mjcca news - The Jewish Georgian
mjcca news - The Jewish Georgian
mjcca news - The Jewish Georgian
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September-October 2012 THE JEWISH GEORGIAN Page 25<br />
<strong>Jewish</strong> genetic screenings can identify carriers of genetic diseases<br />
In the past, parents had no way of knowing<br />
if they were carriers of a genetic disease<br />
that could threaten the health and life of their<br />
children—until it was too late and a child<br />
became sick. For <strong>Jewish</strong> individuals of Central<br />
and Eastern European descent, the potential<br />
danger is particularly great, since one in five<br />
Ashkenazi Jews is a carrier of at least one of 19<br />
different genetic diseases, many of which strike<br />
in childhood. All these diseases are devastating,<br />
incurable and can lead to early death.<br />
Today, with advances in the field of genetics,<br />
scientists have identified the gene mutations<br />
that cause these 19 inherited diseases,<br />
enabling healthy individuals who are screened<br />
before pregnancy to know whether their children<br />
may be at risk.<br />
Making screening widely available and<br />
affordable to potential carriers is the mission of<br />
the Victor Centers for Prevention of <strong>Jewish</strong><br />
Genetic Diseases. This is accomplished<br />
through <strong>Jewish</strong> community education programs<br />
and screening programs for healthy individuals<br />
at risk for being carriers of a gene<br />
mutation for any one of these diseases.<br />
Lois B. Victor, a mother who lost two<br />
daughters to a <strong>Jewish</strong> genetic disease, founded<br />
the Victor Centers for the Prevention of <strong>Jewish</strong><br />
Genetic Diseases. In 2002, the National<br />
Coordinating Office opened at Einstein<br />
Medical Center Philadelphia, part of Einstein<br />
Healthcare Network. Through the generosity of<br />
Lois Victor, other funders and Einstein<br />
Healthcare Network, the Victor Center at<br />
Einstein has screened over 2,000 young adults<br />
to date. Given this success and the ultimate<br />
goal of eradicating the <strong>Jewish</strong> Genetic<br />
Diseases, the second Victor Program opened in<br />
2005 at floating hospital for Children at Tufts<br />
Medical Center in Boston, and the third center<br />
opened at University of Miami’s Miller School<br />
of Medicine in 2007. Expansion plans for other<br />
Victor Centers across the country are in<br />
progress.<br />
A simple blood test is all that is necessary<br />
to screen for the current <strong>Jewish</strong> genetic disease<br />
panel of 19, and all at-risk individuals, including<br />
interfaith couples, should be screened, with<br />
the <strong>Jewish</strong> partner being screened first.<br />
Couples should be screened prior to each pregnancy,<br />
since with advances in testing, the list of<br />
Free to Breathe Atlanta helps fight lung cancer<br />
On August 18, local residents laced up<br />
their sneakers and joined the national movement<br />
to defeat lung cancer, at the third annual<br />
Free to Breathe Atlanta 5K Run/Walk and<br />
1-Mile Walk, at John Howell Park. Proceeds<br />
from the event went to the National Lung<br />
Cancer Partnership’s life-changing research,<br />
education, and awareness programs.<br />
Lung cancer is the leading cause of cancer<br />
death in Georgia and the United States,<br />
claiming the lives of more men and women<br />
than breast, colon, and prostate cancers combined.<br />
Free to Breathe Atlanta unites lung<br />
cancer survivors, families, friends, and advo-<br />
cates to form a community of hope, acting as<br />
a local catalyst to create change for everyone<br />
affected by the disease. This year alone, more<br />
than 40 Free to Breathe events in 26 states are<br />
bringing together tens of thousands of people<br />
to help increase awareness of the disease and<br />
raise funds for programs that help patients.<br />
“Free to Breathe events connect people<br />
whose lives have been touched by lung cancer,”<br />
said event organizer Amy Waggoner, of<br />
Decatur. “Together, we’re building a movement<br />
of people committed to finding a cure<br />
for all types of lung cancer within our lifetime.”<br />
In support of Free to Breathe Atlanta<br />
2012, 375 community members, teams, and<br />
local businesses helped to raise more than<br />
$30,700.<br />
Those who were unable to participate in<br />
Free to Breathe Atlanta can take part in the<br />
National Walk Week, November 3-9. During<br />
this week, the Partnership is inviting supporters<br />
across the country to organize teams to<br />
raise funds and show solidarity by walking<br />
around the block, around the neighborhood,<br />
or around town.<br />
For more information, visit www.freetobreathe.org.<br />
known genetic diseases for which screening is<br />
available is constantly being expanded.<br />
Community-wide screenings will be conducted<br />
at Torah Day School on September 9,<br />
10 a.m.-2:00 p.m.; Congregation B’nai Torah,<br />
October 14, 10 a.m.-4:00 p.m.; Temple Sinai,<br />
October 28, 10 a.m.-2:00 p.m.; Temple<br />
Emanuel, January 27, 2013, 10 a.m.-2:00 p.m.;<br />
and Or VeShalom on March 3, 2013, 10 a.m.-<br />
2:00 p.m.<br />
Maximum out-of-pocket cost to screen for<br />
19 genetic diseases for individuals with insurance<br />
is $25. For further information, contact<br />
Nancy at 404-561-7478 or e-mail nancy@victorcenters.org.<br />
Participants from the Free to Breathe<br />
Atlanta 2012