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Rupturing Concepts of Disability and Inclusion

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CHAPTER 1<br />

anomalies <strong>of</strong> accepted norms which include somatic anomaly, spiritual anomaly,<br />

scientific anomaly <strong>and</strong> social anomaly. The authority <strong>and</strong> orthodoxy <strong>of</strong> this gaze<br />

contributing to the ‘disability dynamic’ is challenged for authenticity. 33<br />

Peter Clough <strong>and</strong> Len Barton reflect the power <strong>of</strong> such a gaze when they discuss<br />

who people with disability are:<br />

8<br />

They are the recipients <strong>of</strong> powerful pr<strong>of</strong>essional categories. These envelope<br />

their identities. They are the ‘lunatics’, the ‘idiots’, the ‘mentally h<strong>and</strong>icapped’,<br />

the ‘subnormal’ the ‘spastics’, the ‘cripples’ <strong>and</strong> ‘level-one child’. The point is:<br />

We know who They are. They are conspicuous, because their world is set about<br />

with a particularly forceful categorical thinking. (Authors’ emphases) 34<br />

Australian writers, Jan Branson <strong>and</strong> Don Miller also elaborate:<br />

The ‘disabled’, a marginalized group whose failures to satisfy the culturallyspecific,<br />

historically-specific st<strong>and</strong>ards <strong>of</strong> physical or behavioural ‘normality’,<br />

display ‘h<strong>and</strong>icaps’, inabilities to deal ‘effectively’ as individuals, with life in<br />

Western capitalist society, their ‘h<strong>and</strong>icaps’ dem<strong>and</strong>ing, in the eyes <strong>of</strong> those<br />

for whom they are an ‘other’, a policy, an objective, clearly-formulated,<br />

bureaucratically-realizable, logical, coherent approach to dealing with/coping<br />

with, their ‘h<strong>and</strong>icaps’. 35<br />

Exclusion, as a negative practice or a negative process <strong>of</strong> action, in the context <strong>of</strong><br />

intellectual disability, takes many forms <strong>and</strong> wears many disguises. Responses to<br />

the common ethical questions <strong>of</strong> ‘What ought I/we to do?’ or ‘What should I/we<br />

do?’ have evoked normative processes <strong>of</strong> exclusion throughout history such as<br />

exemption, extermination, expulsion <strong>and</strong> incarceration. In contemporary Australian<br />

society, there is little recognition <strong>of</strong> the similarity <strong>of</strong> these actions to those enacted<br />

upon Indigenous Australians. This research seeks to explore the ethical significance<br />

<strong>of</strong> inclusion, though, from wider, more critical perspectives, which will account for<br />

‘ethics’ being expressed in a somewhat negative context for people with intellectual<br />

disability. Implicit immorality in a disability context, remains to a large extent,<br />

concealed. Therefore, expressions <strong>of</strong> shame <strong>and</strong> disgust appear to be rarely<br />

articulated in relation to the historical <strong>and</strong> contemporary dislocated experiences <strong>of</strong><br />

people with intellectual disability.<br />

One reason for such omissions may be a failure to underst<strong>and</strong> the particularity<br />

<strong>of</strong> such a context. Although it is seemingly critical to note the similarities <strong>of</strong> the<br />

situations, it is also imperative to note significant differences. It could be that an<br />

Ethic <strong>of</strong> Normalcy <strong>and</strong> an Ethic <strong>of</strong> Anomaly have been enacted differently in<br />

certain contexts <strong>and</strong> that the Selvedges <strong>of</strong> Definition have different powers <strong>of</strong><br />

discernment. These differences can be illuminated by narratives about the lives <strong>of</strong><br />

people with intellectual disability, as has been articulated in the account <strong>of</strong> Angela,<br />

Trudy, Simon, Desmond, Wally <strong>and</strong> Roslyn.<br />

It appears that Indigenous children were removed from their families <strong>and</strong><br />

communities to facilitate ‘social life’ by assimilating them to the values <strong>and</strong><br />

lifestyles <strong>of</strong> white European society, <strong>and</strong> therefore facilitating ‘cultural death’.<br />

Indigenous children, with genealogical characteristics, were actively removed from

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