MDF Magazine Issue 64 April 2021

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From The Editor:Mother Nature showed us a couple of weeks ago with the heavy rain that it is timefor renewal and rebirth. Rain can symbolize a good thing coming after a bad timeor it can just mean the washing away of the old and re-growing of something better.The year 2020 was quite a difficult one for most of us. The coronavirus pandemichas left quite a lasting impact on most of our lives and unfortunately will continueto affect our lives for some time to come. Now that we have entered 2021, we musttry our best to let 2020 become a memory and celebrate the New Year with joy andhappiness. This is however quite a tall order. My best advice is to hold on to hopeand persevere for a brighter and better tomorrow.In this edition you can read about the significance of muscular dystrophy and theFerrari Dino and, as usual, there is also enlightening information about musculardystrophy and research being conducted.If there is information that you would like to share with our readers, please feel freeto contact the office.RegardsGerda Brown“The doors of MDFSA are alwaysopen if you need to talk or justdrop in for a cup of coffee.”4A family of thick knee kiewietsreally took our invitation to heartand made our garden their home.
MDF Notice BoardSubscription and contributions to themagazineIf you have any feedback on ourpublications, please contact theNational Office by e-mail at national@mdsa.org.za or call 011 472-9703.If you are interested in sharing yourinspirational stories, please let usknow and we'll be in touch to discussthis with you. The Foundation wouldlove to hear from affected members,friends, family, doctors, researchersor anyone interested in contributing tothe magazine. Articles may be editedfor space and clarity.MDF SA databaseIf you know people affected bymuscular dystrophy or neuromusculardisorders who are not members,please ask them to contact us so thatwe can register them on our database.If we do not have your current e-mailand postal address, please contactyour branch so that we can updateyour details on our database.How can you help?Contact the National Office or yournearest branch of the MuscularDystrophy Foundation of South Africato find out how you can help withfundraising events for those affectedwith muscular dystrophy.FundraisingCrossbow Marketing Consultants(Pty) Ltd are doing invaluable workthrough the selling of annual forwardplanners. These products can beordered from Crossbow on 021700-6500. For enquiries contact theNational Office by e-mail at national@mdsa.org.za or call 011 472-9703.Contact the National Office or yournearest branch, or visit our website,to find out how you can support theFoundation.MDF support informationFor more information about the Muscular Dystrophy Foundation, thebenefits of being a member and details on how to become a member, callyour nearest branch.NATIONAL OFFICEE-mail: gmnational@mdsa.org.zaWebsite: www.mdsa.org.zaTel: 011 472-9703Address: 12 Botes Street, FloridaPark, 1709Banking details: Nedbank, currentaccount no. 1958502049, branchcode 198765CAPE BRANCH (Western Cape,Northern Cape & part of EasternCape)E-mail: cape@mdsa.org.zaTel: 021 592-7306Fax: 086 535 1387Address: 3 Wiener Street,Goodwood, 7460Banking details: Nedbank, currentaccount no. 2011007631, branchcode 101109GAUTENG BRANCH (Gauteng,Free State, Mpumalanga, Limpopo& North West)E-mail: gauteng@mdsa.org.zaWebsite: www.mdfgauteng.orgWebsite: www.muscleriders.co.zaTel: 011 472-9824Fax: 086 646 9118Address: 12 Botes Street, FloridaPark, 1709Banking details: Nedbank, currentaccount no. 1958323284, branchcode 192841Pretoria OfficeE-mail: swpta@mdsa.org.zaTel: 012 323-4462Address: 8 Dr Savage Road,Prinshof, PretoriaKZN BRANCH (KZN & part ofEastern Cape)E-mail: kzn@mdsa.org.zaTel: 031 332-0211Address: Office 7, 24 Somtseu Road,Durban, 4000Banking details: Nedbank, currentaccount no. 1069431362, branchcode 198765General MD InformationCape TownLee LeithTel: 021 794-5737E-mail: leeleith@mweb.co.zaDuchenne MDCapeWin van der Berg (Support Group)Tel: 021 557-1423GautengJan Ferreira (Support Group– Pretoria)Cell: 084 702 5290Christine WinslowCell: 082 608 4820Charcot-Marie-Tooth (CMT)Hettie WoehlerCell: 079 885 2512E-mail: hettie.woehler@gmail.comFacioscapulohumeral (FSHD)Gerda BrownTel: 079 594 9191E-mail: gmnational@mdsa.org.zaFriedreich’s Ataxia (FA)Linda PrykeCell no: 084 405 1169Nemaline MyopathyAdri HaxtonTel: 011 802-7985Spinal Muscular Atrophy (SMA)Zeta StarogradTel: 011 640-1531Lucie SwanepoelTel: 017 683-02875
Page 1 and 2: MAGAZINEAutumn Issue 64April 202125
Page 3: CONTENTSMDF MAGAZINEMD Information1
Page 7 and 8: MDF merchandisePlease email your or
Page 9 and 10: By Erica ZahnPublished online byPat
Page 11 and 12: MD Informationthis when exercising:
Page 13 and 14: MD InformationIn summary:What type
Page 15 and 16: MD Information25 QUESTIONS ABOUT FS
Page 17 and 18: MD Informationin mild degree with F
Page 19 and 20: MD Informationsatisfactory medical
Page 21 and 22: MD Informationplace where nerve cel
Page 23 and 24: MD Informationbetween nerves and mu
Page 25 and 26: TRAVELprofile interrupted only by l
Page 27 and 28: PEOPLEVOICE FROM THE WHEELCHAIRBy R
Page 29 and 30: PEOPLEreach a certain age. But I be
Page 31 and 32: PEOPLEthe dudes sat down to talk ab
Page 33 and 34: PEOPLEKyle: The topics are really w
Page 35 and 36: Against this backdrop, how do we co
Page 37 and 38: It's the bits in between that areof
Page 39 and 40: Doctor’s ColumnProf Amanda Krause
Page 41 and 42: ‒ but it doesn’t have to be spo
Page 43 and 44: RESEARCHSCIENTISTS EDGE CLOSERTO TR
Page 45 and 46: Healthy LivingStill, based on the e
Page 47 and 48: Healthy LivingMEDITATION ANDNEUROMU
Page 49 and 50: Healthy LivingWHAT IS IT LIKE LIVIN
Page 51 and 52: Healthy Livingclinical trial for a
Page 53 and 54: KZN BRANCH NEWSKZN Gets its WheelsT
Page 55 and 56:
Gauteng Branch NewsShe spent the la
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MDF Magazine Issue 64 April 2021

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