7th Annual AMIA Invitational Health Policy Meeting December 12-13 ...

Health Data Use, Stewardship, and Governance: Ongoing Gaps and Challenges
7th Annual AMIA Invitational Health Policy Meeting December 12-13, 2012
AMIA Invitational Health Policy Meeting 2012
Page 12 12/10/2012
Selected Terms and Terminology
For the purposes of this meeting, the term “data use” refers to the “re-use” or “continuous
use” of data for intentions other than those for which they originally collected. Below are other
relevant proposed and previous (AMIA) definitions.
(Proposed) Continuous Data Use
Data collection is expensive in terms of time and money. Use of data should be viewed as
“continuous” – and readily available – for patient care, analysis, research, quality/safety
measurement, public health, payment, provider certification or accreditation, and marketing
and other business including strictly commercial activities.
� To the extent possible, data should be collected once and used many times
(continuously).
� For direct patient care, whenever new data are obtained and added, the patient’s status
should be assessed and analyzed using appropriate and available data.
� Data collectors, data stewards and data aggregators must help assure that data are
available continuously and of high quality for appropriate query and use.
Previous AMIA Definitions
10 11
� Re-use of health data occurs when personal health data are used for purposes other
than those for which they were originally collected.
� Data stewardship encompasses the breadth of activities carried out in varying degrees
by all entities that interact with health data, including collection, use, disclosure,
10 Perspectives on Informatics: White Paper: Toward a National Framework for the Secondary Use of Health Data:
An American Medical Informatics Association White Paper. Charles Safran, Meryl Bloomrosen, W Edward
Hammond, Steven Labkoff, Suzanne Markel-Fox, Paul C Tang, Don E Detmer, With input from the expert panel
(see Appendix A) J Am Med Inform Assoc 2007;14:1 1-9 doi:10.1197/jamia.M2273
11 Perspectives on Informatics: White Paper: Advancing the Framework: Use of Health Data—A Report of a
Working Conference of the American Medical Informatics Association Meryl Bloomrosen, Don Detmer J Am Med
Inform Assoc 2008;15:6 715-722 doi:10.1197/jamia.M2905