download pdf - Department of Pediatrics - University of Miami
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Addressing Clinical and Translational<br />
Research Needs in SCD is not Easy!<br />
• Participant Concerns<br />
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Geographic access to a clinical research center<br />
Time, distance, travel expenses<br />
Participant burden<br />
• Number <strong>of</strong> studies<br />
• Lifetime research participant?<br />
Relevance <strong>of</strong> research to participant concerns
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