Versão eletrônica - Furb

ABSTRACT
This is a search for knowledge about the health of children with sickle cell trait because of the
susceptibility of children with sickle cell disease admissions and on the rarity of cases of the
disease in the region. Aims to meet the general health of children with sickle cell trait and
specific objectives are to characterize the carrier of sickle cell trait, identifying the concept of
health of patients with sickle cell trait and recognize the factors that affect health of children
with sickle cell trait. As the literature review focused on sickle cell trait: the concept and the
concept of health, the healthy childhood and family. Refers to a qualitative research as
exploratory, case study, descriptive and personal. Held in the university clinic of the Regional
University of Blumenau (FURB) in the city of Blumenau, serving various specialties, from
February 2011 to July of that year. As a criterion for selection of the individual's research was
chosen one year old child, who had a confirmed diagnosis of the disease, lived in Blumenau
and conduct monitoring in the clinic where the research was performed. It was developed
semi-structured interviews and systematic observation to collect data, for data analysis, was
used content analysis. The ethical aspects have been respected by the expiry of that consent
was given, explained and signed at the first interview. Approved on the ethics committee on
the advice of number 172/10. The results are related to characteristics of the research subjects
such as history, their daily habits, and genetic map genogram, which are straightforward,
others are more subjective data, related to increased happiness and health through physical
exercise and the interference of family, friends and pathology in the individual's health
research, there is finally an analysis of the role of nursing care for patients with sickle cell
trait. The conclusions reached surrounding the concept that a person with a disease can also be
healthy and influence that the nurse has on that individual, or otherwise facilitating this
process.
Keywords: Nursing. Children. Sickle cell anemia.