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Reconceptualization of the Uncertainty in Illness Theory

Reconceptualization of the Uncertainty in Illness Theory

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concentrated s<strong>in</strong>ce uncerta<strong>in</strong>ty is a source <strong>of</strong> a nonl<strong>in</strong>ear<br />

reaction. The existence <strong>of</strong> uncerta<strong>in</strong>ty <strong>in</strong> one area <strong>of</strong> illness<br />

<strong>of</strong>ten feeds back on itself and generates fur<strong>the</strong>r uncerta<strong>in</strong>ty <strong>in</strong><br />

o<strong>the</strong>r illness-related events. For example, uncerta<strong>in</strong>ty about<br />

how a treatment works to combat an illness creates<br />

uncerta<strong>in</strong>ties surround<strong>in</strong>g <strong>the</strong> reasons for symptoms that<br />

exist. Are <strong>the</strong> symptoms <strong>the</strong> result <strong>of</strong> <strong>the</strong> orig<strong>in</strong>al illness or<br />

residuals <strong>of</strong> treatment? Also, <strong>in</strong> illness lack<strong>in</strong>g a specific<br />

etiology, neutral elements <strong>of</strong> a person's life become imbued<br />

with <strong>the</strong> potential for caus<strong>in</strong>g illness exacerbation. Because<br />

uncerta<strong>in</strong>ty <strong>in</strong> illness can become <strong>in</strong>volved <strong>in</strong> its own syn<strong>the</strong>sis,<br />

accord<strong>in</strong>g to chaos <strong>the</strong>ory, it qualifies as a catalytic loop. As<br />

<strong>the</strong> concentration <strong>of</strong> <strong>the</strong> uncerta<strong>in</strong>ty expands, it can exceed<br />

<strong>the</strong> person's level <strong>of</strong> tolerance—<strong>the</strong> critical threshold caus<strong>in</strong>g<br />

<strong>the</strong> personal system to become unstable. The degree <strong>of</strong><br />

disorder or entropy is calculated from <strong>the</strong> flux and <strong>the</strong> forces.<br />

Flux equates with <strong>the</strong> uncerta<strong>in</strong>ty, and forces are <strong>the</strong><br />

significance <strong>of</strong> <strong>the</strong> life areas <strong>in</strong>fluenced by <strong>the</strong> uncerta<strong>in</strong>ty.<br />

The significance <strong>of</strong> <strong>the</strong>se areas and <strong>the</strong>ir priority <strong>in</strong> one's life<br />

would account for <strong>the</strong> force with which uncerta<strong>in</strong>ty impacts on<br />

<strong>the</strong> person's life.<br />

Liv<strong>in</strong>g with Cont<strong>in</strong>ual <strong>Uncerta<strong>in</strong>ty</strong><br />

If <strong>the</strong> uncerta<strong>in</strong>ty endures and cannot be elim<strong>in</strong>ated, <strong>the</strong><br />

length <strong>of</strong> time <strong>the</strong> flux <strong>of</strong> uncerta<strong>in</strong>ty exists is likely to<br />

enhance <strong>the</strong> sense <strong>of</strong> disorganization, promot<strong>in</strong>g a high<br />

level <strong>of</strong> <strong>in</strong>stability. Abid<strong>in</strong>g uncerta<strong>in</strong>ty can dismantle <strong>the</strong><br />

exist<strong>in</strong>g cognitive structures that give mean<strong>in</strong>g to everyday<br />

events. Accord<strong>in</strong>g to Antonovsky (1987), for life to appear<br />

coherent, <strong>the</strong> events compris<strong>in</strong>g one's life must be structured,<br />

ordered and predictable. When <strong>the</strong> stimuli associated<br />

with illness, treatment and recovery are vague, ill-def<strong>in</strong>ed,<br />

probabilistic, ambiguous and unpredictable, (i.e., uncerta<strong>in</strong>)<br />

<strong>the</strong> sense <strong>of</strong> coherence is lost. This loss <strong>of</strong> mean<strong>in</strong>g<br />

throws <strong>the</strong> person <strong>in</strong>to a state <strong>of</strong> confusion and disorganization.<br />

The turbulence <strong>in</strong> <strong>the</strong> system demonstrative <strong>of</strong> chaos is<br />

proposed to be proportional to <strong>the</strong> uncerta<strong>in</strong>ty experienced by<br />

<strong>the</strong> patient.<br />

The uncerta<strong>in</strong>ty <strong>in</strong> <strong>the</strong> illness situation is <strong>the</strong> source <strong>of</strong> a<br />

flux that shifts <strong>the</strong> person from an orig<strong>in</strong>al position through a<br />

po<strong>in</strong>t <strong>of</strong> bifurcation toward a new state. Because <strong>of</strong> <strong>the</strong><br />

predom<strong>in</strong>ant sense and display <strong>of</strong> disorder, <strong>the</strong> existence <strong>of</strong> a<br />

new state is not observable. At <strong>the</strong> time <strong>of</strong> disorder at <strong>the</strong><br />

macroscopic level, when <strong>the</strong> uncerta<strong>in</strong>ty appears <strong>the</strong> highest,<br />

some early structur<strong>in</strong>g <strong>of</strong> a new value system is occurr<strong>in</strong>g,<br />

imperceivable but exist<strong>in</strong>g at <strong>the</strong> microscopic level. Thus<br />

uncerta<strong>in</strong>ty may be a condition under which a person can<br />

make a transition dur<strong>in</strong>g illness from one perspective <strong>of</strong> life<br />

toward a new, higher order, a more complex orientation<br />

toward life.<br />

In all cases where this conceptualization is applied, one<br />

has to determ<strong>in</strong>e <strong>the</strong> necessary threshold <strong>of</strong> <strong>the</strong> uncerta<strong>in</strong>ty<br />

plus <strong>the</strong> essential time period for <strong>the</strong> flux to lead to a new<br />

perspective on life. It is likely this will differ across <strong>in</strong>dividuals<br />

and cl<strong>in</strong>ical situations. Yet <strong>the</strong> uncerta<strong>in</strong>ty will <strong>in</strong>fluence <strong>the</strong><br />

development <strong>of</strong> this perspective <strong>in</strong> <strong>the</strong> person because chaos<br />

<strong>the</strong>ory predicts <strong>the</strong> nature <strong>of</strong> <strong>the</strong> fluctuation <strong>in</strong>fluences <strong>the</strong><br />

develop<strong>in</strong>g order. The new view <strong>of</strong> life will also develop from<br />

<strong>in</strong>teraction with and exchange between <strong>the</strong> person and <strong>the</strong><br />

external environment. Chaos <strong>the</strong>ory states history, boundary<br />

conditions and external fields will <strong>in</strong>fluence <strong>the</strong> system's<br />

development <strong>of</strong> a new state <strong>of</strong> more complex order. Factors<br />

that <strong>in</strong>fluence <strong>the</strong> formation <strong>of</strong> <strong>the</strong> new orientation toward<br />

260<br />

_ State <strong>of</strong> <strong>the</strong> Science<br />

life <strong>in</strong> <strong>the</strong> ill person at <strong>the</strong> peak level <strong>of</strong> <strong>in</strong>stability are prior<br />

life experience, physiological status, social resources and<br />

health care providers.<br />

In <strong>the</strong> styl<strong>in</strong>g <strong>of</strong> <strong>the</strong> new perspective on life, a dynamic<br />

process occurs, with <strong>in</strong>put from <strong>the</strong> social resources and<br />

health care providers. Patients attempt to <strong>in</strong>tegrate <strong>the</strong><br />

experience <strong>of</strong> chronic uncerta<strong>in</strong>ty <strong>in</strong>to <strong>the</strong>ir self-structure.<br />

The process <strong>in</strong>s natural one unless it is blocked or prolonged.<br />

Horowitz (1979) <strong>of</strong>fers <strong>the</strong> concept <strong>of</strong> "completion<br />

tendency," which seems to expla<strong>in</strong> <strong>the</strong> <strong>in</strong>tegrative cognitive<br />

process. The patient cognitively reworks <strong>the</strong> evaluation <strong>of</strong><br />

uncerta<strong>in</strong>ty from be<strong>in</strong>g aversive <strong>in</strong>to be<strong>in</strong>g opportunistic by<br />

gradual approximation. The cognitive tasks <strong>of</strong> assimilation<br />

and accommodation cont<strong>in</strong>ue until <strong>the</strong> cognitive models<br />

change so that reality and models achieve harmony. At<br />

completion, <strong>the</strong> experience <strong>in</strong> <strong>in</strong>tegrated <strong>in</strong>to <strong>the</strong> view <strong>of</strong> <strong>the</strong><br />

self and <strong>the</strong> view <strong>of</strong> <strong>the</strong> world (Green, Wilson & L<strong>in</strong>dy,<br />

1985). This process is natural and is fueled by <strong>the</strong> attractor <strong>of</strong><br />

<strong>the</strong> human need to cognitively structure life events.<br />

Outcome <strong>of</strong> Chronic <strong>Uncerta<strong>in</strong>ty</strong>—A New View<br />

The uncerta<strong>in</strong>ty that early <strong>in</strong> <strong>the</strong> illness was <strong>the</strong> source <strong>of</strong><br />

fluctuation and disruption later <strong>in</strong> <strong>the</strong> illness becomes <strong>the</strong><br />

foundation on which <strong>the</strong> new sense <strong>of</strong> order is constructed.<br />

The uncerta<strong>in</strong>ty is used by <strong>in</strong>dividuals as <strong>the</strong> basis for selforganization<br />

as <strong>the</strong>y reformulate <strong>the</strong>ir view <strong>of</strong> life. The new<br />

state <strong>of</strong> order has a new world view <strong>in</strong>volv<strong>in</strong>g probabilistic<br />

and conditional th<strong>in</strong>k<strong>in</strong>g- This new world view is not <strong>the</strong><br />

positively oriented illusions generated from uncerta<strong>in</strong>ty as<br />

described <strong>in</strong> <strong>the</strong> orig<strong>in</strong>al <strong>the</strong>ory <strong>of</strong> uncerta<strong>in</strong>ty <strong>in</strong> illness.<br />

To develop probabilistic th<strong>in</strong>k<strong>in</strong>g, <strong>the</strong> nature <strong>of</strong> uncerta<strong>in</strong>ty<br />

has to be accepted as <strong>the</strong> natural rhythm to life. The<br />

expectation <strong>of</strong> cont<strong>in</strong>ual certa<strong>in</strong>ty and predictability is<br />

abandoned as a part <strong>of</strong> reality. Belief <strong>in</strong> a conditional world<br />

opens up <strong>the</strong> consideration <strong>of</strong> multiple possibilities s<strong>in</strong>ce<br />

certa<strong>in</strong>ty is not absolute. When probabilistic th<strong>in</strong>k<strong>in</strong>g is<br />

used, events are seen as <strong>the</strong> result <strong>of</strong> various cont<strong>in</strong>gencies,<br />

and differentially effective responses are considered. Effectiveness<br />

<strong>of</strong> one's actions is appraised <strong>in</strong> terms <strong>of</strong> vary<strong>in</strong>g<br />

probabilities for success. There is a new ability to focus on<br />

multiple alternatives, choices and possibilities; to reevaluate<br />

what is important <strong>in</strong> life; to consider variations <strong>in</strong> personal<br />

<strong>in</strong>vestment; to appreciate <strong>the</strong> fragility and impermanence <strong>of</strong><br />

life situations. The new view <strong>of</strong> life allows <strong>the</strong> evaluation <strong>of</strong><br />

uncerta<strong>in</strong>ty to be changed from danger to opportunity.<br />

In chaos <strong>the</strong>ory, when <strong>the</strong> system self-organizes a newlevel<br />

<strong>of</strong> complexity, <strong>the</strong> structure is termed "dissipative"<br />

because, to achieve a new level <strong>of</strong> stability, it exchanges<br />

disorder from <strong>the</strong> <strong>in</strong>ternal system to <strong>the</strong> environment. With<strong>in</strong><br />

<strong>the</strong> illness situation a parallel activity occurs. S<strong>in</strong>ce <strong>the</strong><br />

person with a new orientation toward life is a far-fromequilibrium<br />

system, <strong>the</strong> new view <strong>of</strong> life is fragile and it is<br />

ma<strong>in</strong>ta<strong>in</strong>ed by cont<strong>in</strong>ually express<strong>in</strong>g a negative appraisal <strong>of</strong><br />

uncerta<strong>in</strong>ty <strong>in</strong>to <strong>the</strong> environment <strong>in</strong> exchange for <strong>the</strong> view<br />

uncerta<strong>in</strong>ty allows for multiple choices; thus uncerta<strong>in</strong>ty is<br />

an opportunity. The person functions to ma<strong>in</strong>ta<strong>in</strong> this new<br />

view <strong>of</strong> life through <strong>the</strong> use <strong>of</strong> <strong>the</strong> two environmental forces<br />

<strong>of</strong> support resources and health care providers.<br />

For this new orientation toward life to be ma<strong>in</strong>ta<strong>in</strong>ed,<br />

both <strong>the</strong> social resources <strong>in</strong> a person's life and <strong>the</strong> health<br />

care providers must believe <strong>in</strong> a probabilistic paradigm<br />

ra<strong>the</strong>r than a mechanistic paradigm. If <strong>the</strong>se persons share<br />

such a view, <strong>the</strong>y can work with <strong>the</strong> patient to move with <strong>the</strong><br />

IMAGE: Journal <strong>of</strong> Nurs<strong>in</strong>g Scholarship

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