MDF Magazine Issue 72 December 2023

More documents

Info

Celebration of MD Awareness Month 2023 by the MDFSA National Office By Sarie Truter MDFSA celebrated the international Muscular Dystrophy Awareness Month during September by running the “Get into the Green Scene” campaign for the sixth consecutive year. This campaign is our signature social media event to recognise Muscular Dystrophy Awareness Month. The campaign is designed to stand out on social media by combining the official colour (green) for MD with an eye-catching image. Affected members, their friends and family as well as various business organisations participated in the campaign by posting their “green” photos on the MDFSA Facebook page. We had a very successful campaign this year, with many new faces participating. Overall, 37 corporates and 35 individuals participated. A special thanks to all our members, friends of the Foundation, the MDF branches and the organisations for taking part in our campaign. See you again in 2024!
Why bother getting a FREE genetic test? The Muscular Dystrophy Foundation of South Africa is offering all persons diagnosed with spinal muscular atrophy (SMA), limb-girdle muscular dystrophy (LGMD) and facioscapulohumeral dystrophy (FSHD) the opportunity to get a free genetic test that will confirm their muscular dystrophy (MD) diagnosis. We know it’s never pleasant going through more medical stuff … but there are three great reasons why you should seriously consider this offer. 1. Knowledge is power The more we know about our conditions, the better equipped we are to manage them. Genetic testing is detailed and accurate and clears up diagnosis confusion – including things you may not even know about. 2. Genetic tests are essential to access new genetic treatments New genetic treatments are starting to emerge for different MDs. A genetic test is the starting point to accessing new treatments. Nothing can happen without it. The sooner you get one done, the better placed you will be to access treatments if and when they become available for your condition. 3. Getting tested helps our whole community South Africa struggles a lot to diagnose people with MD correctly, and our lack of MD diagnostic data is holding all of us back. The more detail we have about who has MD, the better positioned our country will be to help people living with MD to access the treatments that are already being used in many other parts of the world. Simply put, when you get your genetic test, you’re helping me. And when I get my test, I’m helping you. The more tests we get done, the more power we have as a community. Contact us! Please discuss this offer seriously with your family and loved ones. If you would like to take advantage of the free testing opportunity, contact Gerda Brown at 011 472-9703 or gmnational@mdsa.org.za.
Page 1 and 2: Summer Issue 72 December 2023 MAGAZ
Page 3: MDF support information To learn mo
Page 7 and 8: Meet the Gauteng branch chairperson
Page 9 and 10: Celebrating World Duchenne Awarenes
Page 11 and 12: KZN branch reaches out to the commu
Page 13 and 14: and gifts. • Solly Manjra Caterer
Page 15 and 16: Marking Casual Day 2023 By Madelein
Page 17 and 18: California’s stem cell agency fun
Page 19 and 20: 5 things we’ve learned about find
Page 21 and 22: By Editorial Team, Spinal Muscular
Page 23 and 24: Corinne Grgas By Rebecca Hume Muscu
Page 25 and 26: adjust her schedule when she felt c
Page 27 and 28: park. Later in the trip, on the Auo
Page 29 and 30: day again. I certainly have never s
Page 31 and 32: family member, or coworker whom you
Page 33 and 34: Random gravity check... By Andrew M

MDF Magazine Issue 72 December 2023

Create successful ePaper yourself

Delete template?

Save as template?