Evaluating Patient-Based Outcome Measures - NIHR Health ...

Shumaker S, Berzon RA (1995). The international
assessment of health-related quality of life: theory,
translation, measurement and analysis. Oxford:
Rapid Communications of Oxford.
Siegrist J, Junge A (1989). Conceptual and methodological
problems in research on the quality of life in
clinical medicine. Soc Sci Med;29:463–8.
Skeel RT (1989). Quality of life assessment in cancer
clinical trials – it’s time to catch up [editorial]. J Natl
Cancer Inst;81:472–3.
Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory
WM (1988). Who should measure quality of life, the
doctor or the patient? Br J Cancer;57:109–12.
Slevin ML, Stubbs L, Plant HJ, Wilson P, Gregory WM,
Armes PJ, Downer SM (1990). Attitudes to chemotherapy:
comparing views of patients with cancer with
those of doctors, nurses and general public [see
comments]. BMJ;300:1458–60.
Smith R, Dobson M (1993). Measuring utility values
for QALYs: two methodological issues. Health
Econ;2:349–55.
Sneeuw KC, Aaronson NK, Sprangers MA, Detmar SB,
Wever LD, Schornagel JH (1997). Value of caregiver
ratings in evaluating the quality of life of patients with
cancer. J Clin Oncology;15:1206–17.
Spector WD, Katz S, Murphy JB, Fulton JP (1987). The
hierarchical relationship between activities of daily living
and instrumental activities of daily living. J Chronic
Dis;40:481–9.
Spiegel JS, Leake B, Spiegel TM, Paulus HE, Kane RL,
Ward NB, et al (1988). What are we measuring? An
examination of self-reported functional status measures.
Arthritis Rheum;31:721–8.
Spiegelhalter DJ, Gore SM, Fitzpatrick R, Fletcher AE,
Jones DR, Cox DR (1992). Quality of life measures in
health care. III: resource allocation. BMJ;305:1205–9.
Spilker B (1992). Standardisation of quality of life trials.
An industry perspective. PharmacoEconomics;1:73–5.
Spilker B (1996). Quality of life and pharmacoeconomics
in clinical trials. 2nd edn. Philadelphia: Lippincott-Raven
Publishers.
Spitzer WO, Dobson AJ, Hall JA, Chesterman E, Levi J,
Shepherd R, et al (1981). Measuring the quality of life of
cancer patients: a concise QL-index for use by physicians.
J Chronic Dis;34:585–97.
Spitzer WO (1987). State of science 1986: quality of life
and functional status as target variables for research.
J Chronic Dis;40:465–71.
Sprangers MA, Aaronson NK (1992). The role of health
care providers and significant others in evaluating the
quality of life of patients with chronic disease: a review.
J Clin Epidemiol;45:743–60.
Health Technology Assessment 1998; Vol. 2: No. 14
Sprangers MA, Cull A, Bjordal K, Groenvold M,
Aaronson NK (1993). The European Organization for
Research and Treatment of Cancer. Approach to quality
of life assessment: guidelines for developing questionnaire
modules. EORTC Study Group on Quality of Life.
Qual Life Res;2:287–95.
Sprangers MA, Groenvold M, Arraras JI, Franklin J,
te Velde A, Muller M, et al (1996). The European
Organization for Research and Treatment of Cancer
breast cancer-specific quality-of-life questionnaire
module: first results from a three-country field study.
J Clin Oncology;14:2756–68.
Stalfelt AM (1994). Quality of life during induction
treatment of acute myeloid leukaemia. A comparison
of three intensive chemotherapy regimens using
three instruments for quality of life assessment.
Acta Oncol;33:477–85.
Staquet M, Berzon R, Osoba D, Machin D (1996).
Guidelines for reporting results of quality of life
assessments in clinical trials. Qual Life Res;5:496–502.
Stewart AL (1992). Conceptual and methodologic issues
in defining quality of life: state of the art. Progress in
Cardiovascular Nursing;7:3–11.
Street RL, Gold WR, McDowell T (1994). Using health
status surveys in medical consultations. Med
Care;32:732–44.
Streiner DL, Norman GR (1995). Health measurement
scales: a practical guide to their development and use.
second edition. 2nd edn. Oxford: Oxford University
Press.
Stucki G, Liang MH, Fossel AH, Katz JN (1995). Relative
responsiveness of condition-specific and generic health
status measures in degenerative lumbar spinal stenosis.
J Clin Epidemiol;48:1369–78.
Stucki G, Daltroy L, Katz JN, Johannesson M, Liang MH
(1996). Interpretation of change scores in ordinal
clinical scales and health status measures: the whole may
not equal the sum of the parts. J Clin Epidemiol;49:711–17.
Sullivan LM, Dukes KA, Harris L, Dittus RS, Greenfield S,
Kaplan SH (1995). A comparison of various methods of
collecting self-reported health outcomes data among lowincome
and minority patients. Med Care;33:AS183–94.
Sullivan M, Ahlmen M, Bjelle A (1990). Health status
assessment in rheumatoid arthritis. I. Further work
on the validity of the Sickness Impact Profile.
J Rheumatol;17:439–47.
Sutherland HJ, Dunn V, Boyd NF (1983). Measurement
of values for states of health with linear analog scales.
Med Decis Making;3:477–87.
Sutherland HJ, Lockwood GA, Boyd NF (1990). Ratings
of the importance of quality of life variables: therapeutic
implications for patients with metastatic breast cancer.
J Clin Epidemiol;43:661–6.
Sutherland HJ, Till JE (1993). Quality of life assessments
and levels of decision making: differentiating objectives.
Qual Life Res;2:297–303.
61