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Novita Research Report January 1999 - Novita Children's Services

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overview of research at novita<br />

<strong>Research</strong>, development and evaluation have been a vital part of high quality services provided by <strong>Novita</strong> Children’s <strong>Services</strong><br />

Inc, (formerly The Crippled Children’s Association of SA Inc). <strong>Novita</strong> provides therapy, equipment and family support services to<br />

over 1000 South Australian children and young people with physical and/or severe multiple disabilities. Children have cerebral<br />

palsy (approximately 65%), muscular dystrophy, spina bifida or other conditions that result in a permanent physical disability.<br />

4<br />

<strong>Novita</strong> employs occupational therapists, orthotists,<br />

physiotherapists, psychologists, rehabilitation engineers,<br />

speech pathologists, and social workers, totalling over<br />

150 staff. <strong>Services</strong> are delivered by multi-disciplinary teams<br />

of therapists in clients’ homes, kindergartens, and schools or<br />

other community settings. There are five regional offices in<br />

the Adelaide metropolitan area, with staff from each office also<br />

visiting one or more country areas to support country families<br />

and local service providers. In addition, <strong>Novita</strong> provides<br />

equipment services to children and adults through <strong>Novita</strong>Tech<br />

(formerly Regency Park Rehabilitation Engineering).<br />

Historically, research was undertaken by individuals or<br />

by key departments within <strong>Novita</strong>. A research culture was<br />

established by Dr Leon Stern, Medical Director, Dr Barry Seeger,<br />

Director of Regency Park Rehabilitation Engineering, and former<br />

Chief Executive, Dr David Caudrey. This was strengthened in<br />

1996 by the creation of a new <strong>Research</strong> and Development<br />

(R&D) Department within the Regency Park Rehabilitation<br />

Engineering division of <strong>Novita</strong>, now called <strong>Novita</strong>Tech, and<br />

then later in <strong>January</strong> <strong>1999</strong> with the establishment of the<br />

Clinical <strong>Research</strong> Department.<br />

<strong>Novita</strong>Tech’s new <strong>Research</strong> and Development<br />

Department was formed using staff from the Electronics<br />

Department, providing a much clearer focus for R&D efforts.<br />

The team aimed to maximise the usefulness and relevance<br />

of technology to the lives of people with disabilities by<br />

conducting meaningful research and product development.<br />

As a result of the history and experience of the team, there<br />

was a clear emphasis on projects and products related to<br />

electronics and computers.<br />

Since then, the R&D Department has continued to refine<br />

and improve its internal processes while making a significant<br />

contribution to research and development in the field of<br />

rehabilitation engineering. In recent years there has been a<br />

move to the employment of Rehabilitation Engineers as they<br />

graduate from the Flinders University School of Informatics<br />

and Engineering. Since its inception, the Department has<br />

seen an increase in the level of collaboration with academic<br />

institutions, an increase in the use of sub-contractors to<br />

ensure that professional standards are applied to all areas,<br />

and an increased requirement for marketing skills.<br />

The Clinical <strong>Research</strong> Department was established to enable<br />

a systematic research focus in the Therapy Division that ensured<br />

effective assessments, interventions and support were provided<br />

to clients and families. The Department aims to conduct<br />

research; facilitate a spirit of enquiry amongst therapists within<br />

<strong>Novita</strong>; and to reduce the research-practice gap with therapists.<br />

The Department encourages therapists to pose clinical questions<br />

and provides the support required to answer these questions in a<br />

systematic way. It also facilitates the implementation of outcomes,<br />

as well as evaluating the effectiveness.<br />

The Clinical <strong>Research</strong> Department manages research<br />

projects in a number of ways:<br />

1) Supporting and educating <strong>Novita</strong> therapists involved in<br />

providing direct services to clients who initiate research<br />

ideas and are often involved in doing the research;<br />

2) Conducting joint projects internally and with other agencies<br />

and academic institutions such as the Women’s and<br />

Children’s Hospital, the University of South Australia and<br />

Flinders University;<br />

3) Providing an interface and liaison between the external<br />

groups and students who initiate projects and the <strong>Novita</strong><br />

staff and families who may be involved in the study.<br />

<strong>Research</strong> projects are presented at bimonthly research<br />

seminars and biennial research days conducted by <strong>Novita</strong>; at<br />

state, national and international conferences; and published in<br />

newsletters and journals so that clients, their families, other staff<br />

and professional colleagues can benefit from the findings.<br />

Evaluating the evidence<br />

Evidence-Based Practice (EBP) is defined as “integrating<br />

best research evidence together with clinical knowledge and<br />

reasoning in providing assessments and interventions that<br />

are effective and efficient for particular clients”. To enhance<br />

evidence-based practice, <strong>Novita</strong> has focussed on:<br />

1) Staff Training in EBP • In July 2000, the Clinical<br />

<strong>Research</strong> Manager, the three research seniors and several<br />

physiotherapists from <strong>Novita</strong> attended a three-day course<br />

on EBP conducted by the School of Physiotherapy,<br />

University of SA. Over the subsequent four years, using a<br />

‘Train-the-Trainer’ model, most <strong>Novita</strong> therapists have been<br />

trained in EBP.<br />

2) Developing <strong>Novita</strong> Children’s <strong>Services</strong> Appraisal<br />

Forms to critically appraise research • The <strong>Research</strong><br />

Department found that the hierarchy of evidence model<br />

used in Evidence-Based Medicine, and the tools used to<br />

evaluate research, were not suitable to appraise research<br />

in disability. Via a process of evaluating existing tools, the<br />

Clinical <strong>Research</strong> department used an adapted appraisal<br />

form and the McMaster forms for all allied health discipline<br />

<strong>Novita</strong> Children’s <strong>Services</strong> Incorporated • <strong>Research</strong> <strong>Report</strong> <strong>January</strong> <strong>1999</strong> – June 2004

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