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Stomach - I get some digestive system twinges (but they're short lived, normalreactions of smooth muscle)My progress, and the LDN benefits seem to get better each day with new things noted.The benefits of LDN for MS need to be known to people.19Colin T, UK17th April 2002 - Chronic Progressive Multiple Sclerosis2005 - LDNI spent a long time trying to decide how to respond to your LDN awareness campaign.I have been taking LDN for about four years now. A member at the therapy centre that Iattend told me about it. Some years before, I started the Cari Loder treatment, which Iam sure you're familiar with (b12, l-phenylalanine and lophepramine).I had for months been plagued by what I can only describe as a combination of flu-likesymptoms and hay fever which would come on over the morning and get progressivelyworse over the day. Having got to the desperate, try anything stage, I showed an articleabout the treatment to my doctor. He could have easily have put me off, but was in factvery encouraging about my trying it. The result was absolutely amazing and very quick.Several years later the symptoms started again. It was at this point that I startedthe LDN and within a very short time the symptoms disappeared and have not comeback. In short I have always felt very well during the time that I have taken LDN.Unfortunately, other symptoms of my Chronic Progressive MS have continued to getworse, particularly my hands and arms over the last month.I am afraid this isn't very helpful to you. I am going to carry on taking LDN, but for me ithasn't stopped the progression of my disease.Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200946
20Crystal N, USANov 2004 - Secondary Progressive MS, and Transverse MyelitisSept 2005 - LDNI am a 40+ year old mother of 3 kids. On November of 2004 I was diagnosed withSecondary Progressive Multiple Sclerosis and Transverse Myelitis.At the time I had been working for a brochure company driving a van to hotels andother places putting in brochures in the racks to keep them full.My first symptom was feeling extremely tired all the time. When I got home from work Iwould have to lie down and take a nap, which was unusual for me. Later, I read thattiredness is one of the first signs of MS. I then started having a lot of back and neckpain and then went numb from my feet up to my chest and could barely walk.I visited our family doctor, and after explaining to him what was wrong he only asked foran x-ray and checked my lower back and of course he found nothing. So he quicklydismissed my symptoms to stress and too much physical activity. After months of thisconstant numbness and pain, I decided to go to a Chiropractor because I thought it wasa pinched nerve. So I went and he did some x-rays and an MRI. The next day thatdoctor asked me to come in right away.That 10 minute drive to his office was the longest drive filled with fear and anxiety I'dever felt. When I arrived for my results he told me he could not examine my back orcarry out any procedures on my back because there was a mass in my spinal cord fromthe lumber region to my shoulder blades but he could not tell me if it was a tumor or justa mass. He said he had made an appointment with a Neurologist for the next day.The hours before the appointment with the Neurologist were the longest that myselfand my family had to endure - at home, wondering what was in store for me and us.The next morning at the Neurologist I explained the symptoms I was having. He didsome more tests in his office, and asked for another MRI with and without contrast(important to diagnose MS), and admitted me to the hospital to do a Lumbar Puncture.He ordered three days of Steroids through IV in the hospital and another week at home.A week later my Neurologist explained that after reviewing the symptoms I hadcomplained about and reviewing my medical records he determined that I hadTransverse Myelitis. Also, he knew I had Multiple Sclerosis before he got the results ofthe Lumbar puncture and that MS had been present at other points in my life. He justneeded the Lumbar puncture results for confirmation.When he told me I felt like I was in a bad dream. It felt like I hit a brick wall. My mindwas numb and I didn't want to believe what I was hearing. I was so devastated and all Ithought about was that I would end up being a cripple the rest of my life and wouldhave to depend on others to take care of me. I was scared to death!!!Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200947
Page 1 and 2: 100REASONSWHYYOU SHOULDKNOW ABOUTLD
Page 3 and 4: STORYNUMBERCONTENT CONDITION PAGELi
Page 5 and 6: 95 Vicki F, USA Multiple Sclerosis
Page 7 and 8: 1Adrian, UKApril 2005 - Secondary P
Page 9 and 10: Over the years I was given no medic
Page 11 and 12: I was very run down and tired, and
Page 13 and 14: I've just taken Syd on a walk by my
Page 15 and 16: 6Atif A, ScotlandNovember 2005 - Mu
Page 17 and 18: If I went for a walk it was like th
Page 19 and 20: 8Bev K, USA2004 - Multiple Sclerosi
Page 21 and 22: The back pain was the first indicat
Page 23 and 24: I later noticed, when completing an
Page 25 and 26: For three days we lived on sandwich
Page 27 and 28: This had been opened and equipped w
Page 29 and 30: presented to me and offering advice
Page 31 and 32: On first reading mention of this ap
Page 33 and 34: Videos of all the talks and other l
Page 35 and 36: time it rained. I can stand in line
Page 37 and 38: I fall asleep as soon as my head hi
Page 39 and 40: are her main symptoms. She is affec
Page 41 and 42: After a few weeks of taking LDN, I
Page 43 and 44: (1) I still suffer from tiredness a
Page 45: I was started on beta-interferon be
Page 49 and 50: After I was diagnosed with Secondar
Page 51 and 52: 22David N, UK1995 - Multiple Sclero
Page 53 and 54: I went looking for alternative trea
Page 55 and 56: 26Dianne W, AustraliaOct 1986 - Rel
Page 57 and 58: then I pay for a month’s supply o
Page 59 and 60: The doctor had no information for m
Page 61 and 62: us make significant decisions for o
Page 63 and 64: The improvement was so very gradual
Page 65 and 66: 33Francie S, USASept 2000 - Multipl
Page 67 and 68: At around this time, my husband was
Page 69 and 70: There was no real explanation from
Page 71 and 72: 38Jay D, UK2001 - Multiple Sclerosi
Page 73 and 74: stories of how they had patients th
Page 75 and 76: 41Jeni S, UK1997 - Diagnosed plaque
Page 77 and 78: to speak honestly of our experience
Page 79 and 80: 45John O, UK24 July 2000 - Secondar
Page 81 and 82: More recently, I've been having Hyp
Page 83 and 84: 49Joyce C, USA2001 - Hepatitis BJul
Page 85 and 86: to treat children with Autism. We r
Page 87 and 88: This is one of the end goals of the
Page 89 and 90: 50Judy H, USAOctober 1995 - Fibromy
Page 91 and 92: The first night I did fine. No drea
Page 93 and 94: 50mg tablet to fine powder between
Page 95 and 96: ut she also did not say too much ex
Page 97 and 98:
I agreed to start on Copaxone injec
Page 99 and 100:
een prescribed some cream made from
Page 101 and 102:
56Linda Elsegood, UKOct 2000 - Rela
Page 103 and 104:
Six weeks later I was given another
Page 105 and 106:
Mum survived, even though a third o
Page 107 and 108:
I was having a relapse every 6 mont
Page 109 and 110:
At this point I couldn't feel any o
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agreed to refer me, but said I prob
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This position also gives me full ac
Page 115 and 116:
The internet is a great tool and if
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Importantly, she can now hold a mug
Page 119 and 120:
Until four or five years ago it was
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65Michelle X, UKApril 2004 - Multip
Page 123 and 124:
I have not had the strange dreams o
Page 125 and 126:
I actually took a paperclip (workin
Page 127 and 128:
Life was good, but I knew it could
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68Nikolaos P, UKMarch 2007 - Multip
Page 131 and 132:
I restarted taking LDN about a year
Page 133 and 134:
intent of tapering down to 3mg dail
Page 135 and 136:
In January 2008, our son started on
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75Paul C, UK2004 - Multiple Scleros
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78PN - ANON, UK2006 - Primary Progr
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I have now been on LDN for almost a
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I’d done a lot of research becaus
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had her on worked against her. She
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promoted as healthy). Seems that my
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I have been taking LDN for almost o
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MS is part of my life but I have a
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87Steve W, UK20th Sept 2001 - Relap
Page 155 and 156:
Having spent 25 years soldiering an
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left eye was permanently damaged. T
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Since restarting LDN, bladder probl
Page 161 and 162:
My husband retired August 2002 and
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from wishful thinking, but hoped so
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used my foot for the car brake as w
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94Vickie A, USADecember 2006 - Mult
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95Vicki F, USA1998 - Progressive Re
Page 171 and 172:
after 9 years, no longer on any ant
Page 173 and 174:
96Wanda L, CanadaJune 2006 - Fibrom
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(RRMS), and was provided with a whe
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from home. We eventually parted, wi
Page 179 and 180:
consumed by the disease. I shrank t
Page 181 and 182:
ACKNOWLEDGEMENTSThe need to raise a
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