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North Canterbury News: April 08, 2021

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Marilyn steps up to challenge<br />

By SHELLEY TOPP<br />

Soon after Marilyn Pond was<br />

diagnosed with Parkinson’s<br />

disease, she dreamt her<br />

illness was cured.<br />

It was heartbreaking for<br />

her to realise when she<br />

awoke that she still had the<br />

incurable neurological<br />

disorder that affects<br />

movement, balance and coordination.<br />

The loss of spontaneity is<br />

particularity hard to accept.<br />

‘‘You can’t just jump in<br />

the car without thinking<br />

twice. We have to make sure<br />

we have got medication, and<br />

snacks to help if there are<br />

problems with the<br />

medication working.’’<br />

Despite this, she<br />

maintains apositive outlook<br />

on life.<br />

Since her diagnosis 11<br />

years ago, Marilyn, who lives<br />

in Ohoka with her partner<br />

Neville Major­Johnston, has<br />

been taking part in aNew<br />

Zealand Brain Research<br />

Institute study to find acure.<br />

‘‘I want to know what<br />

causes Parkinson’s, because<br />

until we know that we are<br />

not going to change alot,’’<br />

she says.<br />

‘‘If you are going to have<br />

Parkinson’s you may as well<br />

use it for something good. It<br />

brings apositive to it,<br />

instead of anegative.’’<br />

Marilyn separated from her<br />

partner of 20 years soon<br />

after she was diagnosed and<br />

started anew relationship<br />

with Neville four years ago.<br />

‘‘It is the best decision I<br />

have ever made.<br />

‘‘He takes me as Iamand<br />

we laugh alot about some of<br />

the Parkinson’s stuff, and<br />

his family is extremely<br />

accepting of the<br />

Parkinson’s,’’ she says.<br />

However, she misses the<br />

energy she used to have.<br />

‘‘I used to move mountains<br />

in aday, and now Istruggle<br />

with some of the simpler<br />

things like baking –itwill<br />

take most of the day.’’<br />

It has also been hard<br />

learning to accept help from<br />

others.<br />

‘‘Helping people was<br />

always my role and it is hard<br />

to change places. Idon’t<br />

hide the fact that Ihave<br />

Parkinson’s, but some<br />

people then turn you into an<br />

invalid.’’<br />

She prefers Neville’s<br />

approach of allowing her to<br />

do as much as possible<br />

without help on the<br />

understanding that she will<br />

ask for help if she needs it.<br />

The Brain Research<br />

Institute’s clinical director,<br />

Professor Tim Anderson,<br />

says 12,000 people in New<br />

Zealand have Parkinson’s<br />

disease. This number is<br />

expected to double in the<br />

next 20 years.<br />

There is no single cause<br />

and there are many<br />

Life with Parkinson’s ... Marilyn Pond maintains apositive<br />

outlook on life.<br />

different symptoms, so each<br />

person requires<br />

individualised diagnosis<br />

and treatment.<br />

Parkinson’s Awareness<br />

Month is being held this<br />

month, with Parkinson’s<br />

Awareness Day this Sunday.<br />

NEWS<br />

<strong>North</strong> <strong>Canterbury</strong> <strong>News</strong>, <strong>April</strong> 8, <strong>2021</strong><br />

Service<br />

recognised<br />

5<br />

MikeDormer’s service to The Willows<br />

Cricket Club and the community has<br />

beenrecognised.<br />

Waimakariri MayorDan Gordon<br />

visited the hallowed turf at Loburn last<br />

weektopresent the ground’sfounder<br />

withaWaimakaririDistrictCouncil<br />

community serviceaward.<br />

Mr Dormer,his wife Winsome and sons<br />

Ben and Pete have<br />

beenhosting<br />

matchesatLoburn<br />

since the 1990s.<br />

The ground was<br />

established when<br />

Ben persuaded<br />

him to convert a<br />

paddockonthe<br />

family’s property<br />

intoapitch.<br />

Mike Dormer<br />

Mr Dormer has<br />

never been known for doing thingsby<br />

halves and decided to form both afield<br />

and acricketclub.<br />

The field, in an idyllic countrysetting,<br />

is larger than many overseas test venues.<br />

The Willows CricketClub was<br />

established in 1994 to foster youth<br />

involvement in cricket.<br />

It aims to encourage top secondary<br />

school cricketers to playwith and against<br />

experienced players, as well as offering<br />

qualitycricket to lovers of the game.<br />

Overthe years,many organisations,<br />

including the Salvation Army, have<br />

benefited from the annual Christmas<br />

Party for children and families at The<br />

Willows.<br />

Mr Dormer has also served as<br />

Honorary Consulfor Chile for several<br />

years, supported the Champion Centre in<br />

Christchurch and was adirector of<br />

Independent Fisheries for manyyears.<br />

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Images are artist impressions and subject to change

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