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The Swallows Australian Edition Magazine

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wanted to help but all were in shock. My dad broke<br />

down in the supermarket when a friend he hadn’t<br />

seen for years asked how the family was. I went<br />

from being positive, to crying hysterically, to despair<br />

all at the same time. I remember sitting on my<br />

children’s bed in the middle of the night crying that<br />

they would never know how much I loved them.<br />

A Mother of 4<br />

- Susannah Gallagher<br />

After a difficult pregnancy, my fourth child was born<br />

in April 2014 and had to be hospitalised for over a<br />

month. During this time I developed an ulcer on the<br />

left side of my tongue that didn’t go away. I checked<br />

with two pharmacists and family but all dismissed<br />

this as a result of the trauma of the past months.<br />

Whilst I had no other symptoms and did not feel<br />

unwell, after six weeks I visited my dentist to check<br />

if this was indeed nothing to worry about. <strong>The</strong><br />

minute I saw her face as she looked in my mouth I<br />

knew that things were not right.<br />

She referred me to an Oral Surgeon who<br />

recommended a biopsy. I cried the whole way<br />

through the biopsy despite everyone assuring me<br />

that it would be all fine. Somehow I just knew that it<br />

was not fine. I was told that the likelihood of the<br />

ulcer being mouth cancer was minute, as I was a 39<br />

year old, non-smoking, very healthy female.<br />

However she recommended that we rule this out as<br />

the possible cause.<br />

Less than 48 hours later, a day that will be etched in<br />

my mind forever, my husband Justin came with me<br />

to the appointment, even though he was not worried<br />

at all. <strong>The</strong> news was hard to process. I remember<br />

feeling almost out of my body. How could a healthy<br />

mother of four beautiful children under five and a<br />

half have cancer. Mouth cancer is an old male<br />

smokers’ disease, isn’t it? I remember asking if I<br />

was going to die. I rang mum on the way home and<br />

all I remember is that she answered ‘its all fine isn’t<br />

it’ and I said ‘no mum it’s the worst possible result’.<br />

<strong>The</strong> reactions of my family and friends were mixed.<br />

Some listened, some grieved with me, some<br />

<strong>The</strong> following week I saw Dr Veivers, my ENT &<br />

Head and Neck surgeon. He recommended a PET<br />

scan and that I attend a multidisciplinary committee<br />

at the Northern Sydney Cancer Centre the following<br />

week. That following week was the longest of my<br />

life as I struggled to accept the reality of my<br />

situation. I tried to be positive and hopeful but this<br />

was not always possible. I had a PET scan followed<br />

by a meeting with some 25 experienced<br />

professionals in their fields to determine the best<br />

treatment option. Finally my doctor delivered the<br />

good news that my cancer was isolated and that<br />

surgery provided the best possible outcome for<br />

survival.<br />

Two days later I had a left partial glossectomy and<br />

neck dissection. A 1x1x1.5cm, stage one tumour<br />

was removed from my tongue, and tested positive<br />

as an HPV cancer. I spent the night in Intensive<br />

Care and the following week in hospital. My results<br />

came back, whilst all the nodes were clear, one of<br />

the sides of the tumour did not have the clear<br />

margins that they like to get to ensure that the<br />

tumour has been removed. <strong>The</strong> despair I felt that I<br />

would need to go through another operation was<br />

extreme. Yes I was lucky that cancer had not<br />

spread and my chances of survival were high, but<br />

the thought of another operation was devastating.<br />

Two weeks later more of my tongue was removed<br />

and this time the margins were all clear.<br />

Months of soup, pureed food, intensive speech<br />

lessons, yoga, meditation and research followed,<br />

mixed in with being a mum to my children who had<br />

no idea I was sick. <strong>The</strong> dietitians, speech therapist<br />

and cancer support groups became my new friends<br />

and, with my family and friends, their positive<br />

energy and support is something that I will never<br />

forget. We took a holiday and life returned to our<br />

“new normal”. I found that I was continually<br />

checking my mouth and neck for changes and this<br />

lead me to see a counsellor to help me with<br />

recurrence anxiety.<br />

Next month will mark three years cancer-free. I have<br />

a slight change in my speech but nothing that a<br />

stranger would notice. I still tear up when I talk of<br />

my journey and perhaps that will always be the case<br />

but it no longer consumes me 24 hours a day.<br />

Today I stand here with a scar across my neck, but<br />

one that I am strangely proud of as it shows what I<br />

went through to be here today.<br />

11

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