1. Guidelines Best Practice 2023

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CONTENT PAGE WELCOME 2 WHAT IS THE CHARITY ALL ABOUT 2 THE CHARITIES AIMS 2 VOLUNTEER GUIDELINES 3 ACCEPTING GIFTS OR TIPS 3 MONITORING & FEEDBACK 3 EXPENSES 3 POSSIBLE CHALLENGES 3 IF YOU ARE DELAYED OR UNABLE TO ATTEND 3 YOU ARE UNWELL 3 COMMUNICATION PROBLEMS 4 A PATIENT/CAREGIVER BECOMES UNWELL 4 FIRST AID REQUIREMENTS 4 ABOUT THE CHARITIES SUPPORT 4 HOW TO RESPOND 5 APPROPRIATE RESPONSES 5/6 SELF-CARE 6 STRESSORS INCLUDE 7 RELAXATION TECHNIQUES 7 COMPLAINTS PROCEDURE 8 GROUP LEAD BEST PRACTICE 8 THE MEETING ROOM 8/9 DISPLAYS 9 SPEAKERS 10 PAPERWORK 10/11 LEADING A MEETING 11/12/13 VOLUNTEER ROLE 13/14 FUNDRAISING 14 TYPES OF TREATMENT 15/16/17 CONTACT DETAILS 18 CONFIDENTIAL STATEMENT 19 HARD COPIES OF PAPERWORK 20 Doc 1 *Updated: 12 th January <strong>2023</strong> cc 1
Welcome to the family! It is great to have you as part of our team!! This is your support group folder for reference, with necessary documentation and best practice guidelines for leading one of our Patient & Caregiver Support Groups - this information may be updated from time to time. What is the charity all about? At the charity we know that a cancer diagnosis and treatment can be a very difficult, and sometimes harrowing experience, many people feel out of control, lose their self-value or feel isolated. Cancer treatment is often difficult to cope with and takes a physical toll on the body. The charity was established to enable Head & Neck cancer patients and their caregivers to take time out to meet like-minded people and share experiences in a relaxed environment. We are known as “The Swallows Head and Neck Cancer Group charity” because of the difficulty a lot of people have with swallowing, during and post treatment. Helping patients and caregivers develop a sense of well-being, improving quality of life and increasing self-worth are central aims of the charity. We reach out and offer support 24/7 and will signpost if that’s what you need. The Charity is run by patients, caregivers, family and friends, so everyone understands the challenges that can occur when you are diagnosed with Head & Neck Cancer. The charities aims. • Help each other and anyone else who is affected, directly or indirectly, by this type of cancer. • One to one or group support. • Be available in Clinics to help patients and caregivers as required. • Advise on locating reliable literature, information and locally available resources. • Signpost links to other groups in different areas and recommend trusted websites for people at home. • Raise funds for items to help both patients and caregivers. • 24/7 help line answered by patients and caregivers, offering a like-minded person to talk to. Below are examples of just some of the ways our volunteers help and make a real difference to people affected by cancer. • Group Leads running our monthly support groups. • Group Assistants at our monthly support groups. • Awareness - distribute leaflets/info to local GP surgeries/dental practices. • Help with taking patients to hospital appointments. • Join us at fundraising events across the country. • Assist in acquiring items for raffle prizes at events. • Encourage local employers/business to have us as their nominated charity for the year. • Donate to the charity shop based in Blackpool if in your area. • Raising funds through sponsored activities/events. • Doc 1 *Updated: 12 th January <strong>2023</strong> cc 2
Page 1: 2023 Support Group BEST PRACTICE GU
Page 5 and 6: Communication problems. There are a
Page 7 and 8: SELF-CARE • The patient/caregiver
Page 9 and 10: Complaints Procedure The Charity is
Page 11 and 12: Speakers You will have lots of idea
Page 13 and 14: Welcome • As the members arrive t
Page 15 and 16: Volunteers will receive the same gu
Page 17 and 18: • Diarrhoea and constipation •
Page 19 and 20: Contact details. The Swallows Head
Page 21: Hard Copies of Paperwork Reorder co

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