7th Annual AMIA Invitational Health Policy Meeting December 12-13 ...

Health Data Use, Stewardship, and Governance: Ongoing Gaps and Challenges
7th Annual AMIA Invitational Health Policy Meeting
December 12-13, 2012
AMIA Invitational Health Policy Meeting 2012
Page 17 12/10/2012
Breakout Sessions Discussion Questions
Breakout Session 1: Demonstrate Value of Data Use
1. How can we best illustrate and communicate the value and benefits of data use to
patients, providers and other healthcare system stakeholders?
2. What are the risks to patients, the U.S. healthcare system and global stakeholders of not
using, exchanging, and sharing data?
Breakout Session 2: Identify the Major Future Challenges, Gaps and Barriers to Appropriate
and Effective Health Data Use
1. Identify the most significant future challenges related to data use.
a. What should patients’ roles and responsibilities be with regard to health data
use? How can processes be designed and implemented to ensure patient
understanding and build patient confidence? What are the public policy issues
and challenges regarding integration of patient-entered/mediated data?
b. What challenges exist/are emerging about “Big Data?” To what extent are public
policies on “cloud data” needed? How can we deal with emerging technical
challenges related to increasingly larger and more granular data
compendia/compilations?
c. What are the challenges related to the increased availability and diversity of data
sources and the resulting need to integrate these data (such as genomic and
molecular data, data from mobile applications, data from medical and implanted
devices and sensors) into the EHR?
2. Identify the key challenges regarding data quality. To what extent do all data uses share
the same requirements for quality (e.g., timeliness, reliability, and validity)? In what
ways are lack of (or inconsistent) standards impeding data use efforts?