Love & Death cont<strong>in</strong>ued from pg. 7world on 86.We started <strong>in</strong> his office—asmall partitioned cubicle. He told meabout his work—how be<strong>in</strong>g an oncologistgot him used to his patientsdy<strong>in</strong>g—sort of. How the researchdidn't have the answers—yet—howmuch the medical staff depended onthe support systems generated bythe gay community and the City ofSan Francisco—how on some days itwas horrible—when they had about60 patients <strong>in</strong> the last stages of thedisease com<strong>in</strong>g <strong>in</strong> weekly for treatment—howhe had to deal with thedepression—the rage—the <strong>in</strong>credibleunbelievable reality of 30-year-oldmen dy<strong>in</strong>g—I asked him about medication—anti-depressants. <strong>The</strong>y didn't usethem. After all. the reality was thatthey djd_have a fatal illness (50 percentof patients diagnosed with AIDSare term<strong>in</strong>al)—what could drugs dofor that? I asked about his owndepression. He said it was difficult.For Gary, deal<strong>in</strong>g with the dy<strong>in</strong>gAIDS patients helped him cope withhis own anxiety about gett<strong>in</strong>g AIDS.He felt that if <strong>in</strong> fact he was everdiagnosed with AIDS he could dealwith it easier because he was<strong>in</strong>volved <strong>in</strong> help<strong>in</strong>g others do thesame. Maybe.<strong>The</strong>n there was his bike andthe hills of San Francisco—that washis therapy—the rides alone <strong>in</strong> thehills when there was one phone calltoo many—one Bobby too many-Kaplan asked me whether Iwanted to go <strong>in</strong>to the <strong>in</strong>-patient area—the place where the f<strong>in</strong>al stages ofthis deadly drama get played out.I wanted to see it—to be there,so we walked through the green hospitalcorridors together until wereached the area-<strong>The</strong>re were only 12 beds—outsideof each room a bright p<strong>in</strong>kposter entitled INFECTION PRECAU-TIONS, listed directions for staffdeal<strong>in</strong>g with the patients—a checkoffsystemMASK GOWN GLOVES PUNC-TURE PROOF NEEDLE BOX IN ROOMNO PREGNANT WOMEN—and thenthere was the room with the handwrittensign outside that read NOFLOWERSNo flowers—it was then I feltI wanted to cry.<strong>The</strong> literature rack told volumes.Brochures such as "Cop<strong>in</strong>gwith AIDS'! "Gett<strong>in</strong>g Your Affairs <strong>in</strong>20Order", "A Bridge of Love and Affirmation","When A Friend Has AIDS","Affection Not Rejection"—spoke tothe love and support of the staff forthese patients.All of the workers on this wardwere volunteers, and most of themwere gay. I asked whether theirbe<strong>in</strong>g gay was the primary reasonfor their want<strong>in</strong>g to work on thisward? "Not the only reason—but it'simportant." <strong>The</strong> <strong>issue</strong> of this disease—AIDS—had galvanized the gaycommunity—had created networksof ancillary support systems thatreached out to the established medicalcommunity—surrounded it andsupported and changed the conventionalavenues of medical treatment.A visual flash—the end of a bed—a th<strong>in</strong> almost skeletal leg stick<strong>in</strong>gout of the white bed sheets—spasmodicallytwitch<strong>in</strong>g—the door partlyopen—someone sitt<strong>in</strong>g at thebedside—And then I felt the rage—onelives one life mak<strong>in</strong>g choiceschoicesthat challenge the establishedorder, struggl<strong>in</strong>g to self-actualize,to break free of barriers thatdon't fit-Acquired Immune DeficiencySyndrome is an impairmentof the body's ability tofight disease, leav<strong>in</strong>g an <strong>in</strong>dividualsusceptible to illnesses thatthe healthy immune systemcould protect aga<strong>in</strong>st—opportunistic<strong>in</strong>fections caused byorganisms that don't usuallycause disease. <strong>The</strong> two mostfrequently reported are an otherwiserare form of cancercalled Kaposi's Sarcoma and aprotozoan <strong>in</strong>fection of thelungs called pneumocystiscar<strong>in</strong>ii pneumonia. AIDS is nottransmitted by casual socialcontact. It is believed to becaused by a virus carried <strong>in</strong> thebody fluids and may be transmittedby <strong>in</strong>timate sexual contact,shar<strong>in</strong>g of I.V. needles, orby blood products. Womenmake up about seven percentof the total AIDS cases <strong>in</strong> theU.S.; 12 percent <strong>in</strong> Canada andFrance; and possibly as high as40 percent <strong>in</strong> Africa. To date,there are no reported cases oftransmission between lesbians.Lov<strong>in</strong>g and touch<strong>in</strong>g and experienc<strong>in</strong>g—plann<strong>in</strong>gfutures—pay<strong>in</strong>gbills—liv<strong>in</strong>g <strong>in</strong> and out of the societalnorms—and one morn<strong>in</strong>g just likeany other morn<strong>in</strong>g, coffee, acigarette—the daily rituals that givecomfortable habitual structurem<strong>in</strong>oranchors. <strong>The</strong>n one morn<strong>in</strong>gyour throat hurts—or you realizethat you've been tired too long—orthere's the feel<strong>in</strong>g that the gland <strong>in</strong>your neck is swollen. <strong>On</strong>e morn<strong>in</strong>gafternoon—oranytime—your worldradically changes. And there is noreason. And yet there is.Gary told me that his experienceof work<strong>in</strong>g with dy<strong>in</strong>g patientsshowed him that "angry people dieangry and actualized people growmore".As if AIDS were an enormouschallenge—fac<strong>in</strong>g death—learn<strong>in</strong>g tocope—to reach the acceptance levelwas someth<strong>in</strong>g that not all atta<strong>in</strong>ed.Gary's rage would come at astrange time. It would come whenone of his patients f<strong>in</strong>ally came tothe po<strong>in</strong>t of acceptance—and wouldtell him "I'm ready—I'm not fight<strong>in</strong>ganymore". It was then that Garywould take to his bike—take to thehills—As if their acceptance was hisfailure—And I thought of my beg<strong>in</strong>n<strong>in</strong>gsat CHOICES. In the early '70s whenabortion had not been legalizednationally but was legal <strong>in</strong> New York.When there was still all the shame,guilt, fear and stigma. How the communityof women reached out—howthey referred, educated, counseledand supported the women—and howthe medical community let themdoit—In the case of AIDS where medicaltechnology has not been able todevelop a def<strong>in</strong>itive test to diagnoseor cure the disease—physicians soused to play<strong>in</strong>g God with all theanswers have to face the reality oflimited answers—here also, the medicalcommunity out of necessity hasstepped aside for love—for the communityof car<strong>in</strong>g and another def<strong>in</strong>itionof heal<strong>in</strong>g. A modality thatshould ideally be utilized <strong>in</strong> all medicalcare, not only for the <strong>issue</strong>s thattrouble or frighten us.We came back to the outpatientward. Kaplan was called tothe phone—more <strong>in</strong>structionsmorebad news to give.A patient passed by supportedby a staff member—th<strong>in</strong>, walk<strong>in</strong>g
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