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Florida’s Opportunities • Florida pediatric centers have history of collaboration (e.g, FAPTP) • Florida has the opportunity to be the “St. Jude or Dana Farber” of sickle cell disease Lead consortium for Phase I and Phase II trials and innovation Anchor for national clinical trials network • Florida can improve implementation of clinical standards of care-Center of Excellence
What Do We Need to Do? • Make clinical trials available • Education the sickle cell community about the role clinical trials can play in improving how we treat and ultimately cure sickle cell disease • Make it possible for those interested to participate • Inform the community about what we learn
Page 1 and 2: Working in Affiliation The Importan
Page 3 and 4: Sickle Cell Pathophysiology • Vas
Page 5 and 6: Sickle Cell Disease: Basic Research
Page 7 and 8: Finally: Clinical Studies with Pati
Page 9 and 10: Cognitive Functioning in Children w
Page 11 and 12: Sickle Cell Research: A Brief Histo
Page 13 and 14: Sickle Cell Research: A Brief Histo
Page 15 and 16: Sickle Cell Research: Ongoing Studi
Page 17 and 18: Sickle Cell Research: Ongoing Studi
Page 19 and 20: Translation of Research to Clinical
Page 21 and 22: Sickle Cell Disease: Policy from Sc
Page 23 and 24: Why the Disconnect? • While all 5
Page 25 and 26: Addressing the Clinical and Transla
Page 27 and 28: Addressing Clinical and Translation
Page 29: Florida’s Challenges • One of l
Page 33: Contributors and Colleagues • Uni

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