Rupturing Concepts of Disability and Inclusion

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INTRODUCTION – To consider and conceptualise, from an enriched and embedded understanding, the ethical significance of the notion of ‘inclusion’ in relation to people with intellectual disability in Western Judeo-Christian society (Chapter Two). – To develop an applied ethics methodology framed upon a quilting metaphor, which more adequately explores the structural complexities of the notion of the inclusion/exclusion relationship, and which can transform ethical understanding to embrace the diversity of humanity. (Chapter Two). – To identify and critique, for ethical exploration, various theoretical and discursive perspectives of disability, as well as historical and contemporary social practices for people with intellectual disability in Western Judeo-Christian society. (Chapters Three and Four). – To consider the constructions and influences of the Selvedges of Definition, an Ethic of Normalcy, and an Ethic of Anomaly which influence and prefigure the ethical significance of inclusion. (Chapter Five). – To critique existing ethics discourses in relation to intellectual disability, identify aporia, and evoke an appropriate, contextual, applied ethics framework by which to adequately account for an ethical exploration of exclusion and inclusion. (Chapter Six). – To apply a contextual applied ethics framework to outline identified notions of exclusion and inclusion, and to note, and critically consider, emerging ambivalence. (Chapter Seven). – To construct ‘A Transformatory Ethic of Inclusion’ as an instrument of rupture to conceive and conceptualise a new socio-ethical Fabric of Integrality as a response as to whether inclusion is ethically defensible. (Chapter Eight). 1.4 SUMMARY In this chapter, I have described how ‘inclusion’, in the contemporary context of intellectual disability within Western Judeo-Christian society, is a topical notion with wide ranging conceptual and practical implications. ‘Inclusion’ is predominantly conceived within a linear continuum of translocation from ‘special’ or ‘separate’ to ‘regular’ or ‘normal’ environments or settings such as education, communities, churches and so on. With undertones of the notions of integration or insertion, ‘how’ people can be included, is planned intentionally, politically and strategically. Changing social arrangements are often underpinned by policies, in conjunction with human service personnel and technologies, which, in turn, assume an available network of ‘community care’ and ‘community concern’. However, I argue that the notion of inclusion promoted in such significations is not only somewhat simplistic in understanding and application, but fails to recognise the necessity to address the conceptual complexities of the term. In contesting that ‘inclusion’ is a metaconcept, I assert that such a notion is a dualistic term in a dichotomous relationship with ‘exclusion’, and also is a multifaceted, complex concept which commands a socioethical critique. I explore such an assertion by arguing that historical and contemporary conceptualisations of exclusion for people with disability have been constructed from various philosophical and theological matrices imbued with particular values. 11
CHAPTER 1 Furthermore, I contend that the ethical significance of inclusion and exclusion in the context of intellectual disability, lies not in the concepts themselves, but is defined and perpetuated by expressions of a particular socio-symbolic order underpinned by patriarchy and kyriarchy, and subjected to two controlling ethics – an Ethic of Normalcy and an Ethic of Anomaly. Inclusion and exclusion, then, are phenomena conceived in relation to membership defined, legitimated or repelled in occluding boundaries. Using the metaphor of a textile ‘weave’ to explore the socio-ethical fabric, I name the containing boundaries as Selvedges of Definition, for people with intellectual disability are subjected to, and defined by, evaluations against ablist constructions of normalcy. Therefore, to explore the ethical significance of inclusion will necessarily challenge the implicit orthodoxy within traditional socio-ethical fabrics. 12
Page 2 and 3: A Transformatory Ethic of Inclusion
Page 4 and 5: A Transformatory Ethic of Inclusion
Page 6: DEDICATIONS This book is dedicated
Page 9 and 10: TABLE OF CONTENTS viii 3.3.1 A Soci
Page 11 and 12: TABLE OF CONTENTS x 6.4.1 A Context
Page 14 and 15: FOREWORD Over the past decade socia
Page 16 and 17: ACKNOWLEDGEMENTS I came to this tas
Page 18 and 19: She cries. Her blue eyes squint. He
Page 20 and 21: THE QUILTER’S JOURNAL The hospita
Page 22 and 23: THE QUILTER’S JOURNAL Relational
Page 24 and 25: THE QUILTER’S JOURNAL offspring o
Page 26 and 27: THE QUILTER’S JOURNAL the bed in
Page 28 and 29: THE QUILTER’S JOURNAL stated how
Page 30 and 31: PART ONE: OPENING THE ‘SCRAPBAG
Page 32 and 33: INTRODUCTION Considering ‘inclusi
Page 34 and 35: INTRODUCTION It is no longer enough
Page 36 and 37: INTRODUCTION habitat. Dwelling is b
Page 38 and 39: INTRODUCTION their site of origin o
Page 42 and 43: CHAPTER 2 CONCEIVING A QUILT: CREAT
Page 44 and 45: CONCEIVING A QUILT: CREATING A METH
Page 64 and 65: 2.5.4 Constructing A ‘Research Qu
Page 66 and 67: PART TWO: CONFIGURING THE WEAVE OF

Rupturing Concepts of Disability and Inclusion

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