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Missing the Target #5: Improving AIDS Drug Access ... - CD8 T cells

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The deadly impact of stigmaBy Elizabeth Owiti, Healthpartners; andJames Kamau, kenya Treatment <strong>Access</strong> Movement (KETAM)Although <strong>the</strong> campaign for increased access to HIV/<strong>AIDS</strong> medicines has improveddistribution of ARV drugs, most people with HIV/<strong>AIDS</strong> in Kenya still do not seektreatment, and many die of treatable infections such as TB. It is <strong>the</strong>refore importantto ask what factors bar demand for treatment in Kenya, and what role stigma anddiscrimination play in determining treatment access.To address <strong>the</strong>se questions a literature review was conducted and a brief qualitativesurvey was undertaken involving Kenyans living with HIV/<strong>AIDS</strong>, health care workers,and key informants. Our results reveal that stigma and discrimination are prevalentin Kenya in many forms, and affect people differently depending on socio-economicstatus.HIV and <strong>AIDS</strong>-related stigmaIn Kenya, <strong>the</strong> general population, including many medical personnel, is not wellinformed about HIV and <strong>AIDS</strong>. In <strong>the</strong> public eye, HIV and <strong>AIDS</strong> are commonlyassociated with socially-censured sexual behaviors that are often viewed as <strong>the</strong>responsibility of <strong>the</strong> individual. <strong>AIDS</strong> is understood to be incurable, degenerative,often disfiguring, and associated with an “undesirable death.” It is often incorrectlythought to be highly contagious and a threat to <strong>the</strong> community at large. All of <strong>the</strong>sefears are used to justify marginalization of PLWHA, thus fur<strong>the</strong>r entrenching deeplyrooted prejudices.Causes of stigma and discriminationOur survey shows that stigma around HIV and <strong>AIDS</strong> persists because ideas about<strong>the</strong> disease are deeply enmeshed with social, personal, cultural, and religiousbeliefs, as well as fears about sex and death, two taboo issues not traditionallydiscussed in most communities.Knowledge and fearsMost Kenyans understand <strong>the</strong> basic facts of HIV prevention and transmission.However, our study found that <strong>the</strong>re is a lack of in-depth knowledge, whichfeeds fears about casual transmission. Many respondents did not understand <strong>the</strong>difference between HIV and <strong>AIDS</strong>, how <strong>the</strong> HIV disease progresses, or how longone can live with HIV before progressing to <strong>AIDS</strong>. Many respondents believed that30

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