March 2011 - East Riding of Yorkshire Primary Care Trust

LOOK AHEAD 

newsletter for parent carers of children and young people with additional needs 

RUN AHEAD 

run away 

success 

INSIDE THIS ISSUE: 

• Readers’ stories 

• ERVIP parent carer event 

• Junction cinema screenings 

T el: ( 01482) 396469 

www.fish.eastriding.gov.uk 

Issue eight 

March 2011

WELCOME AND NEWS IN BRIEF 

In this issue: Money matters 14 

News in brief 2 National news 15 - 16 

What’s new 3 Reading corner 16 

ERVIP event 4 Aiming High for disabled children 17 

Readers’ stories 5 Short Breaks and DCATCH 

updates / SEN upper age limits 

News in brief 

Have your say – take part in the 

annual carers survey. 

Every carer in the UK is invited to take part 

in the annual carers survey, just launched, and 

the results of which will form the core of 

Carers’ Week 2011 (13 - 19 June). Please 

promote this and spread the word. Help 

us to ensure that every carer has the 

opportunity to take part, that carers’ voices 

are heard loud and clear, and that Carers’ 

Week 2011 reflects the true face of carers. 

Take part in the survey at www. 

surveymonkey.com/s/carersweek2011. 

Countryside events booklet out now 

Have you seen the new countryside events 

booklet for 2011? Packed full of things to 

do for families in the East Riding. Please get 

a copy from your local East Riding library, 

or download a copy from eastriding.gov.uk/ 

events. 

Home CONTACT Access programme US – 

FISH, East Riding of Yorkshire Council, KG15, County Hall, 

Beverley, HU17 9BA. 

Tel: (01482) 396469 

Email: fish@eastriding.gov.uk 

18 - 19 

Local information 6 - 11, 20 Sport and play 21 - 24 

Helping your child at school 12 - 13 Contacts 23 

Free computers ended 

The Home Access programme has been a 

huge success, however it operated within a 

limited budget and time frame and is now 

closed. The programme has been incredibly 

successful, with more than 250,000 families 

now benefiting from increased access to 

technology at home to improve 

learning. 

More than 8,000 children with profound 

disabilities, special educational needs or who 

face challenges accessing computers and the 

internet are also reaping the benefits of 

bespoke technology to meet their individual 

needs, enabling them to be not only online, 

but in-line with their peers. 

T el: ( 01482) 396469 


2 www.fish.eastriding.gov.uk (01482) 396469

LOOK AHEAD services on-line 

Did you know that there is a whole section on the FISH website dedicated to 

LOOK AHEAD and services for parent carers of children with additional needs? 

Here you’ll find 

information about 

activities, benefits, 

support groups and 

services, money matters 

and lots, lots more. 

In the future, we’ll be 

posting lots more 

information on the 

website, so please keep 

a look out for updates. 

If you have any 

comments 

regarding the 

webpages, please get 

in touch. You can email 

fish@eastriding.gov.uk 

or call (01482) 396469. 

Right: List of 

activities from the 

new web page. 


click on additional needs (LOOK AHEAD) 

PANTO WINNER 

(Oh yes she is!) 

Congratulations to Kelly Anne Smith 

from West Newton, who won tickets 

in December’s edition to see Snow 

WHAT’S NEW 

White and the Seven Dwarfs at The 

Spa, Bridlington, by answering correctly 

that there have been seven editions of 

LOOK AHEAD. 

We hope that you and your family 

enjoyed the show! 

3

ERVIP EVENT 

ERVIP parent carer event 

by Sam Wood, ERVIP 

Forty three parent carers attended the third 

LOOK AHEAD/ERVIP (East Riding Voices 

In Partnership) parent carer event on 12 

January at Driffield Rugby Club. The event 

gave parent carers the opportunity to chat 

with representatives from East Riding of 

Yorkshire Council including education, parent 

partnership service, FISH, sports and play 

development and the children’s disability 

team. 

Neil Griffiths from East Riding Health Joint 

Commissioning also attended. 

During the morning FISH held a workshop 

to get parent carers views on the ‘School’s 

Out’ 2010 activity programme. 

Janet Gravel and Detty Taylor (ERVAS) gave 

a presentation about short break provision in 

the East Riding. 

The sports and play development team also 

ran a session on children’s disability sport 

sessions and the FISH locality information 

officers talked about what they are doing and 

asked what parent carers wanted. 

A number of parents were able to sign up 

to the benefits of receiving LOOK AHEAD 

services by joining the Shop & Save scheme, 

parent carers emergency response card 

scheme and Passport to Leisure scheme. 

After lunch parent carers were treated to a 

hand and back massage from the Red Cross 

and manicures from Bellezza Academy. 

The next parent carer event will be 

on March 29 at Tickton Grange in the 

evening. Please call FISH for more 

information. 

Parent carers learning more about what’s happening locally 

A parent carer tries her hand at Boccia 


Readers’ stories 

Thanks to Cathy Louth, who sent 

in details of a communication 

book with velcro fabric pages. 

Dear LOOK AHEAD… I’ve found a tool 

that is really useful for parents who have 

children that use symbols to help them to 

communicate – it’s simply a blank four-leaf 

A4 sized book with velcro pages (the furry 

side), and we think it’s simply brilliant. 

My daughter has severe communication 

difficulties and we use this every day. It’s 

so versatile (and saves a lot of laminating 

and messing about with scissors). 

We use it as a diary, for word order 

practice, making up stories, sharing news, 

learning new symbols and playing games. 

If there are any parents who, like me, 

seem to spend too much time making and 

working with symbols, or any who want to 

make more use of symbols at home then I 

can’t recommend this highly enough. 

I bought mine through the ‘Puppet Lady’ 

at a recent Parent Carer day – the 

link is on her website at: http://www. 

puppetsplaysandstorydays.co.uk/shop_ 

subcategory.aspx?categoryid=79, telephone 

(01482) 860513. 

Thanks to Sara Harper, who called 

to talk to Christine Clive, FISH 

locality information officer. Sara 

applied to Boparan Charitable 

Trust (September edition of 

LOOK 

AHEAD) 

to apply for a 

grant for her son 

Lewis. 

READERS’ STORIES 

Sara told us: Lewis who’s 5 loves 

nothing more than a good night’s sleep. 

Lewis has a condition called Chiara 

Malformation that means he is still 

sleeping in a cot for his own safety. 

What he really needed was a special low 

bed. A low bed would give him a bit of 

independence and make him feel more 

grown up, as well as helping with his 

development. 

I applied to national charity Boparan 

Charitable Trust, on the advice of my 

children’s centre family support worker. 

Boparan were great, they were really 

friendly and helpful and kept me informed 

all the time. They asked me to get three 

quotes for a bed – they then ordered it and 

paid the company directly. 

Boparan was set up during 2010 to help 

children like Lewis. To find out more visit 

www.theboparancharitabletrust.com. 

Remember to send us your 

articles. All printed stories 

receive a £10 Love2Shop voucher. 

Deadline for the next edition is 

30 April 2011. 

5

LOCAL INFORMATION 

Update from the FISH locality information officers 

“We’ve had an exciting few months 

in post. We have been really busy 

making contact with families and 

service providers to get a feel for 

what is available. 

A highlight for all of us was meeting 

parent carers at the ERVIP and LOOK 

AHEAD parent carer event. 

We received good feedback 

(and an excellent monkey puppet) 

from everyone who attended. 

Without your valuable feedback we 

cannot deliver a parent centred service. 

In the next few months the officers are 

holding a series of workshops based 

around sleep, behaviour and transition. 

We hope these workshops will give 

parents the opportunity to meet a 

professional in an informal setting and 

to get general information from their 

locality information officer. 

To find out more about the workshops 

please call FISH on (01482) 396469 

or see page 7.” 

From L - R: Rosie, Christine and Ruth 

Rosie Ireson-Turrell, locality information 

officer for Goole and Haltemprice is 

pleased to announce special disability 

screenings at Junction – see page 8. 

Ruth Shepherd, locality information 

officer for Bridlington, Driffield, 

Pocklington and the Wolds, has been 

working with others to re-launch the 

Bridlington Autism support group. 

Christine Clive, locality information 

officer for Beverley and Holderness, is 

looking into setting up an ASD support 

group in the South Holderness area. 

She is developing links with special 

schools in Hull as we know many East 

Riding children attend these schools. 

In the next few months the team will be 

busy making links with more local 

community groups and parents – check 

out future editions of LOOK AHEAD 

for more details. 


Have you booked on these FREE workshops? 

Held over the next two months (March and 

April) they will cover three different topics: 

Sleep, behaviour and preparing for 

transitions. 

Book early to avoid disappointment! 

Sleep 

• Why is my child not sleeping? 

• The impact on the whole family 

• What can I try to help my child sleep? 

• Waking during the night 

• Useful resources 


Free workshops book yours today! 

Preparing 

for 

transition 

Behaviour 

• Why does my child show negative behaviours? 

• Identifying trigger points 

• Recognising and managing potential volatile 

situations 

• Increasing my child’s self awareness 

• Empowering my child to manage their own 

behaviour 

These workshops have been organised as a 

direct result of parent carer feedback. 

Preparing for transitions 

• Pathway and Protocol 

• Person Centred Reviews (PCR’s) 

• PCR’s in practice 

• Information about sexual health and changes 

in my body 

Sleep and behaviour workshops are two hour events 

and include tea/coffee and biscuits. Preparing for 

transitions events will be held over a full 

day (approx 9.30am – 2.30pm) and will 

February March April 

Time: Full day 

9.30am – 2.30pm 

approx 

Date: Wednesday 16 

Venue: 

Driffield Rugby Club 

YO25 9DW 

COMPLETED 

Sleep Time: Morning 

10am – 12 noon 

Date: Thursday 17 

Venue: : 

The Hut, Withernsea 

HU19 2QA 

COMPLETED 

Behaviour Time: Evening 

7.30 – 9.30pm 

Date: Tuesday 15 

Venue: 

The Courtyard, Goole 

DN14 6AE 

COMPLETED 


9.30am -2.30pm approx 


Venue: 

Goole Leisure Centre 

DN14 5QX 

Time: Evening 

7.30 – 9.30pm 

Date:Wednesday 9 

Venue: 

Pocklington Art Centre 

YO42 2AR 

Time: Afternoon 

12.30 – 2.30pm 

Date:Thursday 24 

Venue: 

Beverley Leisure Centre 

HU17 OLT 

FULL 

include a buffet lunch and refreshments. 

Please see the table below for venues, 

dates and times. 


9.30am -2.30pm approx 

Date: Tuesday 5 

Venue: 

Bishop Burton College 

HU17 8QG 

Time:: Afternoon 

12.30 – 2.30pm 


Venue: 

The Courtyard, Goole 

DN14 6AE 

Time: Morning 

10am – 12 noon 

Date: Monday 11 

Venue: 

Bridlington Children’s 

Centre YO16 7BS 

Book now to reserve your place on the workshops. Call FISH on (01482) 396469 

We may fund any childcare to enable you to attend the daytime workshops. 

7


Autism friendly cinema at JUNCTION Goole 

From March 2011, Junction will be 

introducing regular Autism-friendly cinema 

screenings on the first Saturday of each 

month. 

Like other Autism-friendly screenings the 

sound levels will be lower and the lighting will 

only be slightly dimmed. 

People who attend will be free to move 

around during the performance. There will 

also be designated quiet areas for people 

out side of the auditorium to have time out 

if they need it. 

The cinema will be open half an hour before 

the film starts to allow your child to familiarise 

themselves with the surroundings and there 

will be no trailers or adverts to sit through. 

The first screening will be ALPHA AND 

OMEGA (U), which will be shown at 11am 

on Saturday, 5 March. 

Alpha and Omega follows the story of two 

young wolves who set out on a daring 

adventure, and fall in love along the way. 

Yogi bear (U) will be shown at 11am on 

Saturday, 2 April. Other screenings will follow 

on the first Saturday of every month. 

All tickets are priced at £2.50. 

For tickets please call the box office on 

(01405) 763652. Junction is situated on 

Paradise Place, in Goole (DN14 5DL). 

For more details on Junction please visit 

www.junctiongoole.co.uk. 

York and Hull also offer special screenings, 

please visit the FISH website for more details 


Junction for people with disabilities 

Junction is a fully accessible building. 

There is a ramp from street level to the 

walkway at the front of the building, and a fully 

level ground floor. 

The venue has a lift up to the balcony and 

community room, with accessible toilets on 

both levels. 

The auditorium features space for 

wheelchair users, both on the front 

row and on the balcony. 

An induction loop is also fitted in the 

auditorium and other rooms. 

Junction’s staff, who have received 

training in disability awareness, are 

friendly and always on hand to assist 

audiences on their visit to the building. 


The first RUN AHEAD family 

support group took place on 17 

January at the Fun Run in Goole, 

and the families who attended had 

a fantastic time. 

Beth from Fun Run said: “It’s great that The 

Fun Run can support families of children 

with additional needs. The Fun Run wants 

to help parents get the best out of family 

life and this is a perfect opportunity to 

offer them support.” 

Rosie Ireson-Turrell, locality information 

officer for Goole and Haltemprice said: 

“It was fantastic to see families sharing 

quality time together and enjoying having 

exclusive use of the facilities. 

The Fun Run is very accessible for those 

with additional needs so it makes a good 

meeting place for families. 

I hope that the RUN AHEAD group will 

grow in size and grow to meet the needs 

of the families who attend.” 

The families who attended had a great 

time sharing stories and having a good play 

together as well as tiring their kids out to 

make for a more peaceful bedtime! 

What parents said: 

“I was pleased that my son could 

run off some excess energy and that 

he was allowed to use the facilities 

without socks on – this often stops 


him from being allowed on play 

equipment.” 

“It meant a lot to us to have family 

time together in a relaxed and well 

thought out space.” 

RUN AHEAD is open to all families who 

have children with additional needs. It’s a 

FREE informal play session for all the family 

to attend. 

Brothers and sisters AND mums and 

dads are all very welcome, as the play 

equipment is suitable for big kids and little 

kids alike! 

The next date for RUN AHEAD is 

21 March. For more details please 

contact FISH (01482) 396469. 

9


Changing Places 

Standard disabled toilets do not meet the needs 

of all people with a disability – or their carers. 

Changing Places toilets are different to standard 

disabled toilets. 

They provide: 

The right equipment: 

• A height adjustable changing bench 

• A tracking hoist system, or mobile hoist if this is 

not possible. 

Enough space: 

• Adequate space in the changing area for the 

disabled person and up to two carers 

• A centrally placed toilet with room either side 

for the carers 

• A screen or curtain to allow the disabled 

person and carer some privacy. 

A safe and clean environment: 

• Wide tear off paper roll to cover the bench 

• A large waste bin for disposable pads 

• A non-slip floor. 

Ok, so where do I find my nearest changing places? 

For an up to date list of changing places please 

vist the changing places website www.changingplaces.org 

or telephone 020 7696 6019 or email 

ChangingPlaces@mencap.org.uk 

At the recent parent carer event, locality information officers were asked what 

family support is available in Hull. Below are just some on offer. 

Family support 

Kids Advocacy and Children’s Rights 

Service 

(KIDS) 

182 Chanterlands Avenue 

Hull HU5 4DJ 

Tel: (01482) 467540 

Email: enquiries@kids.org.uk 

Little Sunbeams 

The Parks Children Centre 

Courtway Road 

Orchard Park Estate 

Hull HU6 9TA 

Tel: (01482) 803978 

National Autistic Society 

Hull and East Riding Branch 

Tel: 07917 040380 (Jackie) 

Email: hulleastriding@nas.org.uk 

Parents in Touch – organised by 

SENSA (Special Educational Needs 

Support and Advice) 

53 Link Road. Cottingham. 

Hull HU16 5AX 

Tel: (01482) 475181 

This service provides advocacy for disabled children and young people 

aged 8 to 16 years who either live with foster carers, stay away from 

their family for short breaks, or who live with carers all the time. 

Referrals can be made directly by telephone or by sending an email. 

The Little Sunbeams group meet on a Wednesday during the school 

holidays and offer parents, carers and disabled children friendly, 

understanding support. You are welcome to drop-in on your own or with 

your child, any time between 10am - 12noon. No need to book. 

The National Autistic Society offers a local support group for families 

at The New Clarence pub in the city centre. The group is held from 

7pm-9pm on a Tuesday evening. Please contact the provider for more 

information as to when the dates of the meetings are due to be held 

There is also a parent support group that runs monthly at Fenchurch 

Street Children’s Centre between 10am and 12noon. Please contact the 

society for more information. 

A support group for parents which aims to enable parents to make 

contact with other parents. The group has been launched by SENSA. 

SENSA is open Monday to Friday 9.30am – 4.30pm in term time. 


InclusiveYouth 

Theatre Club LIVE 

on Vixen 101 

On 18 December at Pocklington Arts Centre, 

members of the Inclusive Youth Theatre Club turned 

up and answered questions live with DJ Tony Barker 

of Vixen FM. 

They performed a drama piece and sang the song 

Star Maker from their Christmas performance. 

LOOK OUT for Mimika Theatre 

FISH locality information officer Rosie Ireson-Turrell, 

has been liaising with Junction to run a special 

performance of Small Worlds performed by Mimika 

Theatre. 

Small Worlds is an immersive piece of theatre for 

school children in years one to six, featuring 

non-verbal stories about the first steps into a 

bigger world. 

Taking place inside a large white tent, each story 

is told using a combination of puppetry, animation, 

music and visual effects. 


They finished off by singing ‘We Wish You a Merry Christmas’. 

The team also performed their show ‘Inclusive High’ on 17 and 24 

January at Pocklington Arts Centre and received much praise from 

those who came to see them. 

“It was a pleasure to watch and see how the children had a strong 

sense of teamwork, you all deserve medals for the confidence you have 

installed in our children.” 

“My daughter has had her confidence increased and met new people 

and made new friends.” 

“Loved the production from start to finish and it was clear the children 

did too.” 

For more details please contact 07866 358434 

wearetheatre@googlemail.com 

This is an experience rich in content, detail and 

atmosphere. Mimika Theatres have performed 

this all over the UK and abroad. 

Mimika Theatre is made up of a great mix of trained 

teachers and experienced theatre-makers, so their 

work is both educational and of high artistic quality. 

Watch out for details via your child’s school. 

The performance at Junction, Goole on 23 March 

7pm is free to LOOK AHEAD parent carers. 

Please call FISH on (01482) 396469 to book. Places 

are strictly limited, so tickets will be issued on a firstcome, 

first-serve basis. 

11

HELPINGYOUR CHILD AT SCHOOL 

Individual Education 

Plans – what should I 

expect? 

By Amanda Ward, Parent Partnership 

co-ordinator 

The Special Educational Needs Code of 

Practice (see end of article for details) sets 

out guidance for early learning and childcare 

settings and schools on meeting children’s 

Special Educational Needs (SEN). 

This includes making arrangements to 

identify, assess and make provision for 

children with SEN. Schools can decide how 

best to respond to their duties according to 

their circumstances, priorities and ethos. 

Central to their work is a continuous cycle 

of planning, teaching, assessing and 

evaluating pupils. Individual Education Plans 

(IEPs) can support schools in this process. 

What is an Individual Education 

Plan (IEP)? 

The code describes an IEP as a planning, 

teaching and reviewing tool that teaching 

staff should use to help them to plan the 

education for children with SEN. 

It identifies a child’s immediate learning 

needs and the special arrangements and 

help needed that are additional to or 

different from the curriculum for all children. 

Children at School Action, School Action 

Plus, or who have a statement of special 

educational needs should have an IEP. 

What is a provision map? 

If your child’s school decide not to write an 

IEP they must keep a record of identification, 

assessment and provision in another form. 

A provision map is an ‘at a glance’ way of 

showing the range of provision the school 

makes for children with special/additional 

needs, through specialist programmes 

(sometimes called ‘interventions’),small 

group work, peer support and teaching 

assistant support. 

It does not replace individual target setting 

but may be used by the school to show you 

how they are helping your child, the targets 

they have set and what progress is being 

made. 

What information does an IEP 

include? 

The IEP should focus ahead (an action plan) 

rather than look back (a review) and include: 

12 www.fish.eastriding.gov.uk (01482) 396469 

• 

• 

• 

• 

• 

• 

Three or four short-term targets for 

your child (small steps that your child 

can achieve) 

What additional/different help will be 

given, eg specialist programmes 

How often your child will receive the 

help 

Who will provide the help 

(eg teaching assistant, class teacher, 

SENCO) 

How and when your child’s progress will 

be checked 

The help you can give your child at 

home.

How can I be involved? 

Your child’s school Special Educational 

Needs Co-ordinator (SENCO) will 

usually write the IEP after talking to class or 

subject teachers and other outside 

agencies who may be working with your 

child (for example, educational 

psychologist, speech and language therapist). 

You should be invited to contribute your 

views and to be consulted about the targets 

and how your involvement can help your 

child. 

You can ask to see a support time table 

which might be in the form of a provision 

map, showing when your child is receiving 

individual support or when they are 

working in small groups. 

It is important that you know what your 

child is working towards and feel clear about 

how you can help to achieve this. 

How can my child be involved? 

Your child should, where possible, participate 

in agreeing targets and reviewing their 

progress. 

You and the school can help your child to 

think and talk about what has gone well and 

where they might need help. 

Successes can then be celebrated with your 

child and support for areas of need agreed. 

My child has a statement of SEN. 

Should the school still write an 

IEP? 

All children with statements of SEN, 

whether they are attending main stream 

or special schools, should have short-term 

targets set, linked to the longer term targets 

in their statement. In the majority of cases 

HELPINGYOUR CHILD AT SCHOOL 

the strategies to meet these targets will be 

set out in an IEP. 

Your child’s statement should specify under 

the ‘Monitoring’ section in part 3 that the 

school should involve you in drawing up and 

reviewing the IEPs or other action plans. 

When is the IEP reviewed? 

Your child’s IEP should be reviewed at least 

twice per year. Some schools will review 

these every term, ie three times per year. 

The review will consider your child’s 

progress against the targets. Future targets, 

support and resources will be agreed. 

It will also provide an opportunity to 

consider whether your child continues to 

need interventions that are additional to 

or different from the curriculum for all 

children or whether there is a need 

to request information and advice from 

other professionals or agencies that can 

help your child. 

Copies of the SEN Code of Practice can be 

obtained free of charge by contacting FISH 

or from the Department for 

Education 

publications order line tel: 

0845 60 222 60. 

For more information about 

IEPs and meeting your child’s 

SEN in school please get 

in touch with Amanda 

Ward, parent partnership 

co-ordinator tel: (01482) 

392108, email:parent. 

partnership 

@eastriding.gov.uk, website: www.fish. 

eastriding.gov.uk/parent-partnershipservice. 

13

MONEY MATTERS 

Help for families who need us the 

most 

At the Family Fund, we know that almost 

all families with disabled children and 

young people face some form of financial 

difficulty. Families struggle with the extra 

costs of raising disabled children, which 

can be at least three times higher than for 

other children. 

We know that there are so many families 

that need our help and we have always 

tried to make sure that our fixed funding 

is spent fairly and wisely on supporting 

families on the lowest of incomes. 

In these difficult economic times, more 

and more families are coming to us for 

help, to meet the cost of the most basic 

of needs. Many of these families are raising 

more than one disabled child or have 

larger families. Their need is great, but their 

household income is outside of the Fund’s 

income limit. 

Because of this, the fund has worked 

closer with families, and third party 

organisations, to ensure our grants 

are accessible to families that need us the 

most. 

To make sure we are helping families who 

are on the lowest of incomes and in the 

greatest need, the fund will be making a 

change to its income criteria and will now 

be guided by a family’s entitlement to 

government financial support in the form 

of benefit and tax credits. 

This means that we will now consider a 

grant application from any family caring for 

a disabled child or young person aged 17 

and under in England, Northern Ireland, 

Scotland and Wales, where they are 

eligible for, and can send us evidence of 

entitlement to one the following: 

Child Tax Credit, Working Tax Credit, 

Income based Job Seekers Allowance, 

Income Support, Incapacity Benefit, 

Employment Support Allowance, Housing 

Benefit and Pension Credit. 

Families must still however meet all our 

other eligibility criteria in order to be 

eligible. 

For more information please visit 

www.familyfund.org.uk 


New online safety resources 

launched for young deaf 

people and those with special 

educational needs. 

Vulnerable children are being taught how to 

stay safe online thanks to two new 

educational films and teaching resources 

launched by the Child Exploitation and 

Online Protection (CEOP) centre – the 

UK’s national centre for child protection. 

The resources have been created by CEOP 

in the recognition that vulnerable young 

people and those with additional needs and 

learning difficulties can be more susceptible 

to abuse* making the provision of online 

safety messages in a variety of formats 

especially important. 

Specialist child protection agencies and 

organisations who work with children with 

additional needs, learning difficulties and 

deaf young people, including the NSPCC, 

Mencap, the National Deaf Children’s 

Society and Triangle, have worked with the 

CEOP Centre to create two new films – 

‘Know Your Friends with Josh and Sue’ - 

for young people with special educational 

needs and learning disabilities. 

‘Sam’s Real Friends’ - for young deaf people. 

Although previous CEOP educational films 

have been subtitled, this is the first time such 

resources have been created specifically 

relating to online safety for children with 

additional needs. 

‘Know Your Friends with Josh and Sue’ is a five 

minute-long animated film depicting two 

friends who are the victims of cyberbullying 

NATIONAL 

and inappropriate contact online. Three 

versions of the animation have been created 

to cater for children of all needs and these 

include mild to moderate, moderate to 

severe and audio only. 

‘Sam’s Real Friends’ is a longer film and 

concentrates on a young boy who 

experiences the same issues of 

cyberbullying and inappropriate contact 

online. All actors use British Sign Language 

and there are also two versions of the film 

available, subtitled and non-subtitled. 

Accompanying lesson plans and suggested 

activity sheets are also available for each 

resource, allowing teachers and parents to 

work through the films with children in their 

care. 

*Children with any type of disability are over three 

times more likely to suffer some type of abuse 

compared to children without disabilities. 

Sullivan and Knutson, 2000. 

Please visit http://www.thinkuknow. 

co.uk/teachers/resources/ to view 

these films.You will need to register 

your details with the website first. 

For help logging on and downloading 

content please call FISH. 

15

NATIONAL 

Digital switchover help 

As the TV digital switch over comes 

to our area on 3 August 2011, 

do you know about what help is 

available to switch? 

Am I eligible for the Help Scheme? 

You are eligible for the switchover Help 

Scheme if you: 

• Are aged 75 or over, or have lived 

in a care home for six months or 

more, 

Reading Corner 

or 

• Are registered blind or partially 

sighted, or get (or could get): 

• Disability Living Allowance (DLA), or 

• Attendance or Constant Attendance 

• Allowance, or Mobility supplement 

Still unsure? We’re here to help! 

For more details, please visit 

www.helpscheme.co.uk/ 

If Only I’d Known That aYear Ago… 

Author: John Stanford Price: £9.99 Published by RADAR 

An introduction to the many services, rights and facilities which can 

help people dealing with unexpected ill-health, injury or disability to 

lead as independent a lifestyle as possible. 

All too often people who become disabled are unaware about the 

many services that could help them lead an independent lifestyle. 

This book signposts to valuable support and specialist information on housing, 

benefits, rights, social care, discrimination, education and training, employment, 

equipment, holidays and leisure, health care, legal services, relationships, transport and 

motoring, plus many other services. 

If Only I’d Known That a Year Ago shows that many millions of people have been 

through this process and have come through the other side. 

Life may not be as it was before, but there are many opportunities for changes to give 

choice and control back to your life and work as a partner, a parent, a friend, or an 

active member of a community. 


AIMING HIGH FOR DISABLED CHILDREN 

Aiming High for Disabled Children 

by Sharon Martin 

Aiming High for Disabled Children was a national three year initiative which is due 

to end on 31 March 2011. In the East Riding we have kept you up to date in this 

newsletter with the support services and activities that have developed due to the 

extra funding that local authorities received and we hope these have made a 

difference to families. 

Short Break and parent carer sustainability grant 

This was introduced as part of Aiming High for Disabled Children in the East Riding 

and was a chance for families to apply for a one off grant of up to £200. In two 

years this grant has supported over 135 families to have funding for an activity to 

provide a short break or help the parent carer. 

The current Short Break and parent carer sustainability grant panel met for the 

last time on 1 March 2011 and unfortunately no further applications can now be 

submitted. 

Life Skills grant 

As well as Short Breaks, Aiming High for Disabled Children also wanted to improve 

the move to adulthood for young people. 

In the East Riding we recently offered families 

registered on LOOK AHEAD with a child aged 

14 and over the chance to apply for a one off 

grant which would help improve the young 

person’s life skills or try a new experience. 

The Life Skills grant has been given to over 65 

families and some of these young people will 

now be able to enjoy such things as drumming 

lessons, art materials, new walking boots, a 

sewing machine, basketball net, swimming 

lessons and lots more exciting things. 

17

SHORT BREAKS AND DCATCH 

Short breaks activities update 

By Janet Gravel, project and practice 

development officer 

As we are coming to the end of the 

Aiming High funding I would like to remind 

you that a number of the Short Break 

Activities from the Short Breaks Grant 

Scheme have programmes planned until 

31 March 2011. 

The timescale for these varies from a 

couple of hours to a full day. 

Please contact the groups direct and ask to 

be put on their mailing lists; details are in 

the Activities for Children and Young People 

with Additional Needs Booklet on the FISH 

website. 

I would like to thank all of you who 

attended the ‘Inclusion not Exclusion’ 

information and networking event at 

the Country Park Inn at Hessle on 18 

November 2010. 

The support from ERVIP was greatly 

appreciated. Presentations and photographs 

from the day are available to download 

at the ERVAS website - www.ervas.org. 

uk. Look under ‘downloads’ then select 

‘Inclusion not Exclusion’. 

Work is continuing to try and ensure 

sustainability for the activities from 1 April 

2011; the groups are awaiting the outcome 

of funding applications. Thank you for your 

comments during the workshops at the 

parent carer event on the 12 January. 

DCATCH (Disabled Children’s Access 

to Childcare) 

The Childcare Act 2006 imposes a duty on 

local authorities to secure provision of 

sufficient childcare to meet the 

requirements of all parents in their area 

who wish to take up, or remain in work or 

to undertake education or training that may 

lead to work. 

Section six specifically requires local 

authorities to secure childcare provision 

up to the age of 18. For 2010/11 all local 

authorities received a small amount of grant 

funding to improve childcare for disabled 

children. 

The aim in the East Riding is to provide a 

full range of childcare options that allow 

parent carers in work or training to have 

appropriate choices. 

In August 2010 a DCATCH working group 

was set up in the East Riding which includes 

Brenda Cullen from ERVIP. Letters were sent 

out to childcare settings inviting them to a 

DCATCH information sharing evening on 

13 October 2010 at Tickton Grange. 

All who attended were asked to complete 

a DCATCH checklist with an action plan 

which identified the training needs and 

equipment required for supporting children 

and young people with additional needs/ 

disabilities. 

A number of ERVIP members also attended 

the evening giving support and answering 

questions when the checklists were being 

completed. 


From the checklists the DCATCH working 

group arranged a programme of training 

which began on 9 November 2010 and 

continues until 30 March 2011. 

Equipment for childcare settings is being 

purchased on an individual needs basis. 

SHORT BREAKS AND DCATCH/SEN UPPER AGE LIMITS 

The plan is also to buy equipment/resources 

that can be part of the children’s centre toy 

libraries and be loaned by professionals and 

parent carers across the East Riding. 

Further details will follow. 

At the end of the DCATCH 

programme the FISH database will hold 

the information from the checklists – for 

example training courses attended and 

equipment available for childcare settings to 

help you make your childcare choice. 

Parent carers can contact 

Janet directly on (01482) 396725. 

Alignment of SEN and children social 

care services upper age limits 

East Riding of Yorkshire Council’s Children’s Families and Adult Services (CFAS) directorate 

approved the alignment of SEN (Special Educational Needs) and disabled children social 

care services with effect from 1 October 2010. Previously the upper age limit for disabled 

children social care was 18 years of age and for SEN 19 years. 

This was confusing, especially for families with children going through the transition to 

adulthood. 

What does this mean? 

Young people subject to a SEN statement and receiving children’s social care will continue 

to be the responsibility of children’s services until their nineteenth birthday. 

This is for the purposes of assessment and care provision and should be identified in the 

transition plan and be in the best interests of the young person and their family. 

Connexions will continue to offer advice, guidance, information and support to young 

people with SEN and disabilities up to 25 years of age. 

Families will continue to receive LOOK AHEAD services until their child’s nineteenth 

birthday. However they will also be registered, unless they choose to opt out, with the 

adult carers support service when their child reaches 18 years of age. 

It is anticipated that by aligning the upper age limit a smoother transition to adulthood for 

disabled young people will be achieved. 

19


Scope Response 

Scope Response is a free and unique 

service that offers impartial and expert 

information, advice and support to 

disabled people and their families. 

It is a gateway to all Scope services. 

Penny Dickinson is the Scope regional 

response worker in this area; her role 

is to offer in depth support to people 

with cerebral palsy, their families and the 

people working with them. 

She can also offer a home visit to 

families who have recently received a 

diagnosis of cerebral palsy to talk over 

Echoes supporting families 

To be given the news that your child has a 

disability or special needs can be a 

devastating blow. It can feel very isolating 

and you may be unaware how to navigate 

through the available services. 

The Echoes Foundation aims to help 

parents of children with special needs, to give 

support and put them in contact with other 

parents in a similar situation. 

It is well documented that the best 

emotional support for these parents comes 

from other parents. 

By networking a lot of information is gained, 

tips and tricks as well as general support and 

an empathetic ear. 

the many issues that arise at that 

time. 

Individuals, families and professionals 

can get in touch with Scope Response 

through our helpline and receive 

support in a number of different ways 

– some issues will be dealt with by the 

Response helpline (for example funding 

searches and general enquiries) others 

will be referred to Penny for more indepth 

support. 

You can contact Scope Response 

on tel: 0808 800 33 33 or email: 

response@scope.org.uk. 

The Echoes Foundation will support not 

only the children, in getting the services and 

therapies they deserve but also the parents 

to enable them to navigate the world of 

disability and get the best for their child. 

They also offer support to the extended 

family including nannas, grandads, aunts, 

uncles and siblings, after all having a disabled 

child affects everybody in the family. 

For more information please call 

(01482) 505589 

www.echoesfoundation.co.uk 


Special Smiles 

is a community 

social group for 

children who 

attend special 

schools and their 

siblings (aged four 

- 18). 

They hold regular social, fun and educational 

outings including days out and weekends 

away. 

Families are welcome every Tuesday at 

Just4fun (Bergen Way, Sutton Fields, Hull) 

5 – 7pm for two hours of play, fun, exercise 

and a FREE meal and drink for the children. 

Swimming 

is every 

Wednesday 

at Ennerdale 

Leisure Centre 

(Sutton Road, 

Hull) 5 – 

6.30pm with 

exclusive use 

of the small 

pool 

SPORT AND PLAY 

For more details please visit: 

www.special-smiles.co.uk, or call 

Sandra on (01482) 844985 or Caroline 

on (01482) 669913 

mobile 07949 275025. 

Mountain biking in Dalby Forest 

Moors Mountain Biking, based in the NorthYorkshire Moors, has tandem mountain bikes for 

hire. For people with or without a disability, the bikes are full suspension Ventana tandems 

(pictured) built in the USA. Graham Pollard of Moors Mountain Biking said: “Mountain biking is 

a great way of exercising and experiencing the sights, smells and feelings that the forest has to 

offer.” 

The tandems allow people from all walks of life to experience the exhilaration of outdoor life. 

Anyone over the age of ten can take part. 

There are ‘risk assessed’ routes in Dalby 

Forest that suit all abilities. These routes 

are ideal for trying a ride to see if it suits 

you. 

Book a bike through Moors Mounain 

Biking and you’ll also get FREE entry to 

Dalby Forest. 

For more details please call 

Graham Pollard at Moors Mountain 

Biking on tel: 07944 968737 or visit 

www.moorsmountainbiking.co.uk. 

21

SPORT AND PLAY 

From the play action team 

We are based in Withernsea and offer a 

FREE innovative mobile play project to 

youngsters to choose, design and build 

their own environment/activities. 

We provide the Portable Snug 

equipment to children living in isolated 

towns and villages throughout the 

Holderness area who are currently 

struggling to access innovative play 

equipment. 

Over 3000 children and young people 

have accessed the innovative portable 

play sessions which include alternative 

activities such like arts and crafts, 

modelling making, face painting and 

plenty more. 

Along with the sensory equipment 

which is becoming increasingly popular, 

we have recently bought a sensory tent 

and sensory equipment. 

T el: ( 01482) 396469 


Parent carer of a child with additional needs? 

Ensure that you are receiving your full entitlements! 

You can join the Shop & Save scheme, Passport to Leisure and more! 

Contact us (01482) 396469 


email fish@eastriding.gov.uk 

This can provide a memorable 

experience for disabled children and 

young people. On occasions the sensory 

equipment has also been enjoyed by 

able bodied children and young people, 

which encourages inclusion of all 

children at our sessions. 

These sessions run between January 

2011 until April 2011 

Monday 

Prospect School- Withernwick 

(for the school children only) 

Tuesday 

Find group Beverley - (for the pupils 

only) 

Burton Pidsea Village Hall after school 

session (open to all) 

Thursday 

Welwick youth club at the village hall 

(open to all) 5 - 6.30pm 

Friday 

St Annes Special School - (for pupils 

only) 

For further information please 

call Gemma on: 07817 804437 


MARCH 2011 LOOK AHEAD CONTACTS 

Organisation Telephone Email/website 

CONTACTS 

FISH (01482) 396469 fish@eastriding.gov.uk / www.fish.eastriding.gov.uk 

Parent Partnership Service (01482) 392108 parent.partnership@eastriding.gov.uk 

ERVIP 07813 676941 sjwervip@hotmail.co.uk 

Puppets, Plays and Story Days (01482) 860513 www.puppetsplaysandstorydays.co.uk 

Boparan Trust www.theboparancharitabletrust.com 

Junction (01405) 763652 www.junctiongoole.co.uk 

The Fun Run (01405) 780700 www.thefunrunltd.co.uk 

Inclusion Youth Theatre 07866 358434 wearetheatre@googlemail.com 

Family Fund www.familyfund.org.uk 

Child Exploitation and 

Online Protection (CEOP) 

www.thinkuknow.co.uk 

Scope response 0808 800 33 33 response@scope.org.uk 

Special smiles (01482) 844985 www.special-smiles.co.uk 

Moors mountain biking 07944 968737 moorsmountainbiking@gmail.com 

Play action 07817 804437 

Goole Splashers (01430) 430881 

East Riding of Yorkshire Council will, on request, provide this document in Braille, large 

print or in audio. Please call 0800 849 5060 if you require this. 

Jeste´smy tu, by Tobie pomóc. Naszym celem jest udzielenie ka˙zdej osobie 

doste˛pu do naszych usl/ug. Je´sli z˙yczysz sobie tl/umacza, prosimy zadzwonić na 

ten numer 0121 377 2880. 

23

Disabled swimming clubs 

Goole Splashers 

encourages people 

with any disability to 

enjoy swimming for 

leisure, therapy or 

competition in a safe 

and friendly 

environment. 

They provide help or 

supervision as required 

for individual members to ensure maximum 

benefit and fun from each session. 

The club is one of four in the East Riding of 

Yorkshire Disabled Sports Association 

(ERYDSA), which actively fund raises to 

provide sport opportunities for people with 

disabilities. They rely on subscriptions and 

fundraising to help pay for sessions, club insurance, 

social events and any pool 

equipment needed. 

Their affiliation to Disability Sport England 

provides access to training and competition 

on a regional, national or international basis. 

The club caters for a wide range of 

disabilities – temporary or permanent 

– from arthritis, MS or limb injury 

rehabilitation to learning or sensory 

disabilities – all are welcome. 

Goole Splashers club takes place in 

Goole Leisure Centre on Mondays, 7 - 

8.30pm - all ages welcome. 

For further information about Goole 

Splashers please call Val Longden on 

(01430) 430881. 

Other groups available in East Riding 

Leisure Centres: 

Beverley Unbeatables - Mondays 7 - 8.30pm 

(10yrs +), Beverley Leisure Complex. 

(01482) 846900 

Haltemprice Dolphins - Thursdays 7.30 - 

9pm (all ages), Haltemprice Leisure Centre. 

(01482) 561775 

Driffield Octopuses - Fridays 6 - 7.30pm 

(all ages), Driffield Sports Centre. 

(01377) 255192

March 2011 - East Riding of Yorkshire Primary Care Trust

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