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MDF Magazine Issue 72 December 2023

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Meet the Gauteng branch chairperson<br />

By Rothea Louw<br />

At the September <strong>2023</strong> AGM of the <strong>MDF</strong> Gauteng Branch, Mr Andrew Millar was elected as the new chairperson for our branch<br />

for the <strong>2023</strong>/2024 year. He is 49 years old and is the first chairperson of our branch who is affected by MD.<br />

Andrew was diagnosed with SMA at a very young age. During his teenage years he was constantly falling, which led to broken<br />

bones and injuries. He was 20 years old when he started to do research about SMA and only then understood his condition.<br />

Andrew is a writer, ghostwriter and editorial consultant. The primary benefit of this occupation is that he can work from home.<br />

He needs support with the execution of certain tasks but is functioning productively. He is married to Robyn, who is an artist.<br />

The fact that all South Africans have a constitutional right to health care but that those with MD and NMDs are often ignored<br />

entirely or left far behind motivates Andrew to be involved in activities for people with MD, including being spokesperson for<br />

the <strong>MDF</strong> on access to new generation treatment. He is of the opinion that given the extreme struggles MD patients and families<br />

experience, the lack of due support has to change.<br />

Many people in the broader community close their eyes to the needs of others, but Andrew feels that support for the <strong>MDF</strong>SA<br />

changes the lives of many. When someone gets involved, they should try not only to empower people to cope with their condition<br />

but also to contribute positively to their communities.<br />

With a philosophy like “attitude is everything”, Andrew’s positive spirit makes an impression on people wherever he goes. We<br />

are fortunate to have him with us.<br />

“So many of our dreams at first seem impossible, then they seem improbable, and<br />

then, when we summon the will, they soon become inevitable.”<br />

– Christopher Reeve

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