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The Anthropometrics of Disability - Designing Accessible Communities

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Several recommendations were made that related sampling to the utilization <strong>of</strong><br />

information from research:<br />

• Researchers should collaborate with government funding and policy-making<br />

agencies to identify the target populations for different types <strong>of</strong> research. It<br />

is very important to understand that there is not one target population. Each<br />

application <strong>of</strong> data may have a different one, e.g. young or old people,<br />

engaged in work or recreation activities, fit or frail, etc. NIDDR and the<br />

Access Board should play a leadership role in defining the groups that need<br />

to be sampled and insuring the use <strong>of</strong> uniform approaches. <strong>The</strong> population <strong>of</strong><br />

people with disabilities is so diverse that some tacit understanding <strong>of</strong> who is<br />

being served by research is needed in order to develop acceptable<br />

sampling plans. Through clinical experience, review <strong>of</strong> available<br />

demographic data and previous research, target groups can be identified<br />

based on level <strong>of</strong> impairment, level <strong>of</strong> independence and functional<br />

limitation. Consideration should be given as to how such target populations<br />

should address social factors such as age and sex as well as biological and<br />

genetic factors such as extreme stature and ethnic diversity. <strong>The</strong> target<br />

populations should be defined in a manner that allows the application <strong>of</strong><br />

statistical techniques to existing demographic data in order to establish the<br />

generalizability <strong>of</strong> findings, e.g. confidence level, power estimates.<br />

• Agencies like the Access Board and the U.S. Department <strong>of</strong> Justice need to<br />

specify how many <strong>of</strong> which population groups must be accommodated by a<br />

new design that is covered by access laws and regulations. Without such<br />

target, a manufacturer has no guidance or incentive to create compliant<br />

products. No matter what they do, there will always be complaints that they<br />

didn’t accommodate some group or another.<br />

• Develop standards for different population groups, e.g. children, older<br />

people, etc. This requires sampling for those specific groups where good<br />

reasons exist to assume that there would be great differences in needs and<br />

abilities that should be reflected in products and environments designed for<br />

use primarily by these groups.<br />

• Description <strong>of</strong> samples based on functional ability is useful for developing<br />

performance based code requirements. Code requirements can be clearly<br />

related to the percentage <strong>of</strong> the population that is able to perform at a<br />

certain level on specific functional measures. <strong>The</strong> FIM score is very valuable in<br />

this regard because <strong>of</strong> the vast amount <strong>of</strong> data available on assessments<br />

made with the FIM instrument.<br />

8. IMPROVING COST EFFECTIVENESS OF RESEARCH<br />

Many <strong>of</strong> the Workshop’s participants were experienced research administrators.<br />

Discussion <strong>of</strong> research methodology and sampling issues identified the need to study<br />

more factors, use larger samples and improve data collection methods. This raised<br />

<strong>The</strong> <strong>Anthropometrics</strong> <strong>of</strong> <strong>Disability</strong> | 36

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