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PDF1 - University of Maryland School of Law

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ital impairments and infants or children with specialneeds." 103 This was rejected by the medical groupson the ground that it would lead to undue intrusion.Instead, the American Academy <strong>of</strong> Pediatrics madea counterproposal giving enforcement authority toState child protective services agencies, the frameworkthat was eventually adopted. 104 Under thestatute as enacted, within 1 year after the act becamelaw, such agencies desiring to receive Federal fundswould have to:have in place for the purpose <strong>of</strong> responding to thereporting <strong>of</strong> medical neglect (including instances <strong>of</strong> withholding<strong>of</strong> medically indicated treatment from disabledinfants with life-threatening conditions), procedures orprograms, or both (within the State child protectiveservices system), to provide for (i) coordination andconsultation with individuals designated by and withinappropriate health-care facilities, (ii) prompt notificationby individuals designated by and within appropriatehealth-care facilities <strong>of</strong> cases <strong>of</strong> suspected medical neglect(including instances <strong>of</strong> withholding <strong>of</strong> medically indicatedtreatment from disabled infants with life-threatening conditions),and (iii) authority, under State law, for the Statechild protective service system to pursue any legalremedies, including the authority to initiate legal proceedingsin a court <strong>of</strong> competent jurisdiction, as may benecessary to prevent the withholding <strong>of</strong> medically indicatedtreatment from disabled infants with life-threateningconditions. 105The Principal Sponsors' Statement <strong>of</strong> the Senatesponsors adopted by the conference committeenoted that preexisting law required recipient Stateagencies "to provide certain mechanisms for thereporting <strong>of</strong> abuse or neglect cases. The samereporting mechanisms and standards set forth in theAct and existing regulations would be applicable tothe reporting <strong>of</strong> cases <strong>of</strong> medical neglect. . . ." 106Those preexisting regulations establish a Stateduty to create classes <strong>of</strong> individuals legally requiredto report both known and suspected cases <strong>of</strong> childabuse and neglect, a State duty to permit all otherpersons to submit such reports, 107 and a State dutyto investigate promptly to substantiate the accuracy<strong>of</strong> all such reports. 108The HHS Final Rule implementing the ChildAbuse Amendments is largely built on these require-103Gerry & Nimz, supra note 66, at 344.104Id.10542 U.S.C.A. §51O3(b)(2)(K) (West Supp. 1988).1M H.R. Conf. Rep. No. 1038, 98th Cong., 2d Sess. 41, reprintedin 1984 U.S. Code Cong. & Admin. News 2947, 2970. It madespecial mention <strong>of</strong> the requirement that a guardian ad litem beappointed for children in the course <strong>of</strong> all judicial proceedingsrelating to abuse or neglect. Id.ments. To ensure that health care facilities takeseriously their obligation to designate individualswith the specific responsibility to report known orsuspected withholding <strong>of</strong> medically indicated treatmentand to serve as a point <strong>of</strong> contact andcoordination during investigations, it mandates thatState agencies contact each health care facilityannually to identify the names, titles, and telephonenumbers <strong>of</strong> the designated individuals. 109 It requiresthat States demonstrate, through statute, regulation,or the opinion <strong>of</strong> the State attorney general, thattheir State laws give adequate authority to enablethem to prevent violations <strong>of</strong> the federally definedstandard <strong>of</strong> care. 110Perhaps the most important feature <strong>of</strong> the FinalRule pertaining to enforcement was its emphasis onproviding the mechanisms necessary to ensure anindependent medical evaluation <strong>of</strong> circumstancesthat give rise to a report <strong>of</strong> suspected medicalneglect. As the American Bar Association's ModelProcedures point out: "The judgment <strong>of</strong> physician(s)who specialize in the medical problems and disablingconditions <strong>of</strong> newborn infants is necessary to assesswhether reasonable medical judgment was employedin a decision to withhold medical treatmentor care from a disabled infant." 111 A social workeror other child protective services specialist is rarelyequipped to make an accurate judgment aboutwhether legally required treatment is being withheld.Short <strong>of</strong> outright admissions by medical staff,detection <strong>of</strong> such withholding normally requires aspecialist's knowledge <strong>of</strong> the appropriate level <strong>of</strong>care for the life-threatening condition, so as to judgewhether the treatment being accorded by the healthcare facility falls short <strong>of</strong> it. Furthermore, a judgmentabout what care is appropriate necessarilydepends on an accurate diagnosis <strong>of</strong> the child'scondition. Without the assistance <strong>of</strong> a consultantqualified to make an independent evaluation <strong>of</strong> thatcondition, a child protective services worker wouldin most cases be reduced to relying solely upon theunconfirmed representations <strong>of</strong> the very physicianswhose conduct is the subject <strong>of</strong> investigation. 1120745 C.F.R. §1340.14(c) (1987).08Id. §1340.14(d).45 C.F.R. §1340.15(c)(3) (1987).Id. §1340.15(d)(2)(ii) (1987).Model Procedures, supra note 46, at 229.The analogy in a more "traditional" child abuse case, one inwhich someone reports that a neighboring child has been severelybeaten by her parents, would be a child protective services91

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