17.06.2014 Views

printer-friendly version (PDF) - Reflex Sympathetic Dystrophy ...

printer-friendly version (PDF) - Reflex Sympathetic Dystrophy ...

printer-friendly version (PDF) - Reflex Sympathetic Dystrophy ...

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

RESOURCES | CRPS<br />

RESOURCES FOR CRPS<br />

Organizations<br />

<strong>Reflex</strong> <strong>Sympathetic</strong> <strong>Dystrophy</strong> Syndrome Association of America (RSDSA)<br />

RSDSA provides comprehensive information on education, treatment, and research for practitioners and lay people. Information is available as print<br />

pieces or on their website, www.rsds.org. RSDSA publishes a quarterly newsletter, a bi-monthly electronic newsletter and several brochures and<br />

booklets. One of its landmark publications, In Pain, Out of Work, Can’t Pay the Bills, is a resource directory for people who are financially devastated by<br />

CRPS. The organization’s web-housed article archive has more than 80 peer-reviewed articles on various aspects of CRPS.<br />

Address: 99 Cherry St. • Milford, CT 06460<br />

Telephone: 877-662-7737<br />

Email: info@rsds.org<br />

Website: www.rsds.org<br />

International Research Foundation for RSD/CRPS<br />

This is a nonprofit organization dedicated to education and research on <strong>Reflex</strong> <strong>Sympathetic</strong> <strong>Dystrophy</strong> and Complex Regional Pain Syndrome. The primary<br />

mission of the Foundation is to establish an international research network which will help educate medical professionals and support research worldwide.<br />

Address: USF Medical Clinics c/o Dr. A. Kirkpatrick<br />

12901 Bruce Downs Blvd., MDC59 • Tampa, FL 33612<br />

Telephone: 813-907-2312<br />

Email: info@rsdfoundation.org<br />

Website: www.rsdfoundation.org<br />

National Institute of Neurological Disorders and Stroke (NINDS)<br />

The mission of NINDS is to reduce the burden of neurological disease. NINDS has a listing of clinical trials for neuropathic pain. The information page<br />

that has been condensed from its former fact sheet. It also has a list of clinical trials recruiting people with CRPS.<br />

Address: NIH Neurological Institute<br />

P.O. Box 5801 • Bethesda, MD 20824<br />

Telephone: 800-352-9424 or (301) 496-5751<br />

Website: www.ninds.nih.gov/<br />

National Organization for Rare Disorders (NORD)<br />

NORD is a clearinghouse for information concerning disorders affecting fewer than 200,000 individuals worldwide and features valuable information<br />

on CRPS.<br />

Address: National Organization for Rare Disorders<br />

55 Kenosia Avenue • PO Box 1968 • Danbury, CT 06813-1968<br />

Telephone: 203-744-0100<br />

Tollfree: 800-999-6673 (voicemail only)<br />

Email: orphan@rarediseases.org<br />

Website: www.rarediseases.org<br />

For Grace<br />

For Grace is a nonprofit organization devoted to raising awareness of <strong>Reflex</strong> <strong>Sympathetic</strong> <strong>Dystrophy</strong> in the medical community and general public.<br />

Address: For Grace<br />

PO Box 1724 • Studio City, CA 91614<br />

Telephone: 818-760-7635<br />

Email: rsdaware@forgrace.org<br />

Website: www.forgrace.org<br />

American RSDHope<br />

This nonprofit group is made up of patients, parents and friends whose mission is to spread information to anyone and everyone who asks or will listen.<br />

Address: American RSDHope<br />

PO Box 875 • Harrison, ME 04040<br />

Email: rsdhope@mail.org<br />

Website: www.rsdhope.org<br />

Promoting Awareness of RSD and CRPS in Canada<br />

Website: www.rsdcanada.org/parc/english/index.html<br />

Books<br />

Living With RSDS, A guide to coping with <strong>Reflex</strong> <strong>Sympathetic</strong> <strong>Dystrophy</strong> Syndrome, by Linda Lang and Peter Moskovitz, MD. This book is available<br />

from the RSDSA home office for $15 or from Amazon.com.<br />

Positive Options for <strong>Reflex</strong> <strong>Sympathetic</strong> <strong>Dystrophy</strong> (RSD): Self Help and Treatment, by Elena Juris. This book is available from Amazon.com.<br />

Medifocus Guide—contains over 90 pages of information including a clear description of the condition, treatment options, the latest research and a<br />

worldwide directory of RSDS professionals. It is available from the RSDSA website, www.rsds.org.<br />

86 | T H E PA I N P R A C T I T I O N E R | S P R I N G 2 0 0 6

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!