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With All This Research, Where Are We? • Management <strong>of</strong> acute pain has not changed substantially in more than a half century • Low incidence problems (e.g., leg ulcers, kidney disease, retinal disease) have seen no significant advances • Although more than 50% <strong>of</strong> children with SCA have neurocognitive deficits related to vascular, hypoxic, anemic, or pulmonary challenges, very few are identified for special services in the schools
Why the Disconnect? • While all 50 states have mandatory newborn screening for SCD, only a few have effective follow-up programs • The Comprehensive Sickle Cell Centers provided outstanding service, but there were only 10 and they have not been geographically located near SCD population centers • The Clinical Research Network only added 4 new centers to the CSCC network
Page 1 and 2: Working in Affiliation The Importan
Page 3 and 4: Sickle Cell Pathophysiology • Vas
Page 5 and 6: Sickle Cell Disease: Basic Research
Page 7 and 8: Finally: Clinical Studies with Pati
Page 9 and 10: Cognitive Functioning in Children w
Page 11 and 12: Sickle Cell Research: A Brief Histo
Page 13 and 14: Sickle Cell Research: A Brief Histo
Page 15 and 16: Sickle Cell Research: Ongoing Studi
Page 17 and 18: Sickle Cell Research: Ongoing Studi
Page 19 and 20: Translation of Research to Clinical
Page 21: Sickle Cell Disease: Policy from Sc
Page 25 and 26: Addressing the Clinical and Transla
Page 27 and 28: Addressing Clinical and Translation
Page 29 and 30: Florida’s Challenges • One of l
Page 31 and 32: What Do We Need to Do? • Make cli
Page 33: Contributors and Colleagues • Uni

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