At that time, late in 1981, I had noticed an article in one of the many free medicalnewspapers, which referred to the opportunity of a career in the Royal Fleet Auxiliary, afleet of civilian manned merchant ships, maintained and provided by the Ministry ofDefence. These include tankers, munitions and dry stores ships, troop and logisticssupply ships and helicopter support ships. Within the merchant navy it is a rule thatany ship carrying more than 100 men was required to also carry a doctor.The article was offering the opportunity of joining this service. With the addedopportunity of travel to various locations around the world, and the security ofpermanent work, this seemed very appealing. I made my application but it was mislaidand I was enrolled too late to join the initial task force to the Falklands. A subsequentapplication was successful and I was eventually posted to serve on the tanker, RFAOlwen, which I joined in Gibraltar in 1982.Numerous deployments followed. During this period I was to experience the first signsof an increasing dispirited fatigue characteristic of MS that was to become more severelater.My final deployment was on the Olwen. Nearing the end of my term I grew aware ofcertain changes in my level of fitness. My walking was no longer as steady; I had alsobecome aware of episodes of profound fatigue in more recent months, when I seemednot to have the energy to even pack a suitcase in preparation for leaving the ship.The feelings of increasing weakness and lassitude that I had previously experienced onthe Resource became not only more severe, but more prolonged. These deep andpervasive feelings became not only physically, but also emotionally and intellectuallydraining, affecting not only my mood but also my processes of judgement and rationalthought. This overwhelming fatigue seemed to sap both the spirit and the soul, leavingan empty loneliness that, by whatever means, could not be filled.I was by this time, aware that during my time on the ship it had become necessary toabandon many of the requirements of the restricted diet that I had been previouslyfollowing. Unfortunately, on a ship, it was no longer possible to choose the menu in theway that I had been able to while ashore. I therefore found myself occasionally eatingthose foods that I had previously attempted to avoid.In this way, I was once again able to demonstrate the adverse effects of such a nonselectivediet, when my symptoms clearly began to get worse as I strayed from thedesired path of suitable foods.Thus, as my symptoms became progressively worse, I seemed to know that this was tobe my final trip with the RFA, which was also to culminate in a somewhat anxiousepisode when, during our return to the UK early in 1986, the ship's engines failedduring our transit of the Southwest Approaches several hundred miles from the tip ofCornwall.The ship was subsequently left adrift for three days while the ship's engineers workedfrantically trying to establish the necessary repairs. It was at such a time that it may berealised how dependent we were on the various ship's systems: with no power therewas no water to wash or to drink, the toilets did not flush, there was only emergencylighting to see by; and food could not be cooked.Produced by <strong>LDN</strong> Research Trust for <strong>International</strong> <strong>LDN</strong> <strong>Awareness</strong> <strong>Week</strong> 19-25 October 2009© <strong>LDN</strong> Research Trust 200924
For three days we lived on sandwiches, drinking emergency bottled water supplies, andflushing toilets with buckets of water lifted from over the side of the ship. The greatestconcern however was the risk of collision with other ships. It was cause for celebrationwith the power restored, when all the various ship's systems came back on line. Withnormal services fully restored we quickly made our way back to the UK to dock inPortsmouth.On reaching port, we were once more able to reconnect to all the routine shoreservices including luxuries such as telephones and television. Iremember reading news of a female patient in America, apparently diagnosed with MS,who seemed to recover from her symptoms after having all her mercury amalgamfillings removed and replaced with silicate fillings. This was obviously of interest to meas I had, for some time, begun to consider the diagnosis of MS in myself.I was later to undertake this same procedure in the hope that my symptoms too wouldbe equally resolved. The process however, although considered advisable, failed tomake any apparent difference to the further progress of my symptoms.With this increasing sense of doom and coincident symptoms associated with mycigarette-smoking habit I resolved to, at least, bring this habit to an end. As shipsdoctor I was able to order a quantity of Nicorette, nicotine chewing gum. I then plannedto use up my last packet of duty-frees, at 27p for twenty, and, at 8-30 pm, on the 27thFebruary 1986, in company with the Senior Radio Officer in the officers mess, I smokedmy last cigarette.Having seen many others who had made such similar claims the SRO was notconvinced that my resolve would be successful, but after 23 years as a non-smoker, Ithink I have won the battle.When the inevitable craving came to greet me several hours later I was prepared withmy nicotine gum. Chewing this hopefully, I remained in some doubt that it would beeffective. I was however, surprised that the demand, that intense craving to place yetanother cigarette in my mouth, disappeared like magic. On each subsequent occasionwhen this urgent demand re-occurred, I would simply chew on the gum for a fewminutes and once more, I was free of the craving that had maintained this damaginghabit for so long.I continued the use of the Nicorette long after I had left the ship when, after using thegum for about four months I felt confident enough to change the nicotine gum for plainchewing gum. I continued with this for a few weeks more, then abandoned the gum,and the habit, forever.I now know that had I continued smoking, this habit would have contributed greatly tothe further decline of both the MS and my remaining physical abilities.Soon after this, my term of attachment to this ship was completed and I left the Olwen,and the RFA for the last time. I felt particularly demoralised when leaving the ship as,by this time, I felt so weakened that, making some excuse of a trivial injury, I was forcedto seek help just to carry my suitcase down the gangway to finally leave the ship.On reaching home I soon made an appointment with my GP to seek a neurologicalopinion regarding my worsening symptoms. This eventually resulted in an appointmentProduced by <strong>LDN</strong> Research Trust for <strong>International</strong> <strong>LDN</strong> <strong>Awareness</strong> <strong>Week</strong> 19-25 October 2009© <strong>LDN</strong> Research Trust 200925
- Page 1 and 2: 100REASONSWHYYOU SHOULDKNOW ABOUTLD
- Page 3 and 4: STORYNUMBERCONTENT CONDITION PAGELi
- Page 5 and 6: 95 Vicki F, USA Multiple Sclerosis
- Page 7 and 8: 1Adrian, UKApril 2005 - Secondary P
- Page 9 and 10: Over the years I was given no medic
- Page 11 and 12: I was very run down and tired, and
- Page 13 and 14: I've just taken Syd on a walk by my
- Page 15 and 16: 6Atif A, ScotlandNovember 2005 - Mu
- Page 17 and 18: If I went for a walk it was like th
- Page 19 and 20: 8Bev K, USA2004 - Multiple Sclerosi
- Page 21 and 22: The back pain was the first indicat
- Page 23: I later noticed, when completing an
- Page 27 and 28: This had been opened and equipped w
- Page 29 and 30: presented to me and offering advice
- Page 31 and 32: On first reading mention of this ap
- Page 33 and 34: Videos of all the talks and other l
- Page 35 and 36: time it rained. I can stand in line
- Page 37 and 38: I fall asleep as soon as my head hi
- Page 39 and 40: are her main symptoms. She is affec
- Page 41 and 42: After a few weeks of taking LDN, I
- Page 43 and 44: (1) I still suffer from tiredness a
- Page 45 and 46: I was started on beta-interferon be
- Page 47 and 48: 20Crystal N, USANov 2004 - Secondar
- Page 49 and 50: After I was diagnosed with Secondar
- Page 51 and 52: 22David N, UK1995 - Multiple Sclero
- Page 53 and 54: I went looking for alternative trea
- Page 55 and 56: 26Dianne W, AustraliaOct 1986 - Rel
- Page 57 and 58: then I pay for a month’s supply o
- Page 59 and 60: The doctor had no information for m
- Page 61 and 62: us make significant decisions for o
- Page 63 and 64: The improvement was so very gradual
- Page 65 and 66: 33Francie S, USASept 2000 - Multipl
- Page 67 and 68: At around this time, my husband was
- Page 69 and 70: There was no real explanation from
- Page 71 and 72: 38Jay D, UK2001 - Multiple Sclerosi
- Page 73 and 74: stories of how they had patients th
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41Jeni S, UK1997 - Diagnosed plaque
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to speak honestly of our experience
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45John O, UK24 July 2000 - Secondar
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More recently, I've been having Hyp
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49Joyce C, USA2001 - Hepatitis BJul
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to treat children with Autism. We r
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This is one of the end goals of the
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50Judy H, USAOctober 1995 - Fibromy
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The first night I did fine. No drea
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50mg tablet to fine powder between
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ut she also did not say too much ex
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I agreed to start on Copaxone injec
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een prescribed some cream made from
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56Linda Elsegood, UKOct 2000 - Rela
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Six weeks later I was given another
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Mum survived, even though a third o
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I was having a relapse every 6 mont
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At this point I couldn't feel any o
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agreed to refer me, but said I prob
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This position also gives me full ac
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The internet is a great tool and if
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Importantly, she can now hold a mug
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Until four or five years ago it was
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65Michelle X, UKApril 2004 - Multip
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I have not had the strange dreams o
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I actually took a paperclip (workin
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Life was good, but I knew it could
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68Nikolaos P, UKMarch 2007 - Multip
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I restarted taking LDN about a year
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intent of tapering down to 3mg dail
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In January 2008, our son started on
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75Paul C, UK2004 - Multiple Scleros
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78PN - ANON, UK2006 - Primary Progr
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I have now been on LDN for almost a
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I’d done a lot of research becaus
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had her on worked against her. She
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promoted as healthy). Seems that my
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I have been taking LDN for almost o
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MS is part of my life but I have a
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87Steve W, UK20th Sept 2001 - Relap
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Having spent 25 years soldiering an
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left eye was permanently damaged. T
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Since restarting LDN, bladder probl
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My husband retired August 2002 and
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from wishful thinking, but hoped so
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used my foot for the car brake as w
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94Vickie A, USADecember 2006 - Mult
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95Vicki F, USA1998 - Progressive Re
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after 9 years, no longer on any ant
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96Wanda L, CanadaJune 2006 - Fibrom
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(RRMS), and was provided with a whe
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from home. We eventually parted, wi
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consumed by the disease. I shrank t
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ACKNOWLEDGEMENTSThe need to raise a