MDF Magazine Issue 72 December 2023
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Ho H-M, Tseng Y-H, Hsin Y-M, Chou F-H, Lin W-T. Living with<br />
illness and self-transcendence: the lived experience of patients<br />
with spinal muscular atrophy. J Adv Nurs. 2016;<strong>72</strong><br />
(11):2695-2705. doi:10.1111/jan.13042.<br />
Lamb C, Peden A. Understanding the experience of living with<br />
spinal muscular atrophy: a qualitative description. J Neurosci<br />
Nurs. 2008;40(4):250-256. doi:10.1097/01376517-<br />
200808000-00009.<br />
Coping with a diagnosis. Texas Children’s Hospital. Available at<br />
https://www.texaschildrens.org/blog/coping-diagnosis.<br />
Accessed 5/10/2021.<br />
Qian Y, McGraw S, Henne J, Jarecki J, Hobby K, Yeh W-S. Understanding<br />
the experiences and needs of individuals with<br />
Spinal Muscular Atrophy and their parents: a qualitative<br />
study. BMC Neurol. 2015;15:217. doi:10.1186/s12883-015-<br />
0473-3.<br />
Order now !!!<br />
Lövgren M, Sejersen T, Kreicbergs U. Parents’ Experiences and<br />
Wishes at End of Life in Children with Spinal Muscular Atrophy<br />
Types I and II. J Pediatr. 2016;175:201-205.<br />
doi:10.1016/j.jpeds.2016.04.062.<br />
Collaborators: Advocacy Groups. SMA Foundation. Available at<br />
https://smafoundation.org/collaborators/nonprofit/. Accessed<br />
5/10/2021.<br />
Droege M, Sproule D, Arjunji R, Gauthier-Loiselle M, Cloutier<br />
M, Dabbous O. Economic burden of spinal muscular atrophy<br />
in the United States: a contemporary assessment. J<br />
Med Econ. 2020;23(1):70-79.<br />
doi:10.1080/13696998.2019.1646263.<br />
Article available at: https://spinalmuscularatrophy.net/living<br />
-with<br />
Please meet our Mascot, Abiri. He comes from the capital of Leron, Ikadus. He was a<br />
strong and courageous warrior in the army of the King of Ikadus. He made the long flight<br />
to South Africa to help fight for the rights of people with muscular dystrophy. He’s now<br />
happily settled at the Muscular Dystrophy Foundation of South Africa and spends his<br />
days helping people with muscular dystrophy.<br />
Abiri can be ordered from Sarie at nationalfinance@mdsa.org.za or 011 4<strong>72</strong>-9703 at<br />
R150. 00 each (excluding courier costs) .<br />
<strong>MDF</strong>SA Merchandise<br />
KIDS<br />
4 Years - R100.00<br />
6 Years - R100.00<br />
8 Years - R120.00<br />
10 Years - R120.00<br />
12 Years - R120.00<br />
ADULTS<br />
Small to 4 XLarge - R150.00<br />
BANKING DETAILS<br />
Nedbank Current Account<br />
A/C: 1958502049<br />
Branch: 198765<br />
Branch Name: Gauteng West<br />
Ref: Merch & your name<br />
Please email proof of payment to: nationalfinance@mdsa.org.za or<br />
gmnational@mdsa.org.za
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