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even worn shoes with a heel the last couple of days - haven't done that for over 5years!!I haven't gone back to bed during the day these last 3 months - in fact, we've justacquired a puppy, so I've been getting up between 6 and 6.30am every day!! I'm notdoubled-over anymore after I've been standing. My walking improves with each day,and I am now confident enough to take Syd (the puppy) for a walk without someone tohold on to.LDN has changed my life - it's stopped me from being frightened and has given mehope for the future - and I know it will continue to. I intend to run again and I haven'tdone that for 15 years!!! Everyone with an auto-immune disease should know aboutLDN!!Not every day is good!!! I reckon that in any one month, I have a 'wrong' week but it'snothing in the grand scheme of things. I think of it as a time of transition - my bodyreadjusting and realigning to the subtle changes brought about by LDN.Update - 25 September, 2008: At the end of July, I had a fantastic hypnotherapysession with Ted Heath who, to-date, has worked with over 300 people with MS. Whata fabulous couple of hours! What a positive experience! What a lovely man! I wasconvinced that counting back from 100 was no problem. I managed 97!! He repatternedmy walking, gave me various triggers for different problems and gave meexercises to strengthen my muscles - all that and took delivery of a parcel whilstkeeping Syd (our dog) amused!!Well, in August we went to Rome for 5 days and I organized four 3-hour walking toursfor the family - giving me an enormous mountain to climb if I did them, but knowing thatI didn't have to if I felt unwell. Before I relate the outcome, I have to admit that I wentwell-armed!!I completed all 4 tours - one of the Coliseum and Forum, a walk along a section of theApian Way and around the Catacombs, a city tour and a tour of the Vatican and SistineChapel!! Admittedly, I had some funny moments, but then I either took a breather orhung on to hubby, son or daughter - whoever was nearest! But, importantly, I didn'tslow the group down, so was I pleased with myself, LDN and especially Ted!!About 2 weeks ago, I had another of my funny weeks when things just didn't seemright, but then up another notch I went. A couple of days ago, I walked around 2supermarkets without the trolley that over the last 4 years I've needed to hang on to asI couldn't propel myself forward. More often than not, my daughter has had to pull mealong on any necessary shopping trips whilst guiding me so that I don't bump intoanyone - she's in her teens and an absolute treasure!!I was out visiting our son who is now renting a house and in his 2nd year at uni. Iasked if he thought my walking and balance had improved. He had, but didn't want tojinx me by saying anything!!!Also, this week I was out walking Syd with my husband, and we both noticed that I nolonger have to hang on to his arm. I can walk again unaided.Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200912
I've just taken Syd on a walk by myself. I didn't stop once - pretending to admire aflower, tree etc whilst waiting for my legs to start moving again. I walked there and backjust like everyone else does. I'm ecstatic!!!!!!So, my balance and walking have improved amazingly in the 3 months since writing'my story' and my sleeping is phenomenal - rarely waking in the night to toilet trot andasleep as soon as my head hits the pillow - and it's a restful sleep. In fact, my husbanddescribes me as 'dead to the world' in seconds.To sum up, it's now been 4 years since I had my second ever exacerbation, which leftme bedridden for a time. I spent the next 3 years getting more and more depressedand convinced that I would soon be in a wheelchair.In September 2007, a sorry figure visited Dr Bob and Joycie and after a good few hourstalking decided there was no down side to taking LDN.One year later with the help of LDN, GABA, other supplements, a reasonable diet, DrBob's good counsel with trusty Joycie and not forgetting the amazing Ted, I now have alife to look forward to.The best decision ever!!!!I'd love to keep you posted and if there's ever anything I can help with, please let meknow.Update - 25 March 2009: I can't believe it's been 6 months since my last update - whichmeans 18 months have gone by since I started taking LDN.The one major change in my regimen is that I began taking LDN 4.5ml liquid instead oftablets in February 2009, when new legislation meant I could no longer get my tabletsfrom Dr Bob Lawrence. This has surprisingly been a positive move - I've found bothfalling asleep and having sleep that is even more restful has been the outcome!! Myonly problem with the liquid has been practical - using the syringe supplied with theliquid - much too fiddly, with most of the liquid that should be in the syringe dribblingdown my fingers. But, that is easily solved - I now use a teaspoon!!I've also been a little remiss and not taken my minerals and vitamins religiously - italways happens in the dark dreary days of winter when everything seems such aneffort. But, now the sun is shining and the days are getting brighter and longer, I shouldhave the impetus to behave again!!I continue to hiccup along the way - it happened again a couple of weeks ago - lots ofpain in my left arm, side and leg, even interrupting my sleep. I've found that I canlessen the pain if I'm well wrapped and snug, and then I sleep through – a simplesolution that is working. Over-the-knee socks are worth the investment too!!!The left side 'stuff' has been around since I was first diagnosed in 1972 but theemphasis has changed over the years. In 1972, I had pins/needles/electric shocks inmy left arm - often lying on it so that I could get to sleep but nothing in my leg.Since the mid 90's I've had niggly pains/shocks around my left hip sometimescascading into the front of my upper leg.Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200913
Page 1 and 2: 100REASONSWHYYOU SHOULDKNOW ABOUTLD
Page 3 and 4: STORYNUMBERCONTENT CONDITION PAGELi
Page 5 and 6: 95 Vicki F, USA Multiple Sclerosis
Page 7 and 8: 1Adrian, UKApril 2005 - Secondary P
Page 9 and 10: Over the years I was given no medic
Page 11: I was very run down and tired, and
Page 15 and 16: 6Atif A, ScotlandNovember 2005 - Mu
Page 17 and 18: If I went for a walk it was like th
Page 19 and 20: 8Bev K, USA2004 - Multiple Sclerosi
Page 21 and 22: The back pain was the first indicat
Page 23 and 24: I later noticed, when completing an
Page 25 and 26: For three days we lived on sandwich
Page 27 and 28: This had been opened and equipped w
Page 29 and 30: presented to me and offering advice
Page 31 and 32: On first reading mention of this ap
Page 33 and 34: Videos of all the talks and other l
Page 35 and 36: time it rained. I can stand in line
Page 37 and 38: I fall asleep as soon as my head hi
Page 39 and 40: are her main symptoms. She is affec
Page 41 and 42: After a few weeks of taking LDN, I
Page 43 and 44: (1) I still suffer from tiredness a
Page 45 and 46: I was started on beta-interferon be
Page 47 and 48: 20Crystal N, USANov 2004 - Secondar
Page 49 and 50: After I was diagnosed with Secondar
Page 51 and 52: 22David N, UK1995 - Multiple Sclero
Page 53 and 54: I went looking for alternative trea
Page 55 and 56: 26Dianne W, AustraliaOct 1986 - Rel
Page 57 and 58: then I pay for a month’s supply o
Page 59 and 60: The doctor had no information for m
Page 61 and 62: us make significant decisions for o
Page 63 and 64:
The improvement was so very gradual
Page 65 and 66:
33Francie S, USASept 2000 - Multipl
Page 67 and 68:
At around this time, my husband was
Page 69 and 70:
There was no real explanation from
Page 71 and 72:
38Jay D, UK2001 - Multiple Sclerosi
Page 73 and 74:
stories of how they had patients th
Page 75 and 76:
41Jeni S, UK1997 - Diagnosed plaque
Page 77 and 78:
to speak honestly of our experience
Page 79 and 80:
45John O, UK24 July 2000 - Secondar
Page 81 and 82:
More recently, I've been having Hyp
Page 83 and 84:
49Joyce C, USA2001 - Hepatitis BJul
Page 85 and 86:
to treat children with Autism. We r
Page 87 and 88:
This is one of the end goals of the
Page 89 and 90:
50Judy H, USAOctober 1995 - Fibromy
Page 91 and 92:
The first night I did fine. No drea
Page 93 and 94:
50mg tablet to fine powder between
Page 95 and 96:
ut she also did not say too much ex
Page 97 and 98:
I agreed to start on Copaxone injec
Page 99 and 100:
een prescribed some cream made from
Page 101 and 102:
56Linda Elsegood, UKOct 2000 - Rela
Page 103 and 104:
Six weeks later I was given another
Page 105 and 106:
Mum survived, even though a third o
Page 107 and 108:
I was having a relapse every 6 mont
Page 109 and 110:
At this point I couldn't feel any o
Page 111 and 112:
agreed to refer me, but said I prob
Page 113 and 114:
This position also gives me full ac
Page 115 and 116:
The internet is a great tool and if
Page 117 and 118:
Importantly, she can now hold a mug
Page 119 and 120:
Until four or five years ago it was
Page 121 and 122:
65Michelle X, UKApril 2004 - Multip
Page 123 and 124:
I have not had the strange dreams o
Page 125 and 126:
I actually took a paperclip (workin
Page 127 and 128:
Life was good, but I knew it could
Page 129 and 130:
68Nikolaos P, UKMarch 2007 - Multip
Page 131 and 132:
I restarted taking LDN about a year
Page 133 and 134:
intent of tapering down to 3mg dail
Page 135 and 136:
In January 2008, our son started on
Page 137 and 138:
75Paul C, UK2004 - Multiple Scleros
Page 139 and 140:
78PN - ANON, UK2006 - Primary Progr
Page 141 and 142:
I have now been on LDN for almost a
Page 143 and 144:
I’d done a lot of research becaus
Page 145 and 146:
had her on worked against her. She
Page 147 and 148:
promoted as healthy). Seems that my
Page 149 and 150:
I have been taking LDN for almost o
Page 151 and 152:
MS is part of my life but I have a
Page 153 and 154:
87Steve W, UK20th Sept 2001 - Relap
Page 155 and 156:
Having spent 25 years soldiering an
Page 157 and 158:
left eye was permanently damaged. T
Page 159 and 160:
Since restarting LDN, bladder probl
Page 161 and 162:
My husband retired August 2002 and
Page 163 and 164:
from wishful thinking, but hoped so
Page 165 and 166:
used my foot for the car brake as w
Page 167 and 168:
94Vickie A, USADecember 2006 - Mult
Page 169 and 170:
95Vicki F, USA1998 - Progressive Re
Page 171 and 172:
after 9 years, no longer on any ant
Page 173 and 174:
96Wanda L, CanadaJune 2006 - Fibrom
Page 175 and 176:
(RRMS), and was provided with a whe
Page 177 and 178:
from home. We eventually parted, wi
Page 179 and 180:
consumed by the disease. I shrank t
Page 181 and 182:
ACKNOWLEDGEMENTSThe need to raise a
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