North Canterbury News: April 08, 2021
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Marilyn steps up to challenge<br />
By SHELLEY TOPP<br />
Soon after Marilyn Pond was<br />
diagnosed with Parkinson’s<br />
disease, she dreamt her<br />
illness was cured.<br />
It was heartbreaking for<br />
her to realise when she<br />
awoke that she still had the<br />
incurable neurological<br />
disorder that affects<br />
movement, balance and coordination.<br />
The loss of spontaneity is<br />
particularity hard to accept.<br />
‘‘You can’t just jump in<br />
the car without thinking<br />
twice. We have to make sure<br />
we have got medication, and<br />
snacks to help if there are<br />
problems with the<br />
medication working.’’<br />
Despite this, she<br />
maintains apositive outlook<br />
on life.<br />
Since her diagnosis 11<br />
years ago, Marilyn, who lives<br />
in Ohoka with her partner<br />
Neville MajorJohnston, has<br />
been taking part in aNew<br />
Zealand Brain Research<br />
Institute study to find acure.<br />
‘‘I want to know what<br />
causes Parkinson’s, because<br />
until we know that we are<br />
not going to change alot,’’<br />
she says.<br />
‘‘If you are going to have<br />
Parkinson’s you may as well<br />
use it for something good. It<br />
brings apositive to it,<br />
instead of anegative.’’<br />
Marilyn separated from her<br />
partner of 20 years soon<br />
after she was diagnosed and<br />
started anew relationship<br />
with Neville four years ago.<br />
‘‘It is the best decision I<br />
have ever made.<br />
‘‘He takes me as Iamand<br />
we laugh alot about some of<br />
the Parkinson’s stuff, and<br />
his family is extremely<br />
accepting of the<br />
Parkinson’s,’’ she says.<br />
However, she misses the<br />
energy she used to have.<br />
‘‘I used to move mountains<br />
in aday, and now Istruggle<br />
with some of the simpler<br />
things like baking –itwill<br />
take most of the day.’’<br />
It has also been hard<br />
learning to accept help from<br />
others.<br />
‘‘Helping people was<br />
always my role and it is hard<br />
to change places. Idon’t<br />
hide the fact that Ihave<br />
Parkinson’s, but some<br />
people then turn you into an<br />
invalid.’’<br />
She prefers Neville’s<br />
approach of allowing her to<br />
do as much as possible<br />
without help on the<br />
understanding that she will<br />
ask for help if she needs it.<br />
The Brain Research<br />
Institute’s clinical director,<br />
Professor Tim Anderson,<br />
says 12,000 people in New<br />
Zealand have Parkinson’s<br />
disease. This number is<br />
expected to double in the<br />
next 20 years.<br />
There is no single cause<br />
and there are many<br />
Life with Parkinson’s ... Marilyn Pond maintains apositive<br />
outlook on life.<br />
different symptoms, so each<br />
person requires<br />
individualised diagnosis<br />
and treatment.<br />
Parkinson’s Awareness<br />
Month is being held this<br />
month, with Parkinson’s<br />
Awareness Day this Sunday.<br />
NEWS<br />
<strong>North</strong> <strong>Canterbury</strong> <strong>News</strong>, <strong>April</strong> 8, <strong>2021</strong><br />
Service<br />
recognised<br />
5<br />
MikeDormer’s service to The Willows<br />
Cricket Club and the community has<br />
beenrecognised.<br />
Waimakariri MayorDan Gordon<br />
visited the hallowed turf at Loburn last<br />
weektopresent the ground’sfounder<br />
withaWaimakaririDistrictCouncil<br />
community serviceaward.<br />
Mr Dormer,his wife Winsome and sons<br />
Ben and Pete have<br />
beenhosting<br />
matchesatLoburn<br />
since the 1990s.<br />
The ground was<br />
established when<br />
Ben persuaded<br />
him to convert a<br />
paddockonthe<br />
family’s property<br />
intoapitch.<br />
Mike Dormer<br />
Mr Dormer has<br />
never been known for doing thingsby<br />
halves and decided to form both afield<br />
and acricketclub.<br />
The field, in an idyllic countrysetting,<br />
is larger than many overseas test venues.<br />
The Willows CricketClub was<br />
established in 1994 to foster youth<br />
involvement in cricket.<br />
It aims to encourage top secondary<br />
school cricketers to playwith and against<br />
experienced players, as well as offering<br />
qualitycricket to lovers of the game.<br />
Overthe years,many organisations,<br />
including the Salvation Army, have<br />
benefited from the annual Christmas<br />
Party for children and families at The<br />
Willows.<br />
Mr Dormer has also served as<br />
Honorary Consulfor Chile for several<br />
years, supported the Champion Centre in<br />
Christchurch and was adirector of<br />
Independent Fisheries for manyyears.<br />
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