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After reading through it all I went to my local GP armed with all the paperwork. Afterdiscussing LDN with me, he was willing to let me try it.That all happened last year around September-October. I didn't experience any of theearly unpleasant symptoms I heard could happen, and my days are much more level. Iwish I’d been told of LDN back when my MS started 8 years ago because the conditionmight not have taken a lot of my mobility away.I for one am really grateful to Dr Lawrence for all his dedication in researching LDN anddietary requirements so people like myself can have a better standard of living withMultiple Sclerosis.17Christine L, IrelandSeptember 2004 - Multiple SclerosisOctober 2005 - LDNI was diagnosed with relapsing-remitting MS in September 2004 after experiencing tworelapses within the course of 12 months. I experienced double vision and shaking andhad to be put on steroids to get my bowels working.My main symptoms were:1. exhaustion and weakness2. lack of concentration - I couldn't read anything longer than an article or very simplenovel (5 years prior to my diagnosis I had qualified with a law degree so my ability toread had deteriorated quite rapidly during those 5 years)3. when people were talking to me directly my brain very often couldn't absorb whatthey were saying and my eyes would start to roll in my head4. Any sort of concentration at all would make my head and eyes hurt5. I had recurring urinary tract infections (2 or 3 each year)6. My eyesight was becoming increasingly blurred in my right eye7. I was dropping things and bumping into things all the timeI started a course of LDN in October 2005 and felt immediate benefits. The only sideeffectI felt from the LDN was vivid dreams for a couple of weeks or so and then thesepassed.The improvement in my health has been so immense it is very difficult to remember allof the improvements but I shall try to list as many as possible.No wait, it is probably easier just to mention the only remaining symptoms I have of MSand that is basically these 2:Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200942
(1) I still suffer from tiredness and so probably will not work again but my energy levelhas increased enormously to the extent that I can get out and about every day now,whereas before I was lying either in bed or on the sofa all day, and;(2) I still suffer from mood swings.Essentially those are the only 2 symptoms remaining.I used to list the improvements in my health for my consultant neurologist to show how Iwas improving - so perhaps it is best if I just copy these out for you and update you withmy latest improvements.MS SYMPTOMS 24 MAY 2006Improvement eyesight in right eye virtually normal tingling virtually gone - was tingling all over a lot improved concentration - within last 3 weeks was able to read a 'heavy' book asopposed to a novel appetite has returned - had lost appetite from Sept 2005 to Jan/Feb 2006 agitation has improved - I can lie and doze during the day now (both steroidsand LDN seemed to improve this symptom)No change no improvement in fatigue or lack of energy have a lot of food intolerances - my diet has become very restricted worsening Symptoms pain in right arm from elbow down when lifting things, eg, cups of tea, teapotsetc - this is more or less permanent when increasing dosage of LDN from 3mg to 4.5mg, I was in pain all over mybody and had to reduce dosage back down to 3mg againUPDATE -4 AUGUST 2008Eventually I was able to tolerate 4.5mg and now I am on 6mg per day and have beenfor over a year.eyesight normal, except when under severe stressno urinary tract infections at all in 3 years - used to be on antibiotics 2-3 times ayear before LDNtingling gone, except when under severe stressI can read with no problems whatsoever now, apart from tiredness, butconcentration is excellentmy appetite is back, with a vengeance, putting on weight rapidlyI'm not agitated at all, although I can become impatient when very tiredI still have food intolerances but these too are improving and I can eat manymore foods nowI'm physically and mentally stronger and more optimistic about life.I can get out and about most days when before I was only able to get out maybe onceor twice a week.UPDATE 10 JULY 2009Produced by LDN Research Trust for International LDN Awareness Week 19-25 October 2009© LDN Research Trust 200943
Page 1 and 2: 100REASONSWHYYOU SHOULDKNOW ABOUTLD
Page 3 and 4: STORYNUMBERCONTENT CONDITION PAGELi
Page 5 and 6: 95 Vicki F, USA Multiple Sclerosis
Page 7 and 8: 1Adrian, UKApril 2005 - Secondary P
Page 9 and 10: Over the years I was given no medic
Page 11 and 12: I was very run down and tired, and
Page 13 and 14: I've just taken Syd on a walk by my
Page 15 and 16: 6Atif A, ScotlandNovember 2005 - Mu
Page 17 and 18: If I went for a walk it was like th
Page 19 and 20: 8Bev K, USA2004 - Multiple Sclerosi
Page 21 and 22: The back pain was the first indicat
Page 23 and 24: I later noticed, when completing an
Page 25 and 26: For three days we lived on sandwich
Page 27 and 28: This had been opened and equipped w
Page 29 and 30: presented to me and offering advice
Page 31 and 32: On first reading mention of this ap
Page 33 and 34: Videos of all the talks and other l
Page 35 and 36: time it rained. I can stand in line
Page 37 and 38: I fall asleep as soon as my head hi
Page 39 and 40: are her main symptoms. She is affec
Page 41: After a few weeks of taking LDN, I
Page 45 and 46: I was started on beta-interferon be
Page 47 and 48: 20Crystal N, USANov 2004 - Secondar
Page 49 and 50: After I was diagnosed with Secondar
Page 51 and 52: 22David N, UK1995 - Multiple Sclero
Page 53 and 54: I went looking for alternative trea
Page 55 and 56: 26Dianne W, AustraliaOct 1986 - Rel
Page 57 and 58: then I pay for a month’s supply o
Page 59 and 60: The doctor had no information for m
Page 61 and 62: us make significant decisions for o
Page 63 and 64: The improvement was so very gradual
Page 65 and 66: 33Francie S, USASept 2000 - Multipl
Page 67 and 68: At around this time, my husband was
Page 69 and 70: There was no real explanation from
Page 71 and 72: 38Jay D, UK2001 - Multiple Sclerosi
Page 73 and 74: stories of how they had patients th
Page 75 and 76: 41Jeni S, UK1997 - Diagnosed plaque
Page 77 and 78: to speak honestly of our experience
Page 79 and 80: 45John O, UK24 July 2000 - Secondar
Page 81 and 82: More recently, I've been having Hyp
Page 83 and 84: 49Joyce C, USA2001 - Hepatitis BJul
Page 85 and 86: to treat children with Autism. We r
Page 87 and 88: This is one of the end goals of the
Page 89 and 90: 50Judy H, USAOctober 1995 - Fibromy
Page 91 and 92: The first night I did fine. No drea
Page 93 and 94:
50mg tablet to fine powder between
Page 95 and 96:
ut she also did not say too much ex
Page 97 and 98:
I agreed to start on Copaxone injec
Page 99 and 100:
een prescribed some cream made from
Page 101 and 102:
56Linda Elsegood, UKOct 2000 - Rela
Page 103 and 104:
Six weeks later I was given another
Page 105 and 106:
Mum survived, even though a third o
Page 107 and 108:
I was having a relapse every 6 mont
Page 109 and 110:
At this point I couldn't feel any o
Page 111 and 112:
agreed to refer me, but said I prob
Page 113 and 114:
This position also gives me full ac
Page 115 and 116:
The internet is a great tool and if
Page 117 and 118:
Importantly, she can now hold a mug
Page 119 and 120:
Until four or five years ago it was
Page 121 and 122:
65Michelle X, UKApril 2004 - Multip
Page 123 and 124:
I have not had the strange dreams o
Page 125 and 126:
I actually took a paperclip (workin
Page 127 and 128:
Life was good, but I knew it could
Page 129 and 130:
68Nikolaos P, UKMarch 2007 - Multip
Page 131 and 132:
I restarted taking LDN about a year
Page 133 and 134:
intent of tapering down to 3mg dail
Page 135 and 136:
In January 2008, our son started on
Page 137 and 138:
75Paul C, UK2004 - Multiple Scleros
Page 139 and 140:
78PN - ANON, UK2006 - Primary Progr
Page 141 and 142:
I have now been on LDN for almost a
Page 143 and 144:
I’d done a lot of research becaus
Page 145 and 146:
had her on worked against her. She
Page 147 and 148:
promoted as healthy). Seems that my
Page 149 and 150:
I have been taking LDN for almost o
Page 151 and 152:
MS is part of my life but I have a
Page 153 and 154:
87Steve W, UK20th Sept 2001 - Relap
Page 155 and 156:
Having spent 25 years soldiering an
Page 157 and 158:
left eye was permanently damaged. T
Page 159 and 160:
Since restarting LDN, bladder probl
Page 161 and 162:
My husband retired August 2002 and
Page 163 and 164:
from wishful thinking, but hoped so
Page 165 and 166:
used my foot for the car brake as w
Page 167 and 168:
94Vickie A, USADecember 2006 - Mult
Page 169 and 170:
95Vicki F, USA1998 - Progressive Re
Page 171 and 172:
after 9 years, no longer on any ant
Page 173 and 174:
96Wanda L, CanadaJune 2006 - Fibrom
Page 175 and 176:
(RRMS), and was provided with a whe
Page 177 and 178:
from home. We eventually parted, wi
Page 179 and 180:
consumed by the disease. I shrank t
Page 181 and 182:
ACKNOWLEDGEMENTSThe need to raise a
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