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Hospital Discharge

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Staff reported problems in accessing NHS<br />

Continuing Healthcare funding for patients who<br />

were at ‘end of life’. There are National Framework<br />

guidelines (NHS 2012) for patients with a rapidly<br />

deteriorating condition potentially entering a<br />

terminal phase, so that their assessments for<br />

continued healthcare can be carried out quickly.<br />

This is designed to ensure that appropriate<br />

care is provided for patients in their preferred<br />

location for dying. However, ward staff identified<br />

that this protocol was not always followed. Our<br />

interviewees reported that due to changes in<br />

assessment criteria patients were unable to<br />

access NHS Continuing Healthcare funding and<br />

that these delays were distressing for patients,<br />

their families and staff:<br />

The fast-track all changed … And I think, since that<br />

happened, I know of three patients that died here<br />

when their wish was to die at home. … It’s quite<br />

heart breaking and soul-destroying, to know that<br />

you’re not- that’s all they want. They want to die at<br />

home, their family want them to die at home, and<br />

you can’t do that for them, because of, you know,<br />

the time constraints and stuff. …A lot of the time<br />

they’ll say they need a checklist, and I’ll say, “But<br />

hang on a minute, they’re not going to be around<br />

for your checklist. They need to get out.” …By the<br />

time they do the checklist, they’re either not going<br />

to make it out of hospital, or they don’t get here in<br />

time, and they’ve already died. (Francis)<br />

As we shall see when we present the discharge<br />

team staff data issues relating to fast-track for<br />

‘end of life’ patients were seen as a considerable<br />

problem during the period in which we<br />

conducted our study.<br />

7.1.3 Family involvement<br />

in discharge planning<br />

Research on hospital discharge tells us that<br />

involving families in discharge planning<br />

consistently leads to better outcomes for patients,<br />

and that the presence or absence of a family carer<br />

can have implications for delayed discharge,<br />

as family and friends often provide support in<br />

maintaining older people in the community<br />

(Victor, Healy, and Thomas, et al., 2000). While<br />

NHS guidance recommends that family carers<br />

are kept informed and given the opportunity to<br />

contribute, many of the ward staff we spoke to felt<br />

that families could be ‘difficult’, delaying patient<br />

discharge by raising unnecessary concerns<br />

about their relative’s living situation. As one<br />

member of staff described:<br />

Generally, most patients want to get home as soon<br />

as possible. Families can be difficult because they’ll<br />

have their own opinion, their house is a mess or<br />

they’ve got beer cans all over the house but they<br />

forget that if the patient’s got capacity and that’s<br />

the way they want to live, and that can be difficult<br />

because they’ll say, “How can you send them<br />

back?” That’s the way they want to live and as long<br />

as they’re safe and the place is safe. (Alex)<br />

Another member of staff on the same ward also<br />

felt that some families did not want to facilitate<br />

hospital discharge; she reflected:<br />

I think some relatives, kind of feel that their<br />

relatives are in hospital for a certain amount of<br />

time, that’s therefore a given, and they can be quite<br />

obstructive in helping out. It’s not an urgency to<br />

get people discharged, I think that’s a bit unfair. But<br />

they don’t, I don’t think they appreciate the need<br />

for the bed. (Francis)<br />

27

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