10Project summariesEnhancing participation at home, school and community<strong>Novita</strong> staff contribu<strong>to</strong>rs highlighted in boldProject titleContribu<strong>to</strong>rsFundingSummaryInterventions <strong>to</strong> facilitate participation of children with disabilities in all life domains:A systematic reviewDr Parimala Raghavendra, Professor Mats Granlund (Malardalen and JonkopingUniversities, Sweden), Professor Ralf Schlosser (Northeastern University, USA), Dr ShakilaDada (University of Pre<strong>to</strong>ria, South Africa)• Swedish Council for Working Life and Social <strong>Research</strong> (fellowship <strong>to</strong> Dr ParimalaRaghavendra, August-December <strong>2004</strong>)• Campbell Collaboration Education Coordinating GroupThe World Health Organisation International Classification of Functioning, Disability, andHealth defines participation as ‘involvement in life situation’. The ultimate goal of rehabilitationfor a child/adolescent with a disability is <strong>to</strong> participate in their life domains and be ameaningful contribu<strong>to</strong>r <strong>to</strong> the community. This is widely used as a vision statement by manyorganisations providing services <strong>to</strong> children with disabilities.To work <strong>to</strong>wards the participation goal/outcome, we need <strong>to</strong> know which interventions assistparticipation and which are ineffective. A systematic review is needed <strong>to</strong> summarise therelevant literature and determine the effectiveness of interventions that facilitate participation,while also identifying gaps in the research for future work. Since this review will examineparticipation at home, school and community, the outcomes may influence policy andknowledge base.MethodParticipants: Studies will be included if the children with disabilities (physical, intellectual,multiple) who serve as participants are between three and 18 years of age.Types of interventions: Any type of intervention provided <strong>to</strong> the individual with disability and/orothers in their environment <strong>to</strong> promote/facilitate/increase participation of the person withdisability in school, home and community will be considered. Studies describing perceptionsof increases in participation by individuals with disability, parents, teachers and others willalso be considered.Types of outcome measures in primary studies: Standardised and/or non-standardisedoutcome measures used <strong>to</strong> demonstrate change in participation of children with disabilitiesin school, home and the community and also views\perceptions of the children, parents, andteachers regarding the intervention and outcome.Type of studies: Studies using experimental designs, descriptive and qualitative studieswhich investigate perceptions of interventions will be also be included.Search strategies for identification of studies: General purpose and other specialiseddatabases will be searched for articles published between 1990 and July <strong>2007</strong>. Bookchapters, dissertations and hand searches will also be undertaken.Study Selection: All studies that potentially meet the inclusion criteria will be screenedindependently for the inclusion criteria by at least two investiga<strong>to</strong>rs. A percentage of inter-rateragreement will be calculated. Data extraction and study quality evaluation will be undertakenfor all included studies.
11Results Two exhaustive database searches were undertaken in December 2005 and July 2006resulting in a small number of case studies, indicating limited research investigatinginterventions <strong>to</strong> facilitate participation. It seems the field of disability and rehabilitation isonly just beginning <strong>to</strong> understand the multi-dimensional construct and developing <strong>to</strong>ols<strong>to</strong> measure participation. Most of the research reported the barriers and facilita<strong>to</strong>rs <strong>to</strong>participation. Most studies did not use self-report measures, which are necessary forunderstanding and evaluating participation. The focus of the question will be narrowed andone context will be selected <strong>to</strong> investigate further.ImplicationsFor clients – knowing the most effective interventions <strong>to</strong> facilitate participation will be ofimmense benefit.For services – depending on the outcomes, the review may synthesise intervention strategiesthat are effective <strong>to</strong> facilitate participation.These results may have implications on practiceand policy. The results also identify gaps in research and highlight the urgent need <strong>to</strong>conduct more research.StatusOngoingProject titleContribu<strong>to</strong>rsFundingSummaryParticipation profile of children with physical disabilities with and without complexcommunication needs: Association between social networks, communication,activity engagement and time useDr Parimala Raghavendra, Dr Alison Lane (University of South Australia), CatherineOlsson, Dr Tim Connell, Rachael Virgo• Channel 7 Children’s <strong>Research</strong> FoundationParticipation in a variety of activities is important for physical and mental health and for achild’s overall development. For children and adolescents, this includes involvement in arange of activities at home, school and in the community. <strong>Research</strong> shows that a child’scognitive, communicative and physical ability is a major predic<strong>to</strong>r of how they will participate.Children with disabilities are at risk of reduced participation in everyday activities. This risk isgreater for children with complex communication needs.This project will study the participation profiles of children with disabilities with and withoutcomplex communication needs, and children without disabilities. It will look at the types ofactivities children undertake and how much they enjoy them, how children spend their time,how children communicate and who they talk <strong>to</strong> and also their level of self-determination. Thiswill help us have a better understanding of the fac<strong>to</strong>rs that influence participation.