocular electronic visual field<br />
analysis; and visual rehabilitation does not mean<br />
restoring vision to normal, but the rehabilitation<br />
of a person with visual loss to function within their<br />
family, whanau, community or workplace.<br />
Much of this change has been driven by the<br />
realisation that even with the amazing advances<br />
in medical science in the management of<br />
ongoing problems such as glaucoma, macular<br />
degeneration or other retinopathies, it is just that<br />
– management of the condition – not restoration<br />
of normal visual function. Thus, the best outcomes<br />
are obtained when patients are given as much<br />
information as possible on the range and type of<br />
additional services available to them sooner rather<br />
than later when all else has failed.<br />
Times are changing for low vision patients, and about time too<br />
Today, the modern low vision consultation reviews<br />
how a patient with low or declining vision functions<br />
in their everyday environment and how we can help<br />
them use the vision they have more efficiently to<br />
manage their day-to-day activities. This involves<br />
taking a holistic view incorporating their general<br />
health, and the impact of perhaps other health<br />
problems such as stroke, Parkinson’s or diabetes<br />
on their visual functioning; and their physical<br />
environment – are they confined to one, poorly-lit<br />
room in a rest home or actively participating in<br />
sport or looking after other family members? Does<br />
their visual problem extend to passive reading or<br />
do they have other needs such as mobility or glare<br />
control? Is there a history of amblyopia, binocular<br />
vision instability or balance problems that has been<br />
forgotten along the way or considered irrelevant due<br />
to the patient’s poor distance acuity? Has the need<br />
for prescription glasses to focus at near range been<br />
overlooked as their vision deteriorated? Or do they<br />
perhaps simply need reassurance there are options<br />
available to help them if and when they need it?<br />
A functional, low vision consultation helps assess<br />
each patient on an individual, case-by-case basis,<br />
going way beyond the ‘let’s see if a magnifier will<br />
help’ approach.<br />
Recently, a request for assistance from a resource<br />
teacher brought home to me how much a bit of<br />
lateral thinking and a good stock of low vision<br />
aids can change an<br />
otherwise ordinary<br />
day. A 12-year-old<br />
boy with low vision<br />
due to retinopathy<br />
of prematurity, copes<br />
well in the classroom<br />
with just his spectacle<br />
prescription correcting<br />
his hypermetropia and<br />
high cyls plus a closeworking<br />
distance to<br />
use his accommodation<br />
for extra magnification.<br />
However, given he was<br />
starting woodwork<br />
and sewing and would<br />
have to use sewing<br />
machines, fretsaws and<br />
grinding machines and the like, the resource teacher<br />
was on the hunt for some additional magnification<br />
for him.<br />
She had found a magnifier attached to a<br />
goose neck stand, but this got in the way of the<br />
student and couldn’t be moved easily from one<br />
piece of equipment to another. The boy was also<br />
required to wear safety glasses for the woodwork<br />
equipment so an initial idea to use a head loupe<br />
was a non-starter, while a large magnifier on a<br />
tilting wire frame, ‘just got in the way’. We settled<br />
on a hands-free “embroidery” magnifier, which<br />
sits against his chest with a cord around his neck<br />
and is LED-illuminated. While only providing 2x<br />
magnification (he needs 3.5x to read a mm ruler)<br />
it was sufficient to help him see the needle or the<br />
blade of the saw at a normal working distance.<br />
What was exciting however, was watching the<br />
student. He was like a kid in a candy store trying out<br />
all my high-tech and low-tech electronic stuff. In his<br />
lifetime, he will no doubt use way more high-tech<br />
aids than are available today, but this exercise at<br />
least showed both of us, how a simple low-tech, lowcost<br />
magnifier and a good dollop of lateral thinking<br />
can triumph. A very satisfying outcome all round. ▀<br />
*After 30 years in general optometry,<br />
Naomi Meltzer realised her passion<br />
lay in visual rehabilitation and now<br />
runs an independent, low vision<br />
consultancy service in Auckland. She is<br />
a MDNZ founding trustee, a qualified<br />
CentraSight and eSight assessor and<br />
OrCam trainer. For more, see the Low<br />
Vision Services classified on p26.<br />
Tackling trachoma and<br />
other NTDs<br />
BY ELLA EWENS<br />
In December 2017, Dr Martin Kollmann, a<br />
consultant ophthalmologist and associate<br />
professor at the University of Nairobi, travelled<br />
to New Zealand to address delegates from the<br />
partnerships, humanitarian and multilateral<br />
division of the New Zealand aid programme at the<br />
Ministry of Foreign Affairs and Trade (MFAT). The<br />
main aim of the visit was to build awareness of the<br />
link between neglected tropical diseases (NTDs)<br />
and poverty and demonstrate how tackling NTDs<br />
is key to a region’s socio-economic development.<br />
Dr Kollman, a senior advisor on NTDs for the<br />
international charity CBM (formerly the Christian<br />
Blind Mission), was accompanied by CBM NZ<br />
chief executive, Stephen Hunt, and international<br />
programmes manager, Linabel Hadlee.<br />
NTDs are a diverse group of tropical infections,<br />
especially prevalent in low-income populations in<br />
developing regions. They are caused by a variety<br />
of pathogens such as viruses, bacteria, protozoa<br />
and helminths. The disabling and debilitating<br />
effects of NTDs include blindness, mobility<br />
impairment, preventing children’s growth and<br />
development, malnutrition and extreme pain.<br />
They are labelled ‘neglected’ because they affect<br />
communities in extreme poverty. In some cases,<br />
the uncontrolled spread of NTDs has resulted<br />
in pastoral communities abandoning their land<br />
to escape the transmitting pathogen but, as a<br />
result of NTD control programmes, in more recent<br />
times 25 million hectares of arable land has been<br />
regained, feeding 17 million people annually.<br />
Two of the most common blinding NTDs are<br />
onchocerciasis (river blindness), found in Africa<br />
and some parts of the Americas, and trachoma,<br />
the leading cause of infectious blindness in<br />
humans, caused by infection with the bacterium<br />
Chlamydia trachomatis, which is still found in<br />
Africa, the Americas, Asia, the Middle East and<br />
the Pacific. Ethiopia carries 39% of the global<br />
trachoma burden, with an estimated 74 million<br />
people at risk and 40% of children aged 1-9<br />
infected. Women are highly susceptible due to<br />
greater exposure to young children, who typically<br />
spread the disease. Trachoma is active in the<br />
Pacific, particularly Papua New Guinea and<br />
Australia in remote communities.<br />
A doctor treats a trachoma sufferer in Ethiopia<br />
Blindness from trachoma is irreversible. Infection<br />
is spread through personal contact and by flies<br />
that have been in contact with facial discharges<br />
from an infected person. With repeated episodes of<br />
infection over many years, a sufferer’s eyelashes may<br />
be drawn in so they rub on the surface of the eye,<br />
causing pain and permanent damage to the cornea.<br />
CBM supports NTD control and elimination<br />
programmes in 12 countries promoting the<br />
SAFE (surgery, antibiotics, facial cleanliness<br />
and environmental educational) strategy at<br />
a community level. Over the last 12 years,<br />
CBM has funded nearly 16 million mass drug<br />
administration projects and almost 900,000<br />
trachoma surgeries. CBM has also supported the<br />
training and education of more than 83 million<br />
health and community workers.<br />
At his meeting with MFAT, Dr Kollmann<br />
showcased a CBM-funded programme in<br />
Amhara, Ethiopia which received an award for<br />
its innovative approach embracing community<br />
engagement and ownership. International aid will<br />
not achieve its sustainable development goals<br />
with an economic focus only, he said, but must<br />
also focus on preventing and eliminating NTDs to<br />
be successful.<br />
Although NTD interventions have proved to<br />
be very cost-effective, globally only 0.6% of<br />
health expenditure targets NTDs, hence CBM’s<br />
government awareness programme, which wants<br />
aid givers to target more aid towards health to<br />
support more NTD elimination programmes. This<br />
will represent a tangible benefit for children,<br />
women and adults; solidly contributing to poverty<br />
eradication and sustainable development goals,<br />
explained Dr Kollman.<br />
Dr Martin Kollmann<br />
Dr Martin Kollmann, a consultant ophthalmologist and associate professor at<br />
the University Nairobi, is a senior CBM advisor, coordinating global activities<br />
in the fight against diseases of poverty and inequity. He studied human<br />
medicine in Germany and worked for three years with the German volunteer<br />
service, DED, in rural hospitals in Ethiopia before completing his training in<br />
ophthalmology at Munich University. He holds a degree in tropical medicine<br />
and medical parasitology and an MBA in healthcare management. Today,<br />
at the University of Nairobi Institute of Tropical and Infectious Diseases,<br />
Dr Kollmann trains postgraduates, undergraduates and mid-level eye care<br />
Dr Martin Kollmann, raising<br />
awareness of trachoma and other<br />
NTDs<br />
professionals and is heavily involved in research. He has also developed an innovative sponsorship<br />
programme, which supports training for young Africans at recognised institutions in the region.<br />
8 NEW ZEALAND OPTICS <strong>April</strong> <strong>2018</strong>