7th Annual AMIA Invitational Health Policy Meeting December 12-13 ...

Meeting Activities
� Review and discuss a set of proposed principles of data use.
� Develop an action agenda about how health data use practices can best be supported by
health IT and informatics, including next steps or areas for future research, key policy issues
and strategies for implementation.
� Formulate recommendations to government, industry, academia, and other stakeholders
and identify key steps for moving the action agenda forward.
� Synthesize and disseminate the meeting deliberations, findings, and outcomes in the form
of a final report to inform the policymaking process in this domain.
Meeting Assumptions
� Despite challenges, data are currently being used for multiple legitimate purposes beyond
direct patient care. (See Examples of Current Data Use Projects and Activities)
� Technology impacting health data collection and analysis is moving rapidly while supportive
public policies are lagging and/or inconsistent. Challenges are technical, technological,
systemic (healthcare system), ethical, and socio/cultural. (See Examples of Federal
Government Agency/Organization Data Use Policies and Programs)
� It is necessary to examine the roles and responsibilities of all stakeholders (including
patients) with regard to data collection, quality, stewardship and governance.
� Health data are viewed as an organizational and system-wide asset and resource.
� Discussions about the appropriate data stewardship and governance and issues related to
data quality are more important than ever.
� Data use will only succeed with the buy-in of the public, and AMIA can assist in creating an
informative, succinct, balanced public message.
AMIA Invitational Health Policy Meeting 2012
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