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mjcca news - The Jewish Georgian

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September-October 2012 THE JEWISH GEORGIAN Page 25<br />

<strong>Jewish</strong> genetic screenings can identify carriers of genetic diseases<br />

In the past, parents had no way of knowing<br />

if they were carriers of a genetic disease<br />

that could threaten the health and life of their<br />

children—until it was too late and a child<br />

became sick. For <strong>Jewish</strong> individuals of Central<br />

and Eastern European descent, the potential<br />

danger is particularly great, since one in five<br />

Ashkenazi Jews is a carrier of at least one of 19<br />

different genetic diseases, many of which strike<br />

in childhood. All these diseases are devastating,<br />

incurable and can lead to early death.<br />

Today, with advances in the field of genetics,<br />

scientists have identified the gene mutations<br />

that cause these 19 inherited diseases,<br />

enabling healthy individuals who are screened<br />

before pregnancy to know whether their children<br />

may be at risk.<br />

Making screening widely available and<br />

affordable to potential carriers is the mission of<br />

the Victor Centers for Prevention of <strong>Jewish</strong><br />

Genetic Diseases. This is accomplished<br />

through <strong>Jewish</strong> community education programs<br />

and screening programs for healthy individuals<br />

at risk for being carriers of a gene<br />

mutation for any one of these diseases.<br />

Lois B. Victor, a mother who lost two<br />

daughters to a <strong>Jewish</strong> genetic disease, founded<br />

the Victor Centers for the Prevention of <strong>Jewish</strong><br />

Genetic Diseases. In 2002, the National<br />

Coordinating Office opened at Einstein<br />

Medical Center Philadelphia, part of Einstein<br />

Healthcare Network. Through the generosity of<br />

Lois Victor, other funders and Einstein<br />

Healthcare Network, the Victor Center at<br />

Einstein has screened over 2,000 young adults<br />

to date. Given this success and the ultimate<br />

goal of eradicating the <strong>Jewish</strong> Genetic<br />

Diseases, the second Victor Program opened in<br />

2005 at floating hospital for Children at Tufts<br />

Medical Center in Boston, and the third center<br />

opened at University of Miami’s Miller School<br />

of Medicine in 2007. Expansion plans for other<br />

Victor Centers across the country are in<br />

progress.<br />

A simple blood test is all that is necessary<br />

to screen for the current <strong>Jewish</strong> genetic disease<br />

panel of 19, and all at-risk individuals, including<br />

interfaith couples, should be screened, with<br />

the <strong>Jewish</strong> partner being screened first.<br />

Couples should be screened prior to each pregnancy,<br />

since with advances in testing, the list of<br />

Free to Breathe Atlanta helps fight lung cancer<br />

On August 18, local residents laced up<br />

their sneakers and joined the national movement<br />

to defeat lung cancer, at the third annual<br />

Free to Breathe Atlanta 5K Run/Walk and<br />

1-Mile Walk, at John Howell Park. Proceeds<br />

from the event went to the National Lung<br />

Cancer Partnership’s life-changing research,<br />

education, and awareness programs.<br />

Lung cancer is the leading cause of cancer<br />

death in Georgia and the United States,<br />

claiming the lives of more men and women<br />

than breast, colon, and prostate cancers combined.<br />

Free to Breathe Atlanta unites lung<br />

cancer survivors, families, friends, and advo-<br />

cates to form a community of hope, acting as<br />

a local catalyst to create change for everyone<br />

affected by the disease. This year alone, more<br />

than 40 Free to Breathe events in 26 states are<br />

bringing together tens of thousands of people<br />

to help increase awareness of the disease and<br />

raise funds for programs that help patients.<br />

“Free to Breathe events connect people<br />

whose lives have been touched by lung cancer,”<br />

said event organizer Amy Waggoner, of<br />

Decatur. “Together, we’re building a movement<br />

of people committed to finding a cure<br />

for all types of lung cancer within our lifetime.”<br />

In support of Free to Breathe Atlanta<br />

2012, 375 community members, teams, and<br />

local businesses helped to raise more than<br />

$30,700.<br />

Those who were unable to participate in<br />

Free to Breathe Atlanta can take part in the<br />

National Walk Week, November 3-9. During<br />

this week, the Partnership is inviting supporters<br />

across the country to organize teams to<br />

raise funds and show solidarity by walking<br />

around the block, around the neighborhood,<br />

or around town.<br />

For more information, visit www.freetobreathe.org.<br />

known genetic diseases for which screening is<br />

available is constantly being expanded.<br />

Community-wide screenings will be conducted<br />

at Torah Day School on September 9,<br />

10 a.m.-2:00 p.m.; Congregation B’nai Torah,<br />

October 14, 10 a.m.-4:00 p.m.; Temple Sinai,<br />

October 28, 10 a.m.-2:00 p.m.; Temple<br />

Emanuel, January 27, 2013, 10 a.m.-2:00 p.m.;<br />

and Or VeShalom on March 3, 2013, 10 a.m.-<br />

2:00 p.m.<br />

Maximum out-of-pocket cost to screen for<br />

19 genetic diseases for individuals with insurance<br />

is $25. For further information, contact<br />

Nancy at 404-561-7478 or e-mail nancy@victorcenters.org.<br />

Participants from the Free to Breathe<br />

Atlanta 2012

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