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Guide to an effective human rights response to the HIV epidemic

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C. The link between hum<strong>an</strong> <strong>rights</strong> <strong>an</strong>d<br />

<strong>the</strong> <strong>HIV</strong> <strong>epidemic</strong><br />

Section C illustrates <strong>the</strong> links between hum<strong>an</strong> <strong>rights</strong> <strong>an</strong>d <strong>HIV</strong>. It especially focuses on <strong>the</strong><br />

situation of vulnerable <strong>an</strong>d marginalised groups whose exposure <strong>to</strong> <strong>HIV</strong> is heightened as a<br />

result of hum<strong>an</strong> <strong>rights</strong> violations.<br />

Unlike m<strong>an</strong>y o<strong>the</strong>r public health emergencies in<br />

<strong>the</strong> his<strong>to</strong>ry of hum<strong>an</strong>ity, <strong>the</strong> <strong>response</strong> <strong>to</strong> <strong>the</strong> AIDS<br />

p<strong>an</strong>demic has incorporated hum<strong>an</strong> <strong>rights</strong> <strong>an</strong>alyses<br />

or approaches. The hum<strong>an</strong> <strong>rights</strong> approach is<br />

based on <strong>the</strong> idea that <strong>the</strong> traditional bio-medical<br />

approach <strong>to</strong> public health emergencies, is in itself<br />

inadequate <strong>to</strong> comprehensively address <strong>the</strong> myriad<br />

socio-cultural <strong>an</strong>d economic aspects of <strong>the</strong> <strong>epidemic</strong>.<br />

In addition, <strong>the</strong> emphasis on <strong>the</strong> <strong>rights</strong> of people<br />

living with <strong>HIV</strong> or vulnerable <strong>to</strong> <strong>HIV</strong> infection is<br />

deemed a fundamental element of <strong>the</strong> <strong>response</strong><br />

<strong>to</strong> <strong>HIV</strong>.<br />

However, calls for <strong>the</strong> end of “AIDS exceptionalism”<br />

2 have recently coincided with a questioning<br />

of <strong>the</strong> efficacy of <strong>the</strong> hum<strong>an</strong> <strong>rights</strong>-based approach<br />

in addressing <strong>the</strong> <strong>epidemic</strong>. Critics of <strong>the</strong> hum<strong>an</strong><br />

<strong>rights</strong>-based approach argue that <strong>the</strong> failure, thus<br />

far, <strong>to</strong> respond <strong>effective</strong>ly <strong>to</strong> <strong>HIV</strong> should lead <strong>to</strong> a<br />

shift of paradigm <strong>to</strong>wards <strong>the</strong> application of a public<br />

health-centred approach <strong>to</strong> <strong>HIV</strong>. 3<br />

With <strong>the</strong> rapidly increasing inequalities in <strong>the</strong> world,<br />

particularly in countries most affected by <strong>HIV</strong>, now<br />

more th<strong>an</strong> ever, <strong>the</strong> inextricable links between hum<strong>an</strong><br />

<strong>rights</strong> <strong>an</strong>d <strong>HIV</strong> c<strong>an</strong>not be denied nor underestimated.<br />

The failure <strong>to</strong> respect, protect, promote<br />

<strong>an</strong>d fulfil hum<strong>an</strong> <strong>rights</strong> fuels <strong>the</strong> spread, <strong>an</strong>d exacerbates<br />

<strong>the</strong> impact of, <strong>HIV</strong>. Similarly, <strong>HIV</strong> c<strong>an</strong> lead <strong>to</strong><br />

violation of hum<strong>an</strong> <strong>rights</strong> through <strong>the</strong> infringement<br />

or denial of <strong>the</strong> <strong>rights</strong> of people living with <strong>HIV</strong>.<br />

Protecting <strong>an</strong>d promoting hum<strong>an</strong> <strong>rights</strong> are critical<br />

<strong>to</strong> <strong>the</strong> <strong>response</strong> <strong>to</strong> <strong>HIV</strong> for at least three reasons: 4<br />

Violations of hum<strong>an</strong> <strong>rights</strong><br />

increase vulnerability <strong>to</strong> <strong>HIV</strong><br />

Certain groups are more vulnerable <strong>to</strong> <strong>HIV</strong> infection<br />

because <strong>the</strong>y are unable <strong>to</strong> realise <strong>the</strong>ir civil, political,<br />

economic, social <strong>an</strong>d cultural <strong>rights</strong>. For example,<br />

individuals who are denied <strong>the</strong> right <strong>to</strong> freedom of<br />

association <strong>an</strong>d access <strong>to</strong> information may be precluded<br />

from discussing issues related <strong>to</strong> <strong>HIV</strong>, participating<br />

in AIDS service org<strong>an</strong>isations <strong>an</strong>d self-help<br />

groups, <strong>an</strong>d taking o<strong>the</strong>r preventive measures <strong>to</strong><br />

protect <strong>the</strong>mselves from <strong>HIV</strong> infection. Similarly,<br />

individuals who are denied services or are marginalised<br />

due <strong>to</strong> <strong>the</strong>ir national origin such as refugees<br />

2 See Bayer R ‘Public health policy <strong>an</strong>d <strong>the</strong> AIDS p<strong>an</strong>demic: An end <strong>to</strong> AIDS exceptionalism’ (1991) New Engl<strong>an</strong>d<br />

Journal of Medicine 324 1500-04.<br />

3 De Cock K et al ‘Shadow on <strong>the</strong> continent: public health <strong>an</strong>d <strong>HIV</strong>/AIDS in Africa in <strong>the</strong> 21st century’ (2002) The<br />

L<strong>an</strong>cet 360 67-72.<br />

4 The following exploration of <strong>the</strong> links between <strong>HIV</strong> <strong>an</strong>d hum<strong>an</strong> <strong>rights</strong> is adapted from UNHCHR ‘Introduction<br />

<strong>to</strong> <strong>HIV</strong>/AIDS <strong>an</strong>d Hum<strong>an</strong> Rights’. Available at http://www.ohchr.org/english/issues/hiv/introhiv.htm.<br />

12 | <strong>Guide</strong> <strong>to</strong> <strong>an</strong> <strong>effective</strong> hum<strong>an</strong> <strong>rights</strong> <strong>response</strong> <strong>to</strong> <strong>the</strong> <strong>HIV</strong> <strong>epidemic</strong>

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