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Nor'West News: October 29, 2020

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NOR’WEST NEWS Latest Canterbury news at starnews.co.nz<br />

Thursday <strong>October</strong> <strong>29</strong> <strong>2020</strong> 3<br />

Desperate push to get Dekken pedalling<br />

• By Bea Gooding<br />

FOR MANY children, learning<br />

to ride a bike is seen as a luxury,<br />

but for six-year-old Dekken<br />

McClintock, it’s a matter of<br />

necessity.<br />

Born with Prader-Willi<br />

syndrome which causes weak<br />

muscles, obsessive eating, and<br />

slow development, the rare genetic<br />

disorder has led to further<br />

complications. Over a period of<br />

time spinal deterioration has led<br />

to him developing scoliosis.<br />

His mother, Rachelle Mitchell,<br />

is now on a desperate mission to<br />

raise $10,000 towards the cost of<br />

a specialised trike in order for<br />

her son to build muscle strength<br />

before it is too late.<br />

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She said because he was<br />

diagnosed early, there was still<br />

time for him to gain strength<br />

before running the risk of being<br />

wheelchair-bound and undergoing<br />

further operations later in<br />

life.<br />

“Because he has a really low<br />

muscle tone, he can’t sit on a<br />

normal bike and balance as he<br />

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doesn’t have the core strength,”<br />

said Mitchell.<br />

“In my eyes, the trike isn’t a<br />

luxury item, it’s a necessity. We<br />

don’t have the luxury of being<br />

able to go to The Warehouse or<br />

Kmart to buy a $100 bike.”<br />

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STRENGTH:<br />

Dekken<br />

McClintock,<br />

6, needs a<br />

specialised<br />

trike for<br />

disabled riders<br />

in order to<br />

stop further<br />

deterioration<br />

in his spine<br />

caused by<br />

Prader-Willi<br />

Syndrome.<br />

PHOTO:<br />

GEOFF SLOAN<br />

a harness and pedals at the front<br />

rather than the sides.<br />

Dekken would be able to use<br />

the trike into adulthood because<br />

the base had the ability to extend<br />

as he got older, with the possibility<br />

of converting it to electric in<br />

the future.<br />

“His legs will be outstretched,<br />

and there’s something special on<br />

See website for details<br />

the pedal that means he doesn’t<br />

need to have power behind the<br />

push as long as he can move<br />

them. It doesn’t matter if he can’t<br />

push strong,” she said.<br />

“It will stop the scoliosis from<br />

getting worse as he will get a<br />

healthy blood flow through his<br />

body and it will increase his cardio,<br />

strengthening core muscles.<br />

“If it gets worse he’ll end up<br />

really hunched over making it<br />

more difficult to walk than what<br />

it already is.”<br />

Dekken was born prematurely<br />

at 34 weeks weighing only<br />

1500gm after six weeks in neonatal<br />

care.<br />

He has had seven operations<br />

since then, including a double<br />

hip and femur surgery, and five<br />

surgeries to rectify obstructive<br />

sleep apnoea – a condition which<br />

can cause breathing to stop during<br />

sleep.<br />

Said Mitchell: “He gets tired<br />

really easily and struggles to<br />

keep up with other kids his age.<br />

Because he can’t regulate his<br />

emotions, he gets frustrated at<br />

not being able to do things like<br />

everyone else.”<br />

•Donations towards<br />

Dekken’s cause can be<br />

made at https://givealittle.<br />

co.nz/cause/trike-needed<br />

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