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Creating capability from disability - Cerebral Palsy League

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Volume 31 Edition 2 Winter 2007<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of Queensland<br />

Quarterly<br />

MR BRENT HAILEY, President of<br />

the Urban Development Institute<br />

of Australia (Queensland) and<br />

CEO of MFS Diversified Group is<br />

now a <strong>League</strong> Ambassador and<br />

has pledged to raise vital funds<br />

to ensure ongoing services for<br />

children with cerebral palsy.<br />

(Full story page six)<br />

Pictured: Mr Brent Hailey with<br />

two-year-old <strong>League</strong> client, Caleb<br />

Reynolds.<br />

<strong>Creating</strong> <strong>capability</strong> <strong>from</strong> <strong>disability</strong><br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page


INVITATIONS will soon be arriving<br />

for the 11th Client Convention to<br />

be held at Riverside Receptions<br />

on Saturday, 18 August 2007.<br />

This year’s theme will be<br />

“Making Your Own Life Choices<br />

– Partnerships and Advocacy in<br />

Service Provision”.<br />

The State Client Consultative<br />

Committee (CCC) will encourage<br />

participants to share new ideas<br />

about how to work together with<br />

service providers to plan and<br />

implement support services that<br />

meet individual needs.<br />

Keynote speaker, Mary Albury will<br />

be complimented by workshops<br />

presented by peak organisations<br />

and government agencies.<br />

To allow the State CCC to<br />

run smaller client consultative<br />

workshops throughout the state, the<br />

Convention will be slightly shorter<br />

than in previous years, and child<br />

care will not be available at the<br />

<strong>League</strong>’s head office.<br />

Support to access other child care<br />

is available upon request.<br />

Lunch will be supplied to delegates<br />

and support will be available for<br />

those wishing to attend.<br />

The program will commence at<br />

10:00am and conclude at 3:30pm.<br />

For enquiries about the<br />

11th Client Convention,<br />

phone 07 3358 8049 or email<br />

stateccc@cplqld.org.au<br />

Donations lead to first steps for five young Queenslanders<br />

FIVE young Queenslanders with<br />

cerebral palsy will walk unassisted<br />

for the first time in their lives, thanks<br />

to the Courier Mail and several<br />

generous Queensland donors.<br />

This includes three-year-old<br />

Zane Cecil, who took his first<br />

unassisted steps on June 1, when<br />

fitted with his own Hart Walker.<br />

Costing an estimated $11,000 to<br />

purchase and maintain, Zane’s<br />

device was sponsored by an<br />

anonymous Queenslander in<br />

response to a Courier Mail story.<br />

A further four young Queenslanders<br />

will be given the gift of mobility as a<br />

direct result of the article, “Thanks to<br />

Broncos he’s walking tall” published<br />

in the Courier Mail on February 24.<br />

“Following the article about the Hart<br />

Walker device, the <strong>League</strong> received<br />

an unprecedented response and<br />

anonymous donations of $60,000,”<br />

Mr Bruce Milligan, CEO of the<br />

<strong>League</strong> said.<br />

“Without support <strong>from</strong> the Courier<br />

Mail and these very generous<br />

donors, these children may never<br />

have had the opportunity to walk<br />

independently.”<br />

If you would like to assist<br />

another child to walk,<br />

phone 07 3358 8049 or email<br />

fundraising@cplqld.org.au<br />

Pictured: <strong>League</strong> client, Zane Cecil walks unassisted for the first<br />

time with a Hart Walker purchased through an anonymous donation.<br />

Page - <strong>League</strong> News Volume 31 Edition 2, 2007


CEO Foreword<br />

CONGRATULATIONS to the<br />

Minister for Disability Services<br />

for keeping <strong>disability</strong> services on<br />

the agenda and providing another<br />

funding boost this year.<br />

The Beattie Labor Government<br />

handed down the 2007-2008<br />

Budget in Brisbane on June 5<br />

and the <strong>League</strong> welcomed a $128<br />

million injection of additional funds<br />

over the next four years for the<br />

<strong>disability</strong> services sector.<br />

The Government’s allocation of<br />

additional new funds demonstrates<br />

continued commitment to the<br />

<strong>disability</strong> services sector, but it<br />

doesn’t address urgent funding<br />

needs for children’s services and<br />

this was disappointing.<br />

The boost is welcomed, however,<br />

it was disappointing to see that no<br />

new funding was earmarked for<br />

children’s services to follow through<br />

on the small amount that was<br />

allocated in last year’s budget.<br />

This means thousands of<br />

Queensland children with a<br />

<strong>disability</strong> that are currently waiting<br />

for services and support will most<br />

Membership Matters<br />

likely have to wait another year.<br />

The increase in stamp duty on the<br />

purchase of vehicles is another<br />

tough blow for the <strong>disability</strong> services<br />

sector and this increase will add an<br />

estimated $200,000 to the <strong>League</strong>’s<br />

costs per year.<br />

Vehicles are both a vital component<br />

and a major cost of the services<br />

that we provide.<br />

We’re calling on the State<br />

Government to exempt not-forprofits<br />

<strong>from</strong> this increase in stamp<br />

duty on salary packaged vehicles.<br />

National <strong>Cerebral</strong> <strong>Palsy</strong> Awareness<br />

Week will be celebrated <strong>from</strong> 5 to 12<br />

August and you can participate by<br />

placing posters and information at<br />

your school or business, registering<br />

an event or making a donation<br />

during this week.<br />

To donate call 1800 819 086 or<br />

email fundraising@cplqld.org.au<br />

Bruce Milligan<br />

Chief Executive Officer<br />

In this issue<br />

11th Client Convention 2<br />

An update on this year’s event.<br />

Donations lead to first steps 2<br />

Five lucky Queensland kids receive<br />

the gift of mobility.<br />

New <strong>League</strong> ambassador 6<br />

Highly influential industry leader<br />

joins the crusade to secure<br />

children’s services.<br />

Client launches new book 7<br />

The Hungry Dragon, a great read.<br />

Project 1.2M 9<br />

The Toowoomba Redevelopment<br />

Appeal heats up as funding for<br />

stage one becomes critical.<br />

National Research Project 10<br />

Participate in investigations into<br />

the portability of funding for school<br />

students with disabilities.<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />

ABN 27 009 942 269<br />

55 Oxlade Drive, New Farm Q 4005<br />

PO Box 386, Fortitude Valley Q 4006<br />

www.cplqld.org.au<br />

The <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of<br />

Queensland is keen to recruit<br />

more supporters who are willing<br />

to become Members of the<br />

<strong>League</strong>.<br />

Staff, our clients, their families<br />

and the general public are all<br />

encouraged to join.<br />

Having a large Membership, and<br />

therefore a support base, helps<br />

the <strong>League</strong>.<br />

Members have the opportunity to:<br />

• Provide input into the direction<br />

of the organisation<br />

• Communicate feedback on our<br />

provision of services<br />

• Confirm to government that the<br />

<strong>League</strong> has the support of the<br />

general community<br />

• Receive various publications<br />

advising about latest research<br />

and developments<br />

• Receive discounted invitations<br />

to activities and events<br />

A number of benefits have been<br />

developed for Members in the<br />

categories of General, Staff and<br />

the new category of Corporate<br />

Member.<br />

Current Members will receive a<br />

Membership Renewal Application<br />

form, with further information on<br />

the new categories.<br />

For more information<br />

on Membership, visit<br />

www.cplqld.org.au or<br />

phone 1800 819 086<br />

Executive Management Team<br />

Bruce Milligan<br />

Chief Executive Officer<br />

P: 07 3358 8003 F: 07 3254 1291<br />

E: bmilligan@cplqld.org.au<br />

Geoff Rowe<br />

Service Development and Policy<br />

P: 07 3358 8014 F: 07 3254 1291<br />

E: growe@cplqld.org.au<br />

Greg Cuffe<br />

Organisational Services<br />

P: 07 3358 8064 F: 07 3254 7387<br />

E: gcuffe@cplqld.org.au<br />

Stuart Pilton<br />

Human Resources<br />

P: 07 3358 8078 F: 07 3358 8103<br />

E: spilton@cplqld.org.au<br />

Margaret Scott<br />

Marketing and Fundraising<br />

P: 07 3358 8090 F: 07 3358 2495<br />

E: mscott@cplqld.org.au<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page


Parents & Guardians<br />

Association<br />

In response to requests for additional therapy services, the <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>League</strong> established Capability Queensland Private Therapy<br />

Service to allow access to additional services on a user-pays basis.<br />

Therapists providing these services are employed by the <strong>League</strong><br />

and are registered with the Health Insurance Commission to enable<br />

clients to claim services <strong>from</strong> their private health insurers. Services<br />

available are:<br />

Physiotherapy<br />

Occupational therapy<br />

Speech pathology<br />

Psychology<br />

Adults and children can access Capability Queensland Private<br />

Therapy Service. Therapy sessions can take place at the clinic or at<br />

home. However, travel expenses will be incurred for home visits.<br />

Appointments will vary depending on the service being provided.<br />

Specific costing for your service will be provided once your needs<br />

have been identified during the initial visit. For further information,<br />

or a Schedule of Fees, contact Capability Queensland Private<br />

Therapy Service.<br />

Capability Queensland<br />

Private Therapy Service<br />

Brisbane - Ph: 07 3347 7200<br />

Wide Bay Burnett - Ph: 07 4124 8000<br />

Gold Coast - Ph: 07 5532 2088<br />

Toowoomba - Ph: 07 4688 9400<br />

THE first meetings of 2007 were<br />

very busy for the Parents and<br />

Guardians Association.<br />

We have been finalising the Terms<br />

of Reference for the Association<br />

and will soon begin work on a new<br />

brochure.<br />

Representatives attended the last<br />

Board meeting to discuss children’s<br />

services, this being the first of a<br />

number of strategic issues we will<br />

be consulted on throughout the<br />

year.<br />

The Association welcomes the<br />

opportunity to liaise with the<br />

Board on topics of relevance to<br />

members.<br />

Along with Carol Barton and<br />

members of the State Client<br />

Consultative Committee, I regularly<br />

attend management liaison<br />

meetings where we discuss the<br />

Board Report in more detail and<br />

raise any concerns.<br />

The Association is, as always,<br />

keen to attract any young parents<br />

who have an interest in being more<br />

actively involved with the <strong>League</strong>.<br />

It is a good way to become informed<br />

about the services provided by the<br />

<strong>League</strong>, the good outcomes, and<br />

the challenges in providing services<br />

to adults and children across the<br />

state.<br />

If you would like more information<br />

on the Parents and Guardians<br />

Association please contact Wendy<br />

Lavelle, the Client Liaison and<br />

Information Officer on 07 3358 8049<br />

or email wlavelle@cplqld.org.au<br />

Wendy will pass on your details<br />

and I will be in touch to answer all<br />

your questions.<br />

I look forward to hearing <strong>from</strong> you.<br />

Joan Williams<br />

President<br />

Parents & Guardians Association<br />

Page - <strong>League</strong> News Volume 31 Edition 2, 2007


THE State Client Consultative<br />

Committee has been very busy<br />

thus far in 2007, implementing the<br />

strategies in the Annual Plan.<br />

Activities have included:<br />

• Site visits by State CCC<br />

representatives to Adults North<br />

and South services;<br />

• Planning for a CCC workshop<br />

on the Gold Coast;<br />

• Redevelopment of the CCC<br />

brochure;<br />

Brisbane North<br />

Siblings Group<br />

TWELVE siblings of children with<br />

disabilities recently attended YMCA<br />

Camp Warrawee at Joyner for a<br />

weekend of fun and self discovery.<br />

Activities included rock-climbing,<br />

canoeing, flying fox rides, giant<br />

swings, team games and some<br />

reflective exercises.<br />

The siblings are part of the<br />

Brisbane North Siblings Group, an<br />

interagency collaboration between<br />

Unicare and the <strong>Cerebral</strong> <strong>Palsy</strong><br />

<strong>League</strong> at Chermside.<br />

Children who have a brother<br />

or sister with a <strong>disability</strong> are<br />

often required to take on more<br />

responsibilities than their peers,<br />

and consequently fulfil a different<br />

role within their families.<br />

This may mean providing support<br />

to their siblings in areas such as<br />

personal care, domestic help and/<br />

or emotional support.<br />

While there are many positive<br />

experiences for siblings in these<br />

roles, they can also rollercoaster<br />

through a range of emotions<br />

which can be difficult for them to<br />

deal with.<br />

• Liaising with the Board for<br />

discussions on nominated<br />

strategic issues for the <strong>League</strong>;<br />

• Joining with the <strong>League</strong> for<br />

advocacy on other issues<br />

including domestic airline travel<br />

and Centrelink allowances;<br />

• Planning the 11th Client<br />

Convention on August 18.<br />

This year’s Client Convention will<br />

have a few minor changes based<br />

on the feedback we received last<br />

year.<br />

However, a full day of good<br />

conversation, good food and<br />

entertainment will remain.<br />

The State CCC would like to<br />

congratulate our colleague Mary<br />

Albury on the release of her book,<br />

“Who’s Been Sitting In My Chair?”.<br />

Mary is a talented writer and<br />

The <strong>League</strong> and Unicare recognise<br />

the important, yet complex role<br />

some siblings may have within their<br />

family, and have formed the Group<br />

to try to meet the specified needs<br />

and interests of the siblings whose<br />

families access our agencies.<br />

The central focus of the Group<br />

is to support children so that<br />

friendships between siblings can<br />

be encouraged, established and<br />

maintained.<br />

Other aims include:<br />

• Develop friendships for peer<br />

support<br />

• Have the opportunity to engage<br />

with peers who are in similar<br />

circumstances<br />

• Build self-confidence and<br />

leadership skills<br />

• Develop a sense of<br />

achievement<br />

• Develop a foundation <strong>from</strong><br />

which more specific support can<br />

be provided<br />

• Enable siblings to access<br />

activities that may not be readily<br />

available to them<br />

The Group has run for several<br />

years, with activities being held<br />

approximately every six weeks, for<br />

siblings aged between five and 13.<br />

advocate and we look forward to<br />

her keynote speech at this year’s<br />

Convention.<br />

The State CCC still aims to<br />

increase the number of formal<br />

Regional CCC activities throughout<br />

the state and we look forward to<br />

your participation.<br />

If you are unsure about what we<br />

do or how to take part, please<br />

contact your local <strong>League</strong> Service<br />

Manager, contact us via email at<br />

stateccc@cplqld.org.au or phone<br />

07 3358 8049.<br />

Regards,<br />

Terry Donaldson<br />

Chairperson, State CCC<br />

Activities are held on Friday nights<br />

for approximately four hours and<br />

there is a small cost to attend.<br />

For more information about<br />

the Siblings Group, phone<br />

Michelle English or Lucy<br />

Besnard on 07 3621 3800<br />

Pictured: Siblings Group<br />

participant, Zac Finn enjoyed the<br />

flying fox at Camp Warrawee.<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page


New ambassador for kids with cerebral palsy<br />

(Continued <strong>from</strong> front cover)<br />

THE <strong>League</strong> is pleased to<br />

announce that Mr Brent<br />

Hailey, President of the Urban<br />

Development Institute of Australia<br />

Queensland (UDIA) and CEO of<br />

MFS Diversified Group has now<br />

added “<strong>League</strong> Ambassador” to<br />

his resume.<br />

As a strong advocate of the<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>, Mr Hailey<br />

is committed to raising vital funds<br />

to ensure existing children’s<br />

services can be continued.<br />

<strong>League</strong> CEO, Mr Bruce Milligan<br />

said he is delighted to have a<br />

person of such high standing within<br />

a prominent industry become a<br />

<strong>League</strong> Ambassador.<br />

“Brent has a commitment to<br />

children’s programs, and the<br />

services the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />

provides,” Mr Milligan said.<br />

Mr Hailey was first involved with the<br />

<strong>League</strong> in 2006, as a Co-Patron of<br />

the Kids’ Services Funding Crisis<br />

public appeal.<br />

“It’s refreshing to see people<br />

who have influence in their<br />

fields, challenge their peers to be<br />

involved and support people with a<br />

<strong>disability</strong>,” Mr Milligan said.<br />

Specifically, Mr Hailey will urge the<br />

development industry to donate<br />

funds to secure children’s services<br />

which are currently under-funded.<br />

<strong>Cerebral</strong> palsy is the most common<br />

form of physical <strong>disability</strong>.<br />

There is a child born every 15 hours<br />

in Australia with cerebral palsy.<br />

For 2007, Mr Hailey nominated the<br />

<strong>League</strong> to be the beneficiary of two<br />

major UDIA events:<br />

• UDIA Suncorp Queensland<br />

Awards for Excellence, June 22<br />

at the Brisbane Convention and<br />

Exhibition Centre<br />

• UDIA State Conference, August<br />

17-19 at the Hyatt Coolum<br />

For more information on UDIA,<br />

visit www.udiaqld.com.au<br />

Pictured: New Ambassador, Mr<br />

Brent Hailey with <strong>League</strong> CEO, Mr<br />

Bruce Milligan.<br />

When cerebral palsy<br />

tried to slow him...<br />

MUSIC<br />

MOVED<br />

HIM!<br />

TJ JAMES is an acclaimed<br />

Canberra-based singer, songwriter<br />

and recording artist.<br />

TJ was born with cerebral palsy.<br />

He believes “anything is possible”<br />

and you only have to listen to his<br />

music, or hear him perform, to<br />

know it is.<br />

TJ has a strong fan base both in<br />

Australia and overseas.<br />

He began his music career in<br />

Canberra as a busker, and never<br />

lost his grassroots connections.<br />

The release of his third album,<br />

“Another World” marks another<br />

achievement for TJ.<br />

Now, at age 34, TJ has become<br />

an active community member<br />

as a role model for young<br />

people with disabilities,<br />

inspiring them to be the<br />

best they can be.<br />

TJ works closely with various<br />

organisations that assist people<br />

with cerebral palsy, including<br />

the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of<br />

Queensland.<br />

Kindly, TJ donates a percentage<br />

of his album sales to the<br />

<strong>League</strong>.<br />

In recognition of his work, in 2005<br />

he was honoured to perform at<br />

the Australian <strong>Cerebral</strong> <strong>Palsy</strong><br />

Association National Conference<br />

in South Australia.<br />

TJ will be touring Australia-wide<br />

during <strong>Cerebral</strong> <strong>Palsy</strong> Awareness<br />

Week <strong>from</strong> 5 to 12 August.<br />

To learn more about TJ,<br />

his music and work with<br />

people with disabilities,<br />

phone 02 6282 3740 or visit<br />

www.tjjames.com.au<br />

Page - <strong>League</strong> News Volume 31 Edition 2, 2007


ETS update<br />

<strong>League</strong> client launches children’s book<br />

THE last quarter has been a busy<br />

time at Equipment Technology<br />

Services (ETS).<br />

The team has undergone training<br />

and education on a range of topics,<br />

and the sales team has increased<br />

regional clinic days significantly, by<br />

offering more services and products<br />

to meet the needs of clients.<br />

Currently, ETS is focused on seated<br />

positioning and 24 hour postural<br />

care research.<br />

Through this research, the ETS<br />

team is developing new products<br />

to meet the needs of clients, whilst<br />

keeping clinically informed of new<br />

information that is being released<br />

in the “seating world”.<br />

In conjunction with Leckey, an<br />

overseas manufacturer of paediatric<br />

equipment, ETS is proactively<br />

becoming more involved in the<br />

research process.<br />

This will enable therapists, clients,<br />

and families to make informed and<br />

clinically sound choices.<br />

On a final note, we would also<br />

like to say a big, “Welcome Back”<br />

to Mike Edwards, a wheelchair<br />

technician, who has recently been<br />

away in Melbourne.<br />

More updates coming in the next<br />

<strong>League</strong> News!<br />

For more information on this<br />

research, phone Nadia Tolstoff<br />

on 07 3637 6360 or email<br />

nadiatolstoff@cplqld.org.au<br />

Fond farewell to<br />

a founder<br />

IT is with regret that we announce<br />

the passing of Mrs Beryl Ahern.<br />

Mrs Ahern was one of the<br />

founding “mums” of the <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>League</strong> of Queensland.<br />

Mrs Ahern’s 50 years of<br />

involvement with the <strong>League</strong> will<br />

be celebrated in the next issue of<br />

<strong>League</strong> News.<br />

AN INSPIRATIONAL 53-year-old<br />

Rockhampton resident has overcome<br />

great odds to write, illustrate and<br />

publish his very own children’s book.<br />

Sam Patane, who has multiple<br />

disabilities, launched his book,<br />

“The Hungry Dragon” at the North<br />

Rockhampton Library on May 12.<br />

Sam has spent countless hours<br />

learning how to paint and write over<br />

the past three years, supported by<br />

the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>.<br />

Sue Kraatz <strong>from</strong> the <strong>League</strong>’s<br />

art programs in Rockhampton,<br />

commended Sam’s efforts.<br />

“The story behind Sam’s book is a<br />

great testament to his courage and<br />

talent,” Ms Kraatz said.<br />

“Not only did he learn how to paint<br />

and author a book, he inspired others<br />

Pictured: Published author Sam<br />

Patane with <strong>League</strong> staff member<br />

Sue Kraatz at the launch of book,<br />

“The Hungry Dragon”.<br />

In memorium -<br />

a dear friend<br />

THE <strong>League</strong> extends sincere<br />

condolences to the family and<br />

friends of long standing volunteer,<br />

May Nevin.<br />

May was a familiar face at Fig Tree<br />

Pocket services for many years,<br />

assisting with a range of activities<br />

on a regular basis.<br />

She was a good friend to many.<br />

to donate their time and efforts to<br />

help him complete the project.<br />

“This includes a well-known<br />

Australian author, who flew to<br />

Rockhampton to teach Sam how to<br />

convert his paintings into a story,”<br />

she said.<br />

Sam won First Prize in the<br />

Rockhampton City Council’s<br />

“Children’s Book Week 2006”<br />

Competition, which led to<br />

sponsorship to publish his book.<br />

Sam regularly participates in the<br />

<strong>League</strong> art programs, which are<br />

open to the community and include<br />

painting, sculpture, photography,<br />

digital art, craft, drama and music.<br />

To purchase a copy of Sam’s<br />

book, phone 07 4922 0794<br />

May’s efforts were formally<br />

recognised by the Board of<br />

Directors in September 2001 when<br />

she was presented with one of the<br />

<strong>League</strong>’s highest honours, the<br />

<strong>League</strong> Medal for Distinguished<br />

Service.<br />

May will be remembered with<br />

great fondness by those who had<br />

the privilege to know her.<br />

Many clients benefited <strong>from</strong> her<br />

support and she will be missed.<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page


Far North CP<br />

Challenge<br />

FORESTERS will take a swing at<br />

raising funds for the <strong>League</strong> with a<br />

golf day.<br />

The Hoo Hoo Club, a fraternal order<br />

of forest industry workers dedicated<br />

to raising cash for charities, will host<br />

the day at the Cairns Golf Club on<br />

June 22.<br />

As money raised will support the<br />

Far North CP Challenge, the Hoo<br />

Hoo Club would like as many<br />

four-player teams as possible.<br />

The Far North CP Challenge is<br />

a sponsored endurance race<br />

where four Far North Queensland<br />

police officers will raise funds and<br />

awareness of cerebral palsy.<br />

Tasks have deliberately been made<br />

tough to highlight the challenges<br />

faced by people with cerebral<br />

palsy.<br />

The project also aims to make the<br />

community aware of the sheer grit<br />

and determination possessed by<br />

people with cerebral palsy and<br />

related disabilities.<br />

The four police officers will cycle,<br />

kayak, hike and run nearly 400km<br />

to raise $100,000 for the <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>League</strong>.<br />

For information on the Far North<br />

Queensland Challenge, contact<br />

Matt Blunn on 0400 392 962 or<br />

fundraising@cplqld.org.au<br />

Disability Action Week<br />

15-21 July 2007<br />

DISABILITY touches the lives<br />

of most Queenslanders in some<br />

way - through the experiences we<br />

have with friends and family, in the<br />

school, at the workplace and in the<br />

community.<br />

One in five Queenslanders has a<br />

<strong>disability</strong> of some kind.<br />

The key objectives of Disability<br />

Action Week are to encourage<br />

positive attitudes towards people<br />

with a <strong>disability</strong>, improve access<br />

and make our community a better<br />

place for everyone.<br />

THE <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>’s<br />

Western Garden Service gained<br />

a new Ford Ranger Ute, with<br />

assistance <strong>from</strong> Member for<br />

Yeerongpilly, Simon Finn.<br />

On May 14, the <strong>League</strong> thanked<br />

Mr Finn for his help in applying<br />

for $23,000 in funds through the<br />

Gambling Community Benefit<br />

Fund.<br />

The vehicle will be used to<br />

transport workers, tools and<br />

materials to and <strong>from</strong> jobs,<br />

including lawn mowing, pruning,<br />

planting and rubbish removal.<br />

“We’re very grateful to Simon<br />

Finn and others for helping us<br />

successfully obtain these funds,”<br />

In 2007, you are invited to stage an<br />

event, make an award nomination<br />

or join in the celebration of Disability<br />

Action Week.<br />

The launch will be held at Scarness<br />

Park, Esplanade, Hervey Bay on<br />

July 15 <strong>from</strong> 9:00am to 1:00pm.<br />

Disability Action Week Awards<br />

will be hosted <strong>from</strong> 12:00pm to<br />

2:00pm on July 17 at the Brisbane<br />

Convention and Exhibition Centre,<br />

South Brisbane.<br />

For more information,<br />

phone 1800 177 120 or visit<br />

www.<strong>disability</strong>.qld.gov.au/<br />

actionweek<br />

Gardening service grows “wheels”<br />

Mr John Brogan, Manager of<br />

Adept Garden Service said.<br />

“The new ute will be a great asset<br />

for our crew, which includes two<br />

permanent crew leaders as well as<br />

up to eight supported employees<br />

who have a <strong>disability</strong>.”<br />

Adept Garden Service is an<br />

employment initiative of the<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> and<br />

services Brisbane’s South and<br />

South Western suburbs.<br />

For information on<br />

employment opportunities or<br />

quotes for gardening services,<br />

phone John Brogan on<br />

07 3277 3796 or 0413 201 066<br />

Good luck Robert!<br />

ROBERT Oakman competed in<br />

the 2007 Queensland Invitational<br />

Boccia Championships in March/<br />

April at Brendale.<br />

In an impressive display, Robert<br />

made the grand finals where he<br />

placed second in the state!<br />

Robert has now qualified to<br />

represent Queensland at the<br />

Boccia National Championships<br />

in Melbourne, which will take<br />

place <strong>from</strong> 3-7 July.<br />

We wish him all the best!<br />

Pictured: Simon Finn and staff <strong>from</strong> the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>’s<br />

Garden Service in Moorooka with their new Ford Ranger Ute.<br />

Page - <strong>League</strong> News Volume 31 Edition 2, 2007


DID YOU KNOW? One child is born with cerebral palsy every 15 hours in Australia.<br />

DID YOU KNOW? <strong>Cerebral</strong> palsy is not genetic, it can occur in any family and there is no cure.<br />

DID YOU KNOW? The Toowoomba Regional Office of the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of<br />

Queensland is in serious need of redevelopment. The <strong>League</strong> now faces a crisis<br />

trying to accommodate all the children and adults who need our services!<br />

We must raise $1.2 Million to redevelop the Toowoomba facilities; to manage this target, we will<br />

begin with Stage One, which will cost $415,000.<br />

STAGE ONE $415,000 – NOW URGENT!<br />

NOW is the time to make a tax deductible donation to help children and adults<br />

who have been receiving services <strong>from</strong> the <strong>League</strong> for many years in the<br />

Darling Downs, to have the modern facilities they deserve!<br />

NOW is the time to show your support of the clients and families<br />

of the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> who rely on your help!<br />

Please donate today!<br />

Call 1800 819 086<br />

Have your credit card ready and<br />

tell us you want to donate to:<br />

“Toowoomba Project 1.2m<br />

Redevelopment Appeal”<br />

Post a cheque or money order<br />

Please make payable to: “<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>”<br />

Mail to: Marketing and Fundraising<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of Queensland<br />

PO Box 386, Fortitude Valley Q 4006<br />

Donate in person<br />

Visit the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong>’s<br />

South Queensland Country<br />

Region at 21-25 Scott Street,<br />

Toowoomba<br />

Yes! I want to donate to the Project 1.2m Redevelopment Appeal<br />

Title: __________ Name: _______________________________________________________<br />

Company: ___________________________________________________________________<br />

Address (for receipt): ________________________________________ Post Code: _________<br />

Phone: (b/h) _______________ (a/h) _______________ Email: _________________________<br />

Please accept my donation of :<br />

$1000 $500 $250 $50 Your choice $_______<br />

<br />

<br />

Please find enclosed my cheque or money order; or<br />

Please charge my (please circle):<br />

Mastercard / Visa / Diners Club / Amex (#__________)<br />

Card Number: |___________|___________|___________|___________| Expiry: _____/_____<br />

Cardholder: _____________________________________ Signature: ____________________<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page


National<br />

Research Project<br />

Survey of Parents of School<br />

Students with Disabilities<br />

Investigating the Feasibility of<br />

Portable Funding for Students<br />

with Disabilities<br />

Monash University has been<br />

engaged by the Australian<br />

Government through the<br />

Department of Education, Science<br />

and Training (DEST) to investigate<br />

the portability of funding for school<br />

students with disabilities. A key<br />

part of this research will be a<br />

survey of parents of students with<br />

a <strong>disability</strong>.<br />

It is important that all parents of<br />

students with a <strong>disability</strong> are given<br />

the opportunity to participate in<br />

this survey, so Monash University<br />

and DEST have asked the national<br />

parent organisations to help get<br />

the information out to principals in<br />

schools right across the country.<br />

The Australian Council of State<br />

School Organisations (ACSSO)<br />

and the Australian Parents Council<br />

(APC) have long been concerned<br />

about a range of unresolved<br />

issues affecting the learning and<br />

development opportunities for<br />

students with disabilities, and the<br />

support needs of their families.<br />

We are asking principals and<br />

parent committees in every<br />

school across the country to work<br />

together to ensure information<br />

about this survey reaches every<br />

family in this situation, with strong<br />

encouragement for them to<br />

complete the form online.<br />

Online survey access<br />

The survey can be accessed<br />

and completed online at: www.<br />

projects.education.monash.edu.<br />

au/<strong>disability</strong>-portable-funding<br />

Paper versions of the survey<br />

If any families are unable to access<br />

the survey online, the document can<br />

be downloaded, printed, completed<br />

and mailed back to the research<br />

team in the Faculty of Education at<br />

Monash University at the address<br />

shown below. Download a printable<br />

copy of the survey at www.acsso.<br />

org.au/questionnaire.pdf<br />

Information for principals, P&F<br />

presidents and families<br />

Working closely with national<br />

parent organisations, the team<br />

at Monash has developed the<br />

following documentation for the<br />

specific information of key people<br />

in each school community, which<br />

you can access and download<br />

electronically as shown:<br />

• Information for principals:<br />

www.acsso.org.au/principal.pdf<br />

• Information for parent<br />

organisations:<br />

www.acsso.org.au/parentorg.pdf<br />

• Information for parents of<br />

students with a <strong>disability</strong>:<br />

www.acsso.org.au/parents.pdf<br />

Opportunity to tell your story<br />

and raise issues<br />

ACSSO and APC particularly wish<br />

to alert families of students with<br />

a <strong>disability</strong> that there is an openended<br />

section of the survey [Part<br />

6, section (h)] which invites you<br />

to give an outline or story of your<br />

experiences in relation to the<br />

schooling of your child. We strongly<br />

encourage all families to take<br />

this opportunity, and record any<br />

particular matters, issues, concerns<br />

or other points that you would<br />

like drawn to the attention of the<br />

Australian Government. This may<br />

also include any suggestions you<br />

have for ways in which the range<br />

of support services to students with<br />

a <strong>disability</strong> can be made easier to<br />

access and more effective in their<br />

operation.<br />

You may also inform parent<br />

organisations about your issues<br />

for action.<br />

Parents of students with a<br />

<strong>disability</strong> may bring these or any<br />

other matters to the attention of<br />

national parent organisations,<br />

for them to take into account<br />

during discussions with and<br />

recommendations to the Australian<br />

Government about ways in<br />

which these support services<br />

can be improved. Please send<br />

us this information at the contact<br />

addresses shown below.<br />

By Email:<br />

manager@familiesmatter.org.au<br />

By Mail:<br />

Families Matter Project Office<br />

PO Box 323, Curtin ACT 2600<br />

Guarantee of confidentiality<br />

All information that you choose to<br />

share with our national Families<br />

Matter Project Team, will be<br />

handled in the strictest confidence<br />

and under guaranteed anonymity.<br />

No information given to the<br />

Families Matter Project Office in<br />

this way will be divulged to any<br />

external person or agency; data<br />

will be aggregated and not used<br />

in any way that could enable any<br />

individual to be identified.<br />

Page 10 - <strong>League</strong> News Volume 31 Edition 2, 2007


CPLQ Library<br />

Focus on fathers : stories of rural<br />

fathers with a child with cerebral<br />

palsy / Wray, Connie. 2005<br />

649 WRA<br />

I fell down a beer cellar : a story<br />

of life’s ups and downs / Suggett,<br />

Jill. 2004<br />

920 SUG<br />

Who’s Been Sitting<br />

In My Chair?<br />

MARY Albury, consultant, advocate,<br />

<strong>League</strong> employee and State<br />

Client Consultative Committee<br />

representative, recently added<br />

“author” to her long list of roles.<br />

Entitled, “Who’s Been Sitting In<br />

My Chair”, Mary describes her first<br />

book as the inspirational account<br />

of one woman’s journey to self<br />

discovery.<br />

“It is a heartwarming and often<br />

humorous insight into what it is<br />

really like being me,” Mary said.<br />

“A twenty-something living with<br />

cerebral palsy, just trying to find<br />

herself and make her mark in this<br />

crazy and often uncertain world.”<br />

Pictured: Mary Albury with Irini<br />

Cavailiotis, editor of “Who’s Been<br />

Sitting In My Chair”.<br />

Mary launched the self-published<br />

book in April and the response<br />

has been tremendous, with sales<br />

and interest in the book increasing<br />

everyday.<br />

“This book has been a thirteen year<br />

labour of love. I am just so excited<br />

to see that my dream has finally<br />

become a reality.”<br />

Mary is a well known advocate<br />

and communicator among her<br />

colleagues, having been a recipient<br />

of <strong>League</strong> services since she was a<br />

young child.<br />

Signed copies of Mary’s book<br />

can be purchased via website<br />

whosbeensittinginmychair.net<br />

or phone Moorooka Day<br />

Service on 07 3892 7522<br />

Me too : a self help guide for<br />

parents by parents of children<br />

with a <strong>disability</strong> in Qld / Ewin,<br />

Melinda. 2004<br />

362.4 EWI<br />

A good life : for you and your<br />

relative with a <strong>disability</strong> – 2nd ed.<br />

/ Etmanski, Al. 2004<br />

362.4 ETM<br />

It isn’t fair : siblings of children<br />

with disabilities / Klein, Stanley<br />

[et al.]. 1993<br />

362.4 KLE<br />

To borrow items, phone Deb<br />

Cronin on 07 3358 8036 or<br />

email dcronin@cplqld.org.au<br />

Items may also be requested<br />

via the <strong>League</strong> website at<br />

www.cplqld.org.au/<br />

information<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page 11


Recognition of<br />

Excellence<br />

EMMA LENNON was selected as the<br />

winner of the quarterly “Recognition<br />

of Excellence Award” for the period<br />

January - March 2007.<br />

Service Manager Wendy Lavelle<br />

said, “Emma’s ‘can do’ attitude, bright<br />

personality and attention to detail is<br />

a real asset to Printabout Strathpine<br />

and the <strong>League</strong>. She coordinates<br />

business activities, often under<br />

pressing deadlines, whilst maintaining<br />

respectful interactions with all support<br />

staff and Table Hands. Emma’s<br />

values, reliability and professionalism<br />

demonstrate maturity beyond her<br />

years and I am confident that together<br />

with other Printabout staff, she will<br />

achieve great things.”<br />

Other nominees were:<br />

Emma Lennon<br />

Printabout Strathpine<br />

Naomi Bull<br />

Moorooka ADS<br />

Tony Cameron<br />

Access South<br />

Wayne Clark<br />

LAAS Sunshine Coast<br />

Laurel Evans<br />

LAAS North<br />

Julie Ferris<br />

Moorooka ADS<br />

Megan Hudson<br />

C&FSS SEQ<br />

Rhys Kennedy<br />

OT, Rockhampton<br />

Katrina Langtry<br />

C&FSS SEQ<br />

Jacquie Loison<br />

LAAS North<br />

Sarah Lye<br />

Maryborough ADS<br />

Bruce Payne<br />

Cascade Services<br />

Phyllis Rankin<br />

Adults South<br />

Jan Reif<br />

Rockhampton ADS<br />

Luke Robeson<br />

Printabout City<br />

Joan Salmon<br />

Sevenoaks<br />

Paula Smith<br />

Maryborough ADS<br />

Page 12 - <strong>League</strong> News Volume 31 Edition 2, 2007<br />

<strong>capability</strong><br />

Q u e e n s l a n d<br />

Who is Capability Queensland<br />

Consulting and Training?<br />

In April 2005 Disability Services Queensland (DSQ) chose<br />

the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> to be on the “Learning and<br />

Organisational Development Panel of Consultants”.<br />

This means that we can provide support to other DSQ<br />

funded services to develop their systems to comply<br />

with the Disability Sector Quality System (DSQS).<br />

The <strong>League</strong> has seen this as an opportunity to broaden<br />

its consulting and training role through its new initiative:<br />

“Capability Queensland – Consulting and Training”<br />

Why should another organisation choose Capability<br />

Queensland to support them in developing<br />

their Quality Management System?<br />

• The <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> has been a part of the<br />

<strong>disability</strong> services sector for more than 50 years<br />

• Our services have achieved certification against the<br />

DSQS, which means we can share valid knowledge<br />

and processes<br />

• Our consulting team has experts in <strong>disability</strong> service<br />

delivery with internal quality consulting expertise<br />

• We operate a broad range of services and service<br />

models enabling us to consult across a broad spectrum<br />

of needs<br />

• We have a major commitment to the DSQS working for<br />

everybody<br />

Striving for Quality Services for<br />

People with Disabilities<br />

Ph: 07 3358 8001<br />

www.cplqld.org.au/<strong>capability</strong><br />

<strong>capability</strong>@cplqld.org.au<br />

Disability Services Queensland (DSQ)<br />

www.dsq.qld.gov.au


$40 gesture earns<br />

a brand new car<br />

Volunteers<br />

– a vital source<br />

FARLEIGH resident, Stuart<br />

Atkinson is the recipient of a brand<br />

new $37,000 car <strong>from</strong> Bryan Byrt<br />

Ford in Upper Mt Gravatt, thanks to<br />

a good-hearted gesture and some<br />

spare change in his wallet.<br />

Stuart paid $40 to purchase Art<br />

Union tickets in a <strong>League</strong> fundraiser.<br />

Bryan Byrt Ford and the <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>League</strong> presented Stuart<br />

with his car on May 31.<br />

The <strong>League</strong> applauds Stuart for his<br />

participation in the Art Union.<br />

“The <strong>League</strong> runs up to seven draws<br />

per year, raising up to $350,000,”<br />

Margaret Scott, Marketing and<br />

Fundraising Manager said.<br />

“These funds are used to provide<br />

vital services to Queenslanders with<br />

cerebral palsy, many of them living<br />

in the Upper Mt Gravatt area.”<br />

To purchase Art Union tickets,<br />

phone 1800 819 086<br />

Pictured above: Winner Stuart<br />

Atkinson, Peter Soloman of Bryan Byrt<br />

Ford and Julie Inglis <strong>from</strong> the <strong>League</strong>.<br />

IN Queensland there are more<br />

than one million volunteers<br />

who work with community<br />

organisations on a regular basis.<br />

The <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />

values and appreciates<br />

volunteers and as a small token,<br />

thanked volunteers for their<br />

commitment as part of Volunteer<br />

Recognition Week, which took<br />

place <strong>from</strong> May 14 to 20.<br />

Annually, volunteers donate over<br />

17,500 hours to the <strong>League</strong>,<br />

saving thousands of dollars in<br />

wages.<br />

Volunteering at the <strong>League</strong><br />

is available in many different<br />

areas, such as client support,<br />

administration and events.<br />

For more information on<br />

volunteering, phone Jessica<br />

Panter on 07 3358 8008<br />

or jpanter@cplqld.org.au<br />

Pictured above: Cascade Services<br />

staff member, Jeremy Ward,<br />

celebrating Volunteer Week.<br />

<strong>League</strong> News Volume 31 Edition 2, 2007 - Page 13


Staff Appointments<br />

THE Marketing and Fundraising<br />

Department has welcomed several<br />

new members to the team.<br />

Edward Hornery is the new<br />

Community Development Officer.<br />

Edward has been working for the<br />

Friendship Bank program in a<br />

casual capacity over the last nine<br />

months.<br />

In his new position, he will be visiting<br />

more Friendship Bank supporters.<br />

Friendship Bank is a terrific way to<br />

support the <strong>League</strong> on your own<br />

terms.<br />

Simply place a collection tin in your<br />

home or office and put your loose<br />

change and notes in it.<br />

A collector will visit you every six<br />

months, collect the contents of your<br />

tin and then issue a receipt for your<br />

donation...it’s that simple!<br />

Nicola Payne has taken over the<br />

role of Events and Sponsorship<br />

Coordinator.<br />

Nicola has a diverse background<br />

in media, events and sponsorship<br />

and is looking forward to expanding<br />

the <strong>League</strong>’s current activities.<br />

The <strong>League</strong> has a number of events<br />

throughout the year, including Art<br />

for Art’s Sake, Conrad Treasury<br />

Boardroom Blitz and the Colour<br />

Your Day Appeal.<br />

Cathie Pilton has been appointed<br />

Community Relationships Officer.<br />

Cathie has been employed with<br />

the Marketing and Fundraising<br />

Department for the last four years<br />

as an Administration Officer.<br />

She is now looking forward to<br />

encouraging more Queenslanders<br />

to donate through the Payroll<br />

Donations program.<br />

Payroll donations are an easy and<br />

tax effective way for people to<br />

donate to the <strong>League</strong>.<br />

Ultimately, no matter how you<br />

choose to support the <strong>League</strong>, you<br />

will make a difference to the lives of<br />

people with cerebral palsy.<br />

For more information:<br />

Friendship Bank<br />

Phone: 07 3358 8052<br />

Email: ehornery@cplqld.org.au<br />

Events and Sponsorship<br />

Phone: 07 3358 8027<br />

Email: npayne@cplqld.org.au<br />

Payroll Donations<br />

Phone 07 3358 8125<br />

Email: cpilton@cplqld.org.au<br />

For every old mobile phone<br />

donated through specially<br />

marked satchels and bins,<br />

the <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong><br />

receives between $3.00 and<br />

$5.00 <strong>from</strong> the Aussie<br />

Recycling Program.<br />

Phone 1800 819 086 or visit<br />

www.cplqld.org.au/mfr/arp<br />

Page 14 - <strong>League</strong> News Volume 31 Edition 2, 2007


<strong>League</strong> News Volume 31 Edition 2, 2007 - Page 15


Please help the <strong>Cerebral</strong><br />

<strong>Palsy</strong> <strong>League</strong> create<br />

<strong>capability</strong> <strong>from</strong> <strong>disability</strong><br />

<strong>Cerebral</strong> palsy is the most common<br />

physical <strong>disability</strong> in childhood. Caused<br />

by damage to the developing brain,<br />

it can impair walking, cause a lack<br />

of muscle coordination, spasms and<br />

speech difficulty.<br />

Providing services to families affected<br />

by cerebral palsy costs the <strong>League</strong><br />

more than $45 million yearly and<br />

while it receives government funding,<br />

community support is vital to making<br />

up the difference.<br />

Donate Online<br />

www.ourcommunity.com.au/<br />

cerebralpalsyqld<br />

Cheque or Money Order<br />

Please accept my donation of:<br />

¨$125 ¨$75 ¨$300 ¨$Other<br />

¨Please find enclosed my cheque/<br />

money order made payable to:<br />

<strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> of Queensland<br />

Credit Card<br />

Please debit my credit card:<br />

¨Master ¨Visa ¨Amex ¨Diners<br />

WISHES CAN COME TRUE!<br />

CEREBRAL <strong>Palsy</strong> <strong>League</strong> client Will<br />

Foord celebrated Easter at the Blues<br />

Festival at Byron Bay.<br />

Will, with his mum Melinda and<br />

brother Atticus, stayed in fully<br />

funded wheelchair accessible<br />

accommodation during the festival.<br />

“The accommodation just made<br />

things so much easier, with the rain<br />

that seems to be part of the festival<br />

it was great to come back to a room<br />

rather than a tent,” Melinda said.<br />

Will was clearly excited to be able<br />

to participate in an event that isn’t<br />

normally recognised as being<br />

wheelchair accessible.<br />

“I got to hear some of the best,<br />

hanging out in the massive tent gave<br />

me a chance to get up close to some<br />

really great musicians,” Will said.<br />

Will was the recipient of a Starlight<br />

Foundation wish.<br />

Clients interested in more information<br />

about Starlight wishes, can contact<br />

their <strong>Cerebral</strong> <strong>Palsy</strong> <strong>League</strong> social<br />

worker for a referral.<br />

Pictured Above: Will and Melinda Foord with Kerry Weightman and Sharon Uhlmann<br />

<strong>from</strong> the Starlight Foundation.<br />

Card number:<br />

_ _ _ _ / _ _ _ _ / _ _ _ _ / _ _ _ _<br />

Cardholder’s name:<br />

_____________________________<br />

Cardholder’s signature:<br />

_____________________________<br />

Expiry date:____/____<br />

Name:________________________<br />

Company: _____________________<br />

Address:______________________<br />

Suburb: _______________________<br />

State:__________Postcode:_______<br />

Phone: (___) ___________________<br />

Email:________________________<br />

I would like further information on:<br />

¨Leaving a gift in my Will<br />

¨Volunteering<br />

¨Queensland <strong>Cerebral</strong> <strong>Palsy</strong> Register<br />

1800 819 086<br />

www.cplqld.org.au<br />

Page 16 - <strong>League</strong> News Volume 31 Edition 2, 2007<br />

Printabout now offers high<br />

speed black on white and full<br />

colour copying services.<br />

Choose <strong>from</strong> matt or glossy<br />

papers single or double sided.<br />

Magazines and reports<br />

are our specialty.<br />

Print your business cards in<br />

full colour and gloss or<br />

matt laminate them.<br />

Same day service now available.<br />

We can provide offset printing<br />

for all business stationery,<br />

envelopes, brochures and<br />

letterheads as well as cater for<br />

all your bulk mailing needs.<br />

Contact<br />

City: 07 3831 6644<br />

Strathpine: 07 3881 2881<br />

Email: printabout@cplqld.org.au<br />

www.cplqld.org.au/printabout

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