Rupturing Concepts of Disability and Inclusion

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TABLE OF CONTENTS 4.7.4 Summarising the Contemporary Philosophies of Normalisation and Disability Rights ..............................................121 4.8 Chapter Summary........................................................................................124 CHAPTER FIVE: Wiping Away The Calendering For Ethical Understanding: Exploring Expressions of Selvedges of Definition, An Ethic of Normalcy, and An Ethic of Anomaly.................................................127 5.1 Introduction .................................................................................................127 5.2 Selvedges of Definition ...............................................................................127 5.2.1 Selvedges as Boundaries of Socio-Ethical Space...............................127 5.2.2 Defining Identities of Otherness.........................................................132 5.2.3 Refiguring Boundaries........................................................................139 5.3 An Ethic of Normalcy .................................................................................140 5.3.1 Normalcy as a Concept.......................................................................140 5.3.2 What is Normal? .................................................................................142 5.3.2.1 Normal as a Standard..............................................................142 5.3.2.2 Normal as an Imperative.........................................................144 5.4 An Ethic of Anomaly...................................................................................149 5.4.1 Considering Identity Constructions ....................................................151 5.4.2 An Affirmed Normal Identity.............................................................155 5.4.3 A Vulnerable Anomalous Identity......................................................160 5.5 Summary......................................................................................................163 PART THREE: DESIGNING THE QUILT: CONSIDERING ETHICAL TEMPLATES.........................................................................................................165 CHAPTER SIX: Patterning for Visibility: Evoking an Ethical Framework to Prepare Conceptual Templates of Inclusion ......................................................167 6.1 A Traditional View of Ethics ......................................................................167 6.2 A Critical Review of the Literature and Personal Reflection on the Relationship Between Ethics and Intellectual Disability..................175 6.2.1 The Bioethical Context Examines Different Moral Dilemmas Which are Commonly the Domain of Medical or Functional Concerns.......................................................................176 6.2.2 The Political Philosophical Context Examines Issues in Relation to Rights and Justice ........................................................182 6.2.3 Discourse of Disqualification .............................................................183 6.3 A Hermeneutics of Suspicion......................................................................186 6.3.1 Defining and Applying a Hermeneutics of Suspicion........................186 6.3.2 Responding to a Hermeneutics of Suspicion......................................189 6.4 Introducing an Applied Ethics Framework for Understanding Inclusion.......................................................................................................195 ix
TABLE OF CONTENTS x 6.4.1 A Contextual Applied Ethics Framework - A Summary....................196 6.5 Summary......................................................................................................199 PART FOUR: PIECING THE QUILT: ETHICALLY SIGNIFYING INCLUSION ..........................................................................................................203 CHAPTER SEVEN: Socio-Ethical Fragments of Inclusion: Profound Exclusion, Technical Inclusion, Legislative Inclusion and Ethical Inclusion .......207 7.1 Profound Exclusion .....................................................................................207 7.1.1 Hermeneutical.....................................................................................207 7.1.2 Appreciative........................................................................................208 7.1.3 Appraisive...........................................................................................210 7.1.4 Transformative....................................................................................210 7.1.5 Ambivalence of Profound Exclusion..................................................211 7.2 Technical Inclusion .....................................................................................212 7.2.1 Hermeneutical.....................................................................................212 7.2.2 Appreciative........................................................................................214 7.2.3 Appraisive...........................................................................................215 7.2.4 Transformative....................................................................................216 7.2.5 The Ambivalence of Technical Inclusion...........................................216 7.3 Legislative Inclusion ...................................................................................219 7.3.1 Hermeneutical.....................................................................................220 7.3.2 Appreciative........................................................................................221 7.3.3 Appraisive...........................................................................................222 7.3.4 Transformative....................................................................................222 7.3.5 The Ambivalence of Legislative Inclusion.........................................223 7.4 Ethical Inclusion..........................................................................................225 7.4.1 Hermeneutical.....................................................................................225 7.4.2 Appreciative........................................................................................226 7.4.3 Appraisive...........................................................................................228 7.4.4 Transformative....................................................................................228 7.5 Summary......................................................................................................228 CHAPTER EIGHT: ‘A Transformatory Ethic of Inclusion’: An Instrument of Rupture...............................................................................................................231 8.1 The Conceptual Difference Between Old and New Socio-Ethical Fabrics..........................................................................................................231 8.2 Features of a Socio-Ethical Fabric of Integrality ........................................233 8.2.1 A Socio-Ethical Fabric of Integrality Confronts the Construction of Normalcy and Acknowledges Identities of Embodiment ..............234 8.2.2 A Socio-Ethical Fabric of Integrality Diminishes the Power of Orthodoxy, Accommodates Communities of Resistance, of Struggle, and of Emancipatory Transformation.............................238
Page 2 and 3: A Transformatory Ethic of Inclusion
Page 4 and 5: A Transformatory Ethic of Inclusion
Page 6: DEDICATIONS This book is dedicated
Page 9: TABLE OF CONTENTS viii 3.3.1 A Soci
Page 14 and 15: FOREWORD Over the past decade socia
Page 16 and 17: ACKNOWLEDGEMENTS I came to this tas
Page 18 and 19: She cries. Her blue eyes squint. He
Page 20 and 21: THE QUILTER’S JOURNAL The hospita
Page 22 and 23: THE QUILTER’S JOURNAL Relational
Page 24 and 25: THE QUILTER’S JOURNAL offspring o
Page 26 and 27: THE QUILTER’S JOURNAL the bed in
Page 28 and 29: THE QUILTER’S JOURNAL stated how
Page 30 and 31: PART ONE: OPENING THE ‘SCRAPBAG
Page 32 and 33: INTRODUCTION Considering ‘inclusi
Page 34 and 35: INTRODUCTION It is no longer enough
Page 36 and 37: INTRODUCTION habitat. Dwelling is b
Page 38 and 39: INTRODUCTION their site of origin o
Page 40 and 41: INTRODUCTION - To consider and conc
Page 42 and 43: CHAPTER 2 CONCEIVING A QUILT: CREAT
Page 44 and 45: CONCEIVING A QUILT: CREATING A METH
Page 60 and 61:
CONCEIVING A QUILT: CREATING A METH
Page 62 and 63:
CONCEIVING A QUILT: CREATING A METH
Page 64 and 65:
2.5.4 Constructing A ‘Research Qu
Page 66 and 67:
PART TWO: CONFIGURING THE WEAVE OF
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