Untitled - Cerebral Palsy League

In August, the State CCC created a celebratory atmosphere
for the 10th Annual Client Convention, with the theme of
“Making our Mark in Many Ways, Where to From Here” Her
Excellency, Ms Quentin Bryce AC, Governor of Queensland
and League Patron officially opened the event.
The State CCC used the Convention to gather input from all
representatives on the future direction of client consultation
processes. It then developed a discussion paper seeking
comment from across the League, which in turn informed
the State CCC Annual Planning Day in January.
The State CCC reviewed the format of future Client
Conventions and regional workshops in consultation with
clients, and was pleased to jointly host a workshop on the
Gold Coast with Adults South region.
Queensland Cerebral Palsy Register
The past year has been one primarily focused on the
establishment of the Australian Cerebral Palsy Register. In
October 2006 the Australian Cerebral Palsy Register group
met in Brisbane at a meeting organised by the Queensland
Cerebral Palsy Register. The two primary goals of the meeting
were to bring a greater understanding of the Queensland
Cerebral Palsy Register and the potential functions of the
Australian Cerebral Palsy Register to clinicians and service
providers in Queensland. Almost 50 people attended the
two-day meeting with a tele/video conference sponsored
by the Queensland Royal Children’s Hospital reaching
clinicians in Cairns and Townsville as well as many attending
the session in Brisbane. The process was successful,
specifically in achieving more registrations from both Cairns
and Townsville.
Cerebral Palsy League of Queensland ( 22 )
The State CCC finalised the Terms of Reference and the Roles
and Responsibilities documents, and has commenced a review
of the Charter for Client Consultation and CCC brochure.
The League commitment to client consultation remains strong
as always. A warm thank you is extended to all representatives
who volunteer their time to provide invaluable input to
discussions and decision-making.
Parents and Guardians Association
The Parents and Guardians Association continued to
support the League in a range of activities and met regularly
throughout the year. President, Joan Williams and Secretary,
Carol Barton liaised regularly with the CEO and Chairperson
of the Board of Directors and attended Management Liaison
Meetings and the Fig Tree Pocket Redevelopment User
Group.
Some younger parents enthusiastically attended meetings
and the Association continued to welcome new members
interested in discussing the ongoing provision of quality
services to clients.
The League wishes to express sincere thanks to members for
their ongoing commitment.
The meeting of the Australian Cerebral Palsy Register
participants brought about two primary decisions. Firstly,
that the manual ability classification scale (MACS) will
be included in the register once those technical issues of
including it in the website are resolved and secondly,
that there would be a competitive process for hosting the
Australian Cerebral Palsy Register. That process took several
months, however it was finally decided that New South
Wales would host the Australian Cerebral Palsy Register and
that each state and territory would contribute de-identified
data as was originally proposed.
In Queensland, registrations continued although significantly
more slowly than in previous years. Currently the QCPR has
almost 1300 registrations with much of the team’s work
focused on completing registrations that were submitted
without full data. The focus has been on the 2003 and 2004
birth years and at 30 June 2007, exactly 50 percent of the
2003 registrations were complete.
Library Service
The Cerebral Palsy League of Queensland Library provides
a specialised information service for clients, carers, families,
staff, professionals and other agencies interested in finding
out more about cerebral palsy and related issues.
The CPLQ Library provided access to research and information
in preparation for a number of League staff presenting at the
2007 CP Australia National Conference. The presentations
concentrated on current research and innovative service
delivery.
The Information and Resource Coordinator continued to
evaluate the collection. A stocktake of resources will be
Pictured: Information and Resource Coordinator, Deb Cronan with
new resources granted by the Gambling Community Benefit Fund.