7th Annual AMIA Invitational Health Policy Meeting December 12-13 ...

While many public and private organizations are focusing on the topic, each group appears
(perhaps too) narrowly focused on only certain aspects of data use; for example, data use for
CER; data use for clinical trials; data use for drug development; data use for transitions of care;
data use to improve quality; and data use to reduce costs.
The meeting will build on AMIA’s prior work on use of health data in light of new and emerging
healthcare game changers: for example, precision and personalized medicine, patient-centered
care, heightened emphasis on performance measures and outcomes, and the growing adoption
of EHRs. 1 2 In addition, the meeting will leverage the prior and ongoing work of several
organizations including the Agency for Healthcare Research and Quality (AHRQ) 3 , the Institute
of Medicine (IOM) 4 5 , the National Committee on Vital and Health Statistics (NCVHS) 6 , the
Bipartisan Policy Center (BPC) 7 , the Office of the National Coordinator for Health Information
Technology (ONC) 8 , and the Patient Centered Outcomes Research Institute (PCORI) 9 .
1 Safran C, Bloomrosen M, Hammond WE, Labkoff S, Markel-Fox S, Tang PC, Detmer DE, Expert Panel. Toward a
national framework for the secondary use of health data: an American Medical Informatics Association White
Paper. J Am Med Inform Assoc. 2007 Jan-Feb;14(1):1-9. Epub 2006 Oct 31.
2 Bloomrosen M, Detmer D. Advancing the framework: use of health data--a report of a working conference of
the American Medical Informatics Association. J Am Med Inform Assoc. 2008 Nov-Dec;15(6):715-22. Epub 2008
Aug 28.
3 http://www.edm-forum.org/publicgrant/About/projectprofiles/edmforum/
4 Grossman C, Powers B, McGinnis JM, Rapporteurs and Editors; Roundtable on Value & Science-Driven Health
Care; Institute of Medicine. Digital Infrastructure for the Learning Health System: The Foundation for Continuous
Improvement in Health and Health Care: Workshop Series Summary. 2011. National Academies Press: Washington,
D.C. Available at http://books.nap.edu/catalog.php?record_id=12912.
5 Olsen L, Saunders R, McGinnis JM, Editors and Rapporteurs; The Learning Health System Series; Institute of
Medicine. Patients Charting the Course: Citizen Engagement in the Learning Health System: Workshop Summary.
2011. National Academies Press: Washington, D.C. Available at
http://books.nap.edu/catalog.php?record_id=12848
6 National Committee on Vital and Health Statistics (NCVHS). Health Data Stewardship: What, Why, Who, How An
NCVHS Primer. http://www.ncvhs.hhs.gov/090930lt.pdf
7 Accelerating Electronic Information Sharing to Improve Quality and Reduce Costs in Health Care. Bipartisan Policy
Center. October 2012. Available at http://bipartisanpolicy.org/library/report/accelerating-electronic-informationsharing-improve-quality-and-reduce-costs-health-c
8 http://www.healthit.gov/policy-researchers-implementers
9 http://www.pcori.org/
AMIA Invitational Health Policy Meeting 2012
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