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The Swallows Australian Edition Magazine

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Laryngectomy Story<br />

India - Shrenik Shah<br />

My name is Shrenik Shah. I am a 64-year-old<br />

Indian businessman in Global Marketing and<br />

have travelled to over 30 countries promoting<br />

exports in Chemicals & Dyestuffs. I have also<br />

been a Cancer Survivor for the past 20 years.<br />

Until I was 44, I spoke normally but then my<br />

voice gradually turned into a whisper. Several<br />

doctors and ENT surgeons examined me but<br />

could find nothing unusual. I had never<br />

smoked, used tobacco or consumed alcohol.<br />

However, I had been travelling extensively<br />

seven or eight times a year for over 10 years<br />

which might have been a factor.<br />

<strong>The</strong>n, in 1997, I started to have difficulty<br />

breathing and was unable to sleep on my<br />

back. I also began to lose weight; 10 kilograms<br />

in just 10 months. In August I found blood in<br />

my sputum or saliva. My family physician<br />

referred me immediately to a cancer specialist<br />

who carried out an endoscopy or internal<br />

examination of my throat using an endoscope<br />

– a long, thin flexible tube. <strong>The</strong>y found a huge<br />

tumour on the opening of my windpipe. This<br />

eventually led to a Total Laryngectomy which<br />

involved the partial removal of my thyroid<br />

gland and 56 other nodes together with much<br />

of my neck muscle. I was discharged from<br />

hospital after a week and was back at work in<br />

under three months.<br />

I was advised to use an Electrolarynx, a<br />

hand-held, battery-operated device which<br />

produces vibrations so allowing you to speak.<br />

It took me a couple of weeks to get used to it<br />

and I now use it in face-to-face conversations,<br />

over the phone and in public speaking as I<br />

travel all over the world in my work. It may<br />

sound robotic but, to me, it’s a blessing in<br />

disguise as it has given me a unique identity. I<br />

never need announce my name when I speak<br />

to someone for a second time!<br />

When the doctors diagnosed my cancer and<br />

told me they needed to remove my voice box,<br />

my answer was quite simple. I said they should<br />

do whatever was required. Since then I have<br />

never dwelt on the fact I had cancer. Ten years<br />

after my surgery, I began to get involved in<br />

motivational work with cancer patients in<br />

hospital and to spread awareness of cancer<br />

among the business community, particularly<br />

during World Cancer and No Tobacco Days.<br />

Over the last six months, I have been a regular<br />

visitor to Cancer Hospital Outdoor & Indoor<br />

Patient Departments. I have spoken to them<br />

about fighting cancer and how to lead<br />

independent and active lives and helping<br />

others to fight Cancer too. I am also actively<br />

connected with the Memorial Sloan Kettering<br />

Cancer Centre in New York and regularly take<br />

part in their webinars. In July there was the<br />

launch of the book “10/10 Immersive<br />

Narratives of 10 Cancer Survivors” which tells<br />

the stories of 10 Head & Neck Cancer patients<br />

who have survived over 10 years. I am one of<br />

those lucky ones and my story is told in<br />

chapter 1: “I am going to stay”.<br />

During my 20 years as a cancer survivor, I have<br />

been committed to helping, protecting and<br />

comforting cancer patients and carers. I now<br />

ask for your support please in carrying on this<br />

commitment.<br />

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