The Management of Congenital Muscular Dystrophy ... - Cure CMD

Acknowledgments:This guide was made possible by the vision of Anne Rutkowski, MD, Chair of Cure CMD,and was adapted, compiled, and edited by Susan Sklaroff-Van Hook andDiane Smith-Hoban.Additional expert contributions were made by Meganne Leach, MSN, APRN, PNP-BC,Katy Meilleur, PhD, CRNP National Institutes of Health; Thomas Sejersen, MD KarolinskaInstitutet; Kate Bushby, MD Newcastle University; Ching H. Wang Stanford University;and Carsten Bonnemann, MD, Neuromuscular and Neurogenetic Disorders of ChildhoodSection, National Institutes of Health. Medical editing and publishing support generouslydonated by Mary T. Durkin, Diane True and Erin McGuirk.Photographs used in this guide were provided by families affected by CMD. We wouldlike to thank all the children and families who allowed their photos to be used..If you have any comments, questions or additional feedback for future revisionsof this guide, please contact Cure CMD (info@curecmd.org) or emailDiane.Smith-Hoban@curecmd.org42