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Laryngectomy Story<br />
India - Shrenik Shah<br />
My name is Shrenik Shah. I am a 64-year-old<br />
Indian businessman in Global Marketing and<br />
have travelled to over 30 countries promoting<br />
exports in Chemicals & Dyestuffs. I have also<br />
been a Cancer Survivor for the past 20 years.<br />
Until I was 44, I spoke normally but then my<br />
voice gradually turned into a whisper. Several<br />
doctors and ENT surgeons examined me but<br />
could find nothing unusual. I had never<br />
smoked, used tobacco or consumed alcohol.<br />
However, I had been travelling extensively<br />
seven or eight times a year for over 10 years<br />
which might have been a factor.<br />
<strong>The</strong>n, in 1997, I started to have difficulty<br />
breathing and was unable to sleep on my<br />
back. I also began to lose weight; 10 kilograms<br />
in just 10 months. In August I found blood in<br />
my sputum or saliva. My family physician<br />
referred me immediately to a cancer specialist<br />
who carried out an endoscopy or internal<br />
examination of my throat using an endoscope<br />
– a long, thin flexible tube. <strong>The</strong>y found a huge<br />
tumour on the opening of my windpipe. This<br />
eventually led to a Total Laryngectomy which<br />
involved the partial removal of my thyroid<br />
gland and 56 other nodes together with much<br />
of my neck muscle. I was discharged from<br />
hospital after a week and was back at work in<br />
under three months.<br />
I was advised to use an Electrolarynx, a<br />
hand-held, battery-operated device which<br />
produces vibrations so allowing you to speak.<br />
It took me a couple of weeks to get used to it<br />
and I now use it in face-to-face conversations,<br />
over the phone and in public speaking as I<br />
travel all over the world in my work. It may<br />
sound robotic but, to me, it’s a blessing in<br />
disguise as it has given me a unique identity. I<br />
never need announce my name when I speak<br />
to someone for a second time!<br />
When the doctors diagnosed my cancer and<br />
told me they needed to remove my voice box,<br />
my answer was quite simple. I said they should<br />
do whatever was required. Since then I have<br />
never dwelt on the fact I had cancer. Ten years<br />
after my surgery, I began to get involved in<br />
motivational work with cancer patients in<br />
hospital and to spread awareness of cancer<br />
among the business community, particularly<br />
during World Cancer and No Tobacco Days.<br />
Over the last six months, I have been a regular<br />
visitor to Cancer Hospital Outdoor & Indoor<br />
Patient Departments. I have spoken to them<br />
about fighting cancer and how to lead<br />
independent and active lives and helping<br />
others to fight Cancer too. I am also actively<br />
connected with the Memorial Sloan Kettering<br />
Cancer Centre in New York and regularly take<br />
part in their webinars. In July there was the<br />
launch of the book “10/10 Immersive<br />
Narratives of 10 Cancer Survivors” which tells<br />
the stories of 10 Head & Neck Cancer patients<br />
who have survived over 10 years. I am one of<br />
those lucky ones and my story is told in<br />
chapter 1: “I am going to stay”.<br />
During my 20 years as a cancer survivor, I have<br />
been committed to helping, protecting and<br />
comforting cancer patients and carers. I now<br />
ask for your support please in carrying on this<br />
commitment.<br />
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