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The Swallows Australian Edition Magazine

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Head and Neck Cancer<br />

Survivors Support<br />

Network<br />

- New Zealand<br />

<strong>The</strong> Head and Neck Cancer Survivors Support<br />

Network Inc evolved from an Auckland Head<br />

and Neck Cancer Support group run by ORL,<br />

Auckland City Hospital. We untied the apron<br />

strings in 2016 and became an incorporated<br />

society representing head and neck cancer<br />

patients throughout New Zealand and beyond.<br />

Towards the end of 2016 we set up a closed<br />

Facebook group https://www.facebook.com<br />

/groups/1116515895 074395/ and a website,<br />

www.headandneck.network.<br />

Our stated aims are to connect head and neck<br />

cancer patients online, to provide peer support<br />

and finally to advocate to fill unmet needs. We<br />

are pleased with the progress so far with over<br />

100 people connected to us via Facebook and<br />

over 60 on the website. Our advocacy role is<br />

proceeding well. We have been invited to<br />

participate in reviews of services and we are<br />

pushing hard for better dental care.<br />

This year we hope to adjust our name and logo<br />

to reflect our broad reach to all head and neck<br />

people who find us, whether they are newly<br />

diagnosed, long term survivors or in palliative<br />

care. We have adopted a New Zealand bird as<br />

our symbol, the tui, and will eventually<br />

incorporate it into our logo. We are New<br />

Zealand based but here for head and neck<br />

patients and carers from all over the world.<br />

Diana Ayling and Maureen Jansen NZ

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